CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Outcomes and End Points
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form
Sub-Domain: Outcomes and End Points
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form
5 results.
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C58649 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad no activity entire day past 7 day frequency scale | ASCQMePnBdNoActEnDyPs7DyFrqScl | Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you have pain so bad that you could not do anything for a whole day? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Core | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form | Outcomes and End Points | Pain Impact/Interference |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Pain Impact - Short Form | PainImpactQ2 | |||||||||||||||||||||||||||
| C58650 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad unable arise bed past 7 day frequency scale | ASCQMePnBdUnabArsBdPs7DyFrqScl | Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to arise from bed, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to arise from bed, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you have pain so bad that you could not get out of bed? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Core | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form | Outcomes and End Points | Pain Impact/Interference |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Pain Impact - Short Form | PainImpactQ7 | |||||||||||||||||||||||||||
| C58651 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain severe past 7 day frequency scale | ASCQMePnSeverPs7DyFrqScl | Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you have very severe pain? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Core | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form | Outcomes and End Points | Pain Impact/Interference |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Pain Impact - Short Form | PainImpactQ8 | |||||||||||||||||||||||||||
| C58652 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad stop activity past 7 day frequency scale | ASCQMePnBdStopActPs7DyFrqScl | Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had to stop what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had to stop what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you have pain so bad that you had to stop what you were doing? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Core | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form | Outcomes and End Points | Pain Impact/Interference |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Pain Impact - Short Form | PainImpactQ10 | |||||||||||||||||||||||||||
| C58653 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale | ASCQMePnBdDifFinActPs7DyFrqScl | Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you have pain so bad that it was hard to finish what you were doing? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Core | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form | Outcomes and End Points | Pain Impact/Interference |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Pain Impact - Short Form | PainImpactQ12 |
5 results.