Cure Sickle Cell Initiative | Cure Sickle Cell

CDE Detailed Report

Disease: Sickle Cell Disease
Sub-Domain: Additional Proposed Instruments
CRF: PhenX Toolkit: Quality of Care - Children

Displaying 1 - 50 of 79

CDE ID	CDE Name	Variable Name	Definition	Short Description	Additional Notes (Question Text)	Permissible Values	Description	Data Type	Disease Specific Instructions	Disease Specific Reference	Population	Classification (e.g., Core)	Version Number	Version Date	CRF Name (CRF Module / Guideline)	Sub Domain Name	Domain Name	Size	Input Restrictions	Min Value	Max Value	Measurement Type	Source	Form Set	Form	Field
C59348	Respondent education code	RespondentEducationCode	Code for the highest level of education of the individual answering the questionnaire.	Code for the highest level of education of the individual answering the questionnaire.	What is the highest grade or level of school that you have completed?	1;2;3;4;5;6	8th grade or less;Some high school, but did not graduate;High school graduate or GED;Some college or 2-year degree;4-year college graduate;More than 4-year college degree	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Adult;Pediatric	Proposed	1.00	2019-04-01 13:39:41.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	38
C59274	Child health care provider ask best choice care last 6 month indicate code	ChdHCPvdAskBstChCrLs6MoInCode	Code indicating whether in the last 6 months the child's health care provider(s) asked what the best choice of options was for the child	Code indicating whether in the last 6 months the child's health care provider(s) asked what the best choice of options was for the child	In the last 6 months, when there was more than one choice for your child's treatment or health care, did your child's doctor or other health provider ask you which choice was best for your child?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 15:21:15.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC4
C59316	Specialist seen by child last 6 month count range	SpclstSeenByChildLst6MoCtRng	Range of count of specialists seen by the child in the last 6 months	Range of count of specialists seen by the child in the last 6 months	How many specialists has your child seen in the last 6 months?	0;2;3;4;1;5 or more	None;2;3;4;1 specialist;5 or more specialists	Alphanumeric	Do not include dental visits or care your child got when he or she stayed overnight in a hospital.	PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 10:11:52.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	21
C59327	Prescription medication easy obtain health plan last 6 month frequency scale	PrscpMdEzObtHthPlnLst6MoFrqScl	Scale for the frequency over the last 6 months that it was easy to obtain prescription medications for the subject/participant using his or her health plan	Scale for the frequency over the last 6 months that it was easy to obtain prescription medications for the subject/participant using his or her health plan	In the last 6 months, how often was it easy to get prescription medicines for your child through his or her health plan?	1;2;4;3	Never;Sometimes;Always;usually	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 11:22:44.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC23
C59291	Obtain attempt counseling child last 6 month indicate code	ObAtCounslChLst6MoIndCode	Code indicating whether counseling or treatment for emotional, developmental, or behavioral problems was obtained or attempted to be obtained for the child in the last 6 months.	Code indicating whether counseling or treatment for emotional, developmental, or behavioral problems was obtained or attempted to be obtained for the child in the last 6 months.	In the last 6 months, did you get or try to get treatment or counseling for your child for an emotional, developmental, or behavioral problem?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-29 09:15:44.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC14
C59338	Special therapy indicate code	SpecialTherapyIndicateCode	Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy.	Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy.	Does your child need or get special therapy such as physical, occupational, or speech therapy?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 12:38:12.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC34
C59264	Child health plan name verify indicate code	ChildHlthPlanNameVerfyIndCode	Code indicating that the study has the correct name of the child's health plan on file	Code indicating that the study has the correct name of the child's health plan on file	Our records show that your child is now in [INSERT HEALTH PLAN NAME]. Is that right?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 11:45:40.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	1
C59306	Child able talk about health care indicate code	ChdAblTlkAbtHlthCarIndCode	Code indicating whether the child is able to talk to doctors about his or her health care	Code indicating whether the child is able to talk to doctors about his or her health care	is your child able to talk with doctors about his or her health care?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 09:24:49.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	14
C59349	Respondent relation patient code	RespondRelatePtCode	Code for the relationship to the patient of the individual answering the questionnaire.	Code for the relationship to the patient of the individual answering the questionnaire.	How are you related to the child?	1;2;3;4;5;6	Mother or father;Grandparent;Aunt or uncle;Older sibling;Other relative;Legal guardian	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Adult;Pediatric	Proposed	1.00	2019-04-01 13:45:19.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	39
C59275	Child health care rating last 6 month scale	ChldHCRtngLst6MoScl	Scale for rating the child's health care over the last 6 months.	Scale for rating the child's health care over the last 6 months.	Using any number from 0 to 10, where 0 is the worst health care possible and 10 is the best health care possible, what number would you use to rate all your child's health care in the last 6 months?	0;1;2;3;4;5;6;7;8;9;10	Worst health care possible;1;2;3;4;5;6;7;8;9;Best health care possible	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 15:33:42.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	8
