CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 151 - 175 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C20717 Patient-Reported Outcome Measurement Information System (PROMIS) - Perception other people intentional cause participant anger past week scale

The scale which represents how often the participant felt that people were trying to anger him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 14:40:56.0 PROMIS Item Bank v1.1 - Anger Sickle Cell Disease Sickle Cell Disease
C59056 Hemorrhage grade

Grade of hemorrhage

Proposed 1.00 2019-01-11 10:20:17.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59699 Pull heavy object toward self difficulty scale

Scale of the difficulty the subject/participant has in pulling a heavy object (10 pounds/5 kilograms) towards him or herself

Proposed 1.00 2019-06-19 13:52:37.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C54833 PROMIS - Dyspnea severity dine out scale

Scale related to the individual being able to dine out, as part of the PROMIS Dyspnea Severity

Proposed 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
C59894 Feel tired past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt tired

Proposed 1.00 2019-06-25 10:41:17.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C19807 Medical history abdominal difficulty eating indicator

Indicator of history of difficulty eating

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59118 Thrombocytopenia grade

Grade of thrombocytopenia (decreased platelet count) exhibited by the patient

Proposed 1.00 2019-01-16 13:49:19.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59699 Pull heavy object toward self difficulty scale

Scale of the difficulty the subject/participant has in pulling a heavy object (10 pounds/5 kilograms) towards him or herself

Proposed 1.00 2019-06-19 13:52:37.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59150 Protocol deviation violation result discontinuation study therapy code

Code indicating whether the protocol deviation or violation resulted in the discontinuation of the study therapy

Proposed 1.00 2019-01-29 15:35:20.0 Protocol Deviation/Violation Form (PDV) Sickle Cell Disease Sickle Cell Disease
C59824 Moderate housework health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to engage in moderate housework, such as vacuuming or sweeping floors

Proposed 1.00 2019-06-21 13:09:37.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56470 PROMIS - Pain Behavior when pain scream scale

Scale related to the individual feeling as if when in pain he/she screamed in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C20755 Patient-Reported Outcome Measurement Information System (PROMIS) - Family relationship ability good satisfaction past week scale

The scale which represents the extent to which the participant felt good about his ability to do things for his/her family in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59101 Transfusion related reaction grade

Grade of the patient's reaction related to blood transfusion

Proposed 1.00 2019-01-15 14:23:40.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59824 Moderate housework health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to engage in moderate housework, such as vacuuming or sweeping floors

Proposed 1.00 2019-06-21 13:09:37.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C19761 Medical history glaucoma diagnosis indicator

Indicator of history of Glaucoma

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59064 Thrombotic thrombocytopenic purpura grade

Grade of thrombotic thrombocytopenic purpura exhibited by the patient.

Proposed 1.00 2019-01-11 11:04:12.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59659 Activity with friends ability engage satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her ability to engage in activities with friends

Proposed 1.00 2019-06-19 10:40:59.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58663 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code

Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 16:53:20.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C59601 Exclusion criteria status

Status indicating why subject/participant should be excluded from component.

Proposed 1.00 2019-04-15 11:22:29.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C59098 Liver abnormality GVHD doppler ultrasound result code

Code denoting whether doppler ultrasound results confirmed a graft-versus-host disease (GVHD) etiology for abnormal liver function

Proposed 1.00 2019-01-15 13:39:46.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C54604 Informant participant relationship duration

Duration for which the informant has known the subject/participant

Proposed 1.00 2017-03-22 09:46:35.0 Behavior Rating Inventory of Executive Function (BRIEF) Second Edition (BRIEF-2) Sickle Cell Disease Sickle Cell Disease
C58648 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry hospital need go past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C59268 Child non-urgent medical appointment last 6 month indicate code

Code indicating whether any non-urgent medical appointments were made for the child in the last 6 months.

Proposed 1.00 2019-03-28 12:07:49.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59479 Difficult use hand most affect stroke pick up dime past 2 week scale

Scale of the difficulty the subject/participant had over the past 2 weeks using his or her hand that was most affected by the stroke to pick up a dime

Proposed 1.00 2019-04-04 15:25:21.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C58725 Tricuspid valve regurgitant jet velocity echocardiograph measurement

Measurement in meters per second of the subject/participant's tricuspid valve regurgitant jet velocity (TRJV) by echocardiograph.

Proposed 1.00 2018-12-06 10:46:12.0 Physical Exam Form - 1507 Sickle Cell Disease Sickle Cell Disease
Displaying 151 - 175 of 4213