Sub-Domain: Additional Proposed Instruments
CRF:
CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
C59432 | Difficult remember do things past week scale | DifRemDoThgPstWkScl | Scale of the difficulty the subject/participant has had in the past week remembering to do things (e.g., keep a scheduled appointment or take medication) | Scale of the difficulty the subject/participant has had in the past week remembering to do things (e.g., keep a scheduled appointment or take medication) |
In the past week, how difficult was it for you to remember to do things (e.g., keep scheduled appointments or take medication)? |
1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:24:55.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 2c | ||||||||||||||||||||||||||
C59467 | Difficult continue stand without lose balance past 2 week scale | DifCnStndWoLoseBalPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks to continue standing without losing his or her balance | Scale of the difficulty the subject/participant had over the past 2 weeks to continue standing without losing his or her balance | In the past 2 weeks, how difficult was it to stay standing without losing your balance? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 6b | ||||||||||||||||||||||||||
C59445 | Feel quite nervous past week frequency scale | FlQuiteNrvousPstWkFrqScl | Scale of the frequency over the past week that the subject/participant felt quite nervous | Scale of the frequency over the past week that the subject/participant felt quite nervous | In the past week, how often did you feel quite nervous? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:48:29.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 3g | ||||||||||||||||||||||||||
C59478 | Difficult use hand most affect stroke tie shoelace past 2 week scale | DfUsHdMsAfStTiShlcPs2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks using his or her hand that was most affected by the stroke to tie a shoelace | Scale of the difficulty the subject/participant had over the past 2 weeks using his or her hand that was most affected by the stroke to tie a shoelace | In the past 2 weeks, how difficult was it to use your hand that was most affected by your stroke to tie a shoe lace? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 7d | ||||||||||||||||||||||||||
C59456 | Difficult dress upper body past 2 week scale | DifDrsUprBodyPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks dressing his or her upper body | Scale of the difficulty the subject/participant had over the past 2 weeks dressing his or her upper body | In the past 2 weeks, how difficult was it to dress the top part of your body? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 5b | ||||||||||||||||||||||||||
C59433 | Difficult remember day of week past week scale | DifRemDayOfWkPstWkScl | Scale of the difficulty the subject/participant has had in the past week remembering the day of the week | Scale of the difficulty the subject/participant has had in the past week remembering the day of the week | In the past week, how difficult was it for you to remember the day of the week? | 1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:24:55.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 2d | ||||||||||||||||||||||||||
C59468 | Difficult walk without lose balance past 2 week scale | DifWalkWoLoseBalPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks to walk without losing his or her balance | Scale of the difficulty the subject/participant had over the past 2 weeks to walk without losing his or her balance | In the past 2 weeks, how difficult was it to walk without losing your balance? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 6c | ||||||||||||||||||||||||||
C59446 | Feel life worth living past week frequency scale | FlLfWrthLvngPstWkFrqScl | Scale of the frequency over the past week that the subject/participant felt life is worth living | Scale of the frequency over the past week that the subject/participant felt life is worth living | In the past week, how often did you feel that life is worth living? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:48:29.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 3h | ||||||||||||||||||||||||||
C59479 | Difficult use hand most affect stroke pick up dime past 2 week scale | DfUsHdMsAfStPcUpDmPs2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks using his or her hand that was most affected by the stroke to pick up a dime | Scale of the difficulty the subject/participant had over the past 2 weeks using his or her hand that was most affected by the stroke to pick up a dime | In the past 2 weeks, how difficult was it to use your hand that was most affected by your stroke to pick up a dime? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 7e | ||||||||||||||||||||||||||
C59457 | Difficult bathe self past 2 week scale | DifBathSelfPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks bathing him or herself | Scale of the difficulty the subject/participant had over the past 2 weeks bathing him or herself | In the past 2 weeks, how difficult was it to bathe yourself? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 5c | ||||||||||||||||||||||||||
