Working Together as a Community

The Cure Sickle Cell Initiative has included people from various scientific disciplines—basic and clinical researchers, statisticians, data scientists, geneticists, clinical trialists, and others. An important element of the Initiative is working together as a community to accelerate research by avoiding duplication of efforts, leveraging evolving knowledge, and integrating best practices from government, academia, and industry.

 

Efforts are focused on key priorities: creating biological and clinical endpoints, developing data resources, evaluating the risk of clonal hematopoiesis and myelodysplastic syndromes, addressing long-term follow-up, and engaging patients through outreach.