CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Additional Proposed Instruments
CRF: PhenX CDEs

378 results.
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field Domain CDASH Variable CDASH Definition CDASH Label Controlled Terminology Prompt Essentiality Question Text CDASH imp guidance SDTM IG target csDSR PhenX Data Type CRF Completion Inst SDTMIG Target Var SDTMIG Target Map Codelist Name PVs Pre Pop Value Query Display List Style
C13886 Imaging vessel angiography cause type ImgVesselAngioCauseTyp Indicates vessel imaging angiography cause Indicates vessel imaging angiography cause Atherosclerotic;Embolic;Other;Unknown;Vasospasm Atherosclerotic;Embolic;Other;Unknown;Vasospasm Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C13954 Consensus on Grading Intracranial Flow Obstruction (COGIF) - follow-up date and time COGIFFollowupDateTime The date and time for consensus on grading intracranial flow obstruction (COGIF) follow-up. The date and time for consensus on grading intracranial flow obstruction (COGIF) follow-up. Date or Date & Time Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

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C10932 Imaging lesion found indicator ImgLesnFoundInd Indicator of whether lesions are found within the imaging study Indicator of whether lesions are found within the imaging study Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C18902 Vasospasm vessel anatomic other text VasospasmVesselAntmicOTH The free-text field related to 'Vasospasm vessel anatomic site' specifying other text. Indicates vasospasm vessel(s) The free-text field related to 'Vasospasm vessel anatomic site' specifying other text. Indicates vasospasm vessel(s) Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X 4000

Free-Form Entry

C13930 Intima media thickness (IMT) timing type IMTTimingTyp Indicates intima media thickness (IMT) timing type Indicates intima media thickness (IMT) timing type ECG Gating;End Diastolic;Peak Systolic;ECG Gating;End Diastolic;Peak Systolic ECG Gating;End Diastolic;Peak Systolic;ECG Gating;End Diastolic;Peak Systolic Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C14036 Breath-holding index result BreathHoldingIndexReslt Indicates breath-holding index (BHI) result Indicates breath-holding index (BHI) result Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X 255

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C56428 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Verbal Comprehension confidence interval upper bound value WASIIIVerbCompConfIntrvlUppVal The upper bound of the subject's Verbal Comprehension confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). The upper bound of the subject's Verbal Comprehension confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 12:55:22.0 PhenX CDEs Additional Proposed Instruments Phen-X

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C13237 National Institutes of Health Stroke Scale (NIHSS) - Facial palsy score NIHSSLvlConscFaclPlsyScore Facial palsy assessed using the NIH Stroke Scale (NIHSS) Facial palsy assessed using the NIH Stroke Scale (NIHSS) 0;1;2;3;UN;0;1;2;3;UN Normal symmetrical movement;Minor paralysis (flattened nasolabial fold, asymmetry on smiling);Partial paralysis (total or near total paralysis of lower face);Complete paralysis of one or both sides (absence of facial movement in the upper and lower face);Unexaminable (intubated/paralyzed);Normal symmetrical movement;Minor paralysis (flattened nasolabial fold, asymmetry on smiling);Partial paralysis (total or near total paralysis of lower face);Complete paralysis of one or both sides (absence of facial movement in the upper and lower face);Unexaminable (intubated/paralyzed) Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C54607 Brief Test of Executive Function Second Edition (BRIEF 2) - Self monitor total raw scale score BRIEF2SlfMntrTtlRwSclScore Total score of the raw scale for the self monitor function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) Total score of the raw scale for the self monitor function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) Numeric Values Adult;Pediatric Supplemental 1.00 2017-03-22 09:57:02.0 PhenX CDEs Additional Proposed Instruments Phen-X

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C02496 Imaging scanner manufacturer name ImgScannerManufName Name of manufacturer of imaging scanner Imaging scanner manufacturer name Agfa;Carestream;GE;Hitachi;Hologic;Konica Minolta;Philips;Siemens;Toshiba;Other, specify;Agfa;Carestream;GE;Hitachi;Hologic;Konica Minolta;Philips;Siemens;Toshiba;Other, specify Agfa;Carestream;GE;Hitachi;Hologic;Konica Minolta;Philips;Siemens;Toshiba;Other, specify;Agfa;Carestream;GE;Hitachi;Hologic;Konica Minolta;Philips;Siemens;Toshiba;Other, specify Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C18708 Imaging pulse sequence other text ImgPulseSeqOTH The free-text field related to 'Imaging pulse sequence type' specifying other text. Type of imaging pulse sequence used The free-text field related to 'Imaging pulse sequence type' specifying other text. Type of imaging pulse sequence used Alphanumeric Adult;Pediatric Supplemental 1.00 2014-05-27 13:34:46.0 PhenX CDEs Additional Proposed Instruments Phen-X 4000

