CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Additional Proposed Instruments
CRF: PhenX CDEs

Displaying 151 - 200 of 378
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field Domain CDASH Variable CDASH Definition CDASH Label Controlled Terminology Prompt Essentiality Question Text CDASH imp guidance SDTM IG target csDSR PhenX Data Type CRF Completion Inst SDTMIG Target Var SDTMIG Target Map Codelist Name PVs Pre Pop Value Query Display List Style
C15555 Imaging visual analysis performed indicator ImgVisAnlysisPerfrmInd Whether visual analysis was performed while blind to clinical data Whether visual analysis was performed while blind to clinical data Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-16 14:01:43.01 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C00012 Education level USA type EduLvlUSATyp Highest grade or level of school participant/subject has completed or the highest degree received Highest grade or level of school participant/subject has completed or the highest degree received What is the highest grade or level of school you have completed or the highest degree you have received? Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown Never attended/Kindergarten only;1st Grade;2nd Grade;3rd Grade;4th Grade;5th Grade;6th Grade;7th Grade;8th Grade;9th Grade;10th Grade;11th Grade;12th Grade, no diploma;High school graduate;GED or equivalent;Some college, no degree;Associate degree: occupational/technical/vocational program;Associate degree: academic program;Bachelor's degree (e.g., BA, AB, BS, BBA);Master's degree (e.g., MA, MS, MEng, MEd, MBA);Professional school degree (e.g., MD, DDS, DVM, JD);Doctoral degree (e.g., PhD, EdD);Unknown Alphanumeric PhenX Measure: Current Educational Attainment (#011000) &#8226; <br />PhenX Protocol: Current Educational Attainment (#011001) &#8226; Protocol Source: https://www.phenxtoolkit.org/index.php?pageLink=browse.protocoldetails&id=11001 Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

3134878
C54695 PROMIS - Global Health fatigue rate scale PROMISGlbHlthFtgRtScl Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health 1;2;3;4;5;1;2;3;4;5 Excellent;Very good;Good;Fair;Poor;Excellent;Very good;Good;Fair;Poor Alphanumeric Adult;Pediatric Supplemental 1.00 2017-04-07 15:34:25.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C08238 Imaging repetition gap value ImgRepetitionGapVal Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition Duration between successive pulse sequences, in milliseconds, applied to the same slice during imaging acquisition Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

millisecond
C13960 Microembolic signal vessel anatomic site MicroembolSignVesselAntmicSite Indicates microembolic signal vessel category Indicates microembolic signal vessel category M1;A1;P1;Siphon;Ophthalmic;Vert;Basilar M1;A1;P1;Siphon;Ophthalmic;Vert;Basilar Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Multiple Pre-Defined Values Selected

C56385 Conners Continuous Performance Test 3rd Edition (CPT3) - Inattentiveness variability value ConnersCPT3InaVarVal The variability of the subject's response speed consistency, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). The variability of the subject's response speed consistency, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-09 15:36:25.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

C13901 Imaging patient type ImgPatientTyp Indicates imaging patient type Indicates imaging patient type Asymptomatic;Acute Stroke;Chronic Stroke;Brain Edema;Vasopasm;Asymptomatic;Acute Stroke;Chronic Stroke;Brain Edema;Vasopasm Asymptomatic;Acute Stroke;Chronic Stroke;Brain Edema;Vasopasm;Asymptomatic;Acute Stroke;Chronic Stroke;Brain Edema;Vasopasm Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C20417 National Institutes of Health Stroke Scale (NIHSS) - Motor leg amputation text NIHSSMotLegAmpTxt The text field for explaining the amputation or joint fusion for question related to motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS). The text field for explaining the amputation or joint fusion for question related to motor ability of the leg (both left and right) assessed using the NIH Stroke Scale (NIHSS). Alphanumeric Adult;Pediatric Supplemental 4.00 2015-04-27 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X 4000

Free-Form Entry

C12483 Imaging cortex-polymicrogyria indicator ImgCortexPolymicrogyriaInd Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present Indicator of whether a developmental malformation of the human brain characterized by an excessive number of small convolutions (gyri) on the surface of the brain is present Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C14031 Vasospasm status VasospasmStatus Indicates vasospasm result Indicates vasospasm result Abnormal;Normal;Abnormal;Normal Abnormal;Normal;Abnormal;Normal Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C56429 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning IQ composite score WASIIIPercRsngIQCompScore The subject's Perceptual Reasoning IQ composite score, converted from his/her Perceptual Reasoning T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). The subject's Perceptual Reasoning IQ composite score, converted from his/her Perceptual Reasoning T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 11:58:34.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

