CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C56499 PROMIS - Pain Interference pain interfere with enjoyment social activity scale

Scale related to how much pain interfered with an individual's enjoyment of social activities in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C14539 Cardiac output measurement

The measurement of volume of blood pumped by the heart per minute. The recommended unit for recording cardiac output is liters per minute (LPM).

Core 3.00 2013-06-21 00:00:00.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60096 Lactic acid dehydrogenase measurement value

Value of the measurement of the subject/participants lactic acid dehydrogenase (LDH).

Core 1.00 2021-01-14 13:15:48.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C54690 PROMIS - Global Health mental health rate scale

Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health

Core 1.00 2017-04-07 15:34:25.0 PROMIS Pediatric Global Health 7+2 Sickle Cell Disease Sickle Cell Disease
C60593 Fertility preservation ovarian tissue indicator

Indicator of whether ovarian tissue has been preserved for fertility preservation.

Core 1.00 2021-04-28 16:12:45.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60611 Priapism prevention medication prescribe indicator

Indicator of whether the subject/participant was prescribed any medications for prevention of priapism.

Core 1.00 2021-04-29 13:39:51.0 Priapism Core Sickle Cell Disease Sickle Cell Disease
C59849 Feel tired despite not do anything past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt tired even when he or she had not done anything

Core 1.00 2019-06-24 10:05:30.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60639 Blood CD3 depleted conversion percent value

Value of the percentage of conversions related to CD3 depletion in blood.

Core 1.00 2021-04-30 11:22:27.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59896 Have trouble finish thing because tired past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant had trouble finishing things because he or she was tired

Core 1.00 2019-06-25 10:45:27.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60392 Sample collect date

Date on which a sample was collected.

Core 1.00 2021-01-15 16:40:21.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59856 Have energy enjoy fun thing past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant had the energy to enjoy the things he or she does for fun

Core 1.00 2019-06-24 13:06:28.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60123 Packed red blood cell transfusion indicator

Indicator of whether the subject/participant received a packed red blood cell (PRBC) transfusion during the splenic sequestration episode being reported.

Core 1.00 2021-01-15 10:12:11.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C56507 PROMIS - Pain Interference pain severe think nothing else scale

Scale related to how often an individual's pain was so severe he/she could think of nothing else in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60104 Transfusion required indicator

Indicator of whether the subject/participant requires a transfusion because of his or her anemia.

Core 1.00 2021-01-14 14:52:13.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60601 Fertility preservation semen analysis sperm morphology text

Text field for recording the value and units of sperm morphology from semen analysis performed as part of fertility preservation.

Core 1.00 2021-04-28 16:23:29.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60647 Gene editing off target indel bone marrow mononuclear cell count

Count of off-target indels in gene editing of bone marrow mononuclear cells (BMMC).

Core 1.00 2021-04-23 11:40:19.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59904 Feel tired despite not do anything past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt tired despite not doing anything

Core 1.00 2019-06-25 11:17:15.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60488 Peripheral blood mononuclear cell positive for integrating viral vector percent value

Value of the percentage of peripheral blood mononuclear cells (PBMC) positive for the integrating viral vector.

Core 1.00 2021-04-22 13:33:03.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59864 Need push self get thing done because fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant needed to push him or herself to get things done because of his or her fatigue

Core 1.00 2019-06-24 13:33:03.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56515 PROMIS - Pain Interference pain prevent sit 30 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 30 minutes in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60349 Hydroxyurea dose postpone duration unit of measure

Unit of measure for the duration for which the administration of hydroxyurea (HU) to the subject/participant was postponed.

Core 1.00 2021-01-14 14:34:55.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60623 Immunoglobulin G measurement

Measurement, in milligrams per deciliter (mg/dL), of serum Immunoglobulin G (IgG)

Core 1.00 2021-04-29 14:32:19.0 Immune Reconstitution Core Sickle Cell Disease Sickle Cell Disease
C59912 Feel run down past 7 day average scale

Scale of how run down the subject/participant felt on average over the past 7 days

Core 1.00 2019-06-26 09:53:36.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60519 Gene editing conversion blood CD3 plus lineage percent value

Value of the percentage of gene-editing conversions in the blood CD3+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59872 Too tired run errand past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant has been too tired to run errands

Core 1.00 2019-06-24 14:04:28.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 5231