CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 51 - 75 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C13934 Intima media thickness (IMT) max near-wall measurement

Indicates max intima media thickness (IMT) near-wall measurement (mm)

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Carotid Ultrasound Sickle Cell Disease Sickle Cell Disease
C58619 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Slow down because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant felt slowed down because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C58776 Other clinical trial drug device investigational off-label past 3 month indicate code

Code indicating whether in the past 3 months the subject/participant participated in another clinical trial of an investigational or off-label use of a drug or device.

Proposed 1.00 2018-12-11 09:49:49.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C58652 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad stop activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had to stop what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C13244 National Institutes of Health Stroke Scale (NIHSS) - Extinction and inattention score

Extinction and inattention assessed using the NIH Stroke Scale (NIHSS)

Proposed 3.00 2013-06-21 00:00:00.0 NIH Stroke Scale (NIHSS) Sickle Cell Disease Sickle Cell Disease
C56519 PROMIS - Pain Interference pain prevent sit 1 hour more scale

Scale related to how often an individual's pain prevented him/her from sitting for more than one hour in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C58584 Human leukocyte antigen typing allele 2 code

Code for the second allele reported for the specified gene locus using the specified human leukocyte antigen (HLA) typing method.

Proposed 1.00 2018-10-23 12:00:40.0 HLA Form - 1507 Sickle Cell Disease Sickle Cell Disease
C12485 Imaging other cortical abnormality indicator

Indicator of whether other cortical abnormalities of the brain are present

Proposed 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C59250 Feel run down past 7 day average status

Status over the past 7 days of the subject/participant's average feeling of being run down

Proposed 1.00 2019-03-28 10:35:56.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C18936 Muscle tone assessment abnormality other text

The free-text field related to 'Muscle tone assessment abnormality type' specifying other text. The muscle tone abnormality type

Proposed 3.00 2013-08-28 16:08:00.453 Neurological Exam Sickle Cell Disease Sickle Cell Disease
C59933 Fatigue interfere social activity past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant's fatigue interfered with his or her social activities

Proposed 1.00 2019-06-26 10:54:08.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56500 PROMIS - Pain Interference pain interfere ability to do household chores scale

Scale related to how much pain interfered with an individual's ability to do household chores in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59156 EvaluationDate

Date of evaluation

Proposed 1.00 2019-01-30 10:06:38.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C19833 Psychiatric depression indicator

Indicator of history of depression

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C58684 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel good about health past 7 day scale

Scale for the degree to which the subject/participant felt good over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C59863 Have physical energy past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant had physical energy

Proposed 1.00 2019-06-24 13:29:50.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C12476 Imaging other incidental finding indicator

Indicator of whether other incidental findings are found within the image studies

Proposed 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C20842 Patient-Reported Outcome Measurement Information System (PROMIS) - Awaken sleepy past week scale

The scale which represents how often the participant still felt sleepy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment Sickle Cell Disease Sickle Cell Disease
C59698 Use manual can opener difficulty scale

Scale of the difficulty the subject/participant has in using a manual can opener to open cans

Proposed 1.00 2019-06-19 13:49:52.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59078 Pain right upper quadrant indicate code

Code indicating whether pain in the right upper quadrant indicative of abnormal liver function is exhibited by the patient.

Proposed 1.00 2019-01-11 14:24:51.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59893 Feel listless past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt listless

Proposed 1.00 2019-06-25 10:38:21.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56500 PROMIS - Pain Interference pain interfere ability to do household chores scale

Scale related to how much pain interfered with an individual's ability to do household chores in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C19793 Medical history cardiovascular heart arrhythmia diagnosis date

Date of first detection of heart arrhythmia

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C58658 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Hip shoulder damage due sickle cell medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has hip or shoulder damage due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease Medical History Checklist Sickle Cell Disease Sickle Cell Disease
C59698 Use manual can opener difficulty scale

Scale of the difficulty the subject/participant has in using a manual can opener to open cans

Proposed 1.00 2019-06-19 13:49:52.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
Displaying 51 - 75 of 4213