CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Outcomes and End Points
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form
Sub-Domain: Outcomes and End Points
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form
5 results.
CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
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C58644 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeless because health past 7 day frequency scale | ASCQMeFlHoplsBcHlthPs7DyFrqScl | Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you feel completely hopeless because of your health? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form | Outcomes and End Points | Emotional Status |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact - Short Form | EmotionalImpactQ11 | |||||||||||||||||||||||||||
C58645 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Loneliness because health past 7 day scale | ASCQMeLonlinsBcHlthPs7DyScl | Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how lonely did you feel because of your health problems? | 5;4;3;2;1 | Not at all;A little;Somewhat;Quite;Very | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form | Outcomes and End Points | Emotional Status |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact - Short Form | EmotionalImpactQ12 | |||||||||||||||||||||||||||
C58646 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale | ASCQMeDeprsnAbtHlthPs7DyScl | Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how depressed were you about your health problems? | 5;4;3;2;1 | Not at all;A little;Somewhat;Quite;Very | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form | Outcomes and End Points | Emotional Status |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact - Short Form | EmotionalImpactQ16 | |||||||||||||||||||||||||||
C58647 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry about become sick past 7 day scale | ASCQMeWryAbtBcmSickPs7DyScl | Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how much did you worry about getting sick? | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form | Outcomes and End Points | Emotional Status |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact - Short Form | EmotionalImpactQ9 | |||||||||||||||||||||||||||
C58648 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry hospital need go past 7 day frequency scale | ASCQMeWryHsptlNedGoPs7DyFrqScl | Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often were you very worried about needing to go to the hospital? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form | Outcomes and End Points | Emotional Status |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact - Short Form | EmotionalImpactQ17 |
5 results.