CDE Detailed Report
Disease:
Sub-Domain: Outcomes and End Points
CRF:
Sub-Domain: Outcomes and End Points
CRF:
5 results.
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C58634 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable move because joint stiff daytime past 7 day frequency scale | ASCQMeUnabMovBcJtStfPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often were your joints so stiff during the day that you could not move? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental ? Highly Recommended | 1.00 | 2018-10-24 15:27:18.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form | Outcomes and End Points | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Stiffness Impact - Short Form | StiffImpact08 | |||||||||||||||||||||||||||
| C58636 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale | ASCQMeAwknToStfMovPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you wake up so stiff that you could not move? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental ? Highly Recommended | 1.00 | 2018-10-24 15:27:18.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form | Outcomes and End Points | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Stiffness Impact - Short Form | StiffImpact010 | |||||||||||||||||||||||||||
| C58639 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale | ASCQMeVLgTmArisBcStfPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did it take you a very long time to get out of bed because of stiffness? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental ? Highly Recommended | 1.00 | 2018-10-24 15:27:18.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form | Outcomes and End Points | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Stiffness Impact - Short Form | StiffImpact015 | |||||||||||||||||||||||||||
| C58630 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joints stiff when awaken past 7 day frequency scale | ASCQMeJtStifWhnAwaknPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff when he or she awakened, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff when he or she awakened, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often were your joints very stiff when you woke up? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental ? Highly Recommended | 1.00 | 2018-10-24 15:27:18.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form | Outcomes and End Points | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Stiffness Impact - Short Form | StiffImpact03 | |||||||||||||||||||||||||||
| C58633 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joint very stiff daytime past 7 day frequency scale | ASCQMeJtVrStifDaytimPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often were your joints very stiff during the day? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental ? Highly Recommended | 1.00 | 2018-10-24 15:27:18.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form | Outcomes and End Points | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Stiffness Impact - Short Form | StiffImpact07 |
5 results.