|
C58671 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia all night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for the entire night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56349 |
NIH Toolbox Cognitive - Oral reading recognition english age 7 up unadjusted scale score |
The unadjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:52:47.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C20788 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Indecisiveness assessment past week scale |
The scale which represents how often the participant felt indecisive in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Supplemental - Highly Recommended |
1.00 |
2015-05-20 17:42:14.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56347 |
NIH Toolbox Cognitive - Oral reading recognition english age 7 up raw score |
The raw score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:52:47.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56329 |
NIH Toolbox Cognitive - Dimensional change card sort age 3 up national age adjusted percentage value |
The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Dimensional Change Card Sort Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:39:34.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56327 |
NIH Toolbox Cognitive - Dimensional change card sort age 3 up unadjusted scale score |
The unadjusted scale score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:36:24.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56324 |
NIH Toolbox Cognitive - Dimensional change card sort age 3 up raw score |
The raw score for the NIHTB Dimensional Change Card Sort 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:36:24.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58674 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think life better if healthy past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant thought his or her life would be better if he or she were healthy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-26 11:58:42.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56281 |
NIH Toolbox Cognitive - Cognition crystallized composite national age adjusted percentage value |
The national percentile (age adjusted) that the subject is in, with respect to the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:39:34.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56279 |
NIH Toolbox Cognitive - Cognition crystallized composite unadjusted scale score |
The unadjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:37:05.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56340 |
NIH Toolbox Cognitive - Picture sequence memory age 3 up raw score |
The raw score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:05:50.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56337 |
NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up national age adjusted percentage value |
The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:39:34.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56335 |
NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up unadjusted scale score |
The unadjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:52:47.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58682 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry health past 7 day scale |
Scale for the degree of worry the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-26 11:58:42.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56289 |
NIH Toolbox Cognitive - Cognition early childhood composite raw score |
The raw score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:50:27.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56287 |
NIH Toolbox Cognitive - Cognition fluid composite national age adjusted percentage value |
The national percentile (age adjusted) that the subject is in, with respect to the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:39:34.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58647 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry about become sick past 7 day scale |
Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56349 |
NIH Toolbox Cognitive - Oral reading recognition english age 7 up unadjusted scale score |
The unadjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:52:47.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56299 |
NIH Toolbox Cognitive - Cognition total composite national age adjusted percentage value |
The national percentile (age adjusted) that the subject is in, with respect to the Cognition Total Composite field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:39:34.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56345 |
NIH Toolbox Cognitive - Picture sequence memory age 3 up national age adjusted percentage value |
The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Sequence memory Age 3+ field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:39:34.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56297 |
NIH Toolbox Cognitive - Cognition total composition unadjusted scale score |
The total composite unadjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 10:00:48.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56295 |
NIH Toolbox Cognitive - Cognition total composition raw score |
The total composite raw score for the Cognition field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:58:36.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56290 |
NIH Toolbox Cognitive - Cognition early childhood composite computed score |
The computed score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery.
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:51:41.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58633 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joint very stiff daytime past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56285 |
NIH Toolbox Cognitive - Cognition fluid composite unadjusted scale score |
The unadjusted scale score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery
|
Supplemental - Highly Recommended |
1.00 |
2017-06-09 09:46:14.0 |
NIH Toolbox Cognitive Battery |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
