CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 151 - 175 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59864 Need push self get thing done because fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant needed to push him or herself to get things done because of his or her fatigue

Core 1.00 2019-06-24 13:33:03.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60145 Blood sample accession number text

Text field for recording numeric or alphanumeric accession number of blood sample collected.

Core 1.00 2021-01-15 16:43:56.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C56348 NIH Toolbox Cognitive - Oral reading recognition english age 7 up computed score

The computed score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59233 Pain interfere running past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant's pain interfered with his or her ability to run

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59488 Stroke recovery 0 100 scale

Scale from 0 to 100 of the subject/participant's self-reported recovery from his or her stroke

Proposed 1.00 2019-04-05 13:05:27.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C60009 Antibody response assessment date

Date on which the subject/participant's antibody responses were assessed.

Supplemental 1.00 2020-09-02 10:32:15.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C56305 NIH Toolbox Cognitive - Picture vocabulary age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59107 Hypotension grade

Grade of hypotension exhibited by the patient.

Proposed 1.00 2019-01-16 10:28:43.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59124 Oligospermia grade

Grade of oligospermia (reduced sperm)

Supplemental 1.00 2019-01-17 07:23:04.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59799 Run come complete stop difficulty scale

Scale of the difficulty the subject/participant has in coming to a complete stop while running

Supplemental 1.00 2019-06-21 11:16:45.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59358 Primary health care provider courteous respectful last 12 month frequency status

Status of the frequency that the subject/participant's primary health care provider showed courtesy and respect in the last 12 months

Proposed 1.00 2019-04-01 15:17:52.0 PhenX Toolkit: Quality of Care - Adults Sickle Cell Disease Sickle Cell Disease
C59956 Cancer death cause secondary type anatomic site text

Text specifying the type and anatomic site of cancer that was a secondary/underlying or comorbid cause of the subject/participant's death

Supplemental 1.00 2020-08-19 15:38:46.0 Death Form Sickle Cell Disease Sickle Cell Disease
C56298 NIH Toolbox Cognitive - Cognition total composition age adjusted scale score

The total composite age adjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:00:48.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C58821 Vaso-occlusive crisis new require hospital outpatient parenteral opioid code

Code indicating whether the patient experienced a new onset of painful vaso-occlusive crisis requiring hospitalization OR parental opioid drugs in the outpatient setting during the assessment period.

Proposed 1.00 2018-12-12 14:41:28.0 SCD Events of Special Interest Form (ESI) Sickle Cell Disease Sickle Cell Disease
C60500 Evidence polyclonal gene-modified hematopoiesis specimen type

Type of specimen in which evidence was found of polyclonal gene-modified hematopoiesis.

Supplemental 1.00 2021-04-22 14:23:03.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C59189 Sample comment text

The free-text field for recording comments about the sample.

Proposed 1.00 2019-03-27 10:51:29.0 PhenX Toolkit: Serum or Plasma Ferritin Sickle Cell Disease Sickle Cell Disease
C54091 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Difference scaled score

Scaled score difference, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

Supplemental 1.00 2017-02-13 00:00:00.0 Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Sickle Cell Disease Sickle Cell Disease
C58635 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Limb move very easy past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was very easily able to move his or her arms or legs, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C56573 PROMIS - Life Satisfaction enjoy life scale

Scale related to an individual enjoying his/her life in the past 4 weeks, as part of the PROMIS Life Satisfaction

Proposed 1.00 2017-06-15 13:16:18.0 PROMIS Pediatric Item Bank v1.0 - Life Satisfaction- Short Form 8a Sickle Cell Disease Sickle Cell Disease
C20358 Pittsburgh Sleep Quality Index (PSQI) - Awaken bathroom use past month scale

The scale to which the subject had to get up to use the bathroom during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI).

Supplemental 1.00 2015-03-11 11:17:32.0 Pittsburgh Sleep Quality Index (PSQI) Sickle Cell Disease Sickle Cell Disease
C58675 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry die soon past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was worried that he or she would die soon, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C59043 Chronic kidney disease toxicity grade

Grade of chronic kidney disease toxicity exhibited by the patient.

Proposed 1.00 2019-01-10 12:45:24.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59070 Idiopathic pneumonia syndrome date

Date of idiopathic pneumonia syndrome

Supplemental 1.00 2019-01-11 13:20:38.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C50680 Examiner name

The name of the person performing the exam.

Proposed 1.00 2016-12-12 00:00:00.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C58800 Death date

Date on which the subject/participant died

Proposed 1.00 2018-12-12 12:24:18.0 Follow Up Status Form - BMT CTN 1507 Sickle Cell Disease Sickle Cell Disease
Displaying 151 - 175 of 5231