C59434 | Difficult concentrate past week scale | DifConcentratePstWkScl | Scale of the difficulty the subject/participant has had concentrating in the past week | Scale of the difficulty the subject/participant has had concentrating in the past week | In the past week, how difficult was it for you to concentrate? | 1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:24:55.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 2e | ||||||||||||||||||||||||||
C59469 | Difficult move from bed to chair past 2 week scale | DifMvFrmBdToChrPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks to move from a bed to a chair | Scale of the difficulty the subject/participant had over the past 2 weeks to move from a bed to a chair | In the past 2 weeks, how difficult was it to move from a bed to a chair? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 6d | ||||||||||||||||||||||||||
C59447 | Smile laugh least once day past week frequency scale | SmlLghLstOnceDyPstWkFrqScl | Scale of the frequency over the past week that the subject/participant smiled and laughed at least once a day | Scale of the frequency over the past week that the subject/participant smiled and laughed at least once a day | In the past week, how often did you smile and laugh at least once a day? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:48:29.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 3i | ||||||||||||||||||||||||||
C59480 | Limited work past 4 week scale | LtdWrkPst4WkScl | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her work | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her work | During the past 4 weeks, how much of the time have you been limited in your work (paid, voluntary or other)? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-05 12:23:41.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 8a | ||||||||||||||||||||||||||
C59458 | Difficult clip toenail past 2 week scale | DifClpTonailPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks clipping his or her toenails | Scale of the difficulty the subject/participant had over the past 2 weeks clipping his or her toenails | In the past 2 weeks, how difficult was it to clip your toenails? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 5d | ||||||||||||||||||||||||||
C59435 | Difficult think quickly past week scale | DifThnkQuickPstWkScl | Scale of the difficulty the subject/participant has had thinking quickly in the past week | Scale of the difficulty the subject/participant has had thinking quickly in the past week | In the past week, how difficult was it for you to think quickly? | 1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:24:55.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 2f | ||||||||||||||||||||||||||
C59470 | Difficult walk one block past 2 week scale | DifWalk1BlockPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks to walk one block | Scale of the difficulty the subject/participant had over the past 2 weeks to walk one block | In the past 2 weeks, how difficult was it to walk one block? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 6e | ||||||||||||||||||||||||||
C59448 | Difficult say name person in front past week scale | DifSayNamPrsnInFrtPstWkScl | Scale for the difficulty over the past week that the subject/participant has had saying the name of someone in front of him or her | Scale for the difficulty over the past week that the subject/participant has had saying the name of someone in front of him or her | In the past week, how difficult was it to say the name of someone who was in front of you? | 1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 14:50:26.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 4a | ||||||||||||||||||||||||||
C59481 | Limited social activity past 4 week scale | LtdSocActPst4WkScl | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her social activities | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her social activities | During the past 4 weeks, how much of the time have you been limited in your social activities? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-05 12:23:41.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 8b | ||||||||||||||||||||||||||
C59459 | Difficult reach toilet in time past 2 week scale | DifRchTltInTimPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks reaching the toilet in time to use it | Scale of the difficulty the subject/participant had over the past 2 weeks reaching the toilet in time to use it | In the past 2 weeks, how difficult was it to get to the toilet on time? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 5e | ||||||||||||||||||||||||||
C59436 | Difficult solve everyday problem past week scale | DifSlvEvydyProbPstWkScl | Scale of the difficulty the subject/participant has had solving everyday problems in the past week | Scale of the difficulty the subject/participant has had solving everyday problems in the past week | In the past week, how difficult was it for you to solve everyday problems? | 1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:24:55.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 2g | ||||||||||||||||||||||||||
C59471 | Difficult walk fast past 2 week scale | DifWalkFastPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks to walk fast | Scale of the difficulty the subject/participant had over the past 2 weeks to walk fast | In the past 2 weeks, how difficult was it to walk fast? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 6f | ||||||||||||||||||||||||||
