CDE Detailed Report
Disease:
Sub-Domain: Additional Proposed Instruments
CRF:

Displaying 51 - 100 of 491
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field Domain CDASH Variable CDASH Definition CDASH Label Controlled Terminology Prompt Essentiality Question Text CDASH imp guidance SDTM IG target csDSR PhenX Data Type CRF Completion Inst SDTMIG Target Var SDTMIG Target Map Codelist Name PVs Pre Pop Value Query Display List Style
C18693 Imaging contrast agent method other text ImgContrastAgentMethodOTH The free-text field related to 'Imaging contrast agent method type' specifying other text. Indicates imaging contrast agent method of administration The free-text field related to 'Imaging contrast agent method type' specifying other text. Indicates imaging contrast agent method of administration Alphanumeric Adult;Pediatric Supplemental 1.00 2014-05-27 13:34:46.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr 4000

Free-Form Entry

C14008 Imaging window quality category ImgWindowQualityCat Indicates window quality category Indicates window quality category Temporal;Posterior;Orbital Temporal;Posterior;Orbital Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C13246 National Institutes of Health Stroke Scale (NIHSS) Supplemental - Intervention present type NIHSSSupInterventPresentTyp Were any of the following present during the NIHSS assessment? Were any of the following present during the NIHSS assessment? Endotracheal intubation/tracheostomy;Pharmacological sedation;Pharmacological paralysis;Endotracheal intubation/tracheostomy;Pharmacological sedation;Pharmacological paralysis Endotracheal intubation/tracheostomy;Pharmacological sedation;Pharmacological paralysis;Endotracheal intubation/tracheostomy;Pharmacological sedation;Pharmacological paralysis Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Multiple Pre-Defined Values Selected

C55773 Imaging MRI scanner used count ImagMRIScanUsedCt The number of different MRI scanners that were used on the subject. The number of different MRI scanners that were used on the subject. Numeric Values Adult;Pediatric Supplemental 1.00 2017-05-31 12:11:13.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

C13906 Imaging B-mode artery name ImgBModArtName Indicates B-mode artery name Indicates B-mode artery name CCA;ICA;ECA;CCA;ICA;ECA Common carotid artery;Internal carotid artery;External carotid artery;Common carotid artery;Internal carotid artery;External carotid artery Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C10932 Imaging lesion found indicator ImgLesnFoundInd Indicator of whether lesions are found within the imaging study Indicator of whether lesions are found within the imaging study Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C19500 Assessment performed date AssessmentPerformedDate The date of assessment of the examination being performed. The date of assessment of the examination being performed. Date or Date & Time Adult;Pediatric Supplemental 1.00 2014-06-18 08:10:12.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

C14056 Imaging depth measurement ImgDepthMeasr The depth measurement (mm) of imaging. The depth measurement (mm) of imaging. Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

0 999 millimeter
C56413 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities T score WASIIISimTScore The T score converted from the raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) . The T score converted from the raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 11:23:35.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

20 80
C01041 Alteration consciousness indicator AOCInd The indicator of whether the participant/subject experienced any period of alteration of consciousness (AOC). The indicator of whether the participant/subject experienced any period of alteration of consciousness (AOC). Yes;No;Suspected;Unknown Yes;No;Suspected;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-20 10:21:25.65 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C56435 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 4 percentile rank value WASIIIFullScale4PrcntRankVal The percentile rank the subject placed in with respect to Full Scale IQ for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). The percentile rank the subject placed in with respect to Full Scale IQ for all four subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 13:04:39.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