40 160
C13933 Intima media thickness (IMT) mean far-wall measurement IMTMeanFarWallMeasr Indicates mean intima media thickness (IMT) far-wall measurement (mm) Indicates mean intima media thickness (IMT) far-wall measurement (mm) Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

millimeter
C54602 Behavior Rating Inventory of Executive Function 2nd Edition (BRIEF 2) - Form version name BRIEF2FormVersionName Name of the version of the form, as part of the Behavior Rating Inventory of Executive Function 2nd Edition (BRIEF 2) Name of the version of the form, as part of the Behavior Rating Inventory of Executive Function 2nd Edition (BRIEF 2) Parent form;Self form;Teacher form Parent form;Self form;Teacher form Alphanumeric Adult;Pediatric Supplemental 1.00 2017-03-20 15:13:56.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C13240 National Institutes of Health Stroke Scale (NIHSS) - Limb ataxia score NIHSSLimbAtaxiaScore Limb ataxia assessed using the NIH Stroke Scale (NIHSS) Limb ataxia assessed using the NIH Stroke Scale (NIHSS) 0;1;2;UN;0;1;2;UN Absent;Present in one limb;Present in two limbs;Amputation or joint fusion, explain;Absent;Present in one limb;Present in two limbs;Amputation or joint fusion, explain Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C17931 Imaging magnetic resonance imaging performed indicator ImgMRIPerfInd Indicator as to whether or not Magnetic Resonance Imaging (MRI) on the brain has been performed on the participant/subject Indicator as to whether or not Magnetic Resonance Imaging (MRI) on the brain has been performed on the participant/subject Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C18720 Imaging visual analysis location performed other text ImgVisAnlysisLocPerfOTH The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed Alphanumeric Adult;Pediatric Supplemental 1.00 2014-05-27 13:34:46.0 PhenX CDEs Additional Proposed Instruments Phen-X 4000

Free-Form Entry

C10570 Imaging contrast agent used indicator ImgContrastAgentUsedInd Indicator as to whether or not an imaging contrast agent was used for the scan as part of Diffusion Tensor Imaging (DTI). Indicator as to whether or not an imaging contrast agent was used for the scan. Yes;No;Unknown;Not applicable Yes;No;Unknown;Not applicable Alphanumeric Adult;Pediatric Supplemental 3.00 2013-08-28 16:08:00.453 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C14009 Imaging window quality result ImgWindowQualityReslt Indicates window quality result for all categories Indicates window quality result for all categories Fair;Excellent;Poor;Fair;Excellent;Poor Fair;Excellent;Poor;Fair;Excellent;Poor Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C56407 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary raw score WASIIIVocabRawScore The raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) . The raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 11:23:35.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

0 59
C13912 Imaging plaque composition result ImgPlaqCompositionReslt Indicates plaque composition Indicates plaque composition Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X 255

Free-Form Entry

C21490 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest total raw score WAISIVDSFTtlScore Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest Total raw score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest Numeric Values Adult;Pediatric Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

0 16
C12494 Imaging pons abnormal indicator ImgPonsAbnrmlInd Indicator of whether the pons appears normal or abnormal in the image studies Indicator of whether the pons appears normal or abnormal in the image studies Abnormal;Normal;Abnormal;Normal Abnormal;Normal;Abnormal;Normal Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C14678 Pediatric Migraine Disability Assessment (MIDAS) - headache school absence day count PedMIDASHeadSchAbseDayCt Count missed full school days in the last 3 months due to headaches, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. Count missed full school days in the last 3 months due to headaches, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-16 14:01:43.01 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

0 92
C56441 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval upper bound value WASIIIFullSclIQ2ConfIntUppVal The upper bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). The upper bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 13:06:29.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

C13944 Imaging color flow indicator ImgColorFlowInd Indicates color flow Indicates color flow Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C54613 Brief Test of Executive Function Second Edition (BRIEF 2) - Plan organize total raw scale score BRIEF2PlnOrgnzTtlRwSclScore Total score of the raw scale for the plan/organize function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) Total score of the raw scale for the plan/organize function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) Numeric Values Adult;Pediatric Supplemental 1.00 2017-03-22 09:57:02.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

