CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 76 - 100 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C18770 Tobacco product used other text

The free-text field related to 'Tobacco product used type' specifying other text. Type of tobacco product (e.g. cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Core 1.00 2014-05-27 13:34:46.0 Behavioral History Sickle Cell Disease Sickle Cell Disease
C01541 Weight measurement

Measurement of participant's/subject's weight

Core 3.00 2013-07-25 08:54:08.2 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59968 Platelet count value

Value of the count of platelets in the subject/participant's complete blood cell (CBC) sample.

Core 1.00 2020-09-01 13:36:15.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60575 Alloantibody red blood cell type

Type(s) of red blood cell (RBC) alloantibodies identified in the subject/participant.

Core 1.00 2021-04-28 14:19:50.0 Transfusion History Sickle Cell Disease Sickle Cell Disease
C60588 Hydroxyurea take time fertility preservation indicator

Indicator of whether the subject/participant was taking hydroxyurea at the time of his or her fertility preservation.

Core 1.00 2021-04-28 15:04:03.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60634 Tissue monitoring anatomic site

Anatomic site from which tissue for monitoring was sampled.

Core 1.00 2021-04-29 16:23:35.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60444 Laboratory procedure alpha beta thalassemia parent result text

The text related to alpha and beta thalassemia results for parents.

Core 1.00 2021-04-11 01:51:27.0 Genetic Diagnostic Testing Sickle Cell Disease Sickle Cell Disease
C60118 Splenic sequestration episode count

Count of splenic sequestration episodes experienced by the subject/participant.

Core 1.00 2021-01-15 09:51:54.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60099 Hydroxyurea dose postpone indicator

Indicator of whether the administration of the hydroxyurea (HU) dose was postponed.

Core 1.00 2021-01-14 14:32:57.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60656 PROMIS Pediatric Global Health 7plus 2 - fun with friend frequency scale

Scale of the frequency with which the subject/participant has fun with friends, as part of the PROMIS Pediatric Global Health 7+2 questionnaire.

Core 1.00 2021-04-30 13:00:50.0 PROMIS Pediatric Global Health 7+2 Sickle Cell Disease Sickle Cell Disease
C04800 Death cause text

Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate.

Core 3.00 2013-07-25 08:54:08.2 Death Form Sickle Cell Disease Sickle Cell Disease
C59850 Feel fatigue beyond control past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt his or her fatigue was beyond his or her control

Core 1.00 2019-06-24 10:09:11.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60596 Fertility preservation embryo indicator

Indicator of whether embryos have been preserved for fertility preservation.

Core 1.00 2021-04-28 16:12:45.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Vital Signs and Blood Gases Sickle Cell Disease Sickle Cell Disease
C60642 Gene editing blood CD3 plus lineage off target indel count

Count of gene-editing off-target indels in the blood CD3+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60483 Integrating viral vector copy number blood CD3 plus lineage value

Value of the integrating viral vector copy number (VCN) in blood for the CD3+ lineage

Core 1.00 2021-04-22 13:25:18.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60126 Imaging spleen size measurement

Measurement of the subject/participant's spleen size as determined by imaging.

Core 1.00 2021-01-15 10:45:20.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60107 Transfusion simple quantity text

Text field for reporting the quantity of blood provided to the subject/participant during a simple (non-exchange) transfusion.

Core 1.00 2021-01-14 15:01:08.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C01535 Respiratory rate

Rate of the participant/subject's breathing (inhalation and exhalation).

Core 3.00 2013-08-28 16:08:00.453 Vital Signs and Blood Gases Sickle Cell Disease Sickle Cell Disease
C60650 Site specific nuclease gene edit on target frequency method type

Type of method used for determining on-target frequency of gene editing for site-specific nucleases.

Core 1.00 2021-04-30 11:52:35.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60625 Bone marrow aspirate biopsy prior initiation curative therapy conditioning regimen indicator

Indicator of whether bone marrow aspirate/biopsy was performed prior to the initiation of a conditioning regimen for curative therapy.

Core 1.00 2021-04-29 14:44:11.0 Baseline Abnormal Hematopoiesis Sickle Cell Disease Sickle Cell Disease
C60664 Genetic therapy colonies formed count

The count related to colonies formed in genetic therapy biomanufacturing.

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C60491 Integrating viral vector copy number bone marrow CD34 plus lineage value

Value of the integrating viral vector copy number (VCN) in bone marrow for the CD34+ lineage.

Core 1.00 2021-04-22 13:25:18.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60110 Hemoglobin change from baseline grade

Grade of change in subject/participant's hemoglobin from steady-state baseline.

Core 1.00 2021-01-14 15:47:54.0 Chronic Anemia Sickle Cell Disease Sickle Cell Disease
C56157 Body surface area value

The value representing the subject's body surface area (BSA)

Core 1.00 2017-06-07 13:59:34.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
Displaying 76 - 100 of 5231