CDE Detailed Report
Disease: Sickle Cell Disease
Sub-Domain: Additional Proposed Instruments
CRF: PhenX CDEs

378 results.
CDE ID CDE Name Variable Name Definition Short Description Additional Notes (Question Text) Permissible Values Description Data Type Disease Specific Instructions Disease Specific Reference Population Classification (e.g., Core) Version Number Version Date CRF Name (CRF Module / Guideline) Sub Domain Name Domain Name Size Input Restrictions Min Value Max Value Measurement Type Source Form Set Form Field Domain CDASH Variable CDASH Definition CDASH Label Controlled Terminology Prompt Essentiality Question Text CDASH imp guidance SDTM IG target csDSR PhenX Data Type CRF Completion Inst SDTMIG Target Var SDTMIG Target Map Codelist Name PVs Pre Pop Value Query Display List Style
C56431 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning confidence interval lower bound value WASIIIPercRsngConfIntrvlLowVal The lower bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). The lower bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 12:55:22.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

C14019 Sickle cell disease present indicator SickleCellPresInd Indicates presence of sickle cell Indicates presence of sickle cell Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

DeBaun Forms
C10685 Imaging slice orientation type ImgSliceOrientTyp The slice orientation used in imaging acquisition The slice orientation used in imaging acquisition Axial;Coronal;Sagittal;Oblique;Transversal;Other, specify;Axial;Coronal;Sagittal;Oblique;Transversal;Other, specify Axial;Coronal;Sagittal;Oblique;Transversal;Other, specify;Axial;Coronal;Sagittal;Oblique;Transversal;Other, specify Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C21499 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest response text WAISIVDSSRespnsTxt Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest Participant response, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest Alphanumeric Adult;Pediatric Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs Additional Proposed Instruments Phen-X 50

Free-Form Entry

C13915 Imaging plaque thickness measurement ImgPlaqThicknessMeasr Indicates plaque thickness Indicates plaque thickness Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

C52699 Sickle cell anemia blood transfusion treatment indicator SickleCellAnemBloodTransfInd The indicator related to whether blood transfusions are used for treatment for sickle cell anemia The indicator related to whether blood transfusions are used for treatment for sickle cell anemia Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C13926 Intima media thickness (IMT) B mode indicator IMTBModeInd Indicates intima media thickness (IMT) B mode Indicates intima media thickness (IMT) B mode Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C17925 Imaging contrast agent dose ImgContrastAgentDose Dosage of the contrast agent used Dosage of the contrast agent used Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X 4000

Free-Form Entry

C13233 National Institutes of Health Stroke Scale (NIHSS) - Level of consciousness secondary question score NIHSSLvlConscSecdryQScore Level of consciousness (LOC) questions assessed using the NIH Stroke Scale (NIHSS) Level of consciousness (LOC) questions assessed using the NIH Stroke Scale (NIHSS) 0;1;2;0;1;2;0;1;2 Answers both questions correctly;Answers one question correctly;Answers neither question correctly;Answers both questions correctly;Answers one question correctly;Answers neither question correctly;Answers both questions correctly;Answers one question correctly;Answers neither question correctly Numeric values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

DeBaun Forms
C56409 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities raw score WASIIISimRawScore The raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) . The raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Numeric Values Adult;Pediatric Supplemental 1.00 2017-06-12 11:23:35.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

0 45
C13959 Microembolic signal measurement MicroembolSignalMeasr Indicates actual settings measurement for all categories (mm) Indicates actual settings measurement for all categories (mm) Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

millimeter
C01559 Arterial partial pressure carbon dioxide value ArterialPPCO2Val Measurement of how much carbon dioxide is dissolved in the arterial blood and how well carbon dioxide is able to move out of the body (PaCO2) Measurement of how much carbon dioxide is dissolved in the arterial blood and how well carbon dioxide is able to move out of the body (PaCO2) Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-20 10:21:25.65 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

0 100 millimeter of mercury
C20416 National Institutes of Health Stroke Scale (NIHSS) - Motor arm amputation text NIHSSMotArmAmpTxt The text field for explaining the amputation or joint fusion for question related to motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS). The text field for explaining the amputation or joint fusion for question related to motor ability of the arm (both left and right) assessed using the NIH Stroke Scale (NIHSS). Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X 4000

Free-Form Entry

DeBaun Forms
C13894 Imaging vessel angiography overall assessment type ImgVesselAngioOverallAssmTyp Indicates vessel angiography overall assessment Indicates vessel angiography overall assessment Normal;Small Caliber;Impaired flow Normal;Small Caliber;Impaired flow Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C14030 Vasospasm resistive index indicator VasospasmRestistIndexInd Indicates vasospasm resistive Index (RI) Indicates vasospasm resistive Index (RI) Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C12476 Imaging other incidental finding indicator ImgOthrIncidentalFindInd Indicator of whether other incidental findings are found within the image studies Indicator of whether other incidental findings are found within the image studies Yes;No;Unknown Yes;No;Unknown Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C14056 Imaging depth measurement ImgDepthMeasr The depth measurement (mm) of imaging. The depth measurement (mm) of imaging. Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