C13879 Imaging modality vessel imaging angiography type ImgModltyVesselImgAngioTyp Indicates imaging modality for vessel imaging angiography Indicates imaging modality for vessel imaging angiography DSA;MRA;CTA;CBCT Digital subtraction angiography;Magnetic resonance angiography;Computer tomography angiography;CBCT Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Multiple Pre-Defined Values Selected

C55778 Imaging inter peri ictal next headache start duration ImagInterPeriIctNextHeStartDur The duration of time until the start of the subject's next inter-ictal or peri-ictal headache. The duration of time until the start of the subject's next inter-ictal or peri-ictal headache. Numeric Values Adult;Pediatric Supplemental 1.00 2017-05-31 12:23:34.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

C13891 Thrombolysis in Cerebral Infarction (TICI) perfusion scale grade TICIPerfScaleGrade Indicates Thrombolysis in Cerebral Infarction (TICI) perfusion scale grade indicator Indicates Thrombolysis in Cerebral Infarction (TICI) perfusion scale grade indicator Grade 0;Grade 1;Grade 2;Grade 2b;Grade 3 No perfusion. No antegrade flow beyond the point of occlusion;Penetration with Minimal Perfusion. The contrast material passes beyond the area of obstruction but fails to opacify the entire cerebral bed distal to the obstruction for the duration of the angiographic run;Partial Perfusion. The contrast material passes beyond the obstruction and opacifies the arterial bed distal to the obstruction. However, the rate of entry of contrast into the vessel distal to the obstruction and/or its rate of clearance from the distal bed are perceptibly slower than its entry into and/or clearance from comparable areas not perfused by the previously occluded vessel, eg, the opposite cerebral artery or the arterial bed proximal to the obstruction. Grade 2a=Only partial filling (<2/3) of the entire vascular territory is visualized;Complete filling of all of the expected vascular territory is visualized, but the filling is slower than normal;Complete Perfusion. antegrade flow into the bed distal to the obstruction occurs as promptly as into the obstruction and clearance of contrast material from the involved bed is as rapid as from an uninvolved other bed of the same vessel or the opposite cerebral artery. Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C18892 Imaging percent stenosis criterion other text ImgPercentStenosisCriterionOTH The free-text field related to 'Imaging percent stenosis criterion type' specifying other text. The criteria used to find indicate stenosis. The free-text field related to 'Imaging percent stenosis criterion type' specifying other text. The criteria used to find indicate stenosis. Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X 4000

Free-Form Entry

C12469 Imaging magnetic resonance imaging session number ImgMRISessnNum Number distinguishing the Magnetic Resonance Imaging (MRI) session from other sessions Number distinguishing the Magnetic Resonance Imaging (MRI) session from other sessions Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

1 3
C14021 Sickle cell disease velocity measurement SickleCellVelMeasr The velocity measurement of sickle cell. The velocity measurement of sickle cell. Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

0 999 centimeter per second DeBaun Forms
C56419 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid other text WASIIIExVisHearAidOthrTxt Text describingg another visual or hearing aid the subject needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Text describingg another visual or hearing aid the subject needed during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Alphanumeric Adult;Pediatric Supplemental 1.00 2017-06-12 11:51:49.0 PhenX CDEs Additional Proposed Instruments Phen-X 255

Free-Form Entry

C13923 Imaging power doppler result ImgPowerDopplerReslt Indicates power doppler result Indicates power Doppler result Flow;No flow Flow;No flow Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C21501 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest item number WAISIVDSSItemNum Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest Item number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest 1;2;3;4;5;6;7;8 Item 1;Item 2;Item 3;Item 4;Item 5;Item 6;Item 7;Item 8 Numeric Values Adult;Pediatric Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C12505 Imaging eye abnormality indicator ImgEyeAbnrmlyInd Indicator of whether eye abnormalities are present Indicator of whether eye abnormalities are present Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C15558 Imaging angiography method type ImgAngioMethdTyp Type of angiography method performed Type of angiography method performed Contrast enhanced;Time of flight;Other, specify;Contrast enhanced;Time of flight;Other, specify Contrast enhanced;Time of flight;Other, specify;Contrast enhanced;Time of flight;Other, specify Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-16 14:01:43.01 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C00023 Hand preference type HandPrefTyp Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively. Hand which the participant/subject uses predominantly, not necessarily the hand he/she writes with exclusively. Left hand;Right hand;Both hands;Unknown;Forced right Left hand;Right hand;Both hands;Unknown;Forced right Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

