CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Outcomes and End Points
CRF: PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items

12 results.
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field
C20744 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship ability satisfaction past week scale PROMISSatsfyDoForFriendsScale The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do things for my friends 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

C20745 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity ability satisfaction past week scale PROMISSatsfyAbiDoLeisrActScale The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do leisure activities 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

C20746 Patient-Reported Outcome Measurement Information System (PROMIS) - Current level friend activity satisfaction past week scale PROMISSatsfyLvlActWthFrndScale The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her current level of activities with friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my current level of activities with my friends 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

C20747 Patient-Reported Outcome Measurement Information System (PROMIS) - Outside home fun ability satisfaction past week scale PROMISSatsfyDoFunOutHomeScale The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun outside of the home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun outside of the home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do things for fun outside my home 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

C20748 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship good ability satisfaction past week scale PROMISFltGoodAbiDoForFrndScale The scale which represents the extent to which the participant felt good about his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent to which the participant felt good about his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I feel good about my ability to do things for my friends 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

C20749 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship participation happiness past week scale PROMISHpyHowMuchDidFrndsScale The scale which represents how often the participant was happy with how much he/she did for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents how often the participant was happy with how much he/she did for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am happy with how much I do for my friends 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

C20750 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship time spent visit satisfaction past week scale PROMISSatsfyTimeVisitFrndScale The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with the amount of time spent visiting his/her friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with the amount of time I spend visiting friends 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

C20751 Patient-Reported Outcome Measurement Information System (PROMIS) - Home fun ability satisfaction past week scale PROMISSatsfyAbiFunAtHomeScale The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun at home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do things for fun at home in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do things for fun at home (like reading, listening to music, etc.) 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

C20741 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity time amount satisfaction past week scale PROMISSatsfyLeisureTimeScale The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with the amount of time he spent doing leisure activities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with the amount of time I spend doing leisure activities 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

C20752 Patient-Reported Outcome Measurement Information System (PROMIS) - Leisure activity complete important ability satisfaction past week scale PROMISSatsfyAbiLeisureActScale The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the leisure activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the leisure activities that are really important to him in the past 7 days, as part of the PROMIS In the past 7 days I am satisfied with my ability to do all of the leisure activities that are really important to me 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

C20742 Patient-Reported Outcome Measurement Information System (PROMIS) - Social activity current level satisfaction past week scale PROMISSatsfyLvlSocActvtyScale The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her current level of social activity in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my current level of social activity 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

C20743 Patient-Reported Outcome Measurement Information System (PROMIS) - Important community activity ability satisfaction past week scale PROMISSatsfyCommunityActScale The scale which represents the extent of the participant's satisfaction with his/her ability to do all of the community activities that are really important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). The scale which represents the extent of the participant's satisfaction with his/her ability to do the community activities that are important to him in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS). In the past 7 days I am satisfied with my ability to do all of the community activities that are really important to me 1;2;3;4;5 Not at all;A little bit;Somewhat;Quite a bit;Very much Numeric Values Adult;Pediatric Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Outcomes and End Points Social Role Participation and Social Competence

Single Pre-Defined Value Selected

12 results.
CSV