CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 26 - 50 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C01522 Height measurement

Measurement of participant's/subject's height.

Core 3.00 2013-08-28 16:08:00.453 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60492 Integrating viral vector copy number bone marrow colony forming cell value

Value of the integrating viral vector copy number (VCN) in bone marrow for colony forming cells (CFC).

Core 1.00 2021-04-22 13:25:18.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C58649 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad no activity entire day past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C60117 Hypersplenism indicator

Indicator of whether the subject/participant exhibits hypersplenism (overactivity of the spleen).

Core 1.00 2021-01-15 09:49:11.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60098 Hydroxyurea receive indicator

Indicator of whether the subject/participant is receiving hydroxyurea (HU).

Core 1.00 2021-01-14 13:20:17.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60523 Gene editing conversion blood CD14 plus lineage percent value

Value of the percentage of gene-editing conversions in the blood CD14+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59917 Fatigue on day least fatigued past 7 day scale

Scale of how fatigued the subject/participant was on the day he or she was least fatigued in the past 7 days

Core 1.00 2019-06-26 10:04:50.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59877 Limit social activity due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant had to limit his or her social activities due to fatigue

Core 1.00 2019-06-24 14:26:55.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C18027 Comment text

Provide any additional information that pertains to the question.

Core 3.00 2013-07-16 14:01:43.01 Medical History Core Sickle Cell Disease Sickle Cell Disease
C60575 Alloantibody red blood cell type

Type(s) of red blood cell (RBC) alloantibodies identified in the subject/participant.

Core 1.00 2021-04-28 14:19:50.0 Transfusion History Sickle Cell Disease Sickle Cell Disease
C60680 Gene editing on-target Indels value

The value related to on-target Indels

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C56487 PROMIS - Pain Interference pain interfere with enjoy recreational activity scale

Scale related to how much pain interfered with an individual's enjoyment of recreational activities in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59925 Difficult organize thought do thing home due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant found it difficult to organize his or her thoughts while doing things at home due to his or her fatigue

Core 1.00 2019-06-26 10:31:44.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58694 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain level torso past 7 day scale

Scale over the past 7 days of the subject/participant's pain level in his or her torso, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C59885 Too tired leave house past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to leave the house

Core 1.00 2019-06-25 09:56:35.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60201 Medical history for sickle cell condition neurological other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for neurological conditions.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C60656 PROMIS Pediatric Global Health 7plus 2 - fun with friend frequency scale

Scale of the frequency with which the subject/participant has fun with friends, as part of the PROMIS Pediatric Global Health 7+2 questionnaire.

Core 1.00 2021-04-30 13:00:50.0 PROMIS Pediatric Global Health 7+2 Sickle Cell Disease Sickle Cell Disease
C60307 Echocardiogram left atrium volume measurement

Measurement in milliliters of the volume of the left atrium (LA), assessed by echocardiogram.

Core 1.00 2021-03-04 13:48:28.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Vital Signs and Blood Gases Sickle Cell Disease Sickle Cell Disease
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C56495 PROMIS - Pain Interference pain interfere with work around home scale

Scale related to how much pain interfered with work around the home in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59933 Fatigue interfere social activity past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant's fatigue interfered with his or her social activities

Core 1.00 2019-06-26 10:54:08.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59893 Feel listless past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt listless

Core 1.00 2019-06-25 10:38:21.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60209 Medical history for sickle cell condition diagnosis year date

Year part of the date of diagnosis of the subject/participant's condition selected in "Medical history for sickle cell condition type".

Core 1.00 2021-02-24 15:43:24.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C59853 Physically drained past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt physically drained

Core 1.00 2019-06-24 12:10:36.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
Displaying 26 - 50 of 5231