CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 26 - 50 of 4213
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C19792 Medical history cardiovascular heart arrhythmia indicator

Indicator of history of heart arrhythmia

 Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History False Sickle Cell Disease Sickle Cell Disease
C58746 Alanine aminotransferase sample date

Date on which the alanine aminotransferase (ALT) sample was collected.

 Proposed 1.00 2018-12-10 09:11:55.0 Haplo Sickle Cell Enrollment Form: Segment A False Sickle Cell Disease Sickle Cell Disease
C20420 National Institutes of Health Stroke Scale (NIHSS) - Dysarthria intubation text

The text field for explaining the intubation or other physical barrier related to Dysarthria assessed using the NIH Stroke Scale (NIHSS).

 Proposed 4.00 2015-04-27 00:00:00.0 NIH Stroke Scale (NIHSS) True Sickle Cell Disease Sickle Cell Disease
C59116 Anemia grade

Grade of anemia exhibited by the patient.

 Proposed 1.00 2019-01-16 13:32:44.0 Toxicity Form False Sickle Cell Disease Sickle Cell Disease
C59707 Stand short period time difficulty scale

Scale of the difficulty the subject/participant has in standing for short periods of time

 Proposed 1.00 2019-06-20 09:55:57.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C59122 Hyperpigmentation skin under nail indicate code

Code indicating whether the patient has hyperpigmentation of the skin under the nails

 Proposed 1.00 2019-01-17 07:19:38.0 Toxicity Form False Sickle Cell Disease Sickle Cell Disease
C59832 Take shower health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to take a shower

 Proposed 1.00 2019-06-21 13:33:06.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C56498 PROMIS - Pain Interference pain interfere ability make trip from home scale

Scale related to how much pain interfered with an individual's ability to make trips from home that kept him/her gone for more than 2 hours in the past 7 days, as part of the PROMIS Pain Interference

 Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference False Sickle Cell Disease Sickle Cell Disease
C55684 PROMIS - Dyspnea Functional limitations scrub floor counter scale

Scale related to an individual being able to scrub the floor or counter, as part of the PROMIS Dyspnea Functional Limitations

 Proposed 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False Sickle Cell Disease Sickle Cell Disease
C14007 Imaging Transcranial Doppler (TCD) findings result type

Indicates Transcranial Doppler (TCD) findings

 Proposed 3.00 2013-06-21 00:00:00.0 Vessel Imaging Transcranial Doppler (TCD) False Sickle Cell Disease Sickle Cell Disease
C59009 Karnofsky Lansky score date

Date on which patient's Karnofsky/Lansky performance score was obtained

 Proposed 1.00 2019-01-07 15:02:35.0 Physical Exam Form - 1507 False Sickle Cell Disease Sickle Cell Disease
C20765 Patient-Reported Outcome Measurement Information System (PROMIS) - Household responsibity regular person ability satisfaction past week scale

The scale which represents the extent of the participant's satisfaction with his/her ability to do regular personal and household responsibilities in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Proposed 1.00 2015-05-20 17:07:03.0 PROMIS Item Bank v. 1.0 - Satisfaction with Participation in Social Roles Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C14216 Diagnosis new type

If there were any new diagnoses related to stroke risk factors during hospital stay, describes those risk factors.

 Proposed 3.00 2013-06-21 00:00:00.0 Hospital Discharge False Sickle Cell Disease Sickle Cell Disease
C20713 Patient-Reported Outcome Measurement Information System (PROMIS) - Anger sulk past week scale

The scale which represents how often the participant sulked when angry in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Proposed 1.00 2015-05-20 14:40:56.0 PROMIS Item Bank v1.1 - Anger False Sickle Cell Disease Sickle Cell Disease
C59099 Liver abnormality infection doppler ultrasound result code

Code denoting whether doppler ultrasound results confirmed an infection etiology for abnormal liver function

 Proposed 1.00 2019-01-15 13:39:46.0 Toxicity Form False Sickle Cell Disease Sickle Cell Disease
C59832 Take shower health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to take a shower

 Proposed 1.00 2019-06-21 13:33:06.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C59862 Think about own fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days with which the subject/participant thought about his or her own fatigue

 Proposed 1.00 2019-06-24 13:27:11.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C20809 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep quality assessment past week scale

The scale which represents the participant's description of his/her sleep quality in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance False Sickle Cell Disease Sickle Cell Disease
C59500 Pediatric National Institutes of Health Stroke Scale (PedNIHSS) - Motor leg score

Motor ability of the leg (both left and right) assessed using the Pediatric NIH Stroke Scale (PedNIHSS)

 Proposed 3.00 2013-06-21 00:00:00.0 PhenX Toolkit: Stroke Impact/Outcome - Pediatric False Sickle Cell Disease Sickle Cell Disease
C20850 Patient-Reported Outcome Measurement Information System (PROMIS) - Energy sufficient past week scale

The scale which represents how often the participant had enough energy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment False Sickle Cell Disease Sickle Cell Disease
C59062 Somnolence grade

Grade of somnolence exhibited by the patient

 Proposed 1.00 2019-01-11 10:56:04.0 Toxicity Form False Sickle Cell Disease Sickle Cell Disease
C59667 Time spend do thing for family satisfied scale

Scale of the degree to which the subject/participant is satisfied with the amount of time he or she spends doing things for his or her family

 Proposed 1.00 2019-06-19 11:15:16.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C54812 PROMIS - Dyspnea severity put on sock stocking scale

Scale related to the individual being able to put on socks or stockings, as part of the PROMIS Dyspnea Severity

 Proposed 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity False Sickle Cell Disease Sickle Cell Disease
C58671 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia all night past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant had insomnia for the entire night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 16:53:20.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease False Sickle Cell Disease Sickle Cell Disease
C58988 Absolute neutrophil count most recent measurement

Measurement of the most recent ANC (absolute neutrophil count) per microliter.

 Proposed 1.00 2019-01-07 12:20:14.0 Hematopoiesis Form False Sickle Cell Disease Sickle Cell Disease
Displaying 26 - 50 of 4213

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