Sub-Domain: general-data-protection-regulation-gdpr
CRF:
CDE ID | CDE Name | Variable Name | Definition | Short Description | Additional Notes (Question Text) | Permissible Values | Description | Data Type | Disease Specific Instructions | Disease Specific Reference | Population | Classification (e.g., Core) | Version Number | Version Date | CRF Name (CRF Module / Guideline) | Sub Domain Name | Domain Name | Size | Input Restrictions | Min Value | Max Value | Measurement Type | Source | Form Set | Form | Field | Domain | CDASH Variable | CDASH Definition | CDASH Label | Controlled Terminology | Prompt | Essentiality | Question Text | CDASH imp guidance | SDTM IG target | csDSR | PhenX | Data Type | CRF Completion Inst | SDTMIG Target Var | SDTMIG Target Map | Codelist Name | PVs | Pre Pop Value | Query Display | List Style |
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C21486 | Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest trial number | WAISIVDSFTrialNum | Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest | Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest | 1;2 | Trial 1;Trial 2 | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2015-07-22 11:32:44.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C01520 | Head circumference measurement | HeadCircumfMeasr | Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head | Circumferential measurement of the head at the widest point - the distance from above the eyebrows and ears and around the back of the head | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
0 | 100 | centimeter | 3181613 | |||||||||||||||||||||||||||||||
C56431 | Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning confidence interval lower bound value | WASIIIPercRsngConfIntrvlLowVal | The lower bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | The lower bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2017-06-12 12:55:22.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
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C13931 | Intima media thickness (IMT) findings artery type | IMTFindArteryTyp | Indicates intima media thickness (IMT) artery used for mean and max measurements | Indicates intima media thickness (IMT) artery used for mean and max measurements | CCA - right;CCA - left;Bulb - right;Bulb - left;ICA - right;ICA - left;CCA - right;CCA - left;Bulb - right;Bulb - left;ICA - right;ICA - left | Common carotid artery - right;Common carotid artery - left;Bulb - right;Bulb - left;Internal Carotid Artery - right;Internal Carotid Artery - left;Common carotid artery - right;Common carotid artery - left;Bulb - right;Bulb - left;Internal Carotid Artery - right;Internal Carotid Artery - left | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C12501 | Imaging internal capsule type indicator | ImgIntCpslTypInd | The condition of the internal capsule. | The condition of the internal capsule. | Involved;Spared | Involved;Spared | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C16187 | Vaccine type | VaccTyp | Vaccination received by pediatric patient | Vaccination received by pediatric patient | Routine: measles, mumps, rubella;Routine: tetanus, pertussis, diptheria, polio;Hepatitis B;Hemophilus Influenza Type B;Chicken pox vaccine | Routine: measles, mumps, rubella;Routine: tetanus, pertussis, diptheria, polio;Hepatitis B;Hemophilus Influenza Type B;Chicken pox vaccine | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-11 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
DeBaun Forms | ||||||||||||||||||||||||||||||||
C54609 | Brief Test of Executive Function Second Edition (BRIEF 2) - Emotional control total raw scale score | BRIEF2EmtnlCntrlTtlRwSclScore | Total score of the raw scale for the emotional control function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) | Total score of the raw scale for the emotional control function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2017-03-22 09:57:02.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
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C02496 | Imaging scanner manufacturer name | ImgScannerManufName | Name of manufacturer of imaging scanner | Imaging scanner manufacturer name | Agfa;Carestream;GE;Hitachi;Hologic;Konica Minolta;Philips;Siemens;Toshiba;Other, specify;Agfa;Carestream;GE;Hitachi;Hologic;Konica Minolta;Philips;Siemens;Toshiba;Other, specify | Agfa;Carestream;GE;Hitachi;Hologic;Konica Minolta;Philips;Siemens;Toshiba;Other, specify;Agfa;Carestream;GE;Hitachi;Hologic;Konica Minolta;Philips;Siemens;Toshiba;Other, specify | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C14001 | Extracranial stenosis type | ExtracranStenosisTyp | Indicates extracranial stenosis type | Indicates extracranial stenosis type | Collateral;Reduced upstroke;Reduced pulsatility index (Pi);VMR;Reduced velocity;Collateral;Reduced upstroke;Reduced pulsatility index (Pi);VMR;Reduced velocity | Collateral;Reduced upstroke;Reduced pulsatility index (Pi);VMR;Reduced velocity;Collateral;Reduced upstroke;Reduced pulsatility index (Pi);VMR;Reduced velocity | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Multiple Pre-Defined Values Selected |