C59317	Specialist seen most often rating scale	SpcstSeenMostOftnRatingScl	Scale for rating the specialist the subject/participant saw most often in the last 6 months.	Scale for rating the specialist the subject/participant saw most often in the last 6 months.	We want to know your rating of the specialist your child saw most often in the last 6 months. Using any number from 0 to 10, where 0 is the worst specialist possible and 10 is the best specialist possible, what number would you use to rate that specialist?	1;2;3;4;5;6;7;8;9;0;10	1;2;3;4;5;6;7;8;9;Worst specialist possible;Best specialist possible	Numeric Values	Do not include dental visits or care your child got when he or she stayed overnight in a hospital.	PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 15:33:42.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	22
C59328	Receive assistance obtain prescription medication indicate code	RcvAsstObtPrscrpMdIndCode	Code indicating whether assistance was received in obtaining prescription medications	Code indicating whether assistance was received in obtaining prescription medications	Did anyone from your child's health plan, doctor's office, or clinic help you get your child's prescription medicines?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 11:37:53.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC24
C59292	Easy obtain counseling child last 6 month frequency scale	EsyObtCounslChLst6MoFrqScl	Scale of the frequency in the last 6 months that it was easy to obtain counseling or treatment for emotional, developmental, or behavioral problems for the child.	Scale of the frequency in the last 6 months that it was easy to obtain counseling or treatment for emotional, developmental, or behavioral problems for the child.	In the last 6 months, how often was it easy to get this treatment o r counseling for your child?	1;2;3	Never;Sometimes;usually	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 15:16:41.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC15
C59339	Special therapy due health condition indicate code	SpcTherDueHlthCondIndCode	Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy due to a health condition	Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy due to a health condition	Is this because of any medical, behavioral, or other health condition?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 12:38:12.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC35
C59265	Child health plan name	ChildHlthPlanName	Name of the child's health plan	Name of the child's health plan	What is the name of your child's health plan?			Alphanumeric	Collect if "Child health plan name verify indicate code" is answered 2 (No).	PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 11:50:08.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X	100	Free-Form Entry				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	2
C59307	Child personal physician explain clearly to child last 6 month frequency scale	ChPslPhyExpClrToChLst6MoFrqScl	Scale for the frequency over the past 6 months that the child's personal physician explained things in a way that was easy for the child to understand	Scale for the frequency over the past 6 months that the child's personal physician explained things in a way that was easy for the child to understand	In the last 6 months, how often did your child's personal doctor explain things in a way that was easy for your child to understand?	1;2;4;3	Never;Sometimes;Always;usually	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-29 10:22:22.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	15
C59350	Respondent receive help complete questionnaire indicate code	RespRcvHlpCmpltQaireIndCode	Code indicating whether the respondent received assistance in completing the questionnaire.	Code indicating whether the respondent received assistance in completing the questionnaire.	Did someone help you complete this survey?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Adult;Pediatric	Proposed	1.00	2019-04-01 13:50:03.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	40
C59276	Child enroll school daycare indicate code	ChildEnrolSchlDycrIndCode	Code indicating whether the child is currently enrolled in school or daycare.	Code indicating whether the child is currently enrolled in school or daycare.	is your child now enrolled in any kind of school or daycare?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 15:40:46.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC5
C59318	Care via health plan last 6 month indicate code	CareViaHlthPlanLst6MoIndCode	Code indicating whether care was sought through the subject/participant's health plan in the last 6 months	Code indicating whether care was sought through the subject/participant's health plan in the last 6 months	In the last 6 months, did you try to get any kind of care, tests, or treatment for your child through his or her health plan?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 10:28:51.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	23
C59329	Prescription medication need use indicate code	PrscrpMdNeedUseIndCode	Code indicating whether the subject/participant needs or uses prescription medications other than vitamins	Code indicating whether the subject/participant needs or uses prescription medications other than vitamins	Does your child currently need or use medicine prescribed by a doctor (other than vitamins)?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 11:46:19.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC25
C59293	Receive help obtain counseling child last 6 month indicate code	RcvHpObtCounslChLst6MoIndCode	Code indicating whether help obtaining counseling or treatment for emotional, developmental, or behavioral problems for the child was received in the last 6 months	Code indicating whether help obtaining counseling or treatment for emotional, developmental, or behavioral problems for the child was received in the last 6 months	Did anyone from your child's health plan, doctor's office, or clinic help you get this treatment or counseling for your child?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-29 09:26:29.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC16
