CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59046 Liver Function Test sample obtained date

Date when the liver function test sample was obtained

Proposed 1.00 2019-01-10 13:07:16.0 Chronic GVHD Provider Survey (PCG) Sickle Cell Disease Sickle Cell Disease
C20805 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restfulness assessment past week scale

The scale which represents how often the participant's sleep was restful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C59098 Liver abnormality GVHD doppler ultrasound result code

Code denoting whether doppler ultrasound results confirmed a graft-versus-host disease (GVHD) etiology for abnormal liver function

Proposed 1.00 2019-01-15 13:39:46.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C54807 PROMIS - Dyspnea severity walk half mile scale

Scale related to the individual being able to walk 1/2 mile (almost 1 km) without stopping, as part of the PROMIS Dyspnea Severity

Proposed 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
C58823 Assessment period start date

Date of the beginning of the assessment period

Proposed 1.00 2018-12-12 15:06:29.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
C59925 Difficult organize thought do thing home due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant found it difficult to organize his or her thoughts while doing things at home due to his or her fatigue

Proposed 1.00 2019-06-26 10:31:44.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59061 Systolic dysfunction left ventricle grade

Grade of left ventricular systolic dysfunction exhibited by the patient.

Proposed 1.00 2019-01-11 10:51:15.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C02222 Off study intervention prematurely reason

Primary reason participant/subject discontinued study intervention before planned end of study

Proposed 3.00 2013-07-20 10:21:25.65 Study Discontinuation/Completion Sickle Cell Disease Sickle Cell Disease
C58845 Methotrexate use GVHD prophylaxis indicate code

Code indicating whether Methotrexate was used for GVHD (Graft Versus Host Disease) prophylaxis.

Proposed 1.00 2018-12-14 11:06:16.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59760 Walk block level surface difficulty scale

Scale of the difficulty the subject/participant has in walking the length of one block / 100 m on a level surface

Proposed 1.00 2019-06-20 12:13:57.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C18027 Comment text

Provide any additional information that pertains to the question.

Proposed 3.00 2013-07-16 14:01:43.01 Secondary Graft Failure Sickle Cell Disease Sickle Cell Disease
C56429 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning IQ composite score

The subject's Perceptual Reasoning IQ composite score, converted from his/her Perceptual Reasoning T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

Proposed 1.00 2017-06-12 11:58:34.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C13892 Arterial occlusive lesion (AOL) recanalization score

The score as related to recanalization of the primary arterial occlusive lesion (AOL).

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Imaging Angiography Sickle Cell Disease Sickle Cell Disease
C59586 Substance lifetime ever use type code

Code for the type of substances the subject/participant has ever used in his or her lifetime, except as prescribed by a physician.

Proposed 1.00 2019-04-12 14:00:52.0 PhenX Toolkit: Substances - Lifetime Use Sickle Cell Disease Sickle Cell Disease
C59760 Walk block level surface difficulty scale

Scale of the difficulty the subject/participant has in walking the length of one block / 100 m on a level surface

Proposed 1.00 2019-06-20 12:13:57.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C58942 GVHD immunosuppressant prophylaxis receive type code

Code for the type of prophylactic immunosuppressant for GVHD (graft-versus-host disease) received by the patient during the assessment period.

Proposed 1.00 2019-01-04 13:43:11.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
C59885 Too tired leave house past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to leave the house

Proposed 1.00 2019-06-25 09:56:35.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C13248 National Institutes of Health Stroke Scale (NIHSS) Supplemental - Limb sensory loss status

The indicator to determine if any limbs have sensory loss

Proposed 3.00 2013-06-21 00:00:00.0 NIH Stroke Scale (NIHSS) Sickle Cell Disease Sickle Cell Disease
C59454 Difficult place telephone call past week scale

Scale for the difficulty over the past week that the subject/participant has had placing a telephone call, including selecting the correct number and dialing

Proposed 1.00 2019-04-04 14:50:26.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C59639 Family activity current level satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her current level of family activities.

Proposed 1.00 2019-06-18 14:38:38.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58713 Focal neurological event information not available specify text

Text field for specifying why information about a focal neurological event was not available.

Proposed 1.00 2018-12-06 09:36:32.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C58901 Systemic corticosteroid therapy chronic GVHD indicate code

Code indicating whether systemic corticosteroid therapy was used to treat chronic GVHD (graft-versus-host disease)

Proposed 1.00 2018-12-17 12:03:21.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59720 Sit edge bed difficulty scale

Scale of the difficulty the subject/participant has in sitting on the edge of a bed

Proposed 1.00 2019-06-20 10:23:22.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59364 Emergency room sickle cell care received timely last 12 month frequency status

Status of the frequency that the subject/participant received emergency room care for his or her sickle cell disease in a timely manner in the last 12 months

Proposed 1.00 2019-04-01 15:49:51.0 PhenX Toolkit: Quality of Care - Adults Sickle Cell Disease Sickle Cell Disease
C13927 Intima media thickness (IMT) B Mode guided M mode indicator

Indicates intima media thickness (IMT) B mode guided M mode

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Carotid Ultrasound Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 4213