CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: NIH Resources
CRF: PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items

14 results.
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field
C20763 Patient-Reported Outcome Measurement Information System (PROMIS) - Household chore task ability satisfaction past week scale PROMISSatsfyAbiHouseworkScale The scale which represents the extent of the participant's satisfaction with his/her ability to do household chores/tasks in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do household chores/tasks in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do household chores/tasks 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20765 Patient-Reported Outcome Measurement Information System (PROMIS) - Household responsibity regular person ability satisfaction past week scale PROMISSatsfyAbiDoRspnsbltScale The scale which represents the extent of the participant's satisfaction with his/her ability to do regular personal and household responsibilities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do regular personal and household responsibilities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do regular personal and household responsibilities 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20753 Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability satisfaction past week scale PROMISSatsfyAbiDoForFamlyScale The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do things for my family. 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20767 Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance ability satisfaction past week scale PROMISSatsfyAbiDoDayRoutnScale The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to perform daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to perform my daily routines 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20754 Patient-Reported Outcome Measurement Information System (PROMIS) - Work amount satisfaction past week scale PROMISSatsfyHowMuchWorkScale The scale which represents how often the participant's satisfaction with how much work he/she could do in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents how often the participant's satisfaction with how much work he/she could do in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with how much work I can do (include work at home) 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20769 Patient-Reported Outcome Measurement Information System (PROMIS) - Dependability assistance ability satisfaction past week scale PROMISSatsfyAbiMeetNeedsScale The scale which represents the extent of the participant's satisfaction with his/her ability to meet the needs of those who depend on him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to meet the needs of those who depend on him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to meet the needs of those who depend on me 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20755 Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability good satisfaction past week scale PROMISFltGoodAbiDoForFamScale The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I feel good about my ability to do things for my family 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20771 Patient-Reported Outcome Measurement Information System (PROMIS) - Errand performance ability satisfaction past week scale PROMISSatsfyAbiRunErrandsScale The scale which represents how often the participant's satisfaction with his/her ability to run errands in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents how often the participant's satisfaction with his/her ability to run errands in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to run errands 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20756 Patient-Reported Outcome Measurement Information System (PROMIS) - Work important completion ability satisfaction past week scale PROMISSatsfyAbiImprtntWrkScale The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do the work that is really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do the work that is really important to me (include work at home) 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20757 Patient-Reported Outcome Measurement Information System (PROMIS) - Work time spent satisfaction past week scale PROMISSatsfyTimeDoWorkScale The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent doing work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with the amount of time I spend doing work (include work at home) 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20758 Patient-Reported Outcome Measurement Information System (PROMIS) - Family accomplishment happy ability satisfaction past week scale PROMISHappyHowMuchDoFamScale The scale which represents how often the participant was happy with how much he/she did for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents how often the participant was happy with how much he/she did for his family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am happy with how much I do for my family 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20759 Patient-Reported Outcome Measurement Information System (PROMIS) - Work ability satisfaction past week scale PROMISSatsfyAbiToWorkScale The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents how often the participant's satisfaction with his/her ability to work in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to work (include work at home) 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20760 Patient-Reported Outcome Measurement Information System (PROMIS) - Work quality good ability satisfaction past week scale PROMISWorkQualWantedScale The scale which represents how often the the quality of the participant's work was as good as he/she wants it to be in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents how often the the quality of the participant's work was as good as he/she wants it to be in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days the quality of my work is as good as I want it to be (include work at home) 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

C20761 Patient-Reported Outcome Measurement Information System (PROMIS) - Daily routine performance time spent satisfaction past week scale PROMISSatsfySpendDayRoutnScale The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with the amount of time he/she spent performing daily routines in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with the amount of time I spend doing my daily routines 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items NIH Resources NIH Resources

Single Pre-Defined Value Selected

14 results.
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