C59449 | Difficult understand conversation past week scale | DifUnstdCnvrstnPstWkScl | Scale for the difficulty over the past week that the subject/participant has had understanding what is said to him or her in conversation | Scale for the difficulty over the past week that the subject/participant has had understanding what is said to him or her in conversation | In the past week, how difficult was it to understand what was being said to you in a conversation? | 1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 14:50:26.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 4b | ||||||||||||||||||||||||||
C59482 | Limited quiet recreation past 4 week scale | LtdQuietRecrtnPst4WkScl | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her quiet recreational activities | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her quiet recreational activities | During the past 4 weeks, how much of the time have you been limited in your quiet recreation (crafts, reading)? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-05 12:23:41.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 8c | ||||||||||||||||||||||||||
C59426 | Strength arm most affect stroke past week scale | StrgthArmMostAffctStrkPstWkScl | Strength over the past week of the arm most affected by the subject/participant's stroke | Strength over the past week of the arm most affected by the subject/participant's stroke | In the past week, how would you rate the strength of your arm that was most affected by your stroke? | 5;4;3;2;1 | A lot of strength;Quite a big of strength;Some strength;A little strength;No strength at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 11:53:50.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 1a | ||||||||||||||||||||||||||
C59460 | Difficult control bladder past 2 week scale | DifCtrlBladrPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks controlling his or her bladder | Scale of the difficulty the subject/participant had over the past 2 weeks controlling his or her bladder | In the past 2 weeks, how difficult was it to control your bladder (not have an accident)? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 5f | ||||||||||||||||||||||||||
C59437 | Feel sad past week frequency scale | FlSadPstWkFrqScl | Scale of the frequency that the subject/participant felt sad over the past week | Scale of the frequency that the subject/participant felt sad over the past week | In the past week, how often did you feel sad? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:48:29.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 3a | ||||||||||||||||||||||||||
C59472 | Difficult climb 1 flight stairs past 2 week scale | DifClm1FltStrPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks to climb one flight of stairs | Scale of the difficulty the subject/participant had over the past 2 weeks to climb one flight of stairs | In the past 2 weeks, how difficult was it to climb one flight of stairs? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 6g | ||||||||||||||||||||||||||
C59450 | Difficult reply question past week scale | DifRplyQuestnPstWkScl | Scale for the difficulty over the past week that the subject/participant has had replying to questions | Scale for the difficulty over the past week that the subject/participant has had replying to questions | In the past week, how difficult was it to reply to questions? | 1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 14:50:26.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 4c | ||||||||||||||||||||||||||
C59483 | Limited active recreation past 4 week scale | LtdActRecrtnPst4WkScl | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her active recreational activities | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her active recreational activities | During the past 4 weeks, how much of the time have you been limited in your active reacreation (sports, outings, travel)? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-05 12:23:41.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 8d | ||||||||||||||||||||||||||
C59427 | Strength grip hand most affect stroke past week scale | StgthGpHdMostAffctStrkPstWkScl | Strength over the past week of the grip of the hand most affected by the subject/participant's stroke | Strength over the past week of the grip of the hand most affected by the subject/participant's stroke | In the past week, how would you rate the strength of your grip of your hand that was most affected by your stroke? | 5;4;3;2;1 | A lot of strength;Quite a big of strength;Some strength;A little strength;No strength at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 11:53:50.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 1b | ||||||||||||||||||||||||||
C59461 | Difficult control bowels past 2 week scale | DifCtrlBowelsPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks controlling his or her bowels | Scale of the difficulty the subject/participant had over the past 2 weeks controlling his or her bowels | In the past 2 weeks, how difficult was it to control your bowels (not have an accident)? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 5g | ||||||||||||||||||||||||||