C59340	Special therapy due health condition endure 12 month indicate code	SpThrDuHlthCndEnd12MoIndCode	Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy due to a health condition that has endured or is expected to endure for at least 12 months	Code indicating whether the subject/participant needs or receives special therapy such as physical, occupational, or speech therapy due to a health condition that has endured or is expected to endure for at least 12 months	Is this a condition that has lasted or is expected to last for at least 12 months?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 12:38:12.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC36
C59266	Child need urgent care last 6 month indicate code	ChldNeedUrgtCareLst6MoIndCode	Code indicating whether the child needed urgent care in the last 6 months.	Code indicating whether the child needed urgent care in the last 6 months.	In the last 6 months, did your child have an illness, injury, or condition that needed care right away in a clinic, emergency room, or doctor's office?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 11:52:32.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	3
C59308	Child personal physician spend enough time with child last 6 month frequency scale	ChPslPhySpEnTmWChLst6MoFrqScl	Scale for the frequency over the past 6 months that the child's personal physician spent enough time with the child	Scale for the frequency over the past 6 months that the child's personal physician spent enough time with the child	In the last 6 months, how often did your child's personal doctor spend enough time with your child?	1;2;4;3	Never;Sometimes;Always;usually	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-29 10:22:22.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	16
C59277	Child health care provider contact school daycare last 6 month indicate code	ChdHCPvdCntSchDycLst6MoIndCode	Code indicating whether the child's health care providers contacted school or daycare about the child's health or care in the last 6 months.	Code indicating whether the child's health care providers contacted school or daycare about the child's health or care in the last 6 months.	In the last 6 months, did you need your child's doctors or other health providers to contact a school or daycare center about your child's health or health care?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 15:44:38.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC6
C59319	Easy obtain care child health plan last 6 month frequency scale	EsyObtCrChHlthPlnLst6MoFrqScl	Scale of the frequency in the last 6 months that it was easy to obtain care for the child through his or her health plan	Scale of the frequency in the last 6 months that it was easy to obtain care for the child through his or her health plan	In the last 6 months, how often was it easy to get the care, tests, or treatment you thought your child needed through his or her health plan?	1;2;4;3	Never;Sometimes;Always;usually	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 15:16:41.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	24
C59330	Prescription medication health condition indicate code	PrscrpMdHlthCondIndCode	Code indicating whether the subject/participant needs or uses prescription medications other than vitamins because of a health condition	Code indicating whether the subject/participant needs or uses prescription medications other than vitamins because of a health condition	Is this because of any medical, behavioral, or other health condition?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 11:46:19.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC26
C59294	Child more one kind health care provider service last 6 month indicate code	ChlMr1KdHthCrPvSvLst6MoIndCode	Code indicating whether child received care from more than one health care provider or service in the last 6 months.	Code indicating whether child received care from more than one health care provider or service in the last 6 months.	In the last 6 months, did your child get care from more than one kind of health care provider or use more than one kind of health care service?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-29 09:53:45.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC17
C59341	Problem emotion behavior development indicate code	PrbEmBhvDevIndCode	Code indicating whether the subject/participant has emotional, developmental, or behavioral problems for which he or she needs or receives treatment	Code indicating whether the subject/participant has emotional, developmental, or behavioral problems for which he or she needs or receives treatment	Does your child have any kind of emotional, developmental, or behavioral problem for which he or she needs or gets treatment or counseling?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 12:45:35.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC37
C59267	Child receive timely urgent care last 6 month reliability scale	ChdRcvTmlyUrgtCrLst6MoRelScl	Scale of how reliably the child received timely urgent care in the last 6 months.	Scale of how reliably the child received timely urgent care in the last 6 months.	In the last 6 months, when your child needed care right away, how often did your child get care as soon as you thought he or she needed?	1;2;4;3	Never;Sometimes;Always;usually	Numeric Values	Collect if "Child need urgent care last 6 month indicate code" is answered 1 (Yes).	PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 11:52:32.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	4
