CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Outcomes and End Points
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form

5 results.
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field
C58630 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joints stiff when awaken past 7 day frequency scale ASCQMeJtStifWhnAwaknPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff when he or she awakened, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff when he or she awakened, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often were your joints very stiff when you woke up? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Outcomes and End Points Physical Function

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Stiffness Impact - Short Form StiffImpact03
C58633 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joint very stiff daytime past 7 day frequency scale ASCQMeJtVrStifDaytimPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often were your joints very stiff during the day? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Outcomes and End Points Physical Function

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Stiffness Impact - Short Form StiffImpact07
C58634 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable move because joint stiff daytime past 7 day frequency scale ASCQMeUnabMovBcJtStfPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often were your joints so stiff during the day that you could not move? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Outcomes and End Points Physical Function

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Stiffness Impact - Short Form StiffImpact08
C58636 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale ASCQMeAwknToStfMovPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you wake up so stiff that you could not move? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Outcomes and End Points Physical Function

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Stiffness Impact - Short Form StiffImpact010
C58639 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale ASCQMeVLgTmArisBcStfPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did it take you a very long time to get out of bed because of stiffness? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Outcomes and End Points Physical Function

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Stiffness Impact - Short Form StiffImpact015
5 results.
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