CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 151 - 175 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60644 Gene editing blood CD15 plus lineage off target indel count

Count of gene-editing off-target indels in the blood CD15+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C58711 MRI MRA evidence cerebral infarct stabilization repeat date

Date on which a repeat MRI/MRA was performed which provided evidence of stabilization of the cerebral infarct.

Proposed 1.00 2018-11-21 12:49:43.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C56334 NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up computed score

The computed score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C60384 Agent non-chemotherapy conditioning administered date

The date as related to non-chemotherapy conditioning agent.

Supplemental 1.00 2021-04-01 02:09:18.0 Conditioning Regimen Sickle Cell Disease Sickle Cell Disease
C56460 PROMIS - Pain Behavior when pain use cane for support scale

Scale related to the individual feeling as if when in pain he/she used a cane or something else for support in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C55695 PROMIS - Dyspnea Functional limitations walk 1 mile no stop scale

Scale related to an individual being able to walk for at least 1 mile (a little more than 1.5 km) without stopping, as part of the PROMIS Dyspnea Functional Limitations

Supplemental 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
C59788 Do 5 pushup without stop difficulty scale

Scale of the difficulty the subject/participant has in doing 5 pushups without stopping

Supplemental 1.00 2019-06-21 10:47:31.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C60263 Cardiac MRI right coronary artery basal inferior segment rest status

Status at rest of the basal inferior segment of the subject/participant's right coronary artery (RCA), assessed by cardiac MRI.

Exploratory 1.00 2021-03-02 16:16:42.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60485 Integrating viral vector copy number blood CD15 plus lineage value

Value of the integrating viral vector copy number (VCN) in blood for the CD15+ lineage

Core 1.00 2021-04-22 13:25:18.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60128 Surgical splenectomy date

Date on which the subject/participant's spleen was surgically removed.

Core 1.00 2021-01-15 10:49:01.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60355 Kidney MRI R2-star value

Value of the R2* parameter for magnetic resonance imaging (MRI) of the kidney

Exploratory 1.00 2021-03-31 12:34:05.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C59985 Lymphocyte analysis perform prior disease treatment indicator

Indicator of whether any lymphocyte analyses were performed prior to any disease treatment.

Supplemental 1.00 2020-09-01 17:38:02.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C60223 Cardiac MRI left ventricle late gadolinium enhancement qualitative status

Status indicating the qualitative late gadolinium enhancement (LGE) assessment of the subject/participant's left ventricle from cardiac MRI.

Supplemental 1.00 2021-03-02 13:11:19.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C20740 Patient-Reported Outcome Measurement Information System (PROMIS) - Fear assessment past week scale

The scale which represents how often the participant felt fearful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-20 16:25:53.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C57965 Laboratory procedure percent lymphocytes value

Value of percent lymphocytes.

Proposed 1.00 2018-01-22 11:03:02.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C19770 Medical history pulmonary aspiration swallowing assessment indicator

Indicator of swallowing studies completed

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C60109 Anemia associated condition type other text

The free-text field related to "Anemia associated condition type" for specifying associated conditions not listed.

Core 1.00 2021-01-14 15:05:29.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C59417 Height without shoes status

Status indicating whether subject/participant did not know height or refused measurement.

Proposed 1.00 2019-04-03 16:22:47.0 PhenX Toolkit: Height - Self-Reported Height Sickle Cell Disease Sickle Cell Disease
C59948 Death cause source

Source from which the cause of the subject/participant's death was obtained.

Core 1.00 2020-08-19 15:06:04.0 Death Form Sickle Cell Disease Sickle Cell Disease
C20700 Patient-Reported Outcome Measurement Information System (PROMIS) - Closeness other people trouble assessment past week scale

The scale which represents how often the participant had trouble feeling close to people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C56342 NIH Toolbox Cognitive - Picture sequence memory age 3 up computed score

The computed score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:05:50.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59297 Child see personal physician last 6 month count range

Range of the count of times that the child was seen by his or her personal physician in the last 6 months

Proposed 1.00 2019-03-29 10:12:59.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59556 Age pediatric year part value

Value of the year part of the pediatric subject/participant's age

Proposed 1.00 2019-04-11 13:47:49.0 PhenX Toolkit: Pediatric School Performance Sickle Cell Disease Sickle Cell Disease
C54613 Brief Test of Executive Function Second Edition (BRIEF 2) - Plan organize total raw scale score

Total score of the raw scale for the plan/organize function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2)

Proposed 1.00 2017-03-22 09:57:02.0 Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2) Sickle Cell Disease Sickle Cell Disease
C58770 Infection uncontrolled bacterial viral fungal 6 week prior enrollment indicate code

Code indicating whether the subject/participant had an uncontrolled bacterial, viral, or fungal infection in the 6 weeks prior to his or her enrollment in the study.

Proposed 1.00 2018-12-10 16:05:10.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
Displaying 151 - 175 of 5231