C59309	Child personal physician talk about child feel grow behave last 6 month indicate code	ChPrPhTkAbChFlGrBhLs6MoIndCode	Code indicating whether the child's personal physician talked in the last 6 months about how the child is feeling, growing, or behaving	Code indicating whether the child's personal physician talked in the last 6 months about how the child is feeling, growing, or behaving	In the last 6 months, did your child's personal doctor talk with you about how your child is feeling, growing, or behaving?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 09:24:49.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	17
C59278	Child health care provider help contact school daycare last 6 month indicate code	ChdHCPvHpCntSchDycLst6MoInCode	Code indicating whether the child's health care providers helped contact school or daycare about the child's health or care in the last 6 months.	Code indicating whether the child's health care providers helped contact school or daycare about the child's health or care in the last 6 months.	In the last 6 months, did you get the help you needed from your child's doctors or other health providers in contacting your child's school or daycare?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 15:44:38.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC7
C59320	Use health plan customer service last 6 month indicate code	UseHlthPlnCustSvcLst6MoIndCode	Code indicating whether attempts were made to use customer service at the subject/participant's health plan in the last 6 months	Code indicating whether attempts were made to use customer service at the subject/participant's health plan in the last 6 months	In the last 6 months, did you try to get information or help from customer service at your child's health plan?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 10:38:36.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	25
C59331	Prescription medication health condition endure 12 month indicate code	PrscrpMdHlthCondEnd12MoIndCode	Code indicating whether the subject/participant needs or uses prescription medications other than vitamins because of a health condition that has endured or is expected to endure for at least 12 months	Code indicating whether the subject/participant needs or uses prescription medications other than vitamins because of a health condition that has endured or is expected to endure for at least 12 months	Is this a condition that has lasted or is expected to last for at least 12 months?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 11:46:19.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC27
C59295	Receive help coordinate different health care provider service last 6 month indicate code	RcHpCordDfHlCrPvSvLs6MoIndCode	Code indicating whether child's health plan, doctor's office, or clinic helped coordinate your child's care among different providers or services in the last 6 months	Code indicating whether child's health plan, doctor's office, or clinic helped coordinate your child's care among different providers or services in the last 6 months	In the last 6 months, did anyone from your child's health plan, doctor's office, or clinic help coordinate your child's care among these different providers or services?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-29 10:03:32.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC18
C59342	Problem emotion behavior development endure 12 month indicate code	PrbEmBhvDevEn12MoIndCode	Code indicating whether the subject/participant's emotional, developmental, or behavioral problems for which he or she needs or receives treatment have endured or are expected to endure for at least 12 months	Code indicating whether the subject/participant's emotional, developmental, or behavioral problems for which he or she needs or receives treatment have endured or are expected to endure for at least 12 months	Has this problem lasted or is it expected to last for at least 12 months?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 12:45:35.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC38
C59268	Child non-urgent medical appointment last 6 month indicate code	ChldNonUrgtMdApptLst6MoIndCode	Code indicating whether any non-urgent medical appointments were made for the child in the last 6 months.	Code indicating whether any non-urgent medical appointments were made for the child in the last 6 months.	In the last 6 months, not counting the times your child needed care right away, did you make any appointments for your child's health care at a doctor's office or clinic?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 12:07:49.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	5
C59310	Child personal physician rating scale	ChildPersPhyscnRatingScl	Scale for rating the child's personal physician	Scale for rating the child's personal physician	Using any number from 0 to 10, where 0 is the worst personal doctor possible and 10 is the best personal doctor possible, what number would you use to rate your child's personal doctor?	1;2;3;4;5;6;7;8;9;0;10	1;2;3;4;5;6;7;8;9;Worst personal doctor possible;Best personal doctor possible	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 15:33:42.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	18
C59285	Obtain attempt specialized medical equipment child last 6 month indicate code	ObAtSpMdEqChLst6MoIndCode	Code indicating whether specialized medical equipment or devices were obtained or attempted to be obtained for the child in the last 6 months.	Code indicating whether specialized medical equipment or devices were obtained or attempted to be obtained for the child in the last 6 months.	Special medical equipment or devices include a walker, wheelchair, nebulizer, feeding tubes, or oxygen equipment. In the last 6 months, did you get or try to get any special medical equipment or devices for your child?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-29 09:15:44.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC8
C59321	Health plan customer service provide assistance needed last 6 month frequency scale	HthPlnCusSvcPrAsNeLst6MoFrqScl	Scale of the frequency in the last 6 months that the subject/participant's health plan's customer service provided the assistance needed	Scale of the frequency in the last 6 months that the subject/participant's health plan's customer service provided the assistance needed	In the last 6 months, how often did customer service at your child's health plan give you the information or help you needed?	1;2;4;3	Never;Sometimes;Always;usually	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 10:42:23.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	26
