CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 51 - 75 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60215 Imaging MRI cardiac indicator

Indicator of whether cardiac MRI (Magnetic Resonance Imaging) was performed on the subject/participant.

Core 1.00 2021-02-26 13:56:55.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60101 Anemia cause reason

Reason for or cause of the subject/participant's anemia.

Core 1.00 2021-01-14 14:38:44.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C58800 Death date

Date on which the subject/participant died

Core 1.00 2018-12-12 12:24:18.0 Death Form Sickle Cell Disease Sickle Cell Disease
C60598 Fertility preservation semen analysis result text

Text field for documenting the results of semen analysis performed as part of fertility preservation.

Core 1.00 2021-04-28 16:21:45.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60644 Gene editing blood CD15 plus lineage off target indel count

Count of gene-editing off-target indels in the blood CD15+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60485 Integrating viral vector copy number blood CD15 plus lineage value

Value of the integrating viral vector copy number (VCN) in blood for the CD15+ lineage

Core 1.00 2021-04-22 13:25:18.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60128 Surgical splenectomy date

Date on which the subject/participant's spleen was surgically removed.

Core 1.00 2021-01-15 10:49:01.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60109 Anemia associated condition type other text

The free-text field related to "Anemia associated condition type" for specifying associated conditions not listed.

Core 1.00 2021-01-14 15:05:29.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C59948 Death cause source

Source from which the cause of the subject/participant's death was obtained.

Core 1.00 2020-08-19 15:06:04.0 Death Form Sickle Cell Disease Sickle Cell Disease
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry.

Core 3.00 2013-07-22 16:57:17.79 Vital Signs and Blood Gases Sickle Cell Disease Sickle Cell Disease
C60652 On target indel frequency associate adverse outcome indicator

Indicator of whether the on-target indel frequency is associated with an adverse outcome.

Core 1.00 2021-04-30 12:02:06.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60616 Cigarette pack per day maximum count

Count of packs per day the subject/participant smoked when he or she was smoking the most.

Core 1.00 2021-04-29 14:03:05.0 Behavioral History Short Form Sickle Cell Disease Sickle Cell Disease
C60666 Drug product globin chain interest value

The value of the globin chain of interest in genetic therapy.

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C60493 Bone marrow mononuclear cell positive for integrating viral vector percent value

Value of the percentage of bone marrow mononuclear cells (BMMC) positive for the integrating viral vector.

Core 1.00 2021-04-22 13:33:03.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60135 Erythropoietin measurement

Measurement of the subject/participant's erythropoietin (EPO) level.

Core 1.00 2021-01-15 13:25:23.0 Chronic Anemia Sickle Cell Disease Sickle Cell Disease
C59934 Fatigue interfere physical function past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant's fatigue interfered with his or her physical functioning

Core 1.00 2019-06-26 10:56:43.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60231 Cardiac MRI left ventricle end-diastolic volume measurement

Measurement of the subject/participant's left ventricle end-diastolic volume (LVEDV) in milliliters, assessed by cardiac MRI

Core 1.00 2021-03-02 13:43:54.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60292 Echocardiogram septum ventricular thickness measurement

Measurement in millimeters of the thickness of the subject/participant's ventricular septum, assessed by echocardiogram.

Core 1.00 2021-03-03 12:43:25.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C59911 Fatigue past 7 day average scale

Scale of the average fatigue the subject/participant felt over the past 7 days

Core 1.00 2019-06-26 09:50:17.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60212 Medical history psychological mental health condition type

Type of psychological or mental health condition of which the subject/participant has a history.

Core 1.00 2021-02-24 15:52:12.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C60673 Vector integrating positive count

The count related to vector integrating positive cells.

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C59871 Fatigue make forgetful past 7 day frequency scale

Scale of the frequency over the past 7 days that that subject/participant's fatigue made him or her more forgetful

Core 1.00 2019-06-24 13:59:23.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59947 Death cause secondary text

Text identifying secondary cause(s) of the subject/participant's death.

Core 1.00 2020-08-19 15:03:31.0 Death Form Sickle Cell Disease Sickle Cell Disease
C54689 PROMIS - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

Core 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C60088 Vasoocclusive crisis inpatient outpatient treatment visit past 12 month count

Count of times in the past 12 months that the subject/participant received inpatient or outpatient treatment for vaso-occlusive crisis (VOC).

Core 1.00 2021-01-12 15:33:39.0 Sickle Cell Related Acute Painful Episodes Sickle Cell Disease Sickle Cell Disease
Displaying 51 - 75 of 5231