CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Outcomes and End Points
CRF: Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank

20 results.
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field
C58677 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Sad about health problem past 7 day frequency scale ASCQMeSadAbHthPblmPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant was sad about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant was sad about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often were you sad about your health problems? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ14
C58678 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel sickle cell take life any moment past 7 day frequency scale ASCQMeFlSCTkLfAyMmtPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant felt that sickle cell disease could take his or her life at any moment, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant felt that sickle cell disease could take his or her life at any moment, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you feel that sickle cell disease could take your life at any moment? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ15
C58644 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeless because health past 7 day frequency scale ASCQMeFlHoplsBcHlthPs7DyFrqScl Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant felt hopeless because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you feel completely hopeless because of your health? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact - Short Form EmotionalImpactQ11
C58679 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think health problem ruin life past 7 day frequency scale ASCQMeThkHthPrbRnLfPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant thought his or her health problems were ruining his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant thought his or her health problems were ruining his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you think your health problems were ruining your life? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ18
C58645 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Loneliness because health past 7 day scale ASCQMeLonlinsBcHlthPs7DyScl Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how lonely did you feel because of your health problems? 5;4;3;2;1 Not at all;A little;Somewhat;Quite;Very Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact - Short Form EmotionalImpactQ12
C58680 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Wish strong suffer end past 7 day frequency scale ASCQMeWshStgSfrEndPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant strongly wished for his or her suffering to end, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant strongly wished for his or her suffering to end, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you wish very much for your suffering to end? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ20
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale ASCQMeDeprsnAbtHlthPs7DyScl Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how depressed were you about your health problems? 5;4;3;2;1 Not at all;A little;Somewhat;Quite;Very Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact - Short Form EmotionalImpactQ16
C58681 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeful health past 7 day scale ASCQMeFelHpflHlthPs7DyScl Scale for the degree of hopefulness the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the degree of hopefulness the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how hopeful did you feel about your health? 1;2;3;5;4 Not at all;a little;Somewhat;Very;Quite Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ1
C58647 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry about become sick past 7 day scale ASCQMeWryAbtBcmSickPs7DyScl Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how much did you worry about getting sick? 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact - Short Form EmotionalImpactQ9
C58682 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry health past 7 day scale ASCQMeWorryHlthPs7DyScl Scale for the degree of worry the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the degree of worry the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how worried did you feel about your health? 5;4;3;2;1 Not at all;A little;Somewhat;Quite;Very Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ2
C58648 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry hospital need go past 7 day frequency scale ASCQMeWryHsptlNedGoPs7DyFrqScl Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often were you very worried about needing to go to the hospital? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact - Short Form EmotionalImpactQ17
C58683 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel different others because health past 7 day scale ASCQMeFlDfOthBcHlthPs7DyScl Scale for the degree to which the subject/participant felt different from others over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the degree to which the subject/participant felt different from others over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how different did you feel from others because of your health problems? 5;4;3;2;1 Not at all;A little;Somewhat;Quite;Very Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ3
C58673 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel alone because health past 7 day frequency scale ASCQMeFlAlnBcHthPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant felt alone because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant felt alone because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you feel completely alone because of your health problems? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ5
C58684 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel good about health past 7 day scale ASCQMeFlGdAbtHlthPs7DyScl Scale for the degree to which the subject/participant felt good over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the degree to which the subject/participant felt good over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how good did you feel about your health? 1;2;3;5;4 Not at all;a little;Somewhat;Very;Quite Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ4
C58674 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think life better if healthy past 7 day frequency scale ASCQMeThLfBtrIfHthPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant thought his or her life would be better if he or she were healthy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant thought his or her life would be better if he or she were healthy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often did you think your life would be better if you were healthy? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ6
C58685 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel sad because health past 7 day scale ASCQMeFlSdBcHlthPs7DyScl Scale for the degree to which the subject/participant felt sad over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the degree to which the subject/participant felt sad over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how sad did you feel because of your health? 5;4;3;2;1 Not at all;A little;Somewhat;Quite;Very Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ10
C58675 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry die soon past 7 day frequency scale ASCQMeWryDieSonPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant was worried that he or she would die soon, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant was worried that he or she would die soon, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often were you very worried that you would die soon? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ7
C58686 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Sadness about health problem past 7 day scale ASCQMeFlSdnsAbtHthPrbPs7DyScl Scale for the degree to which the subject/participant felt sad over the past 7 days about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the degree to which the subject/participant felt sad over the past 7 days about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how sad were you about your health problems? 5;4;3;2;1 Not at all;A little;Somewhat;Quite;Very Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ19
C58676 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health problem past 7 day frequency scale ASCQMeDpsAbHthPblmPs7DyFqScl Scale for the frequency over the past 7 days that the subject/participant was depressed about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the frequency over the past 7 days that the subject/participant was depressed about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how often were you depressed about your health problems? 5;3;2;1;4 Never;Sometimes;Often;Always;Rarely Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ8
C58687 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Health bother past 7 day scale ASCQMeHlthBothrPs7DyScl Scale for the degree to which the subject/participant was bothered over the past 7 days by his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). Scale for the degree to which the subject/participant was bothered over the past 7 days by his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). In the past 7 days, how much did your health bother you? 5;4;3;2;1 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Outcomes and End Points Emotional Status

Single Pre-Defined Value Selected

ASCQ-Me v2.0 Emotional Impact Item Bank EmotionalImpactQ13
20 results.
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