CDE Detailed Report
Disease: general-data-protection-regulation-gdpr
Sub-Domain: Outcomes and End Points
CRF:

5 results.
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field
C58644 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeless because health past 7 day frequency scale ASCQMeFlHoplsBcHlthPs7DyFrqScl Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you feel completely hopeless because of your health? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Outcomes and End Points Quality of Life/Patient Reported Outcomes

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact - Short Form EmotionalImpactQ11
C58645 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Loneliness because health past 7 day scale ASCQMeLonlinsBcHlthPs7DyScl Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how lonely did you feel because of your health problems? 5;4;3;2;1 Not at all;A little;Somewhat;Quite;Very Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Outcomes and End Points Quality of Life/Patient Reported Outcomes

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact - Short Form EmotionalImpactQ12
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale ASCQMeDeprsnAbtHlthPs7DyScl Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how depressed were you about your health problems? 5;4;3;2;1 Not at all;A little;Somewhat;Quite;Very Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Outcomes and End Points Quality of Life/Patient Reported Outcomes

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact - Short Form EmotionalImpactQ16
C58647 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry about become sick past 7 day scale ASCQMeWryAbtBcmSickPs7DyScl Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how much did you worry about getting sick? 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Outcomes and End Points Quality of Life/Patient Reported Outcomes

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact - Short Form EmotionalImpactQ9
C58648 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry hospital need go past 7 day frequency scale ASCQMeWryHsptlNedGoPs7DyFrqScl Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often were you very worried about needing to go to the hospital? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Outcomes and End Points Quality of Life/Patient Reported Outcomes

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact - Short Form EmotionalImpactQ17
5 results.
CSV