Sub-Domain: Additional Proposed Instruments
CRF: themes
CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
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C18888 | Imaging acquisition reason other text | ImgAcquisitionRsnOTH | The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed | The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites | 4000 |
Free-Form Entry |
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C01539 | Temperature measurement | TempMeasr | Measurement of the participant's/subject's body temperature. | Measurement of the participant's/subject's body temperature. | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-08-28 16:08:00.453 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
0 | 50 | degree Celsius | 2644401 | DeBaun Forms | |||||||||||||||||||||||||||||
C14679 | Pediatric Migraine Disability Assessment (MIDAS) - headache school partial absence day count | PedMIDASHeadSchPrtlAbseDayCt | Count missed partial school days in the last 3 months due to headaches, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. | Count missed partial school days in the last 3 months due to headaches, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-16 14:01:43.01 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
0 | 92 | ||||||||||||||||||||||||||||||||
C56388 | Conners Continuous Performance Test 3rd Edition (CPT3) - Impulsivity commission count | ConnersCPT3ImpCommCt | The number of incorrect responses to non-targets, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). | The number of incorrect responses to non-targets, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2017-06-09 15:38:27.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
0 | |||||||||||||||||||||||||||||||||
C12505 | Imaging eye abnormality indicator | ImgEyeAbnrmlyInd | Indicator of whether eye abnormalities are present | Indicator of whether eye abnormalities are present | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
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C13947 | Imaging peak velocity measurement | ImgPeakVelocityMeasr | Indicates peak velocity measurement (cm/sec) | Indicates peak velocity measurement (cm/sec) | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
0 | 999 | centimeter per second | |||||||||||||||||||||||||||||||
C21486 | Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest trial number | WAISIVDSFTrialNum | Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest | Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest | 1;2 | Trial 1;Trial 2 | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2015-07-22 11:32:44.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
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C06421 | SCI Classification light touch single side score | SCIClssLghtTchSnglSdScore | Score of sensation of light touch for the specific side of the body. | Score of sensation of light touch for the specific side of the body. | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-17 09:26:36.973 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
DeBaun Forms | |||||||||||||||||||||||||||||||||
C17528 | Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral deep tendon reflex brachioradialis jerk right score | FARSPNSNeuExDTenRefBrJRtScore | Score for right-side brachioradialis jerk in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS). | Score for right-side brachioradialis jerk in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS). | 0;1;2;3;4;0;1;2;3;4;0;1;2;3;4 | 0 - absent;1 - hyporeflexia;2 - normal;3 - hyperreflexia;4 - pathologic hyperreflexia;0 - absent;1 - hyporeflexia;2 - normal;3 - hyperreflexia;4 - pathologic hyperreflexia;0 - absent;1 - hyporeflexia;2 - normal;3 - hyperreflexia;4 - pathologic hyperreflexia | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-15 16:08:48.687 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
DeBaun Forms | |||||||||||||||||||||||||||||||
C56431 | Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning confidence interval lower bound value | WASIIIPercRsngConfIntrvlLowVal | The lower bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | The lower bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2017-06-12 12:55:22.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
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C13882 | Magnetic resonance angiography type | MRAngioTyp | The type as related to magnetic resonance angiography (MRA) | The type as related to magnetic resonance angiography (MRA) | TOF;Head;Neck;Contrast enhanced Head and Neck;Magnetic resonance venography (MRV) with contrast;Magnetic resonance venography (MRV) without contrast;Computer Tomography Venography (CTV) | Time of Flight;Head;Neck;Contrast enhanced Head and Neck;Magnetic resonance venography (MRV) with contrast;Magnetic resonance venography (MRV) without contrast;Computer Tomography Venography (CTV) | Alphanumeric | Adult;Pediatric | Supplemental | 4.00 | 2017-04-11 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Multiple Pre-Defined Values Selected |
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C13460 | Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - language deficit-comprehension scale | PSOMSNELangDefCompScale | The scale for language deficit - comprehension based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003). | The scale for language deficit - comprehension based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003). | 0;0.5;1;2;0;0.5;1;2;0;0.5;1;2 | None;Mild but no impact on function;Moderate with some impact on function;Severe or profound with missing function;None;Mild but no impact on function;Moderate with some impact on function;Severe or profound with missing function;None;Mild but no impact on function;Moderate with some impact on function;Severe or profound with missing function | Numeric values | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