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C18888 | Imaging acquisition reason other text | ImgAcquisitionRsnOTH | The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed | The free-text field related to 'Imaging acquisition reason' specifying other text. Describes why the imaging study was performed | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr | 4000 |
Free-Form Entry |
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C13456 | Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - sensorimotor deficit scale | PSOMSNESensDefScale | The scale for sensorimotor deficit (any motor or sensory abnormality including cranial nerve deficits, visual, and hearing deficits) based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003). | The scale for sensorimotor deficit (any motor or sensory abnormality including cranial nerve deficits, visual, and hearing deficits) based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003). | 0;0.5;1;2;0;0.5;1;2;0;0.5;1;2 | None;Mild but no impact on function;Moderate with some impact on function;Severe or profound with missing function;None;Mild but no impact on function;Moderate with some impact on function;Severe or profound with missing function;None;Mild but no impact on function;Moderate with some impact on function;Severe or profound with missing function | Numeric values | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
DeBaun Forms | ||||||||||||||||||||||||||||||||
C13470 | Stroke Adjudication Worksheet - neuroimaging type | StrokeAdjudWksNeuroimagTyp | Type of neuro-imaging done for the stroke event | Type of neuro-imaging done for the stroke event | Single brain CT;Multiple brain CTs separated in time;MRI;DWI | Single brain CT;Multiple brain CTs separated in time;MRI;DWI | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Multiple Pre-Defined Values Selected |
DeBaun Forms | ||||||||||||||||||||||||||||||||
C56409 | Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities raw score | WASIIISimRawScore | The raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) . | The raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2017-06-12 11:23:35.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
0 | 45 | |||||||||||||||||||||||||||||||||
C13910 | Imaging plaque severity grade | ImgPlaqSevGrade | Indicates plaque severity grade | Indicates plaque severity grade | Mild;Moderate;Severe | Mild;Moderate;Severe | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C12480 | Imaging cortex-pachygyria thickness measurement | ImgCortexPachygyriaThickMeasr | The measurement of cortex thickness, in , of the cortex | The measurement of cortex thickness, in , of the cortex | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
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C14444 | Muscle tone assessment abnormality indicator | MuscToneAbnrmlyAssmtInd | Whether the muscle tone assessment found any abnormalities | Whether the muscle tone assessment found any abnormalities | Yes;No;Not assessed;Unknown | Yes;No;Not assessed;Unknown | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-08-28 16:08:00.453 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
DeBaun Forms | ||||||||||||||||||||||||||||||||
C21497 | Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest last trial correct digit score | WAISIVLDSBScore | Score for correctly recalled digits for the last trial, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest | Score for correctly recalled digits for the last trial, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2015-07-22 11:32:44.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
0 | 8 | |||||||||||||||||||||||||||||||||
C01705 | Lab test name | LabTestName | Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions. | Name representing the lab test performed on body fluid(s) and tissues. Test names are typically comprised of the analyte name, properties (%, Ratio, etc.), the type of body fluid tested, and any special instructions. | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
2003746 | DeBaun Forms | LB | LBTEST |
Lab Test or Examination Name |
Laboratory Test Name |
What was the lab test name? |
