CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C18693 Imaging contrast agent method other text

The free-text field related to 'Imaging contrast agent method type' specifying other text. Indicates imaging contrast agent method of administration

Proposed 1.00 2014-05-27 13:34:46.0 Vessel Imaging Transcranial Doppler (TCD) Sickle Cell Disease Sickle Cell Disease
C56413 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Similarities T score

The T score converted from the raw score that the subject received on the Similarities subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) .

Proposed 1.00 2017-06-12 11:23:35.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C21117 Subject name

Name of subject/participant.

Proposed 1.00 2015-06-12 15:16:39.0 PhenX Toolkit: Height - Self-Reported Height Sickle Cell Disease Sickle Cell Disease
C20744 Patient-Reported Outcome Measurement Information System (PROMIS) - Friendship ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do things for his friends in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Discretionary Social Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59119 Nausea grade

Grade of nausea exhibited by the patient

Proposed 1.00 2019-01-16 13:53:51.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C58736 Serum creatinine institutional upper limit normal age value

Value of the institutional upper limit of normal (ULN) for the subject/participant's age for serum creatinine

Proposed 1.00 2018-12-06 12:04:28.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C58875 Nausea vomit GVHD status code

Code denoting the nausea/vomiting status of the subject/participant with GVHD (Graft Versus Host Disease)

Proposed 1.00 2018-12-14 14:35:32.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59169 Seven day pain interference fun activities status

Status indicating how much pain interfered with fun activities over the past seven days

Proposed 1.00 2019-01-31 14:56:32.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C59347 Respondent gender code

Code for the gender of the individual answering the questionnaire.

Proposed 1.00 2019-04-01 13:36:13.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59096 Etiology liver abnormality unknown indicate code

Code indicating whether the etiology of the liver abnormality was unknown.

Proposed 1.00 2019-01-04 13:57:59.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59521 Biological mother birthplace territory country name

Name of the US territory or foreign country where the subject/participant's biological mother was born

Proposed 1.00 2019-04-10 13:00:43.0 PhenX Toolkit: Birthplace of Parents Sickle Cell Disease Sickle Cell Disease
C59857 Feel too tired enjoy life past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt too tired to enjoy life

Proposed 1.00 2019-06-24 13:09:22.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58636 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Awaken too stiff move past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant awakened too stiff to move, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C58716 Acute chest syndrome information not available specify text

Text field for specifying whether information about acute chest syndrome (ACS) episodes experienced by the subject/participant was not available.

Proposed 1.00 2018-12-06 09:55:54.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C58904 Tacrolimus therapy chronic GVHD indicate code

Code indicating whether Tacrolimus (F K 506, Prograf) therapy was used to treat chronic GVHD (graft-versus-host disease)

Proposed 1.00 2018-12-17 12:03:21.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C12481 Imaging cortex lissencephaly (LIS type 1) indicator

Indicator of whether cortex lissencephaly is found within the image studies

Proposed 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C59229 Help friends past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant and his/her friends helped one another

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C14001 Extracranial stenosis type

Indicates extracranial stenosis type

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Imaging Transcranial Doppler (TCD) Sickle Cell Disease Sickle Cell Disease
C10724 Echocardiogram performed date and time

Date (and time, if applicable and known) the echocardiography was performed

Proposed 3.00 2013-07-25 08:54:08.2 Physical Exam Form - 1507 Sickle Cell Disease Sickle Cell Disease
C22354 Imaging diagnostic method type

The type of imaging method utilized for diagnosis.

Proposed 1.00 2016-06-09 14:44:44.0 PhenX Toolkit: Recovery and Recurrence Questionnaire - Pediatric Sickle Cell Disease Sickle Cell Disease
C59065 Capillary leak syndrome grade

Grade of capillary leak syndrome exhibited by the patient.

Proposed 1.00 2019-01-11 11:11:23.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry.

Proposed 3.00 2013-07-22 16:57:17.79 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C58830 Lower GI abnormality severity at acute GVHD maximum overall grade code

Code for the highest severity of lower GI (gastrointestinal tract) abnormalities at the time of the maximum overall grade of GVHD (Graft Versus Host Disease)

Proposed 1.00 2018-12-12 15:24:41.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59149 Protocol deviation violation description text

Text describing the protocol deviation or violation

Proposed 1.00 2019-01-29 15:32:48.0 Protocol Deviation/Violation Form (PDV) Sickle Cell Disease Sickle Cell Disease
C18720 Imaging visual analysis location performed other text

The free-text field related to 'Imaging visual analysis location performed type' specifying other text. Location where visual analysis of the imaging data are performed

Proposed 1.00 2014-05-27 13:34:46.0 Vessel Imaging Angiography Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 4213