CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60623 Immunoglobulin G measurement

Measurement, in milligrams per deciliter (mg/dL), of serum Immunoglobulin G (IgG)

Core 1.00 2021-04-29 14:32:19.0 Immune Reconstitution Core Sickle Cell Disease Sickle Cell Disease
C60519 Gene editing conversion blood CD3 plus lineage percent value

Value of the percentage of gene-editing conversions in the blood CD3+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C58694 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain level torso past 7 day scale

Scale over the past 7 days of the subject/participant's pain level in his or her torso, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C56520 PROMIS - Pain Interference pain keep stand position scale

Scale related to how often pain kept individual from getting into a standing position in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 12:35:11.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60234 Cardiac MRI left ventricle end-systolic volume body surface area index value

Value of the subject/participant's left ventricle end-systolic volume (LVESV), assessed by cardiac MRI, indexed to body surface area (BSA) in milliliters per square meter.

Core 1.00 2021-03-02 13:43:54.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59903 Need limit social activity because tired past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant needed to limit his or her social activities because he or she was tired

Core 1.00 2019-06-25 11:04:35.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59863 Have physical energy past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant had physical energy

Core 1.00 2019-06-24 13:29:50.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60577 Avascular necrosis before cure indicator

Indicator of whether participant/subject presented with avascular necrosis prior to being cured.

Core 1.00 2021-04-28 14:25:43.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C01015 Physical exam performed indicator

Indicator of whether a physical exam was performed on the participant/subject

Core 3.00 2013-07-25 08:54:08.2 Physical Exam Sickle Cell Disease Sickle Cell Disease
C60527 Gene editing blood GPA plus lineage on target indel count

Count of gene-editing on-target indels in the blood GPA+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C01711 Lab test result unit of measure

Unit of measure for the laboratory test result

Core 3.00 2013-07-25 08:54:08.2 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C60242 Cardiac MRI right ventricle ejection fraction value

Value as a percentage of the subject/participant's right ventricle ejection fraction (RVEF) assessed by cardiac MRI.

Core 1.00 2021-03-02 13:39:15.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C00719 Tobacco product used type

Type of tobacco product (e.g., cigarettes, cigars, chewing tobacco or pipe) used by the participant/subject

Core 3.00 2013-07-20 10:21:25.65 Behavioral History Sickle Cell Disease Sickle Cell Disease
C59206 Urinary albumin measurement

Measurement of the concentration of urinary albumin

Core 1.00 2019-03-27 11:52:56.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C56488 PROMIS - Pain Interference feel emotion tense pain scale

Scale related to how often an individual felt emotionally tense because of his/her pain in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59911 Fatigue past 7 day average scale

Scale of the average fatigue the subject/participant felt over the past 7 days

Core 1.00 2019-06-26 09:50:17.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59871 Fatigue make forgetful past 7 day frequency scale

Scale of the frequency over the past 7 days that that subject/participant's fatigue made him or her more forgetful

Core 1.00 2019-06-24 13:59:23.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60585 Fertility preservation no reason

Reason given by the subject/participant for why he or she did not take steps to preserve his or her fertility.

Core 1.00 2021-04-28 14:52:44.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60631 Elapsed time from infusion at visit category

Category of elapsed time since infusion as of the visit being documented.

Core 1.00 2021-04-29 16:11:55.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60441 Laboratory procedure hemoglobin genetic modified A variant result percentage value

The percentage value related to genetic modified A variant hemoglobin.

Core 1.00 2021-04-11 01:51:27.0 Genetic Diagnostic Testing Sickle Cell Disease Sickle Cell Disease
C60115 Spleen size physical examination indicator

Indicator of whether the size of the subject/participant's spleen was evaluated by physical examination.

Core 1.00 2021-01-14 16:50:52.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C56496 PROMIS - Pain Interference pain interfere ability participate social activity scale

Scale related to how much pain interfered with an individual's ability to participate in social activities in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C14539 Cardiac output measurement

The measurement of volume of blood pumped by the heart per minute. The recommended unit for recording cardiac output is liters per minute (LPM).

Core 3.00 2013-06-21 00:00:00.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59919 Wiped out past 7 day average scale

Scale of how wiped out the subject/participant felt on average over the past 7 days

Core 1.00 2019-06-26 10:09:37.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 5231