DeBaun Forms | |||||||||||||||||||||||||||||||
C14017 | Microembolic signal unidirectional indicator | MicroembolSignalUnidirectInd | Indicates unidirectional microembolic signal | Indicates unidirectional microembolic signal | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
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C54609 | Brief Test of Executive Function Second Edition (BRIEF 2) - Emotional control total raw scale score | BRIEF2EmtnlCntrlTtlRwSclScore | Total score of the raw scale for the emotional control function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) | Total score of the raw scale for the emotional control function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2017-03-22 09:57:02.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
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C12469 | Imaging magnetic resonance imaging session number | ImgMRISessnNum | Number distinguishing the Magnetic Resonance Imaging (MRI) session from other sessions | Number distinguishing the Magnetic Resonance Imaging (MRI) session from other sessions | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
1 | 3 | ||||||||||||||||||||||||||||||||
C12484 | Imaging cortex-polymicrogyria site type | ImgCortexPolymicrogyriaSiteTyp | The type of anatomical site(s) of the cortex-polymicrogyria | The type of anatomical site(s) of the cortex-polymicrogyria | Temporal;Frontoparietal;Occipital | Temporal;Frontoparietal;Occipital | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Multiple Pre-Defined Values Selected |
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C13926 | Intima media thickness (IMT) B mode indicator | IMTBModeInd | Indicates intima media thickness (IMT) B mode | Indicates intima media thickness (IMT) B mode | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
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C19151 | Discontinuation date | DiscontinuationDate | The date of discontinuation | The date of discontinuation | Date or Date & Time | Adult;Pediatric | Supplemental | 1.00 | 2014-05-29 11:10:46.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
DeBaun Forms | |||||||||||||||||||||||||||||||||
C02008 | Medication prior or concomitant end date and time | MedctnPriorConcomEndDateTime | The date (and time, if applicable and known) the administration of the prior/concomitant medication ended. | The date (and time, if applicable and known) the administration of the prior/concomitant medication ended. | Date or Date & Time | Adult;Pediatric | Supplemental | 3.00 | 2013-08-28 16:08:00.453 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
3162753 | DeBaun Forms | ||||||||||||||||||||||||||||||||
C15561 | Imaging angiography contrast enhanced text | ImgAngioContrastEnhancTxt | If contrast enhanced in angiography, specify the method | If contrast enhanced in angiography, specify the method | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-16 14:01:43.01 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites | 255 |
Free-Form Entry |
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C56409 | Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities raw score | WASIIISimRawScore | The raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) . | The raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2017-06-12 11:23:35.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
0 | 45 | ||||||||||||||||||||||||||||||||
C13232 | National Institutes of Health Stroke Scale (NIHSS) - Level of consciousness primary question score | NIHSSLvlConscPrimryQScore | Level of consciousness assessed using the NIH Stroke Scale (NIHSS) | Level of consciousness assessed using the NIH Stroke Scale (NIHSS) | 0;1;2;3;UN;0;1;2;3;UN | Alert: keenly responsive;Not alert, but arousable by minor stimulation to obey, answer, or respond;Not alert, requires repeated stimulation to attend, or is obtunded and requires strong or painful stimulation to make movements (not stereotyped);Responds only with reflex motor or autonomic effects or totally unresponsive, flaccid, flexic;Unexaminable (intubated/paralyzed);Alert: keenly responsive;Not alert, but arousable by minor stimulation to obey, answer, or respond;Not alert, requires repeated stimulation to attend, or is obtunded and requires strong or painful stimulation to make movements (not stereotyped);Responds only with reflex motor or autonomic effects or totally unresponsive, flaccid, flexic;Unexaminable (intubated/paralyzed) | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
DeBaun Forms | |||||||||||||||||||||||||||||||
C13958 | Microembolic signal settings type | MicroembolSignalSettingTyp | Indicates microembolic signal settings category | Indicates microembolic signal settings category | Leading cols;Trailing cols;Threshold;Rejection | Leading cols;Trailing cols;Threshold;Rejection | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
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C21497 | Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest last trial correct digit score | WAISIVLDSBScore | Score for correctly recalled digits for the last trial, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest | Score for correctly recalled digits for the last trial, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2015-07-22 11:32:44.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
