CDE Detailed Report
Disease:
Sub-Domain: general-data-protection-regulation-gdpr
CRF:

Displaying 1 - 50 of 491
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field Domain CDASH Variable CDASH Definition CDASH Label Controlled Terminology Prompt Essentiality Question Text CDASH imp guidance SDTM IG target csDSR PhenX Data Type CRF Completion Inst SDTMIG Target Var SDTMIG Target Map Codelist Name PVs Pre Pop Value Query Display List Style
C14462 Reflex plantar right response result RflxPlntrRtRespnsReslt The results from reflex plantar response on the right side The results from reflex plantar response on the right side Flexor;Extensor;Equivocal;Cannot Assess;Other, specify Flexor;Extensor;Equivocal;Cannot Assess;Other, specify Alphanumeric Adult;Pediatric Supplemental 1.00 2012-10-05 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Multiple Pre-Defined Values Selected

DeBaun Forms
C19811 Medical history abdominal liver problem indicator MedHistAbdmnlLiverProbInd Indicator of history of liver problem Indicator of history of liver problem No;Yes No;Yes Alphanumeric Adult;Pediatric Supplemental 1.00 2015-02-05 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C02004 Study drug dispensed date and time StdyDrugDispnsdDateTime Date (and time, if applicable and known) on which a participant/subject was given or applied a therapeutic agent (drug, intervention therapy) used in a clinical trial protocol Date (and time, if applicable and known) on which a participant/subject was given or applied a therapeutic agent (drug, intervention therapy) used in a clinical trial protocol Date or Date & Time Adult;Pediatric Supplemental 3.00 2013-07-18 16:35:19.49 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

3163963 DeBaun Forms
C13943 Imaging B-mode result ImgBModReslt Indicates B mode Indicates B mode Normal;Occlusion;Stenosis Normal;Occlusion;Stenosis Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C56419 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid other text WASIIIExVisHearAidOthrTxt Text describingg another visual or hearing aid the subject needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Text describingg another visual or hearing aid the subject needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Alphanumeric Adult;Pediatric Supplemental 1.00 2017-06-12 11:51:49.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr 255

Free-Form Entry

C13197 Questionnaire for Verifying Stroke Free Status (QVSFS) - sudden vision loss status QVSFSSussVisnLossStatus Have you ever suddenly lost one half of your vision? Have you ever suddenly lost one half of your vision? Questionnaire for Verifying Stroke Free Status (QVSFS) - numbness status No;Yes No;Yes Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C17524 Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral deep tendon reflex ankle jerk right score FARSPNSNeuExDTenRAnkJRtScore Score for right-side ankle jerk in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS). Score for right-side ankle jerk in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS). 0;1;2;3;4;0;1;2;3;4;0;1;2;3;4 0 - absent;1 - hyporeflexia;2 - normal;3 - hyperreflexia;4 - pathologic hyperreflexia;0 - absent;1 - hyporeflexia;2 - normal;3 - hyperreflexia;4 - pathologic hyperreflexia;0 - absent;1 - hyporeflexia;2 - normal;3 - hyperreflexia;4 - pathologic hyperreflexia Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-15 16:08:48.687 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C21506 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest total raw score WAISIVDSSTtlScore Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest Numeric Values Adult;Pediatric Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

0 16
C08240 Imaging flip angle measurement ImgFlipAngleMeasr Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

degree
C14013 Intracranial stenosis mean velocity criterion value IntracranStenoMnVlctyCriterVal Indicates intracranial stenosis mean velocity criterion Indicates intracranial stenosis mean velocity criterion Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

C13750 Imaging study ID number ImgStudyIDNum Unique identification number assigned to the study or assessment session. Unique identification number assigned to the study. Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr 255

Free-Form Entry

C18718 Imaging scanner strength other text ImgScannerStrgthOTH The free-text field related to 'Imaging scanner strength value' specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported The free-text field related to 'Imaging scanner strength value' specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported Alphanumeric Adult;Pediatric Supplemental 1.00 2014-05-27 13:34:46.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr 4000