2180147 DeBaun Forms
C55773 Imaging MRI scanner used count ImagMRIScanUsedCt The number of different MRI scanners that were used on the subject. The number of different MRI scanners that were used on the subject. Numeric Values Adult;Pediatric Supplemental 1.00 2017-05-31 12:11:13.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

C08239 Imaging echo duration ImgEchoDur Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition Duration between the application of the 90° pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

millisecond
C13961 Microembolic signals present indicator MicroembolSignalPresentInd Indicates presence of microembolic signals Indicates presence of microembolic signals Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C56387 Conners Continuous Performance Test 3rd Edition (CPT3) - Impulsivity hit reaction time value ConnersCPT3ImpHRTVal The value representing the subject's response speed, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). The value representing the subject's response speed, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-09 15:37:43.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

C13902 Imaging acute stroke study type ImgAcutStokStudTyp Indicates imaging acute stroke study type Indicates imaging acute stroke study type Initial;Follow-up 1;Follow-up 2 Initial;Follow-up 1;Follow-up 2 Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C20419 National Institutes of Health Stroke Scale (NIHSS) - Limb ataxia amputation text NIHSSLimbAtaxiaAmputTxt The text field for explaining the amputation or joint fusion for question related to Limb ataxia assessed using the NIH Stroke Scale (NIHSS). The text field for explaining the amputation or joint fusion for question related to Limb ataxia assessed using the NIH Stroke Scale (NIHSS). Alphanumeric Adult;Pediatric Supplemental 4.00 2015-04-27 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X 4000

Free-Form Entry

DeBaun Forms
C12484 Imaging cortex-polymicrogyria site type ImgCortexPolymicrogyriaSiteTyp The type of anatomical site(s) of the cortex-polymicrogyria The type of anatomical site(s) of the cortex-polymicrogyria Temporal;Frontoparietal;Occipital Temporal;Frontoparietal;Occipital Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Multiple Pre-Defined Values Selected

C14032 Vasospasm severity grade VasospasmSeverGrade Indicates severity of vasospasm Indicates severity of vasospasm Mild;Moderate;Severe Mild;Moderate;Severe Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C56430 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning percentile rank value WASIIIPercRsngPrcntRankVal The percentile rank the subject placed into with respect to the Perceptual Reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). The percentile rank the subject placed into with respect to the Perceptual Reasoning subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 12:05:57.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

0 100 percent
C13934 Intima media thickness (IMT) max near-wall measurement IMTMaxNearWallMeasr Indicates max intima media thickness (IMT) near-wall measurement (mm) Indicates max intima media thickness (IMT) near-wall measurement (mm) Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

millimeter
C54603 Informant participant familiar grade InfrmntPrtcpntFmlrGrade Grade denoting the degree to which the informant knows the subject/participant Grade denoting the degree to which the informant knows the subject/participant Very well;Moderately well;Not well Very well;Moderately well;Not well Alphanumeric Adult;Pediatric Supplemental 1.00 2017-03-22 09:39:15.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C13241 National Institutes of Health Stroke Scale (NIHSS) - Sensory score NIHSSSensoryScore Sensory abilities assessed using the NIH Stroke Scale (NIHSS) Sensory abilities assessed using the NIH Stroke Scale (NIHSS) 0;1;2;UN;0;1;2;UN Normal: no sensory loss.;Mild to moderate sensory loss: patient feels pinprick is less sharp or is dull on the affected side, or there is a loss of superficial pain with pinprick but patient is aware he/she is being touched.;Severe to total sensory loss: patient is not aware of being touched in the face, arm, and leg.;Unexaminable (intubated/paralyzed);Normal: no sensory loss.;Mild to moderate sensory loss: patient feels pinprick is less sharp or is dull on the affected side, or there is a loss of superficial pain with pinprick but patient is aware he/she is being touched.;Severe to total sensory loss: patient is not aware of being touched in the face, arm, and leg.;Unexaminable (intubated/paralyzed) Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

DeBaun Forms
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