CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Outcomes and End Points
CRF: PhenX Toolkit: Annual Pain Frequency of Sickle Cell Pain Episodes Per Year

8 results.
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field
C19500 Assessment performed date AssessmentPerformedDate The date of assessment of the examination being performed. The date of assessment of the examination being performed. Date of interview/examination (MM/DD/YYYY): Date or Date & Time Adult;Pediatric Proposed 1.00 2014-06-18 08:10:12.0 PhenX Toolkit: Annual Pain Frequency of Sickle Cell Pain Episodes Per Year Outcomes and End Points Pain

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C59439 Emergency room visit due to sickle cell pain past 6 months frequency EmRmVstDu2SCPnPst6MoFreq Frequency subject/participant visited the emergency room due to Sickle Cell pain in the last 6 months. Frequency of times subject/participant visited the emergency room due to Sickle Cell pain in the last 6 months. In the last 6 months, how many times did you visit an emergency room because of a sickle cell painful event? Indicate the number of times: Numeric Values Adult;Pediatric Proposed 1.00 2019-04-04 13:52:01.0 PhenX Toolkit: Annual Pain Frequency of Sickle Cell Pain Episodes Per Year Outcomes and End Points Pain

Free-Form Entry

0 100 PhenX Core tier 1 Annual Pain Frequency 1
C59440 Hospital admittance due to sickle cell past 12 months frequency HospAdmtDu2SCPnPst12MoFreq Frequency subject/participant was admitted to a hospital due to Sickle Cell pain in the last 12 months. Frequency subject/participant was admitted to a hospital due to Sickle Cell pain in the last 12 months. In the last 12 months, how many times were you admitted to a hospital because of a sickle cell painful event? Indicate the number of times: Numeric Values Adult;Pediatric Proposed 1.00 2019-04-04 13:52:01.0 PhenX Toolkit: Annual Pain Frequency of Sickle Cell Pain Episodes Per Year Outcomes and End Points Pain

Free-Form Entry

0 300 PhenX Core tier 1 Annual Pain Frequency 2
C59465 Severe episode activity impact 6 month no doctor indicator SvrEpActImpt6MoNDrInd Indicator of whether the subject/participant had a painful episode severe enough to keep them from doing the usual daily activities, but without being seen by a doctor. Indicator of whether the subject/participant had a painful episode severe enough to keep them from doing the usual daily activities, but without being seen by a doctor. In the last 6 months, have you had a painful episode severe enough to keep you from doing the usual daily activities, but without being seen by a doctor? No;Yes No;Yes Alphanumeric Adult;Pediatric Proposed 1.00 2019-04-04 16:52:17.0 PhenX Toolkit: Annual Pain Frequency of Sickle Cell Pain Episodes Per Year Outcomes and End Points Pain

Single Pre-Defined Value Selected

PhenX Core tier 1 Annual Pain Frequency 3
C59489 Past 6 months severe pain episodes daily activity interruption no doctor range Ps6MthSvPnEpDlyActIntNoDrRng Range indicating the number of painful severe episodes subject/participant experienced in the past 6 months related to sickle cell which kept them from completing usual daily activities but did not see a doctor. Range indicating the number of painful severe episodes subject/participant experienced in the past 6 months related to sickle cell which kept them from completing usual daily activities but did not see a doctor. How many episodes? <4;>=4 <4;>=4 Alphanumeric Adult;Pediatric Proposed 1.00 2019-04-05 14:20:47.0 PhenX Toolkit: Annual Pain Frequency of Sickle Cell Pain Episodes Per Year Outcomes and End Points Pain

Single Pre-Defined Value Selected

PhenX Core tier 1 Annual Pain Frequency 3a
C59490 Past 6 months severe painful episode interrupting daily activities no doctor days missed range Ps6MtSvPnEpInDlActNoDrDyMsRng Range indicating the amount of days missed in the past 6 months due to a severe painful episode interrupting daily activities without seeing a doctor. Range indicating the amount of days missed in the past 6 months due to a severe painful episode interrupting daily activities without seeing a doctor. How many days were missed? <= a week;> a week <= a week;> a week Alphanumeric Adult;Pediatric Proposed 1.00 2019-04-05 15:26:46.0 PhenX Toolkit: Annual Pain Frequency of Sickle Cell Pain Episodes Per Year Outcomes and End Points Pain

Single Pre-Defined Value Selected

PhenX Core tier 1 Annual Pain Frequency 3b
C59491 Sickle cell hospitalization date SickleCellHospitalDate Date indicating when the patient visited an emergency room due to painful sickle cell event. Date indicating when the patient visited an emergency room due to painful sickle cell event. Date of visit: Date or Date & Time Adult;Pediatric Proposed 1.00 2019-04-05 16:36:17.0 PhenX Toolkit: Annual Pain Frequency of Sickle Cell Pain Episodes Per Year Outcomes and End Points Pain

Free-Form Entry

PhenX Core tier 1 Annual Pain Frequency n/a
C59492 Sickle cell hospitalization location SickleCellHospitalLoc Free text field indicating the hospital location information of the emergency room in which patient visited due to a painful sickle cell event. Free text field indicating the hospital location information of the emergency room in which patient visited due to a painful sickle cell event. Name of hospital, city, state: Alphanumeric Adult;Pediatric Proposed 1.00 2019-04-05 16:39:29.0 PhenX Toolkit: Annual Pain Frequency of Sickle Cell Pain Episodes Per Year Outcomes and End Points Pain 255

Free-Form Entry

Phenx Core tier 1 Annual Pain Frequency n/a
8 results.
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