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Tesla
C13911 Imaging plaque texture text ImgPlaqTextureTxt Indicates plaque texture Indicates plaque texture Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr 255

Free-Form Entry

C55778 Imaging inter peri ictal next headache start duration ImagInterPeriIctNextHeStartDur The duration of time until the start of the subject's next inter-ictal or peri-ictal headache. The duration of time until the start of the subject's next inter-ictal or peri-ictal headache. Numeric Values Adult;Pediatric Supplemental 1.00 2017-05-31 12:23:34.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

C12481 Imaging cortex lissencephaly (LIS type 1) indicator ImgCortexLISInd Indicator of whether cortex lissencephaly is found within the image studies Indicator of whether cortex lissencephaly is found within the image studies Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C13922 Imaging common carotid artery (CCA) externalization indicator ImgCCAExternalizInd Indicates common carotid artery (CCA) externalization Indicates common carotid artery (CCA) externalization Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C56387 Conners Continuous Performance Test 3rd Edition (CPT3) - Impulsivity hit reaction time value ConnersCPT3ImpHRTVal The value representing the subject's response speed, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). The value representing the subject's response speed, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-09 15:37:43.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

C12492 Imaging brainstem abnormal indicator ImgBrnstmAbnrmlInd Indicator of whether the brainstem appears normal or abnormal in the image studies Indicator of whether the brainstem appears normal or abnormal in the image studies Abnormal;Normal;Abnormal;Normal Abnormal;Normal;Abnormal;Normal Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C14686 Pediatric Migraine Disability Assessment (MIDAS) - headache severity score PedMIDASHeadSevScore Score for headache severity, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. Score for headache severity, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-16 14:01:43.01 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

C21485 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest item number WAISIVDSFItemNum Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest 1;2;3;4;5;6;7;8 Item 1;Item 2;Item 3;Item 4;Item 5;Item 6;Item 7;Item 8 Numeric Values Adult;Pediatric Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C02306 Adverse event start date and time AdvrsEvntStartDateTime Date (and time, if applicable and known) on which the adverse event was first evident Date (and time, if applicable and known) on which the adverse event was first evident Date or Date & Time Adult;Pediatric Supplemental 3.00 2013-07-18 16:35:19.49 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

2744993 DeBaun Forms
C13954 Consensus on Grading Intracranial Flow Obstruction (COGIF) - follow-up date and time COGIFFollowupDateTime The date and time for consensus on grading intracranial flow obstruction (COGIF) follow-up. The date and time for consensus on grading intracranial flow obstruction (COGIF) follow-up. Date or Date & Time Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

C56430 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning percentile rank value WASIIIPercRsngPrcntRankVal The percentile rank the subject placed into with respect to the Perceptual Reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). The percentile rank the subject placed into with respect to the Perceptual Reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 12:05:57.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

0 100 percent
C13240 National Institutes of Health Stroke Scale (NIHSS) - Limb ataxia score NIHSSLimbAtaxiaScore Limb ataxia assessed using the NIH Stroke Scale (NIHSS) Limb ataxia assessed using the NIH Stroke Scale (NIHSS) 0;1;2;UN;0;1;2;UN Absent;Present in one limb;Present in two limbs;Amputation or joint fusion, explain;Absent;Present in one limb;Present in two limbs;Amputation or joint fusion, explain Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C13889 Thrombolysis In Myocardial Infarction (TIMI) scale - global score TIMIScaleGlobalScore Indicates TIMI perfusion scale global score Indicates TIMI perfusion scale global score 0;1;2;3;0;1;2;3;0;1;2;3 No perfusion;Perfusion past the initial occlusion, but no distal branch filling;Perfusion with incomplete or slow distal branch filling;Full perfusion with filling of all distal branches;No perfusion;Perfusion past the initial occlusion, but no distal branch filling;Perfusion with incomplete or slow distal branch filling;Full perfusion with filling of all distal branches;No perfusion;Perfusion past the initial occlusion, but no distal branch filling;Perfusion with incomplete or slow distal branch filling;Full perfusion with filling of all distal branches Numeric values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C54608 Brief Test of Executive Function Second Edition (BRIEF 2) - Shift total raw scale score BRIEF2ShftTtlRwSclScore Total score of the raw scale for the shift function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) Total score of the raw scale for the shift function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) Numeric Values Adult;Pediatric Supplemental 1.00 2017-03-22 09:57:02.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