0 100 percent
C13949 Imaging flow/probe direction type ImgFlowProbDireTyp Indicates flow/probe direction Indicates flow/probe direction Towards;Away from Towards;Away from Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C13192 Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke status QVSFSStrokeStatus Were you ever told by a physician that you had a stroke? Were you ever told by a physician that you had a stroke? Questionnaire for Verifying Stroke Free Status (QVSFS) - numbness status No;Yes No;Yes Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C54603 Informant participant familiar grade InfrmntPrtcpntFmlrGrade Grade denoting the degree to which the informant knows the subject/participant Grade denoting the degree to which the informant knows the subject/participant Very well;Moderately well;Not well Very well;Moderately well;Not well Alphanumeric Adult;Pediatric Supplemental 1.00 2017-03-22 09:39:15.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C13884 Imaging vessel angiography arterial anatomic site ImgVesselAngioArterAntmicSite Indicates vessel imaging angiography arterial findings location Indicates vessel imaging angiography arterial findings location CCA origin;CCA to bifurcation;ICA at origin;C1 cervical;C2 petrous;C3 lacerum;C4 cavernous;C5 clinoidal;C6 - ophthalmic to PCOM;C6 - PCOM to terminus;A1;A2;M1 proximal to striate;M1 distal to striate;M2 single;M2 multiple;M3 single;M3 multiple;M4 single;M4 multiple;Vertebral origin;Vertebral- cervical;Vertebral-intracranial proximal to PICA;Vertebral-distal to PICA;Basilar-distal to AICA;Basilar-mid;Basilar-proximal to AICA;PCOM;P1;P2;P3;SCA;AICA;PICA;CCA origin;CCA to bifurcation;ICA at origin;C1 cervical;C2 petrous;C3 lacerum;C4 cavernous;C5 clinoidal;C6 - ophthalmic to PCOM;C6 - PCOM to terminus;A1;A2;M1 proximal to striate;M1 distal to striate;M2 single;M2 multiple;M3 single;M3 multiple;M4 single;M4 multiple;Vertebral origin;Vertebral- cervical;Vertebral-intracranial proximal to PICA;Vertebral-distal to PICA;Basilar-distal to AICA;Basilar-mid;Basilar-proximal to AICA;PCOM;P1;P2;P3;SCA;AICA;PICA Common carotid artery origin;Common carotid artery to bifurcation;Internal carotid artery at origin;C1 cervical;C2 petrous;C3 lacerum;C4 cavernous;C5 clinoidal;C6 - ophthalmic to PCOM;C6 - PCOM to terminus;A1;A2;M1 proximal to striate;M1 distal to striate;M2 single;M2 multiple;M3 single;M3 multiple;M4 single;M4 multiple;Vertebral origin;Vertebral- cervical;Vertebral-intracranial proximal to PICA;Vertebral-distal to PICA;Basilar-distal to AICA;Basilar-mid;Basilar-proximal to AICA;PCOM;P1;P2;P3;SCA;AICA;PICA;Common carotid artery origin;Common carotid artery to bifurcation;Internal carotid artery at origin;C1 cervical;C2 petrous;C3 lacerum;C4 cavernous;C5 clinoidal;C6 - ophthalmic to PCOM;C6 - PCOM to terminus;A1;A2;M1 proximal to striate;M1 distal to striate;M2 single;M2 multiple;M3 single;M3 multiple;M4 single;M4 multiple;Vertebral origin;Vertebral- cervical;Vertebral-intracranial proximal to PICA;Vertebral-distal to PICA;Basilar-distal to AICA;Basilar-mid;Basilar-proximal to AICA;PCOM;P1;P2;P3;SCA;AICA;PICA Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C08173 Ischemic hemorrhagic or vascular pathology indicator IschHemVasclPathInd Indicator of the presence of ischemic, hemorrhagic, or vascular pathology Indicator of the presence of ischemic, hemorrhagic, or vascular pathology Yes;No;Unknown;Not assessed Yes;No;Unknown;Not assessed Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-22 09:34:41.527 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C18855 Imaging other cortical abnormality other text ImgOthrCorticalAbnrmlyOTH The free-text field related to 'Imaging other cortical abnormality type' specifying other text. The type of other cortical abnormality The free-text field related to 'Imaging other cortical abnormality type' specifying other text. The type of other cortical abnormality Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr 4000

Free-Form Entry

C14020 Sickle cell disease vessel anatomic site SickleCellDisVesselAntmicSite Indicates sickle cell vessel Indicates sickle cell vessel ICA;MCA;ACA;Other, specify Internal carotid artery;Middle cerebral artery;Anterior carotid artery;Other, specify Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Multiple Pre-Defined Values Selected

C13464 Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - total score PSOMSNETotalScore The total score on the Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003). The total score on the Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003). Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

0 10 DeBaun Forms
C56380 Conners Continuous Performance Test 3rd Edition (CPT3) - Inattentiveness omission count ConnersCPT3InaOmmCt The number of missed targets, as part of the Conners Continuous Performance Test 3rd Edition (CPT3) The number of missed targets, as part of the Conners Continuous Performance Test 3rd Edition (CPT3) Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-09 15:29:58.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

0
C13917 Imaging end diastolic velocity measurement ImgEndDiastVeloMears Indicates end diastolic velocity (cm/sec) Indicates end diastolic velocity (cm/sec) Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

centimeter per second
C12477 Imaging other incidental finding type ImgOthrIncidentalFindTyp The type of other incidental findings found within the image studies The type of other incidental findings found within the image studies PVL;Other white matter intensities;Venous malformations;Vascular malformations;Other, specify PVL;Other white matter intensities;Venous malformations;Vascular malformations;Other, specify Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Multiple Pre-Defined Values Selected

