CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Outcomes and End Points
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form

5 results.
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field
C58649 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad no activity entire day past 7 day frequency scale ASCQMePnBdNoActEnDyPs7DyFrqScl Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you have pain so bad that you could not do anything for a whole day? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Outcomes and End Points Pain

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Pain Impact - Short Form PainImpactQ2
C58650 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad unable arise bed past 7 day frequency scale ASCQMePnBdUnabArsBdPs7DyFrqScl Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to arise from bed, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to arise from bed, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you have pain so bad that you could not get out of bed? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Outcomes and End Points Pain

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Pain Impact - Short Form PainImpactQ7
C58651 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain severe past 7 day frequency scale ASCQMePnSeverPs7DyFrqScl Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you have very severe pain? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Outcomes and End Points Pain

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Pain Impact - Short Form PainImpactQ8
C58652 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad stop activity past 7 day frequency scale ASCQMePnBdStopActPs7DyFrqScl Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had to stop what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had to stop what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you have pain so bad that you had to stop what you were doing? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Outcomes and End Points Pain

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Pain Impact - Short Form PainImpactQ10
C58653 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale ASCQMePnBdDifFinActPs7DyFrqScl Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you have pain so bad that it was hard to finish what you were doing? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Outcomes and End Points Pain

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Pain Impact - Short Form PainImpactQ12
5 results.
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