C10609 Hospitalization reason HospitRsn Reason why the participant/subject was hospitalized, excluding all surgeries Reason why the participant/subject was hospitalized, excluding all surgeries Pneumonia or Respiratory;Dehydration;Trauma;Fracture;Cardiomyopathy/Arrhythmia;Failure to Thrive;Other, specify;Infection other than pneumonia;Seizures;Cardiovascular Pneumonia or Respiratory;Dehydration;Trauma;Fracture;Cardiomyopathy/Arrhythmia;Failure to Thrive;Other, specify;Infection other than pneumonia;Seizures;Cardiovascular Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Multiple Pre-Defined Values Selected

DeBaun Forms
C14025 Vasospasm Lindegaard ratio value VasoLinegaardRatioVal Indicates vasospasm Lindegaard ratio result Indicates vasospasm Lindegaard ratio result Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

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C18860 Imaging gray matter hyperintensity T2 fluid attenuated inversion recovery other text ImgGryMtrHyperT2FLAIRSiteOTH The free-text field related to 'Imaging gray matter hyperintensity T2 fluid attenuated inversion recovery site' specifying other text. The type of anatomical site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images The free-text field related to 'Imaging gray matter hyperintensity T2 fluid attenuated inversion recovery site' specifying other text. The type of anatomical site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr 4000

Free-Form Entry

C00321 Medical history for body system indicator MedclHistBodySysInd Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system. Indicator of whether the participant/subject has a history of medical problems/conditions for the specific body system. Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-22 16:57:17.79 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C19059 Informant participant relationship other text InformantPartcpntRelateOTH The free-text field related to 'Informant participant relationship type' specifying other text. The relationship of the informant to participant/subject The free-text field related to 'Informant participant relationship type' specifying other text. The relationship of the informant to participant/subject Alphanumeric Adult;Pediatric Supplemental 3.00 2013-08-30 17:06:52.8 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr 4000

Free-Form Entry

C01522 Height measurement HgtMeasr Measurement of participant's/subject's height. Measurement of participant's/subject's height. Numeric Values Adult;Pediatric Supplemental 3.00 2013-08-28 16:08:00.453 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

0 400 centimeter 649 DeBaun Forms
C13933 Intima media thickness (IMT) mean far-wall measurement IMTMeanFarWallMeasr Indicates mean intima media thickness (IMT) far-wall measurement (mm) Indicates mean intima media thickness (IMT) far-wall measurement (mm) Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

millimeter
C56408 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Matrix Reasoning raw score WASIIIMRRawScore The raw score that the subject received on the Matrix Reasoning subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) . The raw score that the subject received on the Matrix Reasoning subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 11:23:35.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

0 30
C12503 Imaging gray matter hyperintensity T2 fluid attenuated inversion recovery indicator ImgGryMtrHyperT2FLAIRInd Indicator of whether there is grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images Indicator of whether there is grey matter hyperintensity on T2/FLAIR images Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C16679 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - intentionally nap day indicator BRCIntentNapDayInd The yes/no indicator for napping intentionally during the day from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). The yes/no indicator for napping intentionally during the day from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep). No;Yes No;Yes Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-14 19:48:50.273 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C21496 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest item score WAISIVDSBItemScore Item score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest Item score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest 0;1;2 0;1;2 Alphanumeric Adult;Pediatric Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C04804 Hospital discharge date and time HospitDischgDateTime Date (and time, if applicable and known) the participant/subject was discharged from the hospital Date (and time, if applicable and known) the participant/subject was discharged from the hospital Date or Date & Time Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

