CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Additional Proposed Instruments
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist
Sub-Domain: Additional Proposed Instruments
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist
9 results.
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C58659 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Stroke medical professional ever tell indicate code | ASCQMeStrokeMdPrEvTlInCode | Code indicating whether the subject/participant has ever been told by a medical professional that he or she has had a stroke, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code indicating whether the subject/participant has ever been told by a medical professional that he or she has had a stroke, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Has a doctor or nurse ever told you that you have had a stroke? | 0;1;0;1;0;1 | No;Yes;No;Yes;No;Yes | Numeric Values | Adult | Proposed | 1.00 | 2018-10-25 12:37:10.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
ASCQ-Me | 2.0 | Sickle Cell Disease ? Medical History Checklist | SCDMHCQ6 | |||||||||||||||||||||||||||
| C58660 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Spleen remove damage due sickle cell indicate code | ASCQMeSplnRemvDmgIndCode | Code indicating whether the subject/participant's spleen has been removed or severely damaged due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code indicating whether the subject/participant's spleen has been removed or severely damaged due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Has your spleen either been removed or seriously damaged due to sickle cell disease? | 0;1;0;1;0;1 | No;Yes;No;Yes;No;Yes | Numeric Values | Adult | Proposed | 1.00 | 2018-10-25 12:37:10.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
ASCQ-Me | 2.0 | Sickle Cell Disease ? Medical History Checklist | SCDMHCQ7 | |||||||||||||||||||||||||||
| C58661 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Blood transfusion regular due sickle cell indicate code | ASCQMeBldTrnfsRegDuSCIndCode | Code indicating whether the subject/participant's receives regular blood transfusions due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code indicating whether the subject/participant's receives regular blood transfusions due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Do you get regular blood transfusions for your sickle cell disease? | 0;1;0;1;0;1 | No;Yes;No;Yes;No;Yes | Numeric Values | Adult | Proposed | 1.00 | 2018-10-25 12:37:10.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
ASCQ-Me | 2.0 | Sickle Cell Disease ? Medical History Checklist | SCDMHCQ8 | |||||||||||||||||||||||||||
| C58662 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain medication daily due sickle cell indicate code | ASCQMePnMedDlyDuSCIndCode | Code indicating whether the subject/participant's takes pain medication daily due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code indicating whether the subject/participant's takes pain medication daily due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). |
Do you take pain medicine every day for your sickle cell disease? |
0;1;0;1;0;1 | No;Yes;No;Yes;No;Yes | Numeric Values | Adult | Proposed | 1.00 | 2018-10-25 12:37:10.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
ASCQ-Me | 2.0 | Sickle Cell Disease ? Medical History Checklist | SCDMHCQ9 | |||||||||||||||||||||||||||
| C58654 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Leg ulceration ever indicate code | ASCQMeLegUlcerEverIndCode | Code indicating whether the subject/participant has ever had ulcerations on his or her leg or foot, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code indicating whether the subject/participant has ever had ulcerations on his or her leg or foot, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Have you ever had open sores on your legs or feet (leg ulcers)? | 0;1;0;1;0;1 | No;Yes;No;Yes;No;Yes | Numeric Values | Adult | Proposed | 1.00 | 2018-10-25 12:37:10.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
ASCQ-Me | 2.0 | Sickle Cell Disease ? Medical History Checklist | SCDMHCQ1 | |||||||||||||||||||||||||||
| C58655 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Lung damage medical professional ever tell indicate code | ASCQMeLngDmgMedProEvrTlIndCode | Code indicating whether the subject/participant has ever been told by a medical professional that he or she has lung damage, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code indicating whether the subject/participant has ever been told by a medical professional that he or she has lung damage, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Has a doctor or nurse ever told you that you have lung damage? | 0;1;0;1;0;1 | No;Yes;No;Yes;No;Yes | Numeric Values | Adult | Proposed | 1.00 | 2018-10-25 12:37:10.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
ASCQ-Me | 2.0 | Sickle Cell Disease ? Medical History Checklist | SCDMHCQ2 | |||||||||||||||||||||||||||
| C58656 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Kidney damage medical professional ever tell indicate code | ASCQMeKdyDmgMedProEvrTlIndCode | Code indicating whether the subject/participant has ever been told by a medical professional that he or she has kidney damage, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code indicating whether the subject/participant has ever been told by a medical professional that he or she has kidney damage, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Has a doctor or nurse ever told you that you have kidney damage? | 0;1;0;1;0;1 | No;Yes;No;Yes;No;Yes | Numeric Values | Adult | Proposed | 1.00 | 2018-10-25 12:37:10.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
ASCQ-Me | 2.0 | Sickle Cell Disease ? Medical History Checklist | SCDMHCQ3 | |||||||||||||||||||||||||||
| C58657 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Retinopathy medical professional ever tell indicate code | ASCQMeRtnpthMedProEvrTlIndCode | Code indicating whether the subject/participant has ever been told by a medical professional that he or she has retinopathy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code indicating whether the subject/participant has ever been told by a medical professional that he or she has retinopathy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Has a doctor or nurse ever told you that you have eye damage called retinopathy? | 0;1;0;1;0;1 | No;Yes;No;Yes;No;Yes | Numeric Values | Adult | Proposed | 1.00 | 2018-10-25 12:37:10.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
ASCQ-Me | 2.0 | Sickle Cell Disease ? Medical History Checklist | SCDMHCQ4 | |||||||||||||||||||||||||||
| C58658 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Hip shoulder damage due sickle cell medical professional ever tell indicate code | ASCQMeHpShlDgDuSCMdPrEvTlInCd | Code indicating whether the subject/participant has ever been told by a medical professional that he or she has hip or shoulder damage due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code indicating whether the subject/participant has ever been told by a medical professional that he or she has hip or shoulder damage due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Has a doctor or nurse ever told you that you have damage to your hip or shoulder due to sickle cell disease? | 0;1;0;1;0;1 | No;Yes;No;Yes;No;Yes | Numeric Values | Adult | Proposed | 1.00 | 2018-10-25 12:37:10.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist | Additional Proposed Instruments | PROMIS |
Single Pre-Defined Value Selected |
ASCQ-Me | 2.0 | Sickle Cell Disease ? Medical History Checklist | SCDMHCQ5 |
9 results.