CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 176 - 200 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58697 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Sleep satisfy desire past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant got as much sleep as he or she desired, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58619 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Slow down because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant felt slowed down because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58619 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Slow down because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant felt slowed down because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Short Form Sickle Cell Disease Sickle Cell Disease
C58619 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Slow down because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant felt slowed down because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58623 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Social life suffer because health past 30 day scale

Scale for the extent in the past 30 days that the subject/participant's social life suffered because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58660 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Spleen remove damage due sickle cell indicate code

Code indicating whether the subject/participant's spleen has been removed or severely damaged due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist Sickle Cell Disease Sickle Cell Disease
C58698 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Stay awake daytime struggle past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant struggled to stay awake during the daytime, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58637 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Stiffness prevent arise bed past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was unable to arise from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58659 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Stroke medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has had a stroke, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist Sickle Cell Disease Sickle Cell Disease
C58679 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think health problem ruin life past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant thought his or her health problems were ruining his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58674 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think life better if healthy past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant thought his or her life would be better if he or she were healthy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58618 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable go out because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant was unable to go out because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58618 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable go out because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant was unable to go out because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Short Form Sickle Cell Disease Sickle Cell Disease
C58618 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable go out because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant was unable to go out because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58628 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable join friends because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant's health kept him or her from doing what his or her friends wanted to do, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58634 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable move because joint stiff daytime past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental ? Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58634 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable move because joint stiff daytime past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58634 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable move because joint stiff daytime past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58639 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58639 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental ? Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58639 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58614 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Want be alone because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant wanted to be alone because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58617 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Want do nothing because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant wanted to do nothing because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58680 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Wish strong suffer end past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant strongly wished for his or her suffering to end, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58647 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry about become sick past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
Displaying 176 - 200 of 5231