|
C58697 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Sleep satisfy desire past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant got as much sleep as he or she desired, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-26 15:42:48.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58619 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Slow down because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant felt slowed down because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58619 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Slow down because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant felt slowed down because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58619 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Slow down because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant felt slowed down because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58623 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Social life suffer because health past 30 day scale |
Scale for the extent in the past 30 days that the subject/participant's social life suffered because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58660 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Spleen remove damage due sickle cell indicate code |
Code indicating whether the subject/participant's spleen has been removed or severely damaged due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 12:37:10.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58698 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Stay awake daytime struggle past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant struggled to stay awake during the daytime, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-26 15:42:48.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58637 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Stiffness prevent arise bed past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant was unable to arise from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58659 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Stroke medical professional ever tell indicate code |
Code indicating whether the subject/participant has ever been told by a medical professional that he or she has had a stroke, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 12:37:10.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58679 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think health problem ruin life past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant thought his or her health problems were ruining his or her life, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-26 11:58:42.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58674 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Think life better if healthy past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant thought his or her life would be better if he or she were healthy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-26 11:58:42.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58618 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable go out because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant was unable to go out because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58618 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable go out because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant was unable to go out because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58618 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable go out because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant was unable to go out because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58628 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable join friends because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant's health kept him or her from doing what his or her friends wanted to do, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58634 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable move because joint stiff daytime past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental ? Highly Recommended |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58634 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable move because joint stiff daytime past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58634 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable move because joint stiff daytime past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58639 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58639 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental ? Highly Recommended |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58639 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Very long time arise because stiff past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant took a very long time arising from bed because of stiffness, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58614 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Want be alone because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant wanted to be alone because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58617 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Want do nothing because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant wanted to do nothing because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58680 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Wish strong suffer end past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant strongly wished for his or her suffering to end, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Supplemental - Highly Recommended |
1.00 |
2018-10-26 11:58:42.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
|
C58647 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry about become sick past 7 day scale |
Scale over the past 7 days for the degree to which the subject/participant worried about becoming sick, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 10:42:58.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
