CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 101 - 125 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58663 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code

Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C58663 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code

Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 16:53:20.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58695 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain prevent activity past 7 day day count code

Code for the count of days over the past 7 days that the subject/participant was prevented by pain from engaging in activities, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C59538 Employment current status code

Code for the current status of the subject/participant's employment

Proposed 1.00 2019-04-10 14:31:49.0 PhenX Toolkit: Current Employment Status Sickle Cell Disease Sickle Cell Disease
C58667 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent duration code

Code for the duration of the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C58667 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent duration code

Code for the duration of the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 16:53:20.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C59554 Child reported maternal educational attainment code

Code for the educational attainment of the subject/participant's maternal figure as reported by the subject/participant

Proposed 1.00 2019-04-11 12:38:27.0 PhenX Toolkit: Child-Reported Parental Education Attainment Sickle Cell Disease Sickle Cell Disease
C59555 Child reported paternal educational attainment code

Code for the educational attainment of the subject/participant's paternal figure as reported by the subject/participant

Proposed 1.00 2019-04-11 12:38:27.0 PhenX Toolkit: Child-Reported Parental Education Attainment Sickle Cell Disease Sickle Cell Disease
C58666 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent interfere life code

Code for the extent to which the subject/participant's most recent pain episode or crisis interfered with his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C58666 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent interfere life code

Code for the extent to which the subject/participant's most recent pain episode or crisis interfered with his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 16:53:20.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58583 Human leukocyte antigen typing allele 1 code

Code for the first allele reported for the specified gene locus using the specified human leukocyte antigen (HLA) typing method.

Proposed 1.00 2018-10-23 12:00:40.0 HLA Form - 1507 Sickle Cell Disease Sickle Cell Disease
C59229 Help friends past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant and his/her friends helped one another

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59227 Feel accepted by peers past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant felt accepted by his or her peers

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59219 Feel whole life gone wrong past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant felt everything in his or her life went wrong

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59220 Feel lonely past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant felt lonely

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59214 Feel nervous past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant felt nervous

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59221 Feel sad past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant felt sad

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59216 Feel worried past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant felt worried

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59218 Feel worried at home past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant felt worried while at home

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59222 Difficult have fun past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant had difficulty having fun

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59226 Fatigue interfere enjoyment past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant had fatigue that interfered his or her enjoyment of activities

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59223 Fatigue interfere schoolwork past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant had fatigue that interfered with his or her schoolwork

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59225 Fatigue interfere sport exercise past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant had fatigue that interfered with sports or exercise

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59212 Feel dread past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant had unspecified feelings of dread

Proposed 1.00 2019-03-27 13:48:05.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59224 Tire easily past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant tired easily

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
Displaying 101 - 125 of 5231