C59438 | Feel nobody close past week frequency scale | FlNobdyClosPstWkFrqScl | Scale of the frequency that the subject/participant felt over the past week that there is nobody he or she is close to | Scale of the frequency that the subject/participant felt over the past week that there is nobody he or she is close to | In the past week, how often did you feel that there is nobody you are close to? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:48:29.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 3b | ||||||||||||||||||||||||||
C59473 | Difficult climb several flight stairs past 2 week scale | DifClmSvlFltStrPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks to climb several flights of stairs | Scale of the difficulty the subject/participant had over the past 2 weeks to climb several flights of stairs | In the past 2 weeks, how difficult was it to climb several flights of stairs? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 6h | ||||||||||||||||||||||||||
C59451 | Difficult correctly name object past week scale | DifCrctlyNamObjPstWkScl | Scale for the difficulty over the past week that the subject/participant has had correctly naming objects | Scale for the difficulty over the past week that the subject/participant has had correctly naming objects | In the past week, how difficult was it to correctly name objects? | 1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 14:50:26.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 4d | ||||||||||||||||||||||||||
C59484 | Limited role family member friend past 4 week scale | LtdRolFmlMbrFrdPst4WkScl | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her role as a family member or friend | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her role as a family member or friend | During the past 4 weeks, how much of the time have you been limited in your role as a family member and/or friend? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-05 12:23:41.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 8e | ||||||||||||||||||||||||||
C59428 | Strength leg most affect stroke past week scale | StgthLegMostAffctStrkPstWkScl | Strength over the past week of the leg most affected by the subject/participant's stroke | Strength over the past week of the leg most affected by the subject/participant's stroke | In the past week, how would you rate the strength of your leg that was most affected by your stroke? | 5;4;3;2;1 | A lot of strength;Quite a big of strength;Some strength;A little strength;No strength at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 11:53:50.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 1c | ||||||||||||||||||||||||||
C59462 | Difficult do light household task chore past 2 week scale | DifDoLtHshldTskChorPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks doing light household tasks or chores, such as dusting, making bed, taking out garbage, doing dishes | Scale of the difficulty the subject/participant had over the past 2 weeks doing light household tasks or chores, such as dusting, making bed, taking out garbage, doing dishes | In the past 2 weeks, how difficult was it to do light household tasks/chores (e.g., dust, make a bed, take out garbage, do the dishes)? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 5h | ||||||||||||||||||||||||||
C59441 | Feel burden other past week frequency scale | FlBrdnOthrPstWkFrqScl | Scale of the frequency that the subject/participant felt over the past week that he or she is a burden to others | Scale of the frequency that the subject/participant felt over the past week that he or she is a burden to others | In the past week, how often did you feel that you are a burden to others? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:48:29.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 3c | ||||||||||||||||||||||||||
C59474 | Difficult get in out car past 2 week scale | DifGetInOutCarPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks to get in and out of a car | Scale of the difficulty the subject/participant had over the past 2 weeks to get in and out of a car | In the past 2 weeks, how difficult was it to get in and out of a car? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 6i | ||||||||||||||||||||||||||
C59452 | Difficult participate group conversation past week scale | DifPtcptGrpConvoPstWkScl | Scale for the difficulty over the past week that the subject/participant has had participating in group conversations | Scale for the difficulty over the past week that the subject/participant has had participating in group conversations | In the past week, how difficult was it to participate in a conversation with a group of people? | 1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 14:50:26.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 4e | ||||||||||||||||||||||||||
C59485 | Limited participate spiritual religious activities past 4 week scale | LtdPtcptSprRelgActPst4WkScl | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her participation in spiritual or religious activities | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her participation in spiritual or religious activities | During the past 4 weeks, how much of the time have you been limited in your participation in spiritual or religious activities? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-05 12:23:41.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 8f | ||||||||||||||||||||||||||
