C11026 |
Neuromuscular Exam Muscle weakness indicator |
Indicator whether there is muscle weakness in the muscle or muscle group examined
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59063 |
Reversible posterior leukoencephalopathy syndrome grade |
Grade of reversible posterior leukoencephalopathy syndrome (PRES) exhibited by the patient.
|
Proposed |
1.00 |
2019-01-11 10:59:03.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59223 |
Fatigue interfere schoolwork past 7 day frequency code |
Code for the frequency over the past 7 days that the subject/participant had fatigue that interfered with his or her schoolwork
|
Proposed |
1.00 |
2019-03-27 13:55:37.0 |
PhenX Toolkit: Quality of Life - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14013 |
Intracranial stenosis mean velocity criterion value |
Indicates intracranial stenosis mean velocity criterion
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Vessel Imaging Transcranial Doppler (TCD) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59674 |
Ability do regular personal responsibility satisfied scale |
Scale of the degree to which the subject/participant is satisfied with his or her ability to do regular personal responsibilities
|
Proposed |
1.00 |
2019-06-19 11:44:07.0 |
PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59755 |
Reach retrieve 5 pound 2 kilogram object above head difficulty scale |
Scale of the difficulty the subject/participant has in reaching and retrieving a 5 pound / 2 kilogram object from above his or her head
|
Proposed |
1.00 |
2019-06-20 11:59:11.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59028 |
Six minute walk test complete indicate code |
Code indicating whether the patient completed the six minute walk test.
|
Proposed |
1.00 |
2019-01-08 12:20:50.0 |
Physical Exam Form - 1507 |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C08238 |
Imaging repetition gap value |
Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition
|
Proposed |
3.00 |
2013-07-25 08:54:08.2 |
Brain Magnetic Resonance Imaging (MRI) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C18932 |
Cranial nerves global assessment other text |
The free-text field related to 'Cranial nerves global assessment result' specifying other text. The condition of Cranial Nerves
|
Proposed |
1.00 |
2012-10-05 00:00:00.0 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58855 |
Karnofsky Lansky minimum score code |
Code denoting the minimum score on the Karnofsky or Lansky scale.
|
Proposed |
1.00 |
2018-12-14 11:50:05.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20816 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale |
The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Proposed |
1.00 |
2015-05-21 08:50:35.0 |
PROMIS Item Bank v1.0 - Sleep Disturbance |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59135 |
Protocol deviation violation category code |
Code indicating the protocol deviation or violation category
|
Proposed |
1.00 |
2019-01-28 15:53:07.0 |
Protocol Deviation/Violation Form (PDV) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59580 |
Cigarette smoking days past month count |
Count of days in the past month on which the subject/participant has smoked cigarettes
|
Proposed |
1.00 |
2019-04-12 11:20:10.0 |
PhenX Toolkit: Cigarette Smoking Status - Adolescent |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59755 |
Reach retrieve 5 pound 2 kilogram object above head difficulty scale |
Scale of the difficulty the subject/participant has in reaching and retrieving a 5 pound / 2 kilogram object from above his or her head
|
Proposed |
1.00 |
2019-06-20 11:59:11.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58913 |
Chloroquine phosphate therapy chronic GVHD indicate code |
Code indicating whether Chloroquine phosphate therapy was used to treat chronic GVHD (graft-versus-host disease)
|
Proposed |
1.00 |
2018-12-17 12:03:21.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59880 |
Too tired take bath shower past 7 day frequency scale |
Scale of the frequency over the past 7 days that the subject/participant was too tired to take a bath or shower
|
Proposed |
1.00 |
2019-06-25 09:40:05.0 |
PROMIS Item Bank v1.0 - Fatigue Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C12500 |
Imaging corpus callosum type indicator |
The condition of the corpus callosum fibers
|
Proposed |
3.00 |
2013-07-24 11:38:01.2 |
Brain Magnetic Resonance Imaging (MRI) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58804 |
Red blood cell transfusion most recent date |
Date of the subject/participant's most recent RBC (red blood cell) transfusion
|
Proposed |
1.00 |
2018-12-12 12:34:37.0 |
Follow Up Status Form - 1507 |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59108 |
Hypoxia over 24 hour grade |
Grade of hypoxia exhibited by the patient for over 24 hours
|
Proposed |
1.00 |
2019-01-16 10:31:42.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59449 |
Difficult understand conversation past week scale |
Scale for the difficulty over the past week that the subject/participant has had understanding what is said to him or her in conversation
|
Proposed |
1.00 |
2019-04-04 14:50:26.0 |
PhenX Toolkit: Functionality After Stroke |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59634 |
Pain feel tender past 7 day scale |
Scale of the degree to which the subject/participant's pain presented with a tender quality over the past 7 days.
|
Proposed |
1.00 |
2019-06-18 14:04:50.0 |
PROMIS Scale v2.0 - Nociceptive Pain Quality 5a |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59715 |
Rise bed into chair difficulty scale |
Scale of the difficulty the subject/participant has in rising from a bed into a chair
|
Proposed |
1.00 |
2019-06-20 10:13:43.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56443 |
PROMIS - Pain Behavior when pain lie down scale |
Scale related to an individual feeling as if when he/she was in pain he/she would lie down in the past 7 days, as part of the PROMIS Pain Behavior
|
Proposed |
1.00 |
2017-06-12 12:59:11.0 |
PROMIS Item Bank v1.1 - Pain Behavior |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C10179 |
Diffusion Capacity Corrected measurement |
Diffusion Capacity Corrected (DLCO CORR) = A correction for predicted value is made using patients Hemoglobin
|
Proposed |
3.00 |
2013-07-22 09:34:41.527 |
Physical Exam Form - 1507 |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C18659 |
Unexpected adverse event indicator |
The indicator of whether the adverse event is unexpected
|
Proposed |
1.00 |
2014-01-30 00:00:00.0 |
Adverse Events |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|