CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 76 - 100 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C56483 PROMIS - Pain Interference pain interfere ability participate leisure scale

Scale related to how much pain interfered with an individual's ability to participate in leisure activities in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C10723 Echocardiogram completed indicator

Whether an echocardiogram was performed on the participant/subject

Core 3.00 2013-07-11 15:03:49.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C08096 Influenza vaccine history indicator

Indicator of whether the participant/subject has ever received an influenza vaccination

Core 3.00 2013-07-22 09:34:41.527 Medical History Core Sickle Cell Disease Sickle Cell Disease
C56491 PROMIS - Pain Interference pain interfere with relationship others scale

Scale related to how much pain interfered with an individual's relationships with other people in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60614 Pain sign present type

Type(s) of signs of pain present with the subject/participant.

Core 1.00 2021-04-29 13:48:14.0 Chronic Pain Sickle Cell Disease Sickle Cell Disease
C60320 Echocardiogram septal diastolic velocity e prime rate

Rate in centimeters per second (cm/s) of the septal e-prime (e') velocity during diastole.

Core 1.00 2021-03-05 13:07:11.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C12896 Echocardiogram left ventricle end diastolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole.

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60200 Medical history for sickle cell condition lung other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for lung conditions.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C60649 Gene editing off target indel bone marrow colony forming cell count

Count of off-target indels in gene editing of bone marrow colony forming cells (CFC).

Core 1.00 2021-04-23 11:40:19.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C58649 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad no activity entire day past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C60663 Genetic therapy CD34 cell count

The CD34 cell count related to biomanufacture in genetic therapy.

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C59893 Feel listless past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt listless

Core 1.00 2019-06-25 10:38:21.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60490 Integrating viral vector copy number bone marrow mononuclear cell value

Value of the integrating viral vector copy number (VCN) in bone marrow for bone marrow mononuclear cells (BMMC).

Core 1.00 2021-04-22 13:25:18.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C58653 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C59853 Physically drained past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt physically drained

Core 1.00 2019-06-24 12:10:36.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C00701 Tobacco use stopped age value

Age in years when participant/subject stopped using tobacco products (e.g., cigarettes, cigars, chewing tobacco or pipe)

Core 3.00 2013-07-18 14:26:06.9 Behavioral History Sickle Cell Disease Sickle Cell Disease
C01565 Blood pressure systolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Vital Signs and Blood Gases Sickle Cell Disease Sickle Cell Disease
C58691 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Intense fear pain episode past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had intense fear of having a pain episode, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C60671 Vector integrate other text

The free-text field related to other vector integrating type.

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C59901 Need help do usual activity past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant needed help doing his or her usual activities

Core 1.00 2019-06-25 10:59:18.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60521 Gene editing conversion blood CD15 plus lineage percent value

Value of the percentage of gene-editing conversions in the blood CD15+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59861 Tire easily past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant tired easily

Core 1.00 2019-06-24 13:24:57.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60236 Cardiac MRI left ventricle end diastolic mass measurement

Measurement in grams of the end-diastolic mass of the subject/participant's left ventricle, assessed by cardiac MRI.

Core 1.00 2021-03-02 14:36:55.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C00709 Tobacco cigarettes smoked daily average number

Average number of cigarettes the participant/subject smokes daily (On the days you smoked cigarettes during the past 30 days, how many cigarettes did you smoke per day, on average?)

Core 3.00 2013-07-18 14:26:06.9 Behavioral History Sickle Cell Disease Sickle Cell Disease
C60579 Avascular necrosis Lesion 1 stage number

Number denoting the stage of avascular necrosis at the site of Lesion 1.

Core 1.00 2021-04-28 14:31:15.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
Displaying 76 - 100 of 5231