LBTEST; LBTESTCD | Char | Record the name of the Lab measurement or finding, if not preprinted on the CRF. If collected on the CRF, the sponsor may provide additional instructions to ensure the data is entered as intended. | (LBTEST) |
[Select appropriate values from the LBTEST codelist] |
Prompt | Radio | |||||||||||||||||||||
C13942 | Imaging vessel category | ImgVesselCat | Indicates vessel category | Indicates vessel category | M1;Insular M2;A1;ICA;P1;P2;EC ICA;Siphon;Vert;Basilar;Ophthalmic | M1;Insular M2;A1;Internal Carotid Artery (ICA);P1;P2;EC Internal Carotid Artery (ICA);Siphon;Vert;Basilar;Ophthalmic Artery | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C18610 | Imaging in plane resolution axis 2 measurement | ImgInPlaneRsltnAxis2Measr | Axis 2 of in-plane spatial resolution used in imaging acquisition | Axis 2 of in-plane spatial resolution used in imaging acquisition | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2013-09-12 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
millimeter | ||||||||||||||||||||||||||||||||||
C13196 | Questionnaire for Verifying Stroke Free Status (QVSFS) - painless vision loss status | QVSFSPainlsVisnLossStatus | Have you ever had sudden painless loss of vision in one or both eyes? | Have you ever had sudden painless loss of vision in one or both eyes? Questionnaire for Verifying Stroke Free Status (QVSFS) | No;Yes | No;Yes | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
DeBaun Forms | ||||||||||||||||||||||||||||||||
C17523 | Friedreich's Ataxia Rating Scale (FARS) - neurological exam peripheral deep tendon reflex ankle jerk left score | FARSPNSNeuExDTenRAnkJLftScore | Score for left-side ankle jerk in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS). | Score for left-side ankle jerk in the peripheral nervous system section of the neurological exam, as part of the Friedreich's Ataxia Rating Scale (FARS). | 0;1;2;3;4;0;1;2;3;4;0;1;2;3;4 | 0 - absent;1 - hyporeflexia;2 - normal;3 - hyperreflexia;4 - pathologic hyperreflexia;0 - absent;1 - hyporeflexia;2 - normal;3 - hyperreflexia;4 - pathologic hyperreflexia;0 - absent;1 - hyporeflexia;2 - normal;3 - hyperreflexia;4 - pathologic hyperreflexia | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-15 16:08:48.687 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
DeBaun Forms | ||||||||||||||||||||||||||||||||
C54692 | PROMIS - Global Health carry out social role scale | PROMISGlbHlthCrryOutSocRlScl | Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health | Scale related to an individual's rating of his/her ability to carry out usual social activities and roles, as part of the PROMIS Global Health | 1;2;3;4;5;1;2;3;4;5 | Excellent;Very good;Good;Fair;Poor;Excellent;Very good;Good;Fair;Poor | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2017-04-07 15:34:25.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C08239 | Imaging echo duration | ImgEchoDur | Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition | Duration between the application of the 90° pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
millisecond | ||||||||||||||||||||||||||||||||||
C14012 | Intracranial stenosis peak systolic velocity (PSV) criterion result | IntracranStenoPSVCriterReslt | Indicates intracranial stenosis peak systolic velocity (PSV) criterion | Indicates intracranial stenosis peak systolic velocity (PSV) criterion | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr | 255 |
Free-Form Entry |
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C19151 | Discontinuation date | DiscontinuationDate | The date of discontinuation | The date of discontinuation | Date or Date & Time | Adult;Pediatric | Supplemental | 1.00 | 2014-05-29 11:10:46.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
DeBaun Forms | ||||||||||||||||||||||||||||||||||
C14024 | Vasospasm criterion value | VasoCriterionVal | Indicates vasospasm criterion value | Indicates vasospasm criterion value | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
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C19904 | Symptom disease lab data known disease other text | SymptSignDisLabDataOTH | Text of other symptoms, signs, known diseases, and lab data | Text of other symptoms, signs, known diseases, and lab data | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2015-02-09 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr | 4000 |
Free-Form Entry |
DeBaun Forms | |||||||||||||||||||||||||||||||||
C00313 | Medical history condition SNOMED CT code | MedclHistCondSNOMEDCTCode | Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject | Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-25 08:54:08.2 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr | 255 |
Free-Form Entry |
DeBaun Forms | |||||||||||||||||||||||||||||||||
