CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 51 - 75 of 4213
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C20770 Patient-Reported Outcome Measurement Information System (PROMIS) - Mental health concern past week scale

The scale which represents how often the participant was concerned about his mental health in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C56489 PROMIS - Pain Interference pain interfere with thing usually fun scale

Scale related to how much pain interfered with things an individual usually did for fun in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59540 Marital status code

Code denoting the marital status of the subject/participant

Proposed 1.00 2019-04-10 15:05:19.0 PhenX Toolkit: Marital Status Sickle Cell Disease Sickle Cell Disease
C59405 Child stroke subsequent clot CT MRI indicator

Indicator of whether the respondent's child had a CT or MRI scan at the time of the subsequent blood clot, if any, since his or her initial stroke

Proposed 1.00 2019-04-03 11:54:17.0 PhenX Toolkit: Recovery and Recurrence Questionnaire - Pediatric Sickle Cell Disease Sickle Cell Disease
C58944 Blood sample date

Date on which blood sample was obtained.

Proposed 1.00 2019-01-04 13:56:08.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
C56406 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Block Design raw score

The raw score that the subject received on the Block Design subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) .

Proposed 1.00 2017-06-12 11:23:35.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C56489 PROMIS - Pain Interference pain interfere with thing usually fun scale

Scale related to how much pain interfered with things an individual usually did for fun in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C58854 Chronic GVHD diagnosis onset initial date

Date of initial diagnosis or onset of chronic GVHD (Graft Versus Host Disease).

Proposed 1.00 2018-12-14 11:46:11.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C13881 Digital Subtraction Angiography (DSA) injection site anatomic site

The site of injection for digital subtraction angiography (DSA), a type of fluoroscopy technique used in interventional radiology to clearly visualize blood vessels in a bony or dense soft tissue environment.

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Imaging Angiography Sickle Cell Disease Sickle Cell Disease
C20813 Patient-Reported Outcome Measurement Information System (PROMIS) - Awake lousy assessment past week scale

The scale which represents how often the participant felt lousy when he/she woke up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C58808 Hematopoietic cell second infusion indicate code

Code indicating whether the subject/participant has received a second infusion of hematopoietic cells

Proposed 1.00 2018-12-12 12:44:40.0 Follow Up Status Form - 1507 Sickle Cell Disease Sickle Cell Disease
C58951 Skin biopsy GVHD result code

Code for the result of the skin biopsy performed for GVHD (graft-versus-host disease).

Proposed 1.00 2019-01-04 14:12:38.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
C59172 Seven day pain interference family life status

Status indicating how much pain interfered with family life over the last seven days

Proposed 1.00 2019-01-31 16:16:43.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C59350 Respondent receive help complete questionnaire indicate code

Code indicating whether the respondent received assistance in completing the questionnaire.

Proposed 1.00 2019-04-01 13:50:03.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C19810 Medical history abdominal kidney problem indicator

Indicator of history of kidney problem

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C58710 MRI MRA evidence cerebral infarct date

Date of cerebral MRI/MRA with evidence of a cerebral infarct.

Proposed 1.00 2018-11-21 12:47:10.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C19760 Medical history strabismus diagnosis indicator

Indicator of medical history of strabismus

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C58910 Lamprene therapy chronic GVHD indicate code

Code indicating whether Lamprene therapy was used to treat chronic GVHD (graft-versus-host disease)

Proposed 1.00 2018-12-17 12:03:21.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C13916 Imaging color flow angle measurement

Indicates color flow angle (degrees)

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Carotid Ultrasound Sickle Cell Disease Sickle Cell Disease
C59072 Alanine aminotransferase toxicity grade

Grade of alanine aminotransferase (ALT) toxicity exhibited by the patient.

Proposed 1.00 2019-01-11 13:51:29.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59232 Pain interfere attention past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant's pain interfered with his or her attention

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C58646 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health past 7 day scale

Scale over the past 7 days for the degree to which the subject/participant felt depressed because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C56438 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 composite score

The subject's Full Scale IQ composite score for only 2 subtests (Vocabulary and Matrix Reasoning), converted from his/her Full Scale T score for two subtests, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

Proposed 1.00 2017-06-12 13:02:44.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C58752 Liver MRI date

Date on which liver MRI (magnetic resonance imaging) was performed.

Proposed 1.00 2018-12-10 12:42:35.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C54818 PROMIS - Dyspnea severity walk up 30 stair scale

Scale related to the individual being able to walk up 30 stairs (3 flights) without stopping, as part of the PROMIS Dyspnea Severity

Proposed 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
Displaying 51 - 75 of 4213