CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59046 Liver Function Test sample obtained date

Date when the liver function test sample was obtained

 Proposed 1.00 2019-01-10 13:07:16.0 Chronic GVHD Provider Survey (PCG) False Sickle Cell Disease Sickle Cell Disease
C20805 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep restfulness assessment past week scale

The scale which represents how often the participant's sleep was restful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance False Sickle Cell Disease Sickle Cell Disease
C59098 Liver abnormality GVHD doppler ultrasound result code

Code denoting whether doppler ultrasound results confirmed a graft-versus-host disease (GVHD) etiology for abnormal liver function

 Proposed 1.00 2019-01-15 13:39:46.0 Toxicity Form False Sickle Cell Disease Sickle Cell Disease
C54807 PROMIS - Dyspnea severity walk half mile scale

Scale related to the individual being able to walk 1/2 mile (almost 1 km) without stopping, as part of the PROMIS Dyspnea Severity

 Proposed 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity False Sickle Cell Disease Sickle Cell Disease
C58823 Assessment period start date

Date of the beginning of the assessment period

 Proposed 1.00 2018-12-12 15:06:29.0 Acute GVHD Form False Sickle Cell Disease Sickle Cell Disease
C59925 Difficult organize thought do thing home due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant found it difficult to organize his or her thoughts while doing things at home due to his or her fatigue

 Proposed 1.00 2019-06-26 10:31:44.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C59061 Systolic dysfunction left ventricle grade

Grade of left ventricular systolic dysfunction exhibited by the patient.

 Proposed 1.00 2019-01-11 10:51:15.0 Toxicity Form False Sickle Cell Disease Sickle Cell Disease
C02222 Off study intervention prematurely reason

Primary reason participant/subject discontinued study intervention before planned end of study

 Proposed 3.00 2013-07-20 10:21:25.65 Study Discontinuation/Completion False Sickle Cell Disease Sickle Cell Disease
C58845 Methotrexate use GVHD prophylaxis indicate code

Code indicating whether Methotrexate was used for GVHD (Graft Versus Host Disease) prophylaxis.

 Proposed 1.00 2018-12-14 11:06:16.0 Follow Up/Chronic GVHD Form False Sickle Cell Disease Sickle Cell Disease
C59760 Walk block level surface difficulty scale

Scale of the difficulty the subject/participant has in walking the length of one block / 100 m on a level surface

 Proposed 1.00 2019-06-20 12:13:57.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C18027 Comment text

Provide any additional information that pertains to the question.

 Proposed 3.00 2013-07-16 14:01:43.01 Secondary Graft Failure False Sickle Cell Disease Sickle Cell Disease
C56429 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning IQ composite score

The subject's Perceptual Reasoning IQ composite score, converted from his/her Perceptual Reasoning T score, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

 Proposed 1.00 2017-06-12 11:58:34.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Sickle Cell Disease Sickle Cell Disease
C13892 Arterial occlusive lesion (AOL) recanalization score

The score as related to recanalization of the primary arterial occlusive lesion (AOL).

 Proposed 3.00 2013-06-21 00:00:00.0 Vessel Imaging Angiography False Sickle Cell Disease Sickle Cell Disease
C59586 Substance lifetime ever use type code

Code for the type of substances the subject/participant has ever used in his or her lifetime, except as prescribed by a physician.

 Proposed 1.00 2019-04-12 14:00:52.0 PhenX Toolkit: Substances - Lifetime Use False Sickle Cell Disease Sickle Cell Disease
C59760 Walk block level surface difficulty scale

Scale of the difficulty the subject/participant has in walking the length of one block / 100 m on a level surface

 Proposed 1.00 2019-06-20 12:13:57.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C58942 GVHD immunosuppressant prophylaxis receive type code

Code for the type of prophylactic immunosuppressant for GVHD (graft-versus-host disease) received by the patient during the assessment period.

 Proposed 1.00 2019-01-04 13:43:11.0 Acute GVHD Form False Sickle Cell Disease Sickle Cell Disease
C59885 Too tired leave house past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to leave the house

 Proposed 1.00 2019-06-25 09:56:35.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C13248 National Institutes of Health Stroke Scale (NIHSS) Supplemental - Limb sensory loss status

The indicator to determine if any limbs have sensory loss

 Proposed 3.00 2013-06-21 00:00:00.0 NIH Stroke Scale (NIHSS) True Sickle Cell Disease Sickle Cell Disease
C59454 Difficult place telephone call past week scale

Scale for the difficulty over the past week that the subject/participant has had placing a telephone call, including selecting the correct number and dialing

 Proposed 1.00 2019-04-04 14:50:26.0 PhenX Toolkit: Functionality After Stroke False Sickle Cell Disease Sickle Cell Disease
C59639 Family activity current level satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her current level of family activities.

 Proposed 1.00 2019-06-18 14:38:38.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C58713 Focal neurological event information not available specify text

Text field for specifying why information about a focal neurological event was not available.

 Proposed 1.00 2018-12-06 09:36:32.0 Haplo Sickle Cell Enrollment Form: Segment A False Sickle Cell Disease Sickle Cell Disease
C58901 Systemic corticosteroid therapy chronic GVHD indicate code

Code indicating whether systemic corticosteroid therapy was used to treat chronic GVHD (graft-versus-host disease)

 Proposed 1.00 2018-12-17 12:03:21.0 Follow Up/Chronic GVHD Form False Sickle Cell Disease Sickle Cell Disease
C59720 Sit edge bed difficulty scale

Scale of the difficulty the subject/participant has in sitting on the edge of a bed

 Proposed 1.00 2019-06-20 10:23:22.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C59364 Emergency room sickle cell care received timely last 12 month frequency status

Status of the frequency that the subject/participant received emergency room care for his or her sickle cell disease in a timely manner in the last 12 months

 Proposed 1.00 2019-04-01 15:49:51.0 PhenX Toolkit: Quality of Care - Adults False Sickle Cell Disease Sickle Cell Disease
C13927 Intima media thickness (IMT) B Mode guided M mode indicator

Indicates intima media thickness (IMT) B mode guided M mode

 Proposed 3.00 2013-06-21 00:00:00.0 Vessel Carotid Ultrasound False Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 4213

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