C58615 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Health prevent fun activity past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant was prevented from doing fun activities because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58658 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Hip shoulder damage due sickle cell medical professional ever tell indicate code |
Code indicating whether the subject/participant has ever been told by a medical professional that he or she has hip or shoulder damage due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 12:37:10.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease Medical History Checklist |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58658 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Hip shoulder damage due sickle cell medical professional ever tell indicate code |
Code indicating whether the subject/participant has ever been told by a medical professional that he or she has hip or shoulder damage due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 12:37:10.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease Medical History Checklist |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58671 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia all night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for the entire night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58671 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia all night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for the entire night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58671 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia all night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for the entire night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58671 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia all night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for the entire night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58671 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia all night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for the entire night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58671 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia all night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for the entire night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58672 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia half night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for half of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58672 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia half night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for half of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58672 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia half night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for half of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58672 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia half night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for half of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58672 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia half night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for half of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58672 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia half night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for half of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58668 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia most of night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for most of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58668 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia most of night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for most of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58668 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia most of night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for most of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58668 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia most of night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for most of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58668 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia most of night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for most of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58668 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia most of night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for most of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58691 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Intense fear pain episode past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant had intense fear of having a pain episode, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58691 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Intense fear pain episode past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant had intense fear of having a pain episode, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58643 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joint stiffness daytime scale |
Scale for the subject/participant's joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58643 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joint stiffness daytime scale |
Scale for the subject/participant's joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|