CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Outcomes and End Points
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank
Sub-Domain: Outcomes and End Points
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank
20 results.
| CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| C58678 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel sickle cell take life any moment past 7 day frequency scale | ASCQMeFlSCTkLfAyMmtPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant felt that sickle cell disease could take his or her life at any moment, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant felt that sickle cell disease could take his or her life at any moment, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you feel that sickle cell disease could take your life at any moment? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ15 | |||||||||||||||||||||||||||
| C58644 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeless because health past 7 day frequency scale | ASCQMeFlHoplsBcHlthPs7DyFrqScl | Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you feel completely hopeless because of your health? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact - Short Form | EmotionalImpactQ11 | |||||||||||||||||||||||||||
| C58679 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think health problem ruin life past 7 day frequency scale | ASCQMeThkHthPrbRnLfPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant thought his or her health problems were ruining his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant thought his or her health problems were ruining his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you think your health problems were ruining your life? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ18 | |||||||||||||||||||||||||||
| C58645 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Loneliness because health past 7 day scale | ASCQMeLonlinsBcHlthPs7DyScl | Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how lonely did you feel because of your health problems? | 5;4;3;2;1 | Not at all;A little;Somewhat;Quite;Very | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact - Short Form | EmotionalImpactQ12 | |||||||||||||||||||||||||||
| C58680 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Wish strong suffer end past 7 day frequency scale | ASCQMeWshStgSfrEndPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant strongly wished for his or her suffering to end, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant strongly wished for his or her suffering to end, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you wish very much for your suffering to end? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ20 | |||||||||||||||||||||||||||
| C58646 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale | ASCQMeDeprsnAbtHlthPs7DyScl | Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how depressed were you about your health problems? | 5;4;3;2;1 | Not at all;A little;Somewhat;Quite;Very | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact - Short Form | EmotionalImpactQ16 | |||||||||||||||||||||||||||
| C58681 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeful health past 7 day scale | ASCQMeFelHpflHlthPs7DyScl | Scale for the degree of hopefulness the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the degree of hopefulness the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how hopeful did you feel about your health? | 1;2;3;5;4 | Not at all;a little;Somewhat;Very;Quite | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ1 | |||||||||||||||||||||||||||
| C58647 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry about become sick past 7 day scale | ASCQMeWryAbtBcmSickPs7DyScl | Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how much did you worry about getting sick? | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact - Short Form | EmotionalImpactQ9 | |||||||||||||||||||||||||||
| C58682 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry health past 7 day scale | ASCQMeWorryHlthPs7DyScl | Scale for the degree of worry the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the degree of worry the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how worried did you feel about your health? | 5;4;3;2;1 | Not at all;A little;Somewhat;Quite;Very | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ2 | |||||||||||||||||||||||||||
| C58648 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry hospital need go past 7 day frequency scale | ASCQMeWryHsptlNedGoPs7DyFrqScl | Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often were you very worried about needing to go to the hospital? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-25 10:42:58.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact - Short Form | EmotionalImpactQ17 | |||||||||||||||||||||||||||
| C58683 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel different others because health past 7 day scale | ASCQMeFlDfOthBcHlthPs7DyScl | Scale for the degree to which the subject/participant felt different from others over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the degree to which the subject/participant felt different from others over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how different did you feel from others because of your health problems? | 5;4;3;2;1 | Not at all;A little;Somewhat;Quite;Very | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ3 | |||||||||||||||||||||||||||
| C58673 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel alone because health past 7 day frequency scale | ASCQMeFlAlnBcHthPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant felt alone because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant felt alone because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you feel completely alone because of your health problems? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ5 | |||||||||||||||||||||||||||
| C58684 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel good about health past 7 day scale | ASCQMeFlGdAbtHlthPs7DyScl | Scale for the degree to which the subject/participant felt good over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the degree to which the subject/participant felt good over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how good did you feel about your health? | 1;2;3;5;4 | Not at all;a little;Somewhat;Very;Quite | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ4 | |||||||||||||||||||||||||||
| C58674 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think life better if healthy past 7 day frequency scale | ASCQMeThLfBtrIfHthPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant thought his or her life would be better if he or she were healthy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant thought his or her life would be better if he or she were healthy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often did you think your life would be better if you were healthy? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ6 | |||||||||||||||||||||||||||
| C58685 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel sad because health past 7 day scale | ASCQMeFlSdBcHlthPs7DyScl | Scale for the degree to which the subject/participant felt sad over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the degree to which the subject/participant felt sad over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how sad did you feel because of your health? | 5;4;3;2;1 | Not at all;A little;Somewhat;Quite;Very | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ10 | |||||||||||||||||||||||||||
| C58675 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry die soon past 7 day frequency scale | ASCQMeWryDieSonPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant was worried that he or she would die soon, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant was worried that he or she would die soon, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often were you very worried that you would die soon? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ7 | |||||||||||||||||||||||||||
| C58686 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Sadness about health problem past 7 day scale | ASCQMeFlSdnsAbtHthPrbPs7DyScl | Scale for the degree to which the subject/participant felt sad over the past 7 days about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the degree to which the subject/participant felt sad over the past 7 days about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how sad were you about your health problems? | 5;4;3;2;1 | Not at all;A little;Somewhat;Quite;Very | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ19 | |||||||||||||||||||||||||||
| C58676 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health problem past 7 day frequency scale | ASCQMeDpsAbHthPblmPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant was depressed about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant was depressed about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often were you depressed about your health problems? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ8 | |||||||||||||||||||||||||||
| C58687 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Health bother past 7 day scale | ASCQMeHlthBothrPs7DyScl | Scale for the degree to which the subject/participant was bothered over the past 7 days by his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the degree to which the subject/participant was bothered over the past 7 days by his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how much did your health bother you? | 5;4;3;2;1 | Not at all;A little bit;Somewhat;Quite a bit;Very much | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ13 | |||||||||||||||||||||||||||
| C58677 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Sad about health problem past 7 day frequency scale | ASCQMeSadAbHthPblmPs7DyFqScl | Scale for the frequency over the past 7 days that the subject/participant was sad about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Scale for the frequency over the past 7 days that the subject/participant was sad about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 7 days, how often were you sad about your health problems? | 5;3;2;1;4 | Never;Sometimes;Often;Always;Rarely | Numeric Values | Adult | Supplemental - Highly Recommended | 1.00 | 2018-10-26 11:58:42.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank | Outcomes and End Points | Emotional Impact of SCD |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Emotional Impact ? Item Bank | EmotionalImpactQ14 |
20 results.