C59332	Health eductional service above average peer need indicate code	HthEdSvcAbvAvgPrNdIndCode	Code indicating whether the subject/participant has need of health or eductional services above the average need for his or her peers	Code indicating whether the subject/participant has need of health or eductional services above the average need for his or her peers	Does your child need or use more medical care, more mental health services, or more educational services than is usual for most children of the same age?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 11:54:17.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC28
C59296	Child have personal physician indicate code	ChldHvPrsnlPhyscnIndCode	Code indicating whether the child has a personal physician	Code indicating whether the child has a personal physician	A personal doctor is the one your child would see if he or she needs a check-up or gets sick or hurt. Does your child have a personal doctor?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-29 10:08:55.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	9
C59343	Age below 1 year code	AgeBelow1YearCode	Code indicating that the subject/participant's age is less than 1 year	Code indicating that the subject/participant's age is less than 1 year	What is your child's age?	1	Less than 1 year old	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 12:57:55.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	32
C59269	Child receive timely non-urgent care last 6 month reliability scale	ChdRcvTmlyNoUrgtCrLst6MoRelScl	Scale of how reliably the child received timely non-urgent care in the last 6 months.	Scale of how reliably the child received timely non-urgent care in the last 6 months.	In the last 6 months, not counting the times your child needed care right away, how often did you get an appointment for health care at a doctor's office or clinic as soon as you thought your child needed?	1;2;3	Never;Sometimes;usually	Numeric Values	Collect if "Child non-urgent medical appointment last 6 month indicate code" is answered 1 (Yes).	PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 11:52:32.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	6
C59311	Child medical behavioral other health condition persist 3 month indicate code	ChMdBhOtHtCnPs3MoIndCode	Code indicating whether the child has any medical, behavioral, or other health conditions that have persisted for 3 months or longer	Code indicating whether the child has any medical, behavioral, or other health conditions that have persisted for 3 months or longer	Does your child have any medical, behavioral, or other health conditions that have lasted for more than 3 months?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 09:49:52.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC19
C59322	Health plan customer service show courtesy respect last 6 month frequency scale	HthPlnCusSvcShCoReLst6MoFrqScl	Scale of the frequency in the last 6 months that the subject/participant's health plan's customer service showed courtesy and respect	Scale of the frequency in the last 6 months that the subject/participant's health plan's customer service showed courtesy and respect	In the last 6 months, how often did customer service staff at your child's health plan treat you with courtesy and respect?	1;2;4;3	Never;Sometimes;Always;usually	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 10:42:23.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	27
C59286	Easy obtain specialized medical equipment last 6 month frequency scale	EsyObtSpcMdEquipLst6MoFrqScl	Scale of the frequency in the last 6 months that it was easy to obtain specialized medical equipment or devices for the child.	Scale of the frequency in the last 6 months that it was easy to obtain specialized medical equipment or devices for the child.	In the last 6 months, how often was it easy to get special medical equipment or devices for your child?	1;2;4;3	Never;Sometimes;Always;usually	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-28 15:16:41.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC9
C59333	Health eductional service above average peer need health condition indicate code	HthEdSvcAbvAvgPrNdHthCdIndCode	Code indicating whether the subject/participant's need of health or eductional services above the average need for his or her peers, is due to a health condition	Code indicating whether the subject/participant's need of health or eductional services above the average need for his or her peers, is due to a health condition	Is this because of any medical, behavioral, or other health condition?	1;2;1;2	Yes;No;Yes;No	Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 11:54:17.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	CC29
C59297	Child see personal physician last 6 month count range	ChdSeePrslPhyscnLst6MoCtRng	Range of the count of times that the child was seen by his or her personal physician in the last 6 months	Range of the count of times that the child was seen by his or her personal physician in the last 6 months	In the last 6 months, how many times did your child visit his or her personal doctor for care?	None;1;2;3;4;10 or more;5 to 9	None;1;2;3;4;10 or more;5 to 9	Alphanumeric		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-03-29 10:12:59.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Single Pre-Defined Value Selected				PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	10
C59344	Age year value	AgeYearVal	Age in years of the subject/participant	Age in years of the subject/participant	YEARS OLD			Numeric Values		PhenX Protocol: Quality of Care - Children (#820102)	Pediatric	Proposed	1.00	2019-04-01 13:02:27.0	PhenX Toolkit: Quality of Care - Children	Additional Proposed Instruments	Phen-X		Free-Form Entry	1	99	year	PhenX	Neurology, Quality of Life, and Health Services Specialty Collection	Quality of Care - Children	32 (write in)

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