0 | 8 | ||||||||||||||||||||||||||||||||
C08244 | Imaging slice thickness value | ImgSliceThicknessVal | Value of the thickness of the slice measured in millimeters (mm) | Value of the thickness of the optical slice measured in millimeters (mm) | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
0 | 99 | millimeter | |||||||||||||||||||||||||||||||
C13894 | Imaging vessel angiography overall assessment type | ImgVesselAngioOverallAssmTyp | Indicates vessel angiography overall assessment | Indicates vessel angiography overall assessment | Normal;Small Caliber;Impaired flow | Normal;Small Caliber;Impaired flow | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
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C18610 | Imaging in plane resolution axis 2 measurement | ImgInPlaneRsltnAxis2Measr | Axis 2 of in-plane spatial resolution used in imaging acquisition | Axis 2 of in-plane spatial resolution used in imaging acquisition | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2013-09-12 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
millimeter | |||||||||||||||||||||||||||||||||
C13880 | Digital Subtraction Angiography (DSA) site of access anatomic site | DSASiteAccessAntmicSite | The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment. | The site of access for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment. | Brachial;Radial;Femoral;Other;Brachial;Radial;Femoral;Other | Brachial;Radial;Femoral;Other;Brachial;Radial;Femoral;Other | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
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C14029 | Vasospasm posterior ratio result | VasoPosterRatioReslt | Indicates vasospasm posterior ratio result | Indicates vasospasm posterior ratio result | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
0 | 10 | ||||||||||||||||||||||||||||||||
C54692 | PROMIS - Global Health carry out social role scale | PROMISGlbHlthCrryOutSocRlScl | Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health | Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health | 1;2;3;4;5;1;2;3;4;5 | Excellent;Very good;Good;Fair;Poor;Excellent;Very good;Good;Fair;Poor | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2017-04-07 15:34:25.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
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C00721 | Family history medical condition indicator | FamHistMedclCondInd | Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event | Indicator of whether a family member or first and second degree blood relatives of the participant/subject has had a history of the particular medical condition or health related event | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
3165788 | DeBaun Forms | ||||||||||||||||||||||||||||||
C14052 | Hemoglobin measurement | HemoglobMeasr | The measurement for hemoglobin. | The measurement for hemoglobin. | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
g/dL | DeBaun Forms | ||||||||||||||||||||||||||||||||
C55780 | Imaging vessel studied text | ImagVessStudTxt | Text describing any and all of the subject's vessels that were studied. | Text describing any and all of the subject's vessels that were studied. | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2017-05-31 12:30:51.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites | 255 |
Free-Form Entry |
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C12495 | Imaging pons abnormality type | ImgPonsAbnrmlyTyp | The type of abnormality in the pons on the image | The type of abnormality in the pons on the image | Hypoplasia;Other, specify;Cleft | Hypoplasia;Other, specify;Cleft | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Multiple Pre-Defined Values Selected |
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C13937 | Imaging mean lumen diameter measurement | ImgMeanLumenDiameterMeasr | Indicates mean lumen diameter measurement (mm) | Indicates mean lumen diameter measurement (mm) | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
millimeter | |||||||||||||||||||||||||||||||||
C19904 | Symptom disease lab data known disease other text | SymptSignDisLabDataOTH | Text of other symptoms, signs, known diseases, and lab data | Text of other symptoms, signs, known diseases, and lab data | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2015-02-09 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites | 4000 |
Free-Form Entry |
DeBaun Forms | ||||||||||||||||||||||||||||||||
C02309 | Serious adverse event indicator | SeriousAdvrsEvntInd | The indicator of whether the adverse event is serious. | The indicator of whether the adverse event is serious. | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-08-28 16:08:00.453 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
2199908 | DeBaun Forms | ||||||||||||||||||||||||||||||
C17432 | EEG focal slowing indicator | EEGFocalSlowingInd | The yes/no indicator for electroencephalography (EEG) focal slowing. | The yes/no indicator for Electroencephalography (EEG) focal slowing. | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-08-28 16:08:00.453 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
DeBaun Forms | |||||||||||||||||||||||||||||||
