CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 76 - 100 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C56510 PROMIS - Pain Interference pain avoid social activity because more hurt scale

Scale related to how often an individual avoided social activities because it might make him/her hurt more in the past 7 days, as part of PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C11061 Gait assessment result

Result of the gait assessment

Proposed 3.00 2013-07-22 16:57:17.79 Neurological Exam Sickle Cell Disease Sickle Cell Disease
C59804 Jump 2 feet 60 centimeter vertical difficulty scale

Scale of the difficulty the subject/participant has in jumping 2 feet / 60 centimeters vertically

Proposed 1.00 2019-06-21 11:29:06.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C51670 School name

The name of the school that the subject currently attends, if applicable.

Proposed 1.00 2016-12-12 00:00:00.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C58649 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad no activity entire day past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C59622 Standing height unit of measure

Unit of measurement being used to capture subject/participant's height

Proposed 1.00 2019-04-18 13:26:16.0 PhenX Toolkit: Height - Standing Height Sickle Cell Disease Sickle Cell Disease
C58892 Biopsy suspect GVHD type code

Code denoting the type of biopsy performed for suspected GVHD (Graft Versus Host Disease).

Proposed 1.00 2018-12-17 11:39:49.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59804 Jump 2 feet 60 centimeter vertical difficulty scale

Scale of the difficulty the subject/participant has in jumping 2 feet / 60 centimeters vertically

Proposed 1.00 2019-06-21 11:29:06.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C14037 Imaging power M mode left middle cerebral artery result

Indicates power M mode for left middle cerebral artery (MCA) result

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Imaging Transcranial Doppler (TCD) Sickle Cell Disease Sickle Cell Disease
C58663 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code

Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 16:53:20.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C56563 PROMIS - Cognitive Function problem with memory interfere with thing enjoy scale

Scale related to how often an individual's problems with memory, concentration, or making mental mistakes has interfered with his/her ability to do things he/she enjoys in the past 7 days, as part of the PROMIS Cognitive Function

Proposed 1.00 2017-06-15 10:01:13.0 PROMIS Item Bank v2.0 - Cognitive Function Sickle Cell Disease Sickle Cell Disease
C59491 Sickle cell hospitalization date

Date indicating when the patient visited an emergency room due to painful sickle cell event.

Proposed 1.00 2019-04-05 16:36:17.0 PhenX Toolkit: Annual Pain Frequency of Sickle Cell Pain Episodes Per Year Sickle Cell Disease Sickle Cell Disease
C59639 Family activity current level satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her current level of family activities.

Proposed 1.00 2019-06-18 14:38:38.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56470 PROMIS - Pain Behavior when pain scream scale

Scale related to the individual feeling as if when in pain he/she screamed in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C12501 Imaging internal capsule type indicator

The condition of the internal capsule.

Proposed 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C58720 Pain crisis information not available specify text

Text field for specifying why information about the severe vaso-occlusive pain crisis or painful episode related to priapism, osteonecrosis, or sickle-related complication was not available.

Proposed 1.00 2018-12-06 10:18:08.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C19500 Assessment performed date

The date of assessment of the examination being performed.

Proposed 1.00 2014-06-18 08:10:12.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C19809 Medical history abdominal constipation indicator

Indicator of history of constipation

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59268 Child non-urgent medical appointment last 6 month indicate code

Code indicating whether any non-urgent medical appointments were made for the child in the last 6 months.

Proposed 1.00 2019-03-28 12:07:49.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C20780 Quality of Life - Fear terrible future occurrence past week scale

The scale which represents how often the participant felt something awful would happen in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C58639 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C59590 Cocaine use type name

Name or type of cocaine used by the subject/participant

Proposed 1.00 2019-04-12 14:06:32.0 PhenX Toolkit: Substances - Lifetime Use Sickle Cell Disease Sickle Cell Disease
C58884 Joint contracture status code

Code denoting the status of the subject/participant's joint contractures

Proposed 1.00 2018-12-17 11:04:49.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59104 Urticaria grade

Grade of the patient's urticaria

Proposed 1.00 2019-01-15 14:41:05.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C13958 Microembolic signal settings type

Indicates microembolic signal settings category

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Imaging Transcranial Doppler (TCD) Sickle Cell Disease Sickle Cell Disease
Displaying 76 - 100 of 4213