C56421 | Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid prescription lens used indicator | WASIIIExVisHeaAidPreLensUseInd | The indicator relating to the examine used his/her prescription lenses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | The indicator relating to the examine used his/her prescription lenses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | Used;Not used | Used;Not used | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2017-06-12 11:54:51.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C13921 | Imaging other carotid ultrasound result | ImgOthrCarotidUltrasoundReslt | Indicates other carotid ultrasound findings | Indicates other carotid ultrasound findings | Turbulence;Spectral broadening | Turbulence;Spectral broadening | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C12491 | Imaging ventricle abnormality type | ImgVentrclAbnrmlyTyp | The type of abnormality in the ventricles on the image | The type of abnormality in the ventricles on the image | Dilation;Other, specify;Dilation;Other, specify | Dilation;Other, specify;Dilation;Other, specify | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Multiple Pre-Defined Values Selected |
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C14685 | Pediatric Migraine Disability Assessment (MIDAS) - headache frequency | PedMIDASHeadFreq | Headache frequency, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. | Headache frequency, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-16 14:01:43.01 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
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C50680 | Examiner name | ExaminerName | The name of the person performing the exam. | The name of the person performing the exam. | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2016-12-12 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr | 255 |
Free-Form Entry |
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C02301 | Adverse event end date and time | AdverseEvntEndDateTime | Date (and time, if applicable and known) on which the adverse event discontinued/stopped | Date (and time, if applicable and known) on which the adverse event discontinued/stopped | Date or Date & Time | Adult;Pediatric | Supplemental | 3.00 | 2013-07-18 16:35:19.49 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
2189843 | DeBaun Forms | |||||||||||||||||||||||||||||||||
C13953 | Consensus on Grading Intracranial Flow Obstruction (COGIF) - follow-up indicator | COGIFFollowupInd | Indicates the consensus on grading intracranial flow obstruction (COGIF) follow-up | Indicates the consensus on grading intracranial flow obstruction (COGIF) follow-up | Yes;No;Unknown | Yes;No;Unknown | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C18720 | Imaging visual analysis location performed other text | ImgVisAnlysisLocPerfOTH | The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed | The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2014-05-27 13:34:46.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr | 4000 |
Free-Form Entry |
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C13239 | National Institutes of Health Stroke Scale (NIHSS) - Motor leg score | NIHSSLvlConscMotLegScore | Motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS) | Motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS) | 0;1;2;3;4;UN;0;1;2;3;4;UN | No drift: leg holds 30 degrees position for full 5 seconds.;Drift: leg falls by the end of the 5 second period but does not hit bed.;Some effort against gravity: leg falls to bed by 5 seconds, but has some effort against gravity.;No effort against gravity, leg falls to bed immediately.;No movement;Amputation or joint fusion, explain;No drift: leg holds 30 degrees position for full 5 seconds.;Drift: leg falls by the end of the 5 second period but does not hit bed.;Some effort against gravity: leg falls to bed by 5 seconds, but has some effort against gravity.;No effort against gravity, leg falls to bed immediately.;No movement;Amputation or joint fusion, explain | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
DeBaun Forms | ||||||||||||||||||||||||||||||||
C55780 | Imaging vessel studied text | ImagVessStudTxt | Text describing any and all of the subject's vessels that were studied. | Text describing any and all of the subject's vessels that were studied. | Alphanumeric | Adult;Pediatric | Supplemental | 1.00 | 2017-05-31 12:30:51.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr | 255 |
Free-Form Entry |
