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Additional COVID-19 information for the SCD community, clinicians, and researchers

Information for the Community

  • Get the latest public health information from CDC: https://www.coronavirus.gov
  • SCDAA MARAC Advisory Statement: COVID-19 Vaccines
  • SCDAA MARAC Position on 2020 School Reopening — Updated July 27 2020
  • Health Alert for Patients and Caregivers (SCDAA) — Updated May 27 2020
  • Health Alert for Patients and Caregivers (PDF) (SCDAA) — Updated May 27 2020
  • Facebook Live Presentation with Dr. Biree Andamariam (SCDAA)

 

Information for Clinicians

  • Information for Health Departments on Reporting Cases of COVID-19 (CDC)
  • Information for Healthcare Professionals (CDC) 
  • COVID-19 Resources (ASH) 
  • An Outline to Decrease Burden and Minimize Morbidity (SCDAA) 
  • Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE)-SCD Registry

 

Information for Researchers

  • Get the latest research information from NIH: https://www.nih.gov/coronavirus
  • COVID-19 Posing Grim Challenge for Sickle Cell Disease Patients (NHLBI)
  • Guidance on Conduct of Clinical Trials of Medical Products during COVID-19 Pandemic (FDA) 
  • Information for NIH Applicants and Recipients of NIH Funding (NIH)
  • Notice of Special Interest: Availability of Administrative Supplements and Revision Supplements on Coronavirus Disease 2019 (NIH)

NEWS AND UPDATES

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The Cure Sickle Cell Initiative is dedicated to accelerating the development of treatments aimed at genetic-based cures.

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