CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 101 - 125 of 4213
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58621 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Activity difficult because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant found it difficult to do things because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58621 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Activity difficult because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant found it difficult to do things because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Short Form Sickle Cell Disease Sickle Cell Disease
C58636 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58636 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58636 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58636 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58636 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58636 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58661 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Blood transfusion regular due sickle cell indicate code

Code indicating whether the subject/participant's receives regular blood transfusions due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease Medical History Checklist Sickle Cell Disease Sickle Cell Disease
C58661 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Blood transfusion regular due sickle cell indicate code

Code indicating whether the subject/participant's receives regular blood transfusions due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease Medical History Checklist Sickle Cell Disease Sickle Cell Disease
C58690 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Cancel plans because pain past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had to cancel plans because of pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C58690 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Cancel plans because pain past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had to cancel plans because of pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C58612 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Dependent others because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant was completely dependent on others because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58612 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Dependent others because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant was completely dependent on others because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58676 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health problem past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was depressed about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C58676 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health problem past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was depressed about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C58627 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Difficult engage friends because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant's health made it difficult for him or her to do things with his or her friends, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Short Form Sickle Cell Disease Sickle Cell Disease
C58627 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Difficult engage friends because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant's health made it difficult for him or her to do things with his or her friends, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58627 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Difficult engage friends because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant's health made it difficult for him or her to do things with his or her friends, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
Displaying 101 - 125 of 4213