CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 151 - 175 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58666 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent interfere life code

Code for the extent to which the subject/participant's most recent pain episode or crisis interfered with his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure True Sickle Cell Disease Sickle Cell Disease
C58666 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent interfere life code

Code for the extent to which the subject/participant's most recent pain episode or crisis interfered with his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 16:53:20.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease False Sickle Cell Disease Sickle Cell Disease
C58665 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent severity grade

Grade of pain severity during the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure True Sickle Cell Disease Sickle Cell Disease
C58665 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent severity grade

Grade of pain severity during the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 16:53:20.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease False Sickle Cell Disease Sickle Cell Disease
C58663 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code

Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 16:53:20.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease False Sickle Cell Disease Sickle Cell Disease
C58663 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code

Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure True Sickle Cell Disease Sickle Cell Disease
C58689 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode sudden severe past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had a sudden severe pain episode, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58688 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain free total past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was totally pain free, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58693 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain level joints past 7 day scale

Scale over the past 7 days of the subject/participant's pain level in his or her joints, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58692 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain level overall past 7 day scale

Scale over the past 7 days of the subject/participant's overall pain level, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58694 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain level torso past 7 day scale

Scale over the past 7 days of the subject/participant's pain level in his or her torso, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58662 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain medication daily due sickle cell indicate code

Code indicating whether the subject/participant's takes pain medication daily due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist True Sickle Cell Disease Sickle Cell Disease
C58695 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain prevent activity past 7 day day count code

Code for the count of days over the past 7 days that the subject/participant was prevented by pain from engaging in activities, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58651 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain severe past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form True Sickle Cell Disease Sickle Cell Disease
C58651 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain severe past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease False Sickle Cell Disease Sickle Cell Disease
C58651 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain severe past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58624 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Rely other for care because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant relied on others for care because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Short Form True Sickle Cell Disease Sickle Cell Disease
C58624 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Rely other for care because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant relied on others for care because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58624 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Rely other for care because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant relied on others for care because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-24 12:27:41.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease False Sickle Cell Disease Sickle Cell Disease
C58657 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Retinopathy medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has retinopathy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist True Sickle Cell Disease Sickle Cell Disease
C58702 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Return sleep after night awaken past 7 day difficulty scale

Scale for the difficulty over the past 7 days that the subject/participant has had returning to sleep after waking in the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58701 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Return sleep unable after night awaken past 7 day scale

Scale for the frequency over the past 7 days that the subject/participant was unable to return to sleep after waking in the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58677 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Sad about health problem past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was sad about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58686 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Sadness about health problem past 7 day scale

Scale for the degree to which the subject/participant felt sad over the past 7 days about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58696 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Sleep enough past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant got enough sleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
Displaying 151 - 175 of 5231

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