C14022 |
Sickle cell disease criterion result text |
Indicates sickle cell criterion result
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
Selected Debaun CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C18504 |
Cranial nerves abnormality present text |
The free-text field to explain the abnormality of the cranial nerve identified.
|
Proposed |
3.00 |
2013-07-30 14:29:49.047 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C00008 |
Age value |
Value for participant/subject's age, calculated as elapsed time since the birth of the participant/subject.
|
Supplemental |
3.00 |
2013-08-28 16:08:00.453 |
Cardiac MRI |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C12497 |
Imaging cerebellum abnormality type |
The type of abnormality in the cerebellum on the image
|
Supplemental ? Highly Recommended |
3.00 |
2013-07-24 11:38:01.2 |
Brain Magnetic Resonance Imaging (MRI) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13241 |
National Institutes of Health Stroke Scale (NIHSS) - Sensory score |
Sensory abilities assessed using the NIH Stroke Scale (NIHSS)
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
PhenX CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C00722 |
Family history medical condition relative type |
Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject
|
Supplemental |
3.00 |
2013-07-24 11:38:01.2 |
Miscellaneous Sickle Cell-related CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C12427 |
Polysomnography study start time |
Time at which the sleep study began
|
Supplemental |
3.00 |
2013-07-24 11:38:01.2 |
Polysomnography |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C11100 |
Pulmonary function test position type |
Participant's/subject's position for the pulmonary function assessment
|
Supplemental |
3.00 |
2013-07-24 11:38:01.2 |
Pulmonary Function Test |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14034 |
Vasomotor response (VMR) vessel anatomic site |
Indicates vasomotor response (VMR) vessel type
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
PhenX CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13241 |
National Institutes of Health Stroke Scale (NIHSS) - Sensory score |
Sensory abilities assessed using the NIH Stroke Scale (NIHSS)
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
Miscellaneous Sickle Cell-related CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C17526 |
Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral deep tendon reflex biceps jerk right score |
Score for right-side biceps jerk in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS).
|
Supplemental |
3.00 |
2013-07-15 16:08:48.687 |
Miscellaneous Sickle Cell-related CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C06005 |
Data collected date and time |
Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed.
|
Proposed |
3.00 |
2013-07-24 21:00:23.88 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C08245 |
Imaging slice count |
Count representing the total number of single image planes captured during imaging acquisition
|
Supplemental ? Highly Recommended |
3.00 |
2013-07-25 08:54:08.2 |
Brain Magnetic Resonance Imaging (MRI) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C12476 |
Imaging other incidental finding indicator |
Indicator of whether other incidental findings are found within the image studies
|
Supplemental |
3.00 |
2013-07-24 11:38:01.2 |
PhenX CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13165 |
Stroke Specific Quality of Life Scale (SS-QOL) - food self care scale |
The scale for needing help to prepare food based on Stroke Specific Quality of Life Scale (SS-QOL).
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Stroke Specific Quality of Life Scale (SS-QOL) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14016 |
Microembolic signal start time |
Indicates microembolic signal start time
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
Vessel Imaging Transcranial Doppler (TCD) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14052 |
Hemoglobin measurement |
The measurement for hemoglobin.
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
Miscellaneous Sickle Cell-related CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13201 |
Healthy Days Core Module (CDC HRQOL) - General health scale |
The scale related to general health as part of the Healthy Days Core Module (CDC HRQOL).
|
Proposed |
3.00 |
2013-07-16 14:01:43.01 |
PhenX Toolkit: Quality of Care - Children |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C18027 |
Comment text |
Provide any additional information that pertains to the question.
|
Proposed |
3.00 |
2013-07-16 14:01:43.01 |
Protocol Deviation/Violation Review Form (PDR) - BMTCTN 15070 |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13908 |
Imaging echo pattern result |
Indicates echo pattern
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Vessel Carotid Ultrasound |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C15915 |
Trial performed count |
Number of times test was performed.
|
Supplemental |
3.00 |
2013-07-16 14:01:43.01 |
Quantitative Sensory Testing (QST) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C18938 |
Muscle weakness brain pattern other text |
The free-text field related to 'Muscle weakness brain pattern type' specifying other text. Patterns describing weakness in location of brain
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C18860 |
Imaging gray matter hyperintensity T2 fluid attenuated inversion recovery other text |
The free-text field related to 'Imaging gray matter hyperintensity T2 fluid attenuated inversion recovery site' specifying other text. The type of anatomical site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images
|
Supplemental |
3.00 |
2013-07-24 11:38:01.2 |
PhenX CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13906 |
Imaging B-mode artery name |
Indicates B-mode artery name
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
Miscellaneous Sickle Cell-related CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C02002 |
Medication prior or concomitant use indicator |
Indicator of whether the participant/subject reported taking any medications during the time period relevant to the study protocol
|
Supplemental |
3.00 |
2013-07-22 16:57:17.79 |
Prior and Concomitant Medications |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|