CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 26 - 50 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60613 Pain 15 day per month minimum 6 month indicator

Indicator of whether the subject/participant has experienced pain on at least 15 days per month for at least 6 months.

Core 1.00 2021-04-29 13:44:59.0 Chronic Pain Sickle Cell Disease Sickle Cell Disease
C59854 Feel tired past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt tired

Core 1.00 2019-06-24 12:13:02.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C54695 PROMIS - Global Health fatigue rate scale

Scale related to an individual's rating of his/her fatigue, as part of the PROMIS Global Health

Core 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C58650 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad unable arise bed past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to arise from bed, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C60105 Transfusion exchange type indicator

Indicator of whether the subject/participant required an exchange-type transfusion.

Core 1.00 2021-01-14 14:55:27.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C56500 PROMIS - Pain Interference pain interfere ability to do household chores scale

Scale related to how much pain interfered with an individual's ability to do household chores in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60602 Fertility preservation sperm indicator

Indicator of whether sperm has been preserved for fertility preservation.

Core 1.00 2021-04-28 16:12:45.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60648 Gene editing off target indel bone marrow CD34 plus cell count

Count of off-target indels in gene editing of bone marrow CD34+ cells.

Core 1.00 2021-04-23 11:40:19.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60662 Genetic therapy cell count

The cell count related to biomanufacture in genetic therapy.

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C60489 Burst forming unit erythroid cell positive for integrating viral vector percent value

Value of the percentage of burst-forming unit - erythroid (BFU-E) cells positive for the integrating viral vector.

Core 1.00 2021-04-22 13:33:03.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C56508 PROMIS - Pain Interference pain make discourage scale

Scale related to how often pain made an individual feel discouraged in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60670 Vector integrate type

The type of vector integrating

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C60520 Gene editing conversion blood CD19 plus lineage percent value

Value of the percentage of gene-editing conversions in the blood CD19+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C58695 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain prevent activity past 7 day day count code

Code for the count of days over the past 7 days that the subject/participant was prevented by pain from engaging in activities, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C60235 Cardiac MRI left ventricle stroke volume measurement

Measurement in milliliters of the stroke volume of the subject/participant's left ventricle (LVSV).

Core 1.00 2021-03-02 13:53:40.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C56516 PROMIS - Pain Interference pain prevent sit 10 minute more scale

Scale related to how often pain prevented an individual from sitting for more than 10 minutes in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60578 Avascular necrosis anatomic site

Anatomic site(s) of subject/participant's avascular necrosis.

Core 1.00 2021-04-28 14:29:34.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60528 Gene editing blood CD14 plus lineage on target indel count

Count of gene-editing on-target indels in the blood CD14+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C17409 Visit date

Date of interview or visit (actually the date when data in the form were captured)

Core 3.00 2013-06-21 00:00:00.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C60434 Laboratory procedure hemoglobin analysis method type

The type as related to method of analysis for hemoglobin assessment.

Core 1.00 2021-04-08 00:44:48.0 Genetic Diagnostic Testing Sickle Cell Disease Sickle Cell Disease
C60243 Cardiac MRI right ventricle end-diastolic volume measurement

Measurement of the subject/participant's right ventricle end-diastolic volume (RVEDV) in milliliters, assessed by cardiac MRI

Core 1.00 2021-03-02 13:43:54.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60332 Cystatin C serum measurement

Measurement in milligrams per liter (mg/L) of Cystatin C in the subject/participant's blood serum.

Core 1.00 2021-03-10 10:50:06.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

Core 3.00 2013-08-28 16:08:00.453 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C56484 PROMIS - Pain Interference pain interfere personal relationship scale

Scale related to how much pain interfered with an individual's close personal relationships in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60586 Fertility preservation payment source type

Type of payment source for the subject/participant's fertility preservation

Core 1.00 2021-04-28 14:54:40.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
Displaying 26 - 50 of 5231