C59429 | Strength foot ankle most affect stroke past week scale | StgthFtAnMostAffctStrkPstWkScl | Strength over the past week of the foot/ankle most affected by the subject/participant's stroke | Strength over the past week of the foot/ankle most affected by the subject/participant's stroke | In the past week, how would you rate the strength of your foot/ankle that was most affected by your stroke? | 5;4;3;2;1 | A lot of strength;Quite a big of strength;Some strength;A little strength;No strength at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 11:53:50.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 1d | ||||||||||||||||||||||||||
C59463 | Difficult shop past 2 week scale | DifShopPst2WkScl | Scale of the difficulty the subject/participant had shopping over the past 2 weeks | Scale of the difficulty the subject/participant had shopping over the past 2 weeks | In the past 2 weeks, how difficult was it to go shopping? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 5i | ||||||||||||||||||||||||||
C59442 | Feel nothing look forward to past week frequency scale | FlNothLkFwdToPstWkFrqScl | Scale of the frequency that the subject/participant felt over the past week that he or she has nothing to look forward to | Scale of the frequency that the subject/participant felt over the past week that he or she has nothing to look forward to | In the past week, how often did you feel that you have nothing to look forward to? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:48:29.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 3d | ||||||||||||||||||||||||||
C59475 | Difficult use hand most affect stroke carry heavy object past 2 week scale | DfUsHdMsAfStCyHvObPs2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks using his or her hand that was most affected by the stroke to carry heavy objects | Scale of the difficulty the subject/participant had over the past 2 weeks using his or her hand that was most affected by the stroke to carry heavy objects | In the past 2 weeks, how difficult was it to use your hand that was most affected by your stroke to carry heavy objects (e.g., a bag of groceries)? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 7a | ||||||||||||||||||||||||||
C59453 | Difficult conversation telephone past week scale | DifConvoTlphnPstWkScl | Scale for the difficulty over the past week that the subject/participant has had having a telephone conversation | Scale for the difficulty over the past week that the subject/participant has had having a telephone conversation | In the past week, how difficult was it to have a conversation on the telephone? | 1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 14:50:26.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 4f | ||||||||||||||||||||||||||
C59486 | Limited ability control life as wish past 4 week scale | LtdAblCtrlLfAsWshPst4WkScl | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her ability to control his or her life as he or she wishes | Scale of the amount of time over the past 4 weeks that the subject/participant has been limited in his or her ability to control his or her life as he or she wishes | During the past 4 weeks, how much of the time have you been limited in your ability to control your life as you wish? | 1;2;3;4;5;1;2;3;4;5 | All of the time;Most of the time;Some of the time;A little of the time;None of the time;All of the time;Most of the time;Some of the time;A little of the time;None of the time | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-05 12:23:41.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 8g | ||||||||||||||||||||||||||
C59430 | Difficult remember things just told past week scale | DiffRememThgJstTldPstWkScl | Scale of the difficulty the subject/participant has had in the past week remembering things that people just told him or her | Scale of the difficulty the subject/participant has had in the past week remembering things that people just told him or her | In the past week, how difficult was it for you to remember things that people just told you? | 1;2;3;4;5 | Extremely difficult;Very difficult;Somewhat difficult;A little difficult;Not difficult at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 12:24:55.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 2a | ||||||||||||||||||||||||||
C59464 | Difficult do heavy household chore past 2 week scale | DifDoHvyHshldChorPst2WkScl | Scale of the difficulty the subject/participant had over the past 2 weeks doing heavy household chores such as vacuuming, laundry, yard work | Scale of the difficulty the subject/participant had over the past 2 weeks doing heavy household chores such as vacuuming, laundry, yard work | In the past 2 weeks, how difficult was it to do heavy household chores (e.g., vacuum, laundry or yard work)? | 2;3;4;5;1 | Very difficult;Somewhat difficult;A little difficult;Not difficult at all;Could not do at all | Numeric Values | PhenX Protocol: Stroke Impact Scale (SIS) - Adults (#820701) | Adult | Proposed | 1.00 | 2019-04-04 15:25:21.0 | PhenX Toolkit: Functionality After Stroke | Additional Proposed Instruments | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
PhenX | Neurology, Quality of Life, and Health Services Specialty Collection | Functionality after Stroke | 5j |