C59092 |
GYN exam not performed indicate code |
Code indicating GYN was not performed.
|
Proposed |
1.00 |
2019-01-14 16:44:10.0 |
Chronic GVHD Provider Survey (PCG) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59067 |
Dyspnea grade |
Grade of dyspnea exhibited by the patient.
|
Proposed |
1.00 |
2019-01-11 11:28:38.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59936 |
Have trouble finish thing due fatigue past 7 day extent scale |
Scale of the extent over the past 7 days that the subject/participant had trouble finishing things due to his or her fatigue
|
Proposed |
1.00 |
2019-06-26 11:01:38.0 |
PROMIS Item Bank v1.0 - Fatigue Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59227 |
Feel accepted by peers past 7 day frequency code |
Code for the frequency over the past 7 days that the subject/participant felt accepted by his or her peers
|
Proposed |
1.00 |
2019-03-27 13:55:37.0 |
PhenX Toolkit: Quality of Life - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58882 |
Alkaline phosphatase sample date |
Date on which sample was collected for alkaline phosphatase test.
|
Proposed |
1.00 |
2018-12-17 10:53:01.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59386 |
Deal with frustration have sickle cell disease sure scale |
Scale of the subject/participant's conviction that he or she can deal with the frustration of having sickle cell disease
|
Proposed |
1.00 |
2019-04-02 14:25:49.0 |
PhenX Toolkit: Self-efficacy in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20815 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep ease assessment past week scale |
The scale which represents how often the It was easy for the participant to fall asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Proposed |
1.00 |
2015-05-21 08:50:35.0 |
PROMIS Item Bank v1.0 - Sleep Disturbance |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C00035 |
Gender Type |
Self-reported gender of the participant/subject. Gender is the socially constructed identity of sex. Gender is equated with phenotypic sex. Gender may differ from the sex of an individual determined genetically.
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
Behavior Rating Inventory of Executive Function (BRIEF) Second Edition (BRIEF-2) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58971 |
Etiology liver abnormality total parenteral nutrition indicate code |
Code indicating whether the etiology of the liver abnormality was determined to be TPN (total parenteral nutrition).
|
Proposed |
1.00 |
2019-01-04 14:24:15.0 |
Acute GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59866 |
Less effective work due fatigue past 7 day frequency scale |
Scale of the frequency over the past 7 days that the subject/participant was less effective at work, including work at home, due to his or her fatigue
|
Proposed |
1.00 |
2019-06-24 13:43:57.0 |
PROMIS Item Bank v1.0 - Fatigue Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59040 |
Mucositis toxicity grade |
Grade of mucositis toxicity exhibited by the patient.
|
Proposed |
1.00 |
2019-01-10 12:30:05.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C12495 |
Imaging pons abnormality type |
The type of abnormality in the pons on the image
|
Proposed |
3.00 |
2013-07-24 11:38:01.2 |
Brain Magnetic Resonance Imaging (MRI) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59139 |
Protocol deviation violation reason specify text |
Text indicating the specifc other reason a protocol deviation or violation occurred
|
Proposed |
1.00 |
2019-01-28 17:43:17.0 |
Protocol Deviation/Violation Form (PDV) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58723 |
Red blood cell transfusion therapy information not available specify text |
Text specifying why information about packed red blood cell (RBC) transfusion therapy was not available.
|
Proposed |
1.00 |
2018-12-06 10:36:51.0 |
Haplo Sickle Cell Enrollment Form: Segment A |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58911 |
Etanercept therapy chronic GVHD indicate code |
Code indicating whether Etanercept therapy was used to treat chronic GVHD (graft-versus-host disease)
|
Proposed |
1.00 |
2018-12-17 12:03:21.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59701 |
Get up floor supine position difficulty scale |
Scale of the difficulty the subject/participant has in getting up from a supine position on the floor, without help
|
Proposed |
1.00 |
2019-06-19 13:58:23.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59112 |
Infection grade |
Grade of infection exhibited by the patient.
|
Proposed |
1.00 |
2019-01-16 11:59:41.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59896 |
Have trouble finish thing because tired past 7 day extent scale |
Scale over the past 7 days of the extent to which the subject/participant had trouble finishing things because he or she was tired
|
Proposed |
1.00 |
2019-06-25 10:45:27.0 |
PROMIS Item Bank v1.0 - Fatigue Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58675 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry die soon past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant was worried that he or she would die soon, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-26 11:58:42.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58842 |
Cyclosporine use GVHD prophylaxis indicate code |
Code indicating whether Cyclosporine was used for GVHD (Graft Versus Host Disease) prophylaxis.
|
Proposed |
1.00 |
2018-12-14 11:06:16.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56440 |
Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval lower bound value |
The lower bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).
|
Proposed |
1.00 |
2017-06-12 13:06:29.0 |
Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59701 |
Get up floor supine position difficulty scale |
Scale of the difficulty the subject/participant has in getting up from a supine position on the floor, without help
|
Proposed |
1.00 |
2019-06-19 13:58:23.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13199 |
Questionnaire for Verifying Stroke Free Status (QVSFS) - verbal status |
Have you ever suddenly lost the ability to express yourself verbally or in writing?
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Questionnaire for Verifying Stroke-Free Status (QVSFS) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59826 |
Dance half hour health limit scale |
Scale of the degree to which the subject/participant's health limits his or her ability to dance for half an hour
|
Proposed |
1.00 |
2019-06-21 13:16:04.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58616 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Family consider subject burden past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant's family considered him or her to be a burden, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|