CDE Detailed Report
Disease: sites
Sub-Domain: Outcomes and End Points
CRF: scdc
Sub-Domain: Outcomes and End Points
CRF: scdc
5 results.
CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
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C58663 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code | ASCQMePnEpsdCrsPs12MoDyCtCode | Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | In the past 12 months, how many sickle cell pain attacks (crises) days did you have? | X;1;2;3;4 | I did not have a pain attack (crises) in the past 12 months;1;2;3;4 or more | Alphanumeric | Adult | Core | 1.00 | 2018-10-25 16:53:20.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure | Outcomes and End Points | Pain |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Pain Episode Frequency and Severity Measure | PainEpisodeQ1 | |||||||||||||||||||||||||||
C58664 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis last occur time elapse code | ASCQMePnEpsdCrsLsOcTmElpsCode | Code for the time elapsed since the subject/participant last had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code for the time elapsed since the subject/participant last had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | When was your last pain attack (crisis)? | X;1;2;3;4;5;6;7 | I've never had a pain attack (crises);More than 5 years ago;1-5 years ago;7-11 months ago;1-6 months ago;1-3 weeks ago;Less than a week ago;I have one right now | Alphanumeric | Adult | Core | 1.00 | 2018-10-25 16:53:20.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure | Outcomes and End Points | Pain |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Pain Episode Frequency and Severity Measure | PainEpisodeQ2 | |||||||||||||||||||||||||||
C58665 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent severity grade | ASCQMePnEpsdCrsMsRctSvrGrade | Grade of pain severity during the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Grade of pain severity during the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Using any number from 0 to 10, where 0 is no pain and 10 is the worst pain imaginable, how severe was your pain during your last pain attack (crisis)? | X;0;1;2;3;4;5;6;7;8;9;10 | I've never had a pain attack (crises);No Pain;1;2;3;4;5;6;7;8;9;Worst pain imaginable | Alphanumeric | Adult | Core | 1.00 | 2018-10-25 16:53:20.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure | Outcomes and End Points | Pain |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Pain Episode Frequency and Severity Measure | PainEpisodeQ3 | |||||||||||||||||||||||||||
C58666 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent interfere life code | ASCQMePnEpsdCrsMsRctIfrLifCode | Code for the extent to which the subject/participant's most recent pain episode or crisis interfered with his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code for the extent to which the subject/participant's most recent pain episode or crisis interfered with his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | How much did your last pain attack (crisis) interfere with your life? | X;1;2;3;4;5 | I've never had a pain attack (crises);Not at all, I did everything I usually do;I had to cut down on some things I usually do;I could not do most things I usually do;I could not take care of myself and needed some help from family or friends;I could not take care of myself and needed constant care from family, friends, doctors, or nurses | Alphanumeric | Adult | Core | 1.00 | 2018-10-25 16:53:20.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure | Outcomes and End Points | Pain |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Pain Episode Frequency and Severity Measure | PainEpisodeQ4 | |||||||||||||||||||||||||||
C58667 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent duration code | ASCQMePnEpsdCrsMsRctDurCode | Code for the duration of the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | Code for the duration of the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me). | About how long did your most recent pain attack (crisis) last? | 1;2;3;4;5;6;7;X | Less than 1 hour;1-12 hours;13-23 hours;1-3 days;4-6 days;1-2 weeks;More than 2 weeks;I've never had a pain attack (crises) | Alphanumeric | Adult | Core | 1.00 | 2018-10-25 16:53:20.0 | Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure | Outcomes and End Points | Pain |
Single Pre-Defined Value Selected |
ASCQ-Me | v2.0 | Pain Episode Frequency and Severity Measure | PainEpisodeQ5 |
5 results.