C56421 | Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid prescription lens used indicator | WASIIIExVisHeaAidPreLensUseInd | The indicator relating to the examine used his/her prescription lenses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | The indicator relating to the examine used his/her prescription lenses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | Used;Not used | Used;Not used | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2017-06-12 11:54:51.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
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C13243 | National Institutes of Health Stroke Scale (NIHSS) - Dysarthria score | NIHSSDysarthriaScore | Dysarthria assessed using the NIH Stroke Scale (NIHSS) | Dysarthria assessed using the NIH Stroke Scale (NIHSS) | 0;1;2;UN;0;1;2;UN | Normal;Mild to moderate: patient slurs at least some words and, at worst, can be understood with some difficulty.;Severe: patient's speech is so slurred as to be unintelligible in the absence of or out of proportion to any dysphasia, or is mute/anarthric.;Intubated or other physical barrier, explain;Normal;Mild to moderate: patient slurs at least some words and, at worst, can be understood with some difficulty.;Severe: patient's speech is so slurred as to be unintelligible in the absence of or out of proportion to any dysphasia, or is mute/anarthric.;Intubated or other physical barrier, explain | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
DeBaun Forms | |||||||||||||||||||||||||||||||
C14007 | Imaging Transcranial Doppler (TCD) findings result type | ImgTCDFindResltTyp | Indicates Transcranial Doppler (TCD) findings | Indicates Transcranial Doppler (TCD) findings | Reversed Diastolic Flow;Systolic spike;No signals;Reduced upstroke/Pulsatility Index (PI) | Reversed Diastolic Flow;Systolic spike;No signals;Reduced upstroke/Pulsatility Index (PI) | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Multiple Pre-Defined Values Selected |
DeBaun Forms | |||||||||||||||||||||||||||||||
C50680 | Examiner name | ExaminerName | The name of the person performing the exam. | The name of the person performing the exam. | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2016-12-12 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites | 255 |
Free-Form Entry |
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C10837 | Imaging gap between slices measurement | ImgGapBetwnSlicesMeasr | Measurement of the gap between slices used in imaging acquisition | Measurement of the gap between slices used in imaging acquisition | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
millimeter | |||||||||||||||||||||||||||||||||
C13905 | Imaging contrast agent method type | ImgContrastAgentMethodTyp | Indicates imaging contrast agent method of administration | Type of imaging contrast agent used for the scan. | Bolus;Infusion;Other, specify;Bolus;Infusion;Other, specify | Bolus;Infusion;Other, specify;Bolus;Infusion;Other, specify | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Single Pre-Defined Value Selected |
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C18720 | Imaging visual analysis location performed other text | ImgVisAnlysisLocPerfOTH | The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed | The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2014-05-27 13:34:46.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites | 4000 |
Free-Form Entry |
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C13916 | Imaging color flow angle measurement | ImgColorFlowAngleMeasr | Indicates color flow angle (degrees) | Indicates color flow angle (degrees) | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
Free-Form Entry |
0 | 360 | degree of arc | |||||||||||||||||||||||||||||||
C18891 | Imaging vessel angiography collateral status anatomic other text | ImgVessAngioCollatStatAntOTH | The free-text field related to 'Imaging vessel angiography collateral status anatomic site' specifying other text. Indicates vessel angiography collateral status location | The free-text field related to 'Imaging vessel angiography collateral status anatomic site' specifying other text. Indicates vessel angiography collateral status location | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites | 4000 |
Free-Form Entry |
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C01541 | Weight measurement | WgtMeasr | Measurement of participant's/subject's weight | Measurement of participant's/subject's weight | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
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0 | 500 | kilogram | 2179689 | DeBaun Forms | |||||||||||||||||||||||||||||
C14680 | Pediatric Migraine Disability Assessment (MIDAS) - headache decrease school function day count | PedMIDASHeadDecSchFuncDayCt | Count days functioning at less than half your ability in school in the last 3 months due to headaches, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. | Count days functioning at less than half your ability in school in the last 3 months due to headaches, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-16 14:01:43.01 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
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0 | 92 | ||||||||||||||||||||||||||||||||
C56390 | Conners Continuous Performance Test 3rd Edition (CPT3) - Impulsivity perseveration count | ConnersCPT3ImpPersCt | The number of random or anticipatory responses, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). | The number of random or anticipatory responses, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2017-06-09 15:39:31.0 | Miscellaneous Sickle Cell-related CDEs | Additional Proposed Instruments | sites |
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0 |