|
C56510 |
PROMIS - Pain Interference pain avoid social activity because more hurt scale |
Scale related to how often an individual avoided social activities because it might make him/her hurt more in the past 7 days, as part of PROMIS Pain Interference
|
Proposed |
1.00 |
2017-06-14 09:47:29.0 |
PROMIS Item Bank v1.1 - Pain Interference |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C11061 |
Gait assessment result |
Result of the gait assessment
|
Proposed |
3.00 |
2013-07-22 16:57:17.79 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C59804 |
Jump 2 feet 60 centimeter vertical difficulty scale |
Scale of the difficulty the subject/participant has in jumping 2 feet / 60 centimeters vertically
|
Proposed |
1.00 |
2019-06-21 11:29:06.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C51670 |
School name |
The name of the school that the subject currently attends, if applicable.
|
Proposed |
1.00 |
2016-12-12 00:00:00.0 |
Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58649 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad no activity entire day past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C59622 |
Standing height unit of measure |
Unit of measurement being used to capture subject/participant's height
|
Proposed |
1.00 |
2019-04-18 13:26:16.0 |
PhenX Toolkit: Height - Standing Height |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58892 |
Biopsy suspect GVHD type code |
Code denoting the type of biopsy performed for suspected GVHD (Graft Versus Host Disease).
|
Proposed |
1.00 |
2018-12-17 11:39:49.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C59804 |
Jump 2 feet 60 centimeter vertical difficulty scale |
Scale of the difficulty the subject/participant has in jumping 2 feet / 60 centimeters vertically
|
Proposed |
1.00 |
2019-06-21 11:29:06.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C14037 |
Imaging power M mode left middle cerebral artery result |
Indicates power M mode for left middle cerebral artery (MCA) result
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Vessel Imaging Transcranial Doppler (TCD) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58663 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code |
Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56563 |
PROMIS - Cognitive Function problem with memory interfere with thing enjoy scale |
Scale related to how often an individual's problems with memory, concentration, or making mental mistakes has interfered with his/her ability to do things he/she enjoys in the past 7 days, as part of the PROMIS Cognitive Function
|
Proposed |
1.00 |
2017-06-15 10:01:13.0 |
PROMIS Item Bank v2.0 - Cognitive Function |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C59491 |
Sickle cell hospitalization date |
Date indicating when the patient visited an emergency room due to painful sickle cell event.
|
Proposed |
1.00 |
2019-04-05 16:36:17.0 |
PhenX Toolkit: Annual Pain Frequency of Sickle Cell Pain Episodes Per Year |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C59639 |
Family activity current level satisfied scale |
Scale of the degree to which the subject/participant is satisfied with his or her current level of family activities.
|
Proposed |
1.00 |
2019-06-18 14:38:38.0 |
PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C56470 |
PROMIS - Pain Behavior when pain scream scale |
Scale related to the individual feeling as if when in pain he/she screamed in the past 7 days, as part of the PROMIS Pain Behavior
|
Proposed |
1.00 |
2017-06-12 12:59:11.0 |
PROMIS Item Bank v1.1 - Pain Behavior |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C12501 |
Imaging internal capsule type indicator |
The condition of the internal capsule.
|
Proposed |
3.00 |
2013-07-24 11:38:01.2 |
Brain Magnetic Resonance Imaging (MRI) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58720 |
Pain crisis information not available specify text |
Text field for specifying why information about the severe vaso-occlusive pain crisis or painful episode related to priapism, osteonecrosis, or sickle-related complication was not available.
|
Proposed |
1.00 |
2018-12-06 10:18:08.0 |
Haplo Sickle Cell Enrollment Form: Segment A |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C19500 |
Assessment performed date |
The date of assessment of the examination being performed.
|
Proposed |
1.00 |
2014-06-18 08:10:12.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C19809 |
Medical history abdominal constipation indicator |
Indicator of history of constipation
|
Proposed |
1.00 |
2015-02-05 00:00:00.0 |
Intake Medical History |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C59268 |
Child non-urgent medical appointment last 6 month indicate code |
Code indicating whether any non-urgent medical appointments were made for the child in the last 6 months.
|
Proposed |
1.00 |
2019-03-28 12:07:49.0 |
PhenX Toolkit: Quality of Care - Children |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C20780 |
Quality of Life - Fear terrible future occurrence past week scale |
The scale which represents how often the participant felt something awful would happen in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.
|
Proposed |
1.00 |
2015-05-20 17:42:14.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58639 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C59590 |
Cocaine use type name |
Name or type of cocaine used by the subject/participant
|
Proposed |
1.00 |
2019-04-12 14:06:32.0 |
PhenX Toolkit: Substances - Lifetime Use |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58884 |
Joint contracture status code |
Code denoting the status of the subject/participant's joint contractures
|
Proposed |
1.00 |
2018-12-17 11:04:49.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C59104 |
Urticaria grade |
Grade of the patient's urticaria
|
Proposed |
1.00 |
2019-01-15 14:41:05.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C13958 |
Microembolic signal settings type |
Indicates microembolic signal settings category
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Vessel Imaging Transcranial Doppler (TCD) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
