Sub-Domain: general-data-protection-regulation-gdpr
CRF:
CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
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C59360 | Satisfied care primary health provider last 12 month frequency status | StsfCarPrHthPvdLst12MoFrqStat | Status of the frequency that the subject/participant was satisfied with the care received from his or her primary health care provider in the last 12 months | Status of the frequency that the subject/participant was satisfied with the care received from his or her primary health care provider in the last 12 months | In the past 12 months, how often were you satisfied with the care you received from this doctor or nurse? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:17:52.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 10 | |||||||||||||||||||||||||||
C59371 | Emergency room bad experience important decide avoid care status | ERBadExpImptDecAvCarStat | Status of how important prior bad experiences in the emergency room were to the subject/participant's decision to avoid visiting the emergency room for care | Status of how important prior bad experiences in the emergency room were to the subject/participant's decision to avoid visiting the emergency room for care | How important were bad experiences in the emergency room in your decision to avoid going for care? | Not at all;A little;Somewhat;Quite;Very | Not at all;A little;Somewhat;Quite;Very | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-02 10:38:15.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 21 | |||||||||||||||||||||||||||
C59361 | Primary health care provider know how sickle cell affect patient personally status | PrHlCrPvKnHwSCAfPtPrsStat | Status of how much the subject/participant's primary health care provider knows about how sickle cell disease affects him or her personally | Status of how much the subject/participant's primary health care provider knows about how sickle cell disease affects him or her personally | How much does this doctor or nurse know how sickle cell affects you personally? | Nothing;A little bit;Some;quite a bit;very much | Nothing;A little bit;Some;quite a bit;very much | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:34:38.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 11 | |||||||||||||||||||||||||||
C59372 | Emergency room health insurance problem important decide avoid care status | ERHthInsPrbImptDecAvCarStat | Status of how important health insurance problems were to the subject/participant's decision to avoid visiting the emergency room for care | Status of how important health insurance problems were to the subject/participant's decision to avoid visiting the emergency room for care | How important were health insurance issues in your decision to avoid going for care? | Not at all;A little;Somewhat;Quite;Very | Not at all;A little;Somewhat;Quite;Very | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-02 10:38:15.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 22 | |||||||||||||||||||||||||||
C59351 | Medical appointment attempt last 12 month indicator | MedApptAtmptLst12MoInd | Indicator of whether the subject/participant attempted to make a medical appointment in the last 12 months | Indicator of whether the subject/participant attempted to make a medical appointment in the last 12 months | In the past 12 months, did you try to make an appointment to see a doctor or nurse? | No;Yes | No;Yes | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 14:45:36.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 1 | |||||||||||||||||||||||||||
C59362 | Primary health care provider treat many sickle cell patient indicator | PriHlthCarPvdTrtMnySCPtInd | Indicator of whether the subject/participant's primary health care provider treats many sickle cell patients | Indicator of whether the subject/participant's primary health care provider treats many sickle cell patients | Does this doctor or nurse treat a lot of patients with sickle cell disease? | No;Yes | No;Yes | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:41:26.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 12 | |||||||||||||||||||||||||||
C59373 | Pain attack emergency room visit last 12 month count range | PnAttERVstLst12MoCtRng | Range of count of times the subject/participant went to the emergency room because of a sickle cell pain attack or crisis | Range of count of times the subject/participant went to the emergency room because of a sickle cell pain attack or crisis | In the past 12 months, how many times did you go to the emergency room because of a pain attack (crisis)? | 0 times;1 time;2 times;3 times;4 or more times | 0 times;1 time;2 times;3 times;4 or more times | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-02 10:47:20.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 23 | |||||||||||||||||||||||||||
C59352 | Medical appointment schedule timely last 12 month frequency Status | MdApptSchedTimlyLst12MoFrqStat | Status of the frequency that medical appointments could be scheduled in a timely manner in the last 12 months | Status of the frequency that medical appointments could be scheduled in a timely manner in the last 12 months | In the past 12 months, when you tried to make an appointment to see a doctor or nurse, how often were you able to get one as soon as you wanted? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 14:51:39.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 2 | |||||||||||||||||||||||||||
C59363 | Emergency room sickle cell care last 12 month indicator | EmrgncyRmSCCarLst12MoInd | Indicator of whether the subject/participant went to the emergency room for sickle cell care in the last 12 months | Indicator of whether the subject/participant went to the emergency room for sickle cell care in the last 12 months | In the past 12 months, did you go to an emergency room for any sickle cell care you needed right away? | No;Yes | No;Yes | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:45:07.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 13 | |||||||||||||||||||||||||||
