CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 51 - 75 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C56493 PROMIS - Pain Interference pain difficult to sleep scale

Scale related to how difficult pain made it to fall asleep in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C10570 Imaging contrast agent used indicator

Indicator as to whether or not an imaging contrast agent was used for the scan as part of Diffusion Tensor Imaging (DTI).

Core 3.00 2013-08-28 16:08:00.453 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C58667 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent duration code

Code for the duration of the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C60094 Reticulocyte count unit of measure

Unit of measure for the subject/participant's reticulocyte count as recorded using the data element "Reticulocyte count".

Core 1.00 2021-01-14 13:07:35.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C54688 PROMIS - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

Core 1.00 2017-04-07 15:34:25.0 PROMIS Pediatric Global Health 7+2 Sickle Cell Disease Sickle Cell Disease
C60591 Fertility preservation tissue gamete cryopreserve cost year value

Value in U.S. dollars of the cost per year of cryopreservation of tissue and/or gametes as part of the subject/participant's fertility preservation.

Core 1.00 2021-04-28 15:13:27.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C59924 Need limit social activity due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant needed to limit his or her social activities due to his or her fatigue

Core 1.00 2019-06-26 10:29:03.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60609 Priapism intervention type

Type(s) of interventions provided to the subject/participant for his priapism.

Core 1.00 2021-04-29 13:31:43.0 Priapism Core Sickle Cell Disease Sickle Cell Disease
C60637 Bone marrow cell sort immunophenotype indicator

Indicator of whether bone marrow cells were sorted by immunophenotype.

Core 1.00 2021-04-29 16:28:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59884 Too tired socialize family past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to socialize with his or her family

Core 1.00 2019-06-25 09:54:13.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59848 Experience extreme exhaustion past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant experienced extreme exhaustion

Core 1.00 2019-06-24 10:02:39.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60121 Hemoglobin low value occurrence indicator

Indicator of whether the subject/participant's lowest hemoglobin (Hgb) value occurred during the splenic sequestration event being documented.

Core 1.00 2021-01-15 10:06:53.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C56501 PROMIS - Pain Interference pain interfere with ability to remember things scale

Scale related to how much pain interfered with an individual's ability to remember things in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60216 Imaging MRI cardiac date

Date on which cardiac MRI (Magnetic Resonance Imaging) was performed on the subject/participant.

Core 1.00 2021-02-26 13:58:55.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C58651 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain severe past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C60102 Infection organism name

Name of the infectious organism present in the subject/participant.

Core 1.00 2021-01-14 14:47:18.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60599 Fertility preservation semen analysis sperm concentration text

Text field for recording the value and units of sperm concentration from semen analysis performed as part of fertility preservation.

Core 1.00 2021-04-28 16:23:29.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C59932 Force self do thing due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant had to force him or herself to get up and do things due to his or her fatigue

Core 1.00 2019-06-26 10:51:30.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C01521 Heart rate

The participant/subject's pulse or number of contractions (heart beats) per minute

Core 3.00 2013-08-28 16:08:00.453 Vital Signs and Blood Gases Sickle Cell Disease Sickle Cell Disease
C60197 Medical history for sickle cell condition kidney urinary genital other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for kidney/urinary/genital conditions.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C59935 Fatigue make less effective at home past 7 day scale

Scale over the past 7 days of whether the subject/participant's fatigue made him or her less effective at home

Core 1.00 2019-06-26 10:59:11.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60606 Pregnancy since last study visit indicator

Indicator of whether the subject/participant has been pregnant since her last study visit.

Core 1.00 2021-04-29 13:23:57.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60205 Medical history for sickle cell condition cancer other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for cancer.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C58800 Death date

Date on which the subject/participant died

Core 1.00 2018-12-12 12:24:18.0 Death Form Sickle Cell Disease Sickle Cell Disease
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
Displaying 51 - 75 of 5231