CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C01502 Blood pressure diastolic mean daily measurement

Mean measurement of the participant's/subject's diastolic blood pressure over a 24-hour period

 Core 3.00 2013-07-20 10:21:25.65 Renal Function Assessments False Sickle Cell Disease Sickle Cell Disease
C60292 Echocardiogram septum ventricular thickness measurement

Measurement in millimeters of the thickness of the subject/participant's ventricular septum, assessed by echocardiogram.

 Core 1.00 2021-03-03 12:43:25.0 Echocardiogram False Sickle Cell Disease Sickle Cell Disease
C60212 Medical history psychological mental health condition type

Type of psychological or mental health condition of which the subject/participant has a history.

 Core 1.00 2021-02-24 15:52:12.0 Medical History Core False Sickle Cell Disease Sickle Cell Disease
C60673 Vector integrating positive count

The count related to vector integrating positive cells.

 Core 1.00 2021-05-10 12:12:04.0 Drug Product False Sickle Cell Disease Sickle Cell Disease
C59947 Death cause secondary text

Text identifying secondary cause(s) of the subject/participant's death.

 Core 1.00 2020-08-19 15:03:31.0 Death Form False Sickle Cell Disease Sickle Cell Disease
C59847 Feel run down past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt run down

 Core 1.00 2019-06-24 09:59:42.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C56488 PROMIS - Pain Interference feel emotion tense pain scale

Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference

 Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference False Sickle Cell Disease Sickle Cell Disease
C60088 Vasoocclusive crisis inpatient outpatient treatment visit past 12 month count

Count of times in the past 12 months that the subject/participant received inpatient or outpatient treatment for vaso-occlusive crisis (VOC).

 Core 1.00 2021-01-12 15:33:39.0 Sickle Cell Related Acute Painful Episodes False Sickle Cell Disease Sickle Cell Disease
C60300 Echocardiogram left ventricle outflow tract diameter measurement

Measurement in millimeters of the diameter of the outflow tract of the left ventricle (LVOT), assessed by echocardiogram.

 Core 1.00 2021-03-04 13:48:28.0 Echocardiogram False Sickle Cell Disease Sickle Cell Disease
C60681 Gene editing off-target Indels value

The value related to off-target Indels

 Core 1.00 2021-05-10 12:12:04.0 Drug Product False Sickle Cell Disease Sickle Cell Disease
C60144 Blood sample collect date

Date on which a sample of the subject/participant's blood was collected.

 Core 1.00 2021-01-15 16:40:21.0 Laboratory Tests False Sickle Cell Disease Sickle Cell Disease
C56496 PROMIS - Pain Interference pain interfere ability participate social activity scale

Scale related to how much pain interfered with an individual's ability to participate in social activities in the past 7 days, as part of the PROMIS Pain Interference

 Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference False Sickle Cell Disease Sickle Cell Disease
C58663 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code

Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure True Sickle Cell Disease Sickle Cell Disease
C60308 Echocardiogram left atrium volume body surface area index value

Value in milliliters per square meter of the volume of the left atrium (LA), assessed by echocardiogram, divided by the subject/participant's body surface area.

 Core 1.00 2021-03-04 13:48:28.0 Echocardiogram False Sickle Cell Disease Sickle Cell Disease
C54694 PROMIS - Global Health bother emotional problem scale

Scale related to an individual's rating of how often he/she has been bothered by emotional problems such as feeling anxious, depressed or irritable, as part of the PROMIS Global Health

 Core 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health False Sickle Cell Disease Sickle Cell Disease
C60164 Oxygen saturation 2 percent decrease room air from baseline indicator

Indicator of whether the subject/participants oxygen saturation (SpO2) in room air decreased by 2% percent or more from baseline oximetry measurement.

 Core 1.00 2021-02-23 16:32:02.0 Acute Chest Syndrome False Sickle Cell Disease Sickle Cell Disease
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

 Core 3.00 2013-08-28 16:08:00.453 Echocardiogram False Sickle Cell Disease Sickle Cell Disease
C60152 Lab test result clinical significance indicator

Indicator of whether the lab test result is clinically significant.

 Core 1.00 2021-01-21 14:11:49.0 Laboratory Tests False Sickle Cell Disease Sickle Cell Disease
C56504 PROMIS - Pain Interference pain make feel depressed scale

Scale related to how often pain made an individual feel depressed in the past 7 days, as part of the PROMIS Pain Interference

 Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference False Sickle Cell Disease Sickle Cell Disease
C60316 Echocardiogram right atrium pressure estimate value

Value in millimeters of mercury (mmHg) of the estimated pressure of the right atrium (RAP), assessed by echocardiogram.

 Core 1.00 2021-03-04 15:08:51.0 Echocardiogram False Sickle Cell Disease Sickle Cell Disease
C59934 Fatigue interfere physical function past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant's fatigue interfered with his or her physical functioning

 Core 1.00 2019-06-26 10:56:43.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C60196 Medical history for sickle cell condition heart other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for heart conditions.

 Core 1.00 2021-02-24 14:25:43.0 Medical History Core False Sickle Cell Disease Sickle Cell Disease
C58651 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain severe past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C56512 PROMIS - Pain Interference pain prevent from stand more 1 hour scale

Scale related to how often pain prevented an individual from standing more than one hour in the past 7 days, as part of the PROMIS Pain Interference

 Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference False Sickle Cell Disease Sickle Cell Disease
C60605 Fertility preservation oocyte ovarian tissue embryo not preserve reason

Reason why the subject/participant is no longer continuing to preserve oocytes, ovarian tissue, and/or embryos as part of fertility preservation.

 Core 1.00 2021-04-29 13:20:26.0 Endocrine, Infertility and Bone Health False Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 5231

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