C59374 | Emergency room visit able improve sickle cell pain last 12 month status | ERVstAblImprvSCPnLst12MoStat | Status of the extent to which the subject/participant's visits to the emergency room were able to improve the pain he or she felt because of sickle cell disease in the last 12 months | Status of the extent to which the subject/participant's visits to the emergency room were able to improve the pain he or she felt because of sickle cell disease in the last 12 months | In the past 12 months, how much were the emergency room doctors and nurses able to help your pain? | Not at all;A little bit;Somewhat;quite a bit;very much | Not at all;A little bit;Somewhat;quite a bit;very much | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-02 10:51:45.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 24 | |||||||||||||||||||||||||||
C59353 | Medical appointment care satisfy last 12 month frequency status | MdApptCarSatsfyLst12MoFrqStat | Status of the frequency that the subject/participant was satisfied with care at scheduled medical appointments in the last 12 months | Status of the frequency that the subject/participant was satisfied with care at scheduled medical appointments in the last 12 months | In the past 12 months, how often were you satisfied with the care you received during these scheduled appointments? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 14:51:39.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 3 | |||||||||||||||||||||||||||
C59364 | Emergency room sickle cell care received timely last 12 month frequency status | ERSCCarRecdTimlyLst12MoFrqStat | Status of the frequency that the subject/participant received emergency room care for his or her sickle cell disease in a timely manner in the last 12 months | Status of the frequency that the subject/participant received emergency room care for his or her sickle cell disease in a timely manner in the last 12 months | In the past 12 months, when you went to the emergency room for this care, how often did you get it as soon as you wanted? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:49:51.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 14 | |||||||||||||||||||||||||||
C59375 | Emergency room medical staff believe sickle cell pain last 12 month status | ERMdStfBlvSCPnLst12MoStat | Status of the extent to which emergency room medical staff believed the subject/participant was experiencing sickle cell pain in the last 12 months | Status of the extent to which emergency room medical staff believed the subject/participant was experiencing sickle cell pain in the last 12 months | In the past 12 months, how much did the emergency room doctors and nurses believe that you had very bad sickle cell pain? | Not at all;A little bit;Somewhat;quite a bit;very much | Not at all;A little bit;Somewhat;quite a bit;very much | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-02 10:51:45.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 25 | |||||||||||||||||||||||||||
C59354 | Primary health care provider indicator | PrimaryHealthCareProviderInd | Indicator of whether the subject/participant has a primary health care provider | Indicator of whether the subject/participant has a primary health care provider | Do you have a doctor or nurse who you usually see if you need a check-up, want advice about a health problem, or get sick or hurt? | No;Yes | No;Yes | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:00:18.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 4 | |||||||||||||||||||||||||||
C59365 | Emergency room sickle cell care doctors seem caring last 12 month frequency status | ERSCCarDrSmCrngLst12MoFrqStat | Status of the frequency that doctors seemed caring when the subject/participant received emergency room care for his or her sickle cell disease in the last 12 months | Status of the frequency that doctors seemed caring when the subject/participant received emergency room care for his or her sickle cell disease in the last 12 months | In the past 12 months, when you went to the emergency room for this care, how often did the doctors treating you seem to really care about you? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:49:51.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 15 | |||||||||||||||||||||||||||
C59376 | Emergency room longest wait sickle cell pain treatment last 12 month duration range | ERLngWtSCPnTxLst12MoDurRng | Range of the duration of the longest wait in the past 12 months that the subject/participant experienced at the emergency room waiting for treatment for sickle cell pain | Range of the duration of the longest wait in the past 12 months that the subject/participant experienced at the emergency room waiting for treatment for sickle cell pain | In the past 12 months, what is the longest you had to wait in the emergency room before your sickle cell pain was treated? | Less than 5 minutes;5 to 15 minutes;16 minutes to 1 hour;More than 1 hour but less than 2 hours;2 hours or more | Less than 5 minutes;5 to 15 minutes;16 minutes to 1 hour;More than 1 hour but less than 2 hours;2 hours or more | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-02 11:00:08.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 26 | |||||||||||||||||||||||||||
C59355 | Primary health care provider visit last 12 month count range | PriHlthCarPvdrVstLst12MoCtRng | Range of count of visits by the subject/participant to his or her primary health care provider in the last 12 months | Range of count of visits by the subject/participant to his or her primary health care provider in the last 12 months | In the past 12 months, how many visits have you had with this doctor or nurse? | 0 visits;1 visit;2 visits;3 visits;4 or more visits | 0 visits;1 visit;2 visits;3 visits;4 or more visits | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:04:20.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 5 | |||||||||||||||||||||||||||
C59366 | Emergency room sickle cell care nurses seem caring last 12 month frequency status | ERSCCarNrsSmCrngLst12MoFrqStat | Status of the frequency that nurses seemed caring when the subject/participant received emergency room care for his or her sickle cell disease in the last 12 months | Status of the frequency that nurses seemed caring when the subject/participant received emergency room care for his or her sickle cell disease in the last 12 months | In the past 12 months, when you went to the emergency room for this care, how often did the nurses treating you seem to really care about you? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:49:51.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 16 | |||||||||||||||||||||||||||