0 999 millimeter
C12487 Imaging other cortical abnormality site type ImgOthrCorticalAbnrmlySiteTyp The anatomical site(s) of the other cortical abnormality The anatomical site(s) of the other cortical abnormality Temporal;Frontoparietal;Occipital Temporal;Frontoparietal;Occipital Alphanumeric Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Multiple Pre-Defined Values Selected

C55780 Imaging vessel studied text ImagVessStudTxt Text describing any and all of the subject's vessels that were studied. Text describing any and all of the subject's vessels that were studied. Alphanumeric Adult;Pediatric Supplemental 1.00 2017-05-31 12:30:51.0 PhenX CDEs Additional Proposed Instruments Phen-X 255

Free-Form Entry

C54612 Brief Test of Executive Function Second Edition (BRIEF 2) - Working memory total raw scale score BRIEF2WrkngMmryTtlRwSclScore Total score of the raw scale for the working memory function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) Total score of the raw scale for the working memory function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2) Numeric Values Adult;Pediatric Supplemental 1.00 2017-03-22 09:57:02.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

C13937 Imaging mean lumen diameter measurement ImgMeanLumenDiameterMeasr Indicates mean lumen diameter measurement (mm) Indicates mean lumen diameter measurement (mm) Numeric Values Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

millimeter
C18719 Imaging slice orientation other text ImgSliceOrientOTH The free-text field related to 'Imaging slice orientation type' specifying other text. The slice orientation used in imaging acquisition The free-text field related to 'Imaging slice orientation type' specifying other text. The slice orientation used in imaging acquisition Alphanumeric Adult;Pediatric Supplemental 1.00 2014-05-27 13:34:46.0 PhenX CDEs Additional Proposed Instruments Phen-X 4000

Free-Form Entry

C13244 National Institutes of Health Stroke Scale (NIHSS) - Extinction and inattention score NIHSSExtinctInattentScore Extinction and inattention assessed using the NIH Stroke Scale (NIHSS) Extinction and inattention assessed using the NIH Stroke Scale (NIHSS) 0;1;2;UN;0;1;2;UN No abnormality.;Visual, tactile, auditory, spatial, or personal inattention or extinction to bilateral simultaneous stimulation in one of the sensory modalities.;Profound hemi-inattention or extinction to more than one modality. Does not recognize own hand or orients to only one side of space.;Unexaminable (intubated/paralyzed;No abnormality.;Visual, tactile, auditory, spatial, or personal inattention or extinction to bilateral simultaneous stimulation in one of the sensory modalities.;Profound hemi-inattention or extinction to more than one modality. Does not recognize own hand or orients to only one side of space.;Unexaminable (intubated/paralyzed Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

DeBaun Forms
C56421 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Examinee visual hearing aid prescription lens used indicator WASIIIExVisHeaAidPreLensUseInd The indicator relating to the examine used his/her prescription lenses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). The indicator relating to the examine used his/her prescription lenses during testing, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II). Used;Not used Used;Not used Alphanumeric Adult;Pediatric Supplemental 1.00 2017-06-12 11:54:51.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C14008 Imaging window quality category ImgWindowQualityCat Indicates window quality category Indicates window quality category Temporal;Posterior;Orbital Temporal;Posterior;Orbital Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

C08242 Imaging acquisition duration ImgAcquisitionDur Duration of the imaging scan in minutes The duration of the imaging acquisition, in minutes Numeric Values Adult;Pediatric Supplemental 3.00 2013-07-24 11:38:01.2 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

minute
C21489 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span forward subtest last trial correct digit score WAISIVLDSFScore Score for the digits reported correctly by the subject/participant during the last trial of the Digit Span Forward subtest, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Score for the digits reported correctly by the subject/participant during the last trial of the Digit Span Forward subtest, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Numeric Values Adult;Pediatric Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs Additional Proposed Instruments Phen-X

Free-Form Entry

0 9
C13905 Imaging contrast agent method type ImgContrastAgentMethodTyp Indicates imaging contrast agent method of administration Type of imaging contrast agent used for the scan. Bolus;Infusion;Other, specify;Bolus;Infusion;Other, specify Bolus;Infusion;Other, specify;Bolus;Infusion;Other, specify Alphanumeric Adult;Pediatric Supplemental 3.00 2013-06-21 00:00:00.0 PhenX CDEs Additional Proposed Instruments Phen-X

Single Pre-Defined Value Selected

378 results.
CSV