CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 4213
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59191 Serum creatinine assay repeatability text

Text field for describing the repeatability of the serum creatinine assay performed.

Proposed 1.00 2019-03-27 11:02:22.0 PhenX Toolkit: Serum Creatinine Sickle Cell Disease Sickle Cell Disease
C59689 Stand up armless straight chair difficulty scale

Scale of the difficulty the subject/participant has in standing up from an armless straight chair

Proposed 1.00 2019-06-19 13:28:47.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59814 Pull 100 pound 50 kilogram 100 yard 100 meter difficulty scale

Scale of the difficulty the subject/participant has in pulling a 100 pound / 50 kilogram load a distance of 100 yards / 100 meters

Proposed 1.00 2019-06-21 11:54:54.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C58630 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joints stiff when awaken past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff when he or she awakened, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58793 Patient consent blood sample optional study specific research indicate code

Code indicating whether the subject/participant consented to provide blood samples for optional study-specific research.

Proposed 1.00 2018-12-11 13:43:40.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59595 Heroin use type name

Name or type of heroin used by the subject/participant

Proposed 1.00 2019-04-12 14:06:32.0 PhenX Toolkit: Substances - Lifetime Use Sickle Cell Disease Sickle Cell Disease
C58653 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C19817 Medical history musculoskeletal total broken bones mechanism type

Type of mechanism broken

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59142 Protocol deviation violation DSMB report date

Year indicating when the protocol deviation or violation was reported to the Data Safety Monitoring Board (DSMB)

Proposed 1.00 2019-01-28 17:51:37.0 Protocol Deviation/Violation Review Form (PDR) Sickle Cell Disease Sickle Cell Disease
C59814 Pull 100 pound 50 kilogram 100 yard 100 meter difficulty scale

Scale of the difficulty the subject/participant has in pulling a 100 pound / 50 kilogram load a distance of 100 yards / 100 meters

Proposed 1.00 2019-06-21 11:54:54.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59255 Fall asleep difficult past 7 day grade

Grade of difficulty falling asleep over the past 7 days

Proposed 1.00 2019-03-28 11:00:57.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C59463 Difficult shop past 2 week scale

Scale of the difficulty the subject/participant had shopping over the past 2 weeks

Proposed 1.00 2019-04-04 15:25:21.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C59056 Hemorrhage grade

Grade of hemorrhage

Proposed 1.00 2019-01-11 10:20:17.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59170 Seven day pain interference social activity enjoyment status

Status indicating how much pain interfered with enjoyment of social activities in the past seven days

Proposed 1.00 2019-01-31 15:01:27.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C59649 Social activity current level satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her current level of social activity

Proposed 1.00 2019-06-19 10:09:24.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59373 Pain attack emergency room visit last 12 month count range

Range of count of times the subject/participant went to the emergency room because of a sickle cell pain attack or crisis

Proposed 1.00 2019-04-02 10:47:20.0 PhenX Toolkit: Quality of Care - Adults Sickle Cell Disease Sickle Cell Disease
C55721 PROMIS - Self Efficacy managing emotions find way to manage stress scale

Scale related to an individual being able to find ways to manage stress, as part of the PROMIS Self-Efficacy Managing Emotions

Proposed 1.00 2017-05-25 13:38:58.0 PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions Sickle Cell Disease Sickle Cell Disease
C58648 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry hospital need go past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was very worried about needing to go to the hospital, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C19777 Medical history wheezing pulmonary assessment indicator

Indicator of wheezing

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59124 Oligospermia grade

Grade of oligospermia (reduced sperm)

Proposed 1.00 2019-01-17 07:23:04.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C19762 Medical history myopia diagnosis indicator

Indicator of history of myopia

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59101 Transfusion related reaction grade

Grade of the patient's reaction related to blood transfusion

Proposed 1.00 2019-01-15 14:23:40.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C13460 Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003) - language deficit-comprehension scale

The scale for language deficit - comprehension based on Pediatric Stroke Outcomes Measure-Neuro Exam (PSOM-SNEVOct2003).

Proposed 3.00 2013-06-21 00:00:00.0 Pediatric Stroke Outcome Measure Short Neuro Exam (PSOM-SNE) - Child Version (Children Aged 2 Year and Older) Sickle Cell Disease Sickle Cell Disease
C55706 PROMIS - Self Efficacy managing emotions relax body to reduce anxiety scale

Scale related to an individual being able to relax his/her body to reduce his/her anxiety, as part of the PROMIS Self-Efficacy Managing Emotions

Proposed 1.00 2017-05-25 13:38:58.0 PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions Sickle Cell Disease Sickle Cell Disease
C59104 Urticaria grade

Grade of the patient's urticaria

Proposed 1.00 2019-01-15 14:41:05.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 4213