C59377 | Health care last 12 month 0 10 rating number | HthCarLst12Mo010RatingNum | Number of the rating from 0 to 10 the subject/participant gives to all of the health care he or she received over the last 12 months | Number of the rating from 0 to 10 the subject/participant gives to all of the health care he or she received over the last 12 months | Using any number from 0 to 10 where 0 is the worst care possible and 10 is the best care possible, what number would you use to rate all of the care you received for your health in the last 12 months? | 1;2;3;4;5;6;7;8;9;0;10 | 1;2;3;4;5;6;7;8;9;Worst care possible;Best care possible | Numeric Values | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-02 11:08:11.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 27 | |||||||||||||||||||||||||||
C59356 | Primary health care provider explain clearly last 12 month frequency status | PrHthCrPvdrExpClyLs12MoFrqStat | Status of the frequency that the subject/participant's primary health care provider explained things clearly in the last 12 months | Status of the frequency that the subject/participant's primary health care provider explained things clearly in the last 12 months | In the past 12 months, how often did this doctor or nurse explain things in a way that is easy to understand? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:17:52.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 6 | |||||||||||||||||||||||||||
C59367 | Emergency room sickle cell care administrative staff respectful last 12 month frequency status | ERSCCarAdmStRspLst12MoFrqStat | Status of the frequency that administrative staff were courteous and respectful when the subject/participant received emergency room care for his or her sickle cell disease in the last 12 months | Status of the frequency that administrative staff were courteous and respectful when the subject/participant received emergency room care for his or her sickle cell disease in the last 12 months | In the past 12 months, when you went to the emergency room for this care, how often did the clerks and receptionists treat you with courtesy and respect? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:49:51.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 17 | |||||||||||||||||||||||||||
C59357 | Primary health care provider listen carefully last 12 month frequency status | PrHthCrPvdrLsnCflLs12MoFrqStat | Status of the frequency that the subject/participant's primary health care provider listened carefully in the last 12 months | Status of the frequency that the subject/participant's primary health care provider listened carefully in the last 12 months | In the past 12 months, how often did this doctor or nurse listen carefully to you? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:17:52.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 7 | |||||||||||||||||||||||||||
C59368 | Emergency room sickle cell care satisfactory last 12 month frequency status | ERSCCarStsfctryLst12MoFrqStat | Status of the frequency that the subject/participant was satisfied with the emergency room care he or she received for his or her sickle cell disease in the last 12 months | Status of the frequency that the subject/participant was satisfied with the emergency room care he or she received for his or her sickle cell disease in the last 12 months | In the past 12 months, when you went to the emergency room for this care, how often were you satisfied with the care you received? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:49:51.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 18 | |||||||||||||||||||||||||||
C59358 | Primary health care provider courteous respectful last 12 month frequency status | PrHthCrPvdrCtsRspLs12MoFrqStat | Status of the frequency that the subject/participant's primary health care provider showed courtesy and respect in the last 12 months | Status of the frequency that the subject/participant's primary health care provider showed courtesy and respect in the last 12 months | In the past 12 months, how often did this doctor or nurse treat you with courtesy and respect? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:17:52.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 8 | |||||||||||||||||||||||||||
C59369 | Sickle cell pain attack manage at home last 12 month count range | SCPnAtMngAtHmLst12MoCtRng | Range of count of times that the subject/participant managed a sickle cell pain attack in the last 12 months without seeking medical assistance | Range of count of times that the subject/participant managed a sickle cell pain attack in the last 12 months without seeking medical assistance | In the past 12 months, how many times did you manage a pain attack (crisis) at home without going to a doctor, clinic, or hospital? | 0 times;1 time;2 times;3 times;4 or more times;I did not have a pain attack (crisis) in the past 12 months | 0 times;1 time;2 times;3 times;4 or more times;I did not have a pain attack (crisis) in the past 12 months | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-02 10:11:48.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 19 | |||||||||||||||||||||||||||
C59359 | Primary health care provider spend enough time last 12 month frequency status | PrHthCrPvdSpEnTimLs12MoFrqStat | Status of the frequency that the subject/participant's primary health care provider spent enough time with him or her in the last 12 months | Status of the frequency that the subject/participant's primary health care provider spent enough time with him or her in the last 12 months | In the past 12 months, how often did this doctor or nurse spend enough time with you? | Always;Never;Sometimes;Usually | Always;Never;Sometimes;Usually | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-01 15:17:52.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 9 | |||||||||||||||||||||||||||
C59370 | Emergency room visit delay avoid last 12 month indicator | ERVstDlyAvdLst12MoInd | Indicator of whether the subject/participant delayed or avoided seeking emergency room care in the last 12 months | Indicator of whether the subject/participant delayed or avoided seeking emergency room care in the last 12 months | In the past 12 months, did you ever delay or avoid going to an emergency room when you thought you needed care? | Yes, I did not always go for care when I needed it;No, I always went for care when I thought I needed it | Yes, I did not always go for care when I needed it;No, I always went for care when I thought I needed it | Alphanumeric | PhenX Protocol: Quality of Care - Adults (#820101) | Adult | Proposed | 1.00 | 2019-04-02 10:19:12.0 | PhenX Toolkit: Quality of Care - Adults | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Quality of Care - Adult | 20 |