CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Outcomes and End Points
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure

5 results.
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field
C58664 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis last occur time elapse code ASCQMePnEpsdCrsLsOcTmElpsCode Code for the time elapsed since the subject/participant last had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Code for the time elapsed since the subject/participant last had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). When was your last pain attack (crisis)? X;1;2;3;4;5;6;7 I've never had a pain attack (crises);More than 5 years ago;1-5 years ago;7-11 months ago;1-6 months ago;1-3 weeks ago;Less than a week ago;I have one right now Alphanumeric Adult Proposed 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Outcomes and End Points Pain

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Pain Episode Frequency and Severity Measure PainEpisodeQ2
C58665 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent severity grade ASCQMePnEpsdCrsMsRctSvrGrade Grade of pain severity during the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Grade of pain severity during the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Using any number from 0 to 10, where 0 is no pain and 10 is the worst pain imaginable, how severe was your pain during your last pain attack (crisis)? X;0;1;2;3;4;5;6;7;8;9;10 I've never had a pain attack (crises);No Pain;1;2;3;4;5;6;7;8;9;Worst pain imaginable Alphanumeric Adult Proposed 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Outcomes and End Points Pain

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Pain Episode Frequency and Severity Measure PainEpisodeQ3
C58666 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent interfere life code ASCQMePnEpsdCrsMsRctIfrLifCode Code for the extent to which the subject/participant's most recent pain episode or crisis interfered with his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Code for the extent to which the subject/participant's most recent pain episode or crisis interfered with his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). How much did your last pain attack (crisis) interfere with your life? X;1;2;3;4;5 I've never had a pain attack (crises);Not at all, I did everything I usually do;I had to cut down on some things I usually do;I could not do most things I usually do;I could not take care of myself and needed some help from family or friends;I could not take care of myself and needed constant care from family, friends, doctors, or nurses Alphanumeric Adult Proposed 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Outcomes and End Points Pain

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Pain Episode Frequency and Severity Measure PainEpisodeQ4
C58667 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent duration code ASCQMePnEpsdCrsMsRctDurCode Code for the duration of the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Code for the duration of the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). About how long did your most recent pain attack (crisis) last? 1;2;3;4;5;6;7;X Less than 1 hour;1-12 hours;13-23 hours;1-3 days;4-6 days;1-2 weeks;More than 2 weeks;I've never had a pain attack (crises) Alphanumeric Adult Proposed 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Outcomes and End Points Pain

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Pain Episode Frequency and Severity Measure PainEpisodeQ5
C58663 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code ASCQMePnEpsdCrsPs12MoDyCtCode Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 12 months, how many sickle cell pain attacks (crises) days did you have? X;1;2;3;4 I did not have a pain attack (crises) in the past 12 months;1;2;3;4 or more Alphanumeric Adult Proposed 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Outcomes and End Points Pain

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Pain Episode Frequency and Severity Measure PainEpisodeQ1
5 results.
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