C20419 National Institutes of Health Stroke Scale (NIHSS) - Limb ataxia amputation text NIHSSLimbAtaxiaAmputTxt The text field for explaining the amputation or joint fusion for question related to Limb ataxia assessed using the NIH Stroke Scale (NIHSS). The text field for explaining the amputation or joint fusion for question related to Limb ataxia assessed using the NIH Stroke Scale (NIHSS). Alphanumeric Adult;Pediatric Supplemental 4.00 2015-04-27 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr 4000

Free-Form Entry

DeBaun Forms
C14681 Pediatric Migraine Disability Assessment (MIDAS) - headache cease home function day count PedMIDASHeadCeasHomFuncDayCt Count the days you were not able to do things at home (i.e., chores, homework, etc.) in the last 3 months due to a headache, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. Count the days you were not able to do things at home (i.e., chores, homework, etc.) in the last 3 months due to a headache, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-16 14:01:43.01 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

0 92
C56425 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension percentile rank value WASIIIVerbCompPrcntRankVal The percentile rank the subject placed into with respect to the Verbal Comprehension subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). The percentile rank the subject placed into with respect to the Verbal Comprehension subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 12:05:57.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

0 100 percent
C01565 Blood pressure systolic measurement BldPressrSystMeasr Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg) Measurement of pressure of the participant's/subject's blood against the artery walls during systole (the contraction phase) in millimeters of mercury (mmHg) Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

0 300 millimeter of mercury 2004289 DeBaun Forms
C15568 Imaging post-processing method name ImgPstprocssMethdName Method used for image post-processing Method used for image post-processing Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-16 14:01:43.01 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr 255

Free-Form Entry

C02203 Off study reason OffStdyRsn Primary reason participant/ subject is no longer participating in study (i.e., is not being followed and will not receive intervention/treatment). Primary reason participant/ subject is no longer participating in study (i.e., is not being followed and will not receive intervention/treatment). Completed study;Refused further participation (or withdrew consent);Lost to follow-up (or cannot be located);Died;Completed study;Refused further participation (or withdrew consent);Lost to follow-up (or cannot be located);Died Completed study;Refused further participation (or withdrew consent);Lost to follow-up (or cannot be located);Died;Completed study;Refused further participation (or withdrew consent);Lost to follow-up (or cannot be located);Died Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-18 16:35:19.49 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

2979313 DeBaun Forms
C17925 Imaging contrast agent dose ImgContrastAgentDose Dosage of the contrast agent used Dosage of the contrast agent used Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr 4000

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C13960 Microembolic signal vessel anatomic site MicroembolSignVesselAntmicSite Indicates microembolic signal vessel category Indicates microembolic signal vessel category M1;A1;P1;Siphon;Ophthalmic;Vert;Basilar M1;A1;P1;Siphon;Ophthalmic;Vert;Basilar Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Multiple Pre-Defined Values Selected

C13236 National Institutes of Health Stroke Scale (NIHSS) - Visual field score NIHSSLvlConscVisuFldScore Visual fields assessed using the NIH Stroke Scale (NIHSS) Visual fields assessed using the NIH Stroke Scale (NIHSS) 0;1;2;3;UN;0;1;2;3;UN No visual loss;Partial hemianopia;Complete hemianopia;Bilateral hemianopia (blind including cortical blindness);Unexaminable (intubated/paralyzed);No visual loss;Partial hemianopia;Complete hemianopia;Bilateral hemianopia (blind including cortical blindness);Unexaminable (intubated/paralyzed) Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C54614 Brief Test of Executive Function Second Edition (BRIEF 2) - Task monitor total raw scale score BRIEF2TskMntrTtlRwSclScore Total score of the raw scale for the task-monitor function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) Total score of the raw scale for the task-monitor function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) Numeric Values Adult;Pediatric Supplemental 1.00 2017-03-22 09:57:02.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

C13896 Imaging vessel angiography level of confidence status ImgVesselAngioLvlConfidTyp Indicates vessel angiography level of confidence Indicates vessel angiography level of confidence Low;Moderate;High Low;Moderate;High Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C10567 Imaging radio frequency coil type ImgRFCoilTyp Type of radio frequency (RF) coil(s) used for the body part scanned Type of RF coil(s) used for the body part scanned Head coil;Neck coil;Spine array;Body coil (transmit);Double-cone;Circular;Figure 8;Other, specify Head coil;Neck coil;Spine array;Body coil (transmit);Double-cone;Circular;Figure 8;Other, specify Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr 4000

