Skip to main content
Home

User account menu

  • About
    • Overview
    • The Initiative
    • Leadership
    • Community Input Panel
    • FAQs
  • News & Updates
  • Contact
    • General
    • Researcher
  • Log in

Main navigation

  • Login
  • About
    • Overview
    • The Initiative
    • Leadership
    • Community Input Panel
    • FAQs
  • Patient & Advocacy Community
    • Overview & Stories
    • Gene Therapies
    • Defining a Cure
    • Clinical Trials
    • Resource Library
  • Scientific Community
    • Overview
    • Scientific Activities & Updates
    • Clinical & Economic Impact
    • Research Resources
  • Data Standards & Tools
    • Overview
    • Data Standards
    • CRF Library
    • CDE Catalog
  • News and Updates
  • Contact
    • General
    • Researcher

Additional COVID-19 information for the SCD community, clinicians, and researchers

Information for the Community

  • Get the latest public health information from CDC: https://www.coronavirus.gov
  • SCDAA MARAC Advisory Statement: COVID-19 Vaccines
  • SCDAA MARAC Position on 2020 School Reopening — Updated July 27 2020
  • Health Alert for Patients and Caregivers (SCDAA) — Updated May 27 2020
  • Health Alert for Patients and Caregivers (PDF) (SCDAA) — Updated May 27 2020
  • Facebook Live Presentation with Dr. Biree Andamariam (SCDAA)

 

Information for Clinicians

  • Information for Health Departments on Reporting Cases of COVID-19 (CDC)
  • Information for Healthcare Professionals (CDC) 
  • COVID-19 Resources (ASH) 
  • An Outline to Decrease Burden and Minimize Morbidity (SCDAA) 
  • Surveillance Epidemiology of Coronavirus Under Research Exclusion (SECURE)-SCD Registry

 

Information for Researchers

  • Get the latest research information from NIH: https://www.nih.gov/coronavirus
  • COVID-19 Posing Grim Challenge for Sickle Cell Disease Patients (NHLBI)
  • Guidance on Conduct of Clinical Trials of Medical Products during COVID-19 Pandemic (FDA) 
  • Information for NIH Applicants and Recipients of NIH Funding (NIH)
  • Notice of Special Interest: Availability of Administrative Supplements and Revision Supplements on Coronavirus Disease 2019 (NIH)

NEWS AND UPDATES

curesickle.org

Stay Connected

Please feel free to email us if you wish to receive more information.

Back to Topback to top

The Cure Sickle Cell Initiative is dedicated to accelerating the development of treatments aimed at genetic-based cures.

The U.S. Department of Health and Human Services (HHS)National Heart, Lung, and Blood Institute

YouTubeTwitter

Cookie Policy | GDPR | Cure Sickle Cell © 2023