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C13898 Imaging vessel angiography collateral grade ImgVesselAngioCollateralGrad Indicates vessel angiography collateral grade Indicates vessel angiography collateral grade Grade 0;Grade 1;Grade 2;Grade 3;Grade 4 No collaterals visible to the ischemic site;Slow collaterals to the periphery of the ischemic site with persistence of some of the defect;Rapid collaterals to the periphery of ischemic site with persistence of some of the defect and to only a portion of the ischemic territory;Collaterals with slow but complete angiographic blood flow of the ischemic bed by the late venous phase;Complete and rapid collateral blood flow to the vascular bed in the entire ischemic territory by retrograde perfusion. Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C14003 Imaging brain death present indicator ImgBrainDeathPresInd Indicates presence of brain death Indicates presence of brain death Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C56384 Conners Continuous Performance Test 3rd Edition (CPT3) - Inattentiveness hit reaction time standard deviation value ConnersCPT3InaHRTStDevVal The standard deviation of the subject's response speed consistency, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). The standard deviation of the subject's response speed consistency, as part of the Conners Continuous Performance Test 3rd Edition (CPT3). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-09 15:33:41.0 PhenX CDEs Additional Proposed Instruments Phen-X

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C12480 Imaging cortex-pachygyria thickness measurement ImgCortexPachygyriaThickMeasr The measurement of cortex thickness, in , of the cortex The measurement of cortex thickness, in , of the cortex Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

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C21484 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest number series text WAISIVDSFNumTxt Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Forward subtest Numeric Values Adult;Pediatric Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

50
C56406 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design raw score WASIIIBDRawScore The raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) . The raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 11:23:35.0 PhenX CDEs Additional Proposed Instruments Phen-X

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0 71
C12491 Imaging ventricle abnormality type ImgVentrclAbnrmlyTyp The type of abnormality in the ventricles on the image The type of abnormality in the ventricles on the image Dilation;Other, specify;Dilation;Other, specify Dilation;Other, specify;Dilation;Other, specify Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Multiple Pre-Defined Values Selected

C21495 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest trial score WAISIVDSBTrialScore Trial score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest Trial score, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest 0;1;0;1;0;1 0;1;0;1;0;1 Alphanumeric Adult;Pediatric Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C13941 Imaging insonation plane type ImgInsonPlaneTyp Indicates insonation plane Indicates insonation plane Free;Coronal;Axial mesencephalic Free;Coronal;Axial mesencephalic Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C14683 Pediatric Migraine Disability Assessment (MIDAS) - headache decrease other activity function day count PedMIDASHeadDecOActFuncDayCt Count the days you participate in these activities, but functioned at less than half your ability, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. Count the days you participate in these activities, but functioned at less than half your ability, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form. Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-16 14:01:43.01 PhenX CDEs Additional Proposed Instruments Phen-X

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C56440 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval lower bound value WASIIIFullSclIQ2ConfIntLowVal The lower bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). The lower bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 13:06:29.0 PhenX CDEs Additional Proposed Instruments Phen-X

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C13248 National Institutes of Health Stroke Scale (NIHSS) Supplemental - Limb sensory loss status NIHSSSupLimbSensoryLossStatus The indicator to determine if any limbs have sensory loss The indicator to determine if any limbs have sensory loss 0;1;2 Normal: no sensory loss.;Mild to moderate sensory loss: patient feels pinprick is less sharp or is dull on the affected side, or there is a loss of superficial pain with pinprick but patient is aware he/she is being touched.;Severe to total sensory loss: patient is not aware of being touched in the face, arm, and leg. Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C54690 PROMIS - Global Health mental health rate scale PROMISGlbHlthMntlHlthRtScl Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health 1;2;3;4;5;1;2;3;4;5 Poor;Fair;Good;Very Good;Excellent;Poor;Fair;Good;Very Good;Excellent Numeric Values Adult;Pediatric Supplemental 1.00 2017-04-07 15:34:25.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C08255 Imaging visual analysis blinded indicator ImgVisAnlysisBlindInd Indicator of whether the visual analysis was performed blinded to clinical data Indicator of whether the visual analysis was performed blinded to clinical data Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-25 08:54:08.2 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C18857 Imaging brainstem abnormality other text ImgBrnstmAbnrmlyOTH The free-text field related to 'Imaging brainstem abnormality type' specifying other text. The type of abnormality in the brainstem on the image The free-text field related to 'Imaging brainstem abnormality type' specifying other text. The type of abnormality in the brainstem on the image Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X 4000

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C13909 Imaging plaque surface type ImgPlaqSurfaceTyp Indicates plaque surface type Indicates plaque surface type Irregular;Smooth Irregular;Smooth Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C14014 Intracranial stenosis other criteria result IntracranStenoOthCriteriaReslt Other criteria for intracranial stenosis Other criteria for intracranial stenosis Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X 255

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378 results.
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