CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 26 - 50 of 4213
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59092 GYN exam not performed indicate code

Code indicating GYN was not performed.

 Proposed 1.00 2019-01-14 16:44:10.0 Chronic GVHD Provider Survey (PCG) False Sickle Cell Disease Sickle Cell Disease
C59067 Dyspnea grade

Grade of dyspnea exhibited by the patient.

 Proposed 1.00 2019-01-11 11:28:38.0 Toxicity Form False Sickle Cell Disease Sickle Cell Disease
C59936 Have trouble finish thing due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant had trouble finishing things due to his or her fatigue

 Proposed 1.00 2019-06-26 11:01:38.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C59227 Feel accepted by peers past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant felt accepted by his or her peers

 Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric False Sickle Cell Disease Sickle Cell Disease
C58882 Alkaline phosphatase sample date

Date on which sample was collected for alkaline phosphatase test.

 Proposed 1.00 2018-12-17 10:53:01.0 Follow Up/Chronic GVHD Form False Sickle Cell Disease Sickle Cell Disease
C59386 Deal with frustration have sickle cell disease sure scale

Scale of the subject/participant's conviction that he or she can deal with the frustration of having sickle cell disease

 Proposed 1.00 2019-04-02 14:25:49.0 PhenX Toolkit: Self-efficacy in Sickle Cell Disease False Sickle Cell Disease Sickle Cell Disease
C20815 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep ease assessment past week scale

The scale which represents how often the It was easy for the participant to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

 Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance False Sickle Cell Disease Sickle Cell Disease
C00035 Gender Type

Self-reported gender of the participant/subject. Gender is the socially constructed identity of sex. Gender is equated with phenotypic sex. Gender may differ from the sex of an individual determined genetically.

 Proposed 3.00 2013-08-28 16:08:00.453 Behavior Rating Inventory of Executive Function (BRIEF) Second Edition (BRIEF-2) True Sickle Cell Disease Sickle Cell Disease
C58971 Etiology liver abnormality total parenteral nutrition indicate code

Code indicating whether the etiology of the liver abnormality was determined to be TPN (total parenteral nutrition).

 Proposed 1.00 2019-01-04 14:24:15.0 Acute GVHD Form False Sickle Cell Disease Sickle Cell Disease
C59866 Less effective work due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was less effective at work, including work at home, due to his or her fatigue

 Proposed 1.00 2019-06-24 13:43:57.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C59040 Mucositis toxicity grade

Grade of mucositis toxicity exhibited by the patient.

 Proposed 1.00 2019-01-10 12:30:05.0 Toxicity Form False Sickle Cell Disease Sickle Cell Disease
C12495 Imaging pons abnormality type

The type of abnormality in the pons on the image

 Proposed 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) False Sickle Cell Disease Sickle Cell Disease
C59139 Protocol deviation violation reason specify text

Text indicating the specifc other reason a protocol deviation or violation occurred

 Proposed 1.00 2019-01-28 17:43:17.0 Protocol Deviation/Violation Form (PDV) False Sickle Cell Disease Sickle Cell Disease
C58723 Red blood cell transfusion therapy information not available specify text

Text specifying why information about packed red blood cell (RBC) transfusion therapy was not available.

 Proposed 1.00 2018-12-06 10:36:51.0 Haplo Sickle Cell Enrollment Form: Segment A False Sickle Cell Disease Sickle Cell Disease
C58911 Etanercept therapy chronic GVHD indicate code

Code indicating whether Etanercept therapy was used to treat chronic GVHD (graft-versus-host disease)

 Proposed 1.00 2018-12-17 12:03:21.0 Follow Up/Chronic GVHD Form False Sickle Cell Disease Sickle Cell Disease
C59701 Get up floor supine position difficulty scale

Scale of the difficulty the subject/participant has in getting up from a supine position on the floor, without help

 Proposed 1.00 2019-06-19 13:58:23.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C59112 Infection grade

Grade of infection exhibited by the patient.

 Proposed 1.00 2019-01-16 11:59:41.0 Toxicity Form False Sickle Cell Disease Sickle Cell Disease
C59896 Have trouble finish thing because tired past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant had trouble finishing things because he or she was tired

 Proposed 1.00 2019-06-25 10:45:27.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C58675 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry die soon past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was worried that he or she would die soon, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank True Sickle Cell Disease Sickle Cell Disease
C58842 Cyclosporine use GVHD prophylaxis indicate code

Code indicating whether Cyclosporine was used for GVHD (Graft Versus Host Disease) prophylaxis.

 Proposed 1.00 2018-12-14 11:06:16.0 Follow Up/Chronic GVHD Form False Sickle Cell Disease Sickle Cell Disease
C56440 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval lower bound value

The lower bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

 Proposed 1.00 2017-06-12 13:06:29.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) True Sickle Cell Disease Sickle Cell Disease
C59701 Get up floor supine position difficulty scale

Scale of the difficulty the subject/participant has in getting up from a supine position on the floor, without help

 Proposed 1.00 2019-06-19 13:58:23.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C13199 Questionnaire for Verifying Stroke Free Status (QVSFS) - verbal status

Have you ever suddenly lost the ability to express yourself verbally or in writing?

 Proposed 3.00 2013-06-21 00:00:00.0 Questionnaire for Verifying Stroke-Free Status (QVSFS) True Sickle Cell Disease Sickle Cell Disease
C59826 Dance half hour health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to dance for half an hour

 Proposed 1.00 2019-06-21 13:16:04.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C58616 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Family consider subject burden past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant's family considered him or her to be a burden, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank True Sickle Cell Disease Sickle Cell Disease
Displaying 26 - 50 of 4213

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