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C13888 | Thrombolysis In Myocardial Infarction (TIMI) scale - individual vessel score | TIMIScaleIndVesselScore | The score related to the Thrombolysis In Myocardial Infarction (TIMI) scale individual vessel. | The score related to the Thrombolysis In Myocardial Infarction (TIMI) scale individual vessel. | 0;1;2;3;0;1;2;3;0;1;2;3 | No perfusion;Perfusion past the initial occlusion, but no distal branch filling;Perfusion with incomplete or slow distal branch filling;Full perfusion with filling of all distal branches;No perfusion;Perfusion past the initial occlusion, but no distal branch filling;Perfusion with incomplete or slow distal branch filling;Full perfusion with filling of all distal branches;No perfusion;Perfusion past the initial occlusion, but no distal branch filling;Perfusion with incomplete or slow distal branch filling;Full perfusion with filling of all distal branches | Numeric values | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C10576 | Imaging in plane resolution axis 1 measurement | ImgInPlaneRsltnAxis1Measr | Axis 1 of in-plane spatial resolution used in imaging acquisition | Axis 1 of in-plane spatial resolution used in imaging acquisition | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
millimeter | ||||||||||||||||||||||||||||||||||
C56390 | Conners Continuous Performance Test 3rd Edition (CPT3) - Impulsivity perseveration count | ConnersCPT3ImpPersCt | The number of random or anticipatory responses, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). | The number of random or anticipatory responses, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2017-06-09 15:39:31.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
0 | ||||||||||||||||||||||||||||||||||
C13900 | Imaging probe frequency | ImgProbeFreq | Indicates imaging probe frequency (Hz) | Indicates imaging probe frequency (Hz) | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
Hertz | ||||||||||||||||||||||||||||||||||
C12261 | Biopsy and autopsy inflammatory cell type | BpApInflamCellTyp | Type of inflammatory cells identified. | Type of inflammatory cells identified. | Lymphocytes;Neutrophils;Macrophages;Eosinophils;Microorganisms | Lymphocytes;Neutrophils;Macrophages;Eosinophils;Microorganisms | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Multiple Pre-Defined Values Selected |
DeBaun Forms | ||||||||||||||||||||||||||||||||
C14035 | VMR response result | VMRResponseReslt | Indicates vasomotor response (VMR) response result | Indicates vasomotor response (VMR) response result | Abnormal;Normal;Abnormal;Normal | Abnormal;Normal;Abnormal;Normal | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C21487 | Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest trial score | WAISIVDSFTrlScore | Score for the digit span forward subtest, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest | Score for the digit span forward subtest, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest | 0;1;0;1;0;1 | 0;1;0;1;0;1 | Numeric Values | Adult;Pediatric | Supplemental | 2.00 | 2018-07-30 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |
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C01521 | Heart rate | HeartRate | The participant/subject's pulse or number of contractions (heart beats) per minute | The participant/subject's pulse or number of contractions (heart beats) per minute | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-08-28 16:08:00.453 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
0 | 300 | beats per minute | 2767073 | DeBaun Forms | ||||||||||||||||||||||||||||||
C56433 | Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning confidence interval upper bound value | WASIIIPercRsngConfIntrvlUppVal | The upper bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | The upper bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). | Numeric Values | Adult;Pediatric | Supplemental | 1.00 | 2017-06-12 12:55:22.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
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C13932 | Intima media thickness (IMT) mean near-wall measurement | IMTMeanNearWallMeasr | Indicates mean intima media thickness (IMT) near-wall measurement (mm) | Indicates mean intima media thickness (IMT) near-wall measurement (mm) | Numeric Values | Adult;Pediatric | Supplemental | 3.00 | 2013-06-21 00:00:00.0 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Free-Form Entry |
millimeter | ||||||||||||||||||||||||||||||||||
C12502 | Imaging anterior commissure type indicator | ImgAntCmsrTypInd | The condition of the anterior commissure | The condition of the anterior commissure | Involved;Spared | Involved;Spared | Alphanumeric | Adult;Pediatric | Supplemental | 3.00 | 2013-07-24 11:38:01.2 | Miscellaneous Sickle Cell-related CDEs | general-data-protection-regulation-gdpr |
Single Pre-Defined Value Selected |