DeBaun Forms
C14003 Imaging brain death present indicator ImgBrainDeathPresInd Indicates presence of brain death Indicates presence of brain death Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C13458 Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - language deficit-production scale PSOMSNELangDefProdScale The scale for language deficit - production (including dysarthria) based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003). The scale for language deficit - production (including dysarthria) based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003). 0;0.5;1;2;0;0.5;1;2;0;0.5;1;2 None;Mild but no impact on function;Moderate with some impact on function;Severe or profound with missing function;None;Mild but no impact on function;Moderate with some impact on function;Severe or profound with missing function;None;Mild but no impact on function;Moderate with some impact on function;Severe or profound with missing function Numeric values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C18493 Screening visit eligibility status ScreenVisitEligibilityStatus The status determined from screening criteria that indicates whether a participant/subject may be eligible for a study. Screening visit eligibility status Eligible;Eligible but declined;Not eligible;Other, specify;Eligible;Eligible but declined;Not eligible;Other, specify Eligible;Eligible but declined;Not eligible;Other, specify;Eligible;Eligible but declined;Not eligible;Other, specify Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-18 16:35:19.49 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C13901 Imaging patient type ImgPatientTyp Indicates imaging patient type Indicates imaging patient type Asymptomatic;Acute Stroke;Chronic Stroke;Brain Edema;Vasopasm;Asymptomatic;Acute Stroke;Chronic Stroke;Brain Edema;Vasopasm Asymptomatic;Acute Stroke;Chronic Stroke;Brain Edema;Vasopasm;Asymptomatic;Acute Stroke;Chronic Stroke;Brain Edema;Vasopasm Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C54691 PROMIS - Global Health social satisfaction rate scale PROMISGlbHlthSocSatisRtScl Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health 1;2;3;4;5;1;2;3;4;5 Excellent;Very good;Good;Fair;Poor;Excellent;Very good;Good;Fair;Poor Alphanumeric Adult;Pediatric Supplemental 1.00 2017-04-07 15:34:25.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C12467 Imaging magnetic resonance imaging performed multiple indicator ImgMRIPerfMultiInd Indicator as to whether or not multiple magnetic resonance imaging (MRI) sessions have been performed on the participant/subject Indicator as to whether or not multiple magnetic resonance imaging (MRI) sessions have been performed on the participant/subject Yes;No,single brain MRI;Unknown Yes;No,single brain MRI;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C14036 Breath-holding index result BreathHoldingIndexReslt Indicates breath-holding index (BHI) result Indicates breath-holding index (BHI) result Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr 255

Free-Form Entry

C14463 Reflex plantar left response result RflxPlntrLftRespnsReslt The results from reflex plantar response on the left side The results from reflex plantar response on the left side Flexor;Extensor;Equivocal;Cannot Assess;Other, specify Flexor;Extensor;Equivocal;Cannot Assess;Other, specify Alphanumeric Adult;Pediatric Supplemental 1.00 2012-10-05 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Multiple Pre-Defined Values Selected

DeBaun Forms
C19840 Medical history medication change since last visit indicator MedHistMedctnChngeSLVInd Indicator of medication changes since last study visit Indicator of medication changes since last study visit No;Yes No;Yes Alphanumeric Adult;Pediatric Supplemental 1.00 2015-02-06 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

DeBaun Forms
C02005 Study drug returned date and time StdyDrugRetrnDateTime Date (and time, if applicable and known) on which the study drug was returned Date (and time, if applicable and known) on which the study drug was returned Date or Date & Time Adult;Pediatric Supplemental 3.00 2013-07-18 16:35:19.49 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Free-Form Entry

3164209 DeBaun Forms
C13944 Imaging color flow indicator ImgColorFlowInd Indicates color flow Indicates color flow Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

C56420 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid glasses used indicator WASIIIExVisHearAidGlassUsedInd The indicator relating to whether the examine used his/her glasses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). The indicator relating to whether the examine used his/her glasses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Used;Not used Used;Not used Alphanumeric Adult;Pediatric Supplemental 1.00 2017-06-12 11:53:18.0 Miscellaneous Sickle Cell-related CDEs general-data-protection-regulation-gdpr

Single Pre-Defined Value Selected

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CSV