Zahara & Kesha Weeks

Our Vision

Accelerate the development of
gene therapies aimed at curing sickle cell disease.

Our Mission

The Cure Sickle Cell Initiative was created by the
National Heart, Lung, and Blood Institute to:

  1. Use emerging safe and promising gene therapies to improve the lives of individuals with sickle cell disease.
  2. Actively engage the sickle cell disease community of patients, family members, caregivers and advocates to work together on a path to cures.
  3. Encourage collaboration among researchers, industry, non-profit organizations, and policy-making agencies who will play a role in curing the disease.



Department of Health and Human Services (DHHS)
DHHS Health Resources and Services Administration (HRSA)
DHHS Office of Minority Health (OMH)
Centers for Disease Control and Prevention (CDC)
Centers for Medicare & Medicaid Services (CMS)
Food and Drug Administration (FDA)
National Institutes of Health (NIH)
National Institute of Standards and Technology (NIST)


Blood and Marrow Transplant Clinical Trials Network (BMT CTN)
Center for International Blood & Marrow Transplant Research (CIBMTR)
Production Assistance for Cellular Therapies (PACT)
Sickle Cell Disease Implementation Consortium (SCDIC)
Biologic Specimen and Data Repository (BioLINCC)
Gene Therapy Resource Program


Beckman Research Institute/City of Hope
Boston Children’s Hospital
Case Western University
Emory University
Fred Hutchinson Cancer Research Center
Harvard University
Medical College of Wisconsin
Research Triangle Institute (RTI)
Rice University
Vanderbilt University
University of California San Francisco
University of California Los Angeles
University of Washington


American Society of Hematology (ASH)
California Institute for Regenerative Medicine (CIRM)