Multiple Pre-Defined Values Selected

C18901 Sickle cell disease vessel anatomic other text SickleCellDisVesselAntmicOTH The free-text field related to 'Sickle cell disease vessel anatomic site' specifying other text. Indicates sickle cell vessel The free-text field related to 'Sickle cell disease vessel anatomic site' specifying other text. Indicates sickle cell vessel Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr 4000

Free-Form Entry

C14031 Vasospasm status VasospasmStatus Indicates vasospasm result Indicates vasospasm result Abnormal;Normal;Abnormal;Normal Abnormal;Normal;Abnormal;Normal Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C56395 Conners Continuous Performance Test 3rd Edition (CPT3) - Vigilance hit reaction time inter-stimulus interval change value ConnersCPT3VigHRTISIChngVal The change in response speed at various inter-stimulus intervals (ISIs), as part of the Conners Continuous Performance Test 3rd Edition (CPT3). The change in response speed at various inter-stimulus intervals (ISIs), as part of the Conners Continuous Performance Test 3rd Edition (CPT3). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-09 15:46:09.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

C00023 Hand preference type HandPrefTyp Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively. Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively. Left hand;Right hand;Both hands;Unknown;Forced right Left hand;Right hand;Both hands;Unknown;Forced right Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

2180147 DeBaun Forms
C13928 Intima media thickness (IMT) electronic caliper indicator IMTElectronicCaliperInd Indicates intima media thickness (IMT) electronic caliper use Indicates intima media thickness (IMT) electronic caliper use Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C12488 Imaging subcortical cyst indicator ImgSubCorticalCystInd Indicator of whether subcortical cysts are found in the image studies Indicator of whether subcortical cysts are found in the image studies Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C21491 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subset response text WAISIVDSBRespnsTxt Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest Alphanumeric Adult;Pediatric Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr 50

Free-Form Entry

C13939 Imaging mean interadventitial diameter measurement ImgMeanInteradventlDiamtMeasr Indicates mean interadventitial diameter measurement (mm) Indicates mean interadventitial diameter measurement (mm) Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

millimeter
C12499 Imaging T2 weighted white matter abnormality site type ImgT2WWMAbnrmlySiteTyp The type of anatomical site of the white matter abnormality on T2 weighted images The type of anatomical site of the white matter abnormality on T2 weighted images Frontal;Parietal;Temporal;Cerebellar WM;Deep WM;Diffuse;Occipital;Periventricular Frontal;Parietal;Temporal;Cerebellar WM;Deep WM;Diffuse;Occipital;Periventricular Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Multiple Pre-Defined Values Selected

C21502 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest trial number WAISIVDSSSubtestTrialNum Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest 1;2 Trial 1;Trial 2 Numeric Values Adult;Pediatric Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C17495 Delay motor milestone indicator DelayMotorMilestoneInd Indicator as to whether the participant/subject has or had delayed motor milestones, as diagnosed by a pediatrician or neurologist Indicator as to whether the participant/subject has or had delayed motor milestones, as diagnosed by a pediatrician or neurologist Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-15 16:08:48.687 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C02494 Imaging study date and time ImgStdyDateTime Date (and time, if applicable and known) the radiologic study was obtained. Date (and time, if applicable and known) the radiologic study was obtained. Date or Date & Time Adult;Pediatric Supplemental 3.00 2013-08-28 16:08:00.453 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Free-Form Entry

C18708 Imaging pulse sequence other text ImgPulseSeqOTH The free-text field related to 'Imaging pulse sequence type' specifying other text. Type of imaging pulse sequence used The free-text field related to 'Imaging pulse sequence type' specifying other text. Type of imaging pulse sequence used Alphanumeric Adult;Pediatric Supplemental 1.00 2014-05-27 13:34:46.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr 4000

Free-Form Entry

C14009 Imaging window quality result ImgWindowQualityReslt Indicates window quality result for all categories Indicates window quality result for all categories Fair;Excellent;Poor;Fair;Excellent;Poor Fair;Excellent;Poor;Fair;Excellent;Poor Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C13247 National Institutes of Health Stroke Scale (NIHSS) Supplemental - Limb ataxia status NIHSSSupLimbAtaxiaStatus The indicator to determine if ataxia is present in the limbs The indicator to determine if ataxia is present in the limbs 0;1;2;UN Absent;Present in one limb;Present in two limbs;Amputation or joint fusion, explain Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C55774 Imaging headache relation time type ImagHeadacheRelTimeTyp The type of timing of the imaging in relation to headache. The type of timing of the imaging in relation to headache. Inter-Ictal;Ictal;Peri-Ictal Inter-Ictal;Ictal;Peri-Ictal Alphanumeric Adult;Pediatric Supplemental 1.00 2017-05-31 12:14:56.0 Miscellaneous Sickle Cell-related CDEs Additional Proposed Instruments general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

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