CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 101 - 125 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C13903 Imaging interpretation site indicator

Indicates imaging interpretation site

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Carotid Ultrasound Sickle Cell Disease Sickle Cell Disease
C54828 PROMIS - Dyspnea severity low intensity leisure activity scale

Scale related to the individual being able to do low-intensity leisure activity (gardening, etc.), as part of the PROMIS Dyspnea Severity

Proposed 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
C59775 Sit rise toilet difficulty scale

Scale of the difficulty the subject/participant has in sitting on and rising from the toilet

Proposed 1.00 2019-06-21 10:15:13.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C19774 Medical history snoring presence indicator

Indicator of snoring

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C58642 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Limb move easiness scale

Scale for the subject/participant's ease of moving his or her limbs, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C20779 Quality of Life - Fidgety assessment past week scale

The scale which represents how often the participant felt fidgety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C59775 Sit rise toilet difficulty scale

Scale of the difficulty the subject/participant has in sitting on and rising from the toilet

Proposed 1.00 2019-06-21 10:15:13.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C18856 Imaging ventricle abnormality other text

The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image

Proposed 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C59900 Too tired eat past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt too tired to eat

Proposed 1.00 2019-06-25 10:57:32.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C20695 Patient-Reported Outcome Measurement Information System (PROMIS) - Not happy other people assessment past week scale

The scale which represents how often the participant felt that he/she was not as good as other people in the past 7 days.

Proposed 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C58882 Alkaline phosphatase sample date

Date on which sample was collected for alkaline phosphatase test.

Proposed 1.00 2018-12-17 10:53:01.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C56541 PROMIS - Cognitive Function trouble remember where put thing key scale

Scale related to how often an individual has had trouble remembering where he/she put things, like my keys or his/her wallet in the past 7 days, as part of the PROMIS Cognitive Function

Proposed 1.00 2017-06-15 10:01:13.0 PROMIS Item Bank v2.0 - Cognitive Function Sickle Cell Disease Sickle Cell Disease
C59654 Amount things do family happiness scale

Scale for the degree to which the subject/participant feels happy with the amount of things he or she does for his or her family

Proposed 1.00 2019-06-19 10:26:28.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C18933 Nystagmus other text

The free-text field related to 'Nystagmus type' specifying other text. Type of involuntary movement of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders

Proposed 1.00 2012-10-05 00:00:00.0 Neurological Exam Sickle Cell Disease Sickle Cell Disease
C13175 Stroke Specific Quality of Life Scale (SS-QOL) - concentration thinking question scale

The scale for being hard to concentrate based on Stroke Specific Quality of Life Scale (SS-QOL).

Proposed 3.00 2013-06-21 00:00:00.0 Stroke Specific Quality of Life Scale (SS-QOL) Sickle Cell Disease Sickle Cell Disease
C59735 Put on take off socks difficulty scale

Scale of the difficulty the subject/participant has in putting on and taking off his or her socks

Proposed 1.00 2019-06-20 11:10:28.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C01032 Loss of consciousness verification type

The type of verification of the participant/subject's loss of consciousness

Proposed 3.00 2013-07-20 10:21:25.65 Neurological Assessment: LOC, PTA, and AOC Sickle Cell Disease Sickle Cell Disease
C58723 Red blood cell transfusion therapy information not available specify text

Text specifying why information about packed red blood cell (RBC) transfusion therapy was not available.

Proposed 1.00 2018-12-06 10:36:51.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59561 Child educational accommodation learn difference code

Code denoting the educational accommodations made, if any, for the pediatric subject/participant for learning differences

Proposed 1.00 2019-04-11 14:01:16.0 PhenX Toolkit: Pediatric School Performance Sickle Cell Disease Sickle Cell Disease
C59018 Forced vital capacity measurement date

Date on which the FVC (forced vital capacity) measurement was taken

Proposed 1.00 2018-12-14 13:47:37.0 Physical Exam Form - 1507 Sickle Cell Disease Sickle Cell Disease
C20764 Patient-Reported Outcome Measurement Information System (PROMIS) - Nervousness fear assessment past week scale

The scale which represents how often the participant was scared when he/she felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C59735 Put on take off socks difficulty scale

Scale of the difficulty the subject/participant has in putting on and taking off his or her socks

Proposed 1.00 2019-06-20 11:10:28.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C12485 Imaging other cortical abnormality indicator

Indicator of whether other cortical abnormalities of the brain are present

Proposed 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C58684 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel good about health past 7 day scale

Scale for the degree to which the subject/participant felt good over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C58842 Cyclosporine use GVHD prophylaxis indicate code

Code indicating whether Cyclosporine was used for GVHD (Graft Versus Host Disease) prophylaxis.

Proposed 1.00 2018-12-14 11:06:16.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
Displaying 101 - 125 of 4213