C58621 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Activity difficult because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant found it difficult to do things because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58621 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Activity difficult because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant found it difficult to do things because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58636 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58636 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58636 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58636 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58636 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58636 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58661 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Blood transfusion regular due sickle cell indicate code |
Code indicating whether the subject/participant's receives regular blood transfusions due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 12:37:10.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease Medical History Checklist |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58661 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Blood transfusion regular due sickle cell indicate code |
Code indicating whether the subject/participant's receives regular blood transfusions due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 12:37:10.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease Medical History Checklist |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58690 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Cancel plans because pain past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant had to cancel plans because of pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58690 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Cancel plans because pain past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant had to cancel plans because of pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58612 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Dependent others because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant was completely dependent on others because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58612 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Dependent others because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant was completely dependent on others because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58646 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale |
Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58646 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale |
Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58646 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale |
Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58646 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale |
Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58646 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale |
Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58646 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale |
Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58676 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health problem past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant was depressed about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-26 11:58:42.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58676 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health problem past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant was depressed about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-26 11:58:42.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58627 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Difficult engage friends because health past 30 day scale |
Scale for the extent in the past 30 days that the subject/participant's health made it difficult for him or her to do things with his or her friends, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58627 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Difficult engage friends because health past 30 day scale |
Scale for the extent in the past 30 days that the subject/participant's health made it difficult for him or her to do things with his or her friends, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58627 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Difficult engage friends because health past 30 day scale |
Scale for the extent in the past 30 days that the subject/participant's health made it difficult for him or her to do things with his or her friends, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|