C01502 |
Blood pressure diastolic mean daily measurement |
Mean measurement of the participant's/subject's diastolic blood pressure over a 24-hour period
|
Core |
3.00 |
2013-07-20 10:21:25.65 |
Renal Function Assessments |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60292 |
Echocardiogram septum ventricular thickness measurement |
Measurement in millimeters of the thickness of the subject/participant's ventricular septum, assessed by echocardiogram.
|
Core |
1.00 |
2021-03-03 12:43:25.0 |
Echocardiogram |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60212 |
Medical history psychological mental health condition type |
Type of psychological or mental health condition of which the subject/participant has a history.
|
Core |
1.00 |
2021-02-24 15:52:12.0 |
Medical History Core |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60673 |
Vector integrating positive count |
The count related to vector integrating positive cells.
|
Core |
1.00 |
2021-05-10 12:12:04.0 |
Drug Product |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59947 |
Death cause secondary text |
Text identifying secondary cause(s) of the subject/participant's death.
|
Core |
1.00 |
2020-08-19 15:03:31.0 |
Death Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59847 |
Feel run down past 7 day frequency scale |
Scale of the frequency over the past 7 days that the subject/participant felt run down
|
Core |
1.00 |
2019-06-24 09:59:42.0 |
PROMIS Item Bank v1.0 - Fatigue - Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56488 |
PROMIS - Pain Interference feel emotion tense pain scale |
Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference
|
Core |
1.00 |
2017-06-14 09:47:29.0 |
PROMIS Item Bank v1.1 - Pain Interference |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60088 |
Vasoocclusive crisis inpatient outpatient treatment visit past 12 month count |
Count of times in the past 12 months that the subject/participant received inpatient or outpatient treatment for vaso-occlusive crisis (VOC).
|
Core |
1.00 |
2021-01-12 15:33:39.0 |
Sickle Cell Related Acute Painful Episodes |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60300 |
Echocardiogram left ventricle outflow tract diameter measurement |
Measurement in millimeters of the diameter of the outflow tract of the left ventricle (LVOT), assessed by echocardiogram.
|
Core |
1.00 |
2021-03-04 13:48:28.0 |
Echocardiogram |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60681 |
Gene editing off-target Indels value |
The value related to off-target Indels
|
Core |
1.00 |
2021-05-10 12:12:04.0 |
Drug Product |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60144 |
Blood sample collect date |
Date on which a sample of the subject/participant's blood was collected.
|
Core |
1.00 |
2021-01-15 16:40:21.0 |
Laboratory Tests |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56496 |
PROMIS - Pain Interference pain interfere ability participate social activity scale |
Scale related to how much pain interfered with an individual's ability to participate in social activities in the past 7 days, as part of the PROMIS Pain Interference
|
Core |
1.00 |
2017-06-14 09:47:29.0 |
PROMIS Item Bank v1.1 - Pain Interference |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58663 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code |
Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Core |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60308 |
Echocardiogram left atrium volume body surface area index value |
Value in milliliters per square meter of the volume of the left atrium (LA), assessed by echocardiogram, divided by the subject/participant's body surface area.
|
Core |
1.00 |
2021-03-04 13:48:28.0 |
Echocardiogram |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C54694 |
PROMIS - Global Health bother emotional problem scale |
Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health
|
Core |
1.00 |
2017-04-07 15:34:25.0 |
PROMIS Item Bank v1.2 - Global Health |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60164 |
Oxygen saturation 2 percent decrease room air from baseline indicator |
Indicator of whether the subject/participants oxygen saturation (SpO2) in room air decreased by 2% percent or more from baseline oximetry measurement.
|
Core |
1.00 |
2021-02-23 16:32:02.0 |
Acute Chest Syndrome |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C01521 |
Heart rate |
The participant/subject's pulse or number of contractions (heart beats) per minute
|
Core |
3.00 |
2013-08-28 16:08:00.453 |
Echocardiogram |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60152 |
Lab test result clinical significance indicator |
Indicator of whether the lab test result is clinically significant.
|
Core |
1.00 |
2021-01-21 14:11:49.0 |
Laboratory Tests |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56504 |
PROMIS - Pain Interference pain make feel depressed scale |
Scale related to how often pain made an individual feel depressed in the past 7 days, as part of the PROMIS Pain Interference
|
Core |
1.00 |
2017-06-14 09:47:29.0 |
PROMIS Item Bank v1.1 - Pain Interference |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60316 |
Echocardiogram right atrium pressure estimate value |
Value in millimeters of mercury (mmHg) of the estimated pressure of the right atrium (RAP), assessed by echocardiogram.
|
Core |
1.00 |
2021-03-04 15:08:51.0 |
Echocardiogram |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59934 |
Fatigue interfere physical function past 7 day extent scale |
Scale of the extent over the past 7 days that the subject/participant's fatigue interfered with his or her physical functioning
|
Core |
1.00 |
2019-06-26 10:56:43.0 |
PROMIS Item Bank v1.0 - Fatigue - Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60196 |
Medical history for sickle cell condition heart other text |
The free-text field related to "Medical history for sickle cell condition type" specifying other text for heart conditions.
|
Core |
1.00 |
2021-02-24 14:25:43.0 |
Medical History Core |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58651 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain severe past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Core |
1.00 |
2018-10-25 10:42:58.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56512 |
PROMIS - Pain Interference pain prevent from stand more 1 hour scale |
Scale related to how often pain prevented an individual from standing more than one hour in the past 7 days, as part of the PROMIS Pain Interference
|
Core |
1.00 |
2017-06-14 09:47:29.0 |
PROMIS Item Bank v1.1 - Pain Interference |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60605 |
Fertility preservation oocyte ovarian tissue embryo not preserve reason |
Reason why the subject/participant is no longer continuing to preserve oocytes, ovarian tissue, and/or embryos as part of fertility preservation.
|
Core |
1.00 |
2021-04-29 13:20:26.0 |
Endocrine, Infertility and Bone Health |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|