CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 101 - 125 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C54689 PROMIS - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

 Core 1.00 2017-04-07 15:34:25.0 PROMIS Pediatric Global Health 7+2 True Sickle Cell Disease Sickle Cell Disease
C60592 Fertility preservation tissue gamete cryopreserve cost payment source type

Type(s) of source(s) for the payment of the cost of cryopreservation of tissue and/or gametes as part of the subject/participant's fertility preservation.

 Core 1.00 2021-04-28 15:16:08.0 Endocrine, Infertility and Bone Health False Sickle Cell Disease Sickle Cell Disease
C60610 Priapism duration until resolution discharge home text

Text for reporting the value and units of the duration of the subject/participant's episode of priapism until resolution or discharge home.

 Core 1.00 2021-04-29 13:37:49.0 Priapism Core False Sickle Cell Disease Sickle Cell Disease
C60638 Blood CD3 deplete indicator

Indicator of whether blood is depleted of CD3.

 Core 1.00 2021-04-30 11:18:09.0 Gene Product Follow-Up False Sickle Cell Disease Sickle Cell Disease
C59914 Physically drained past 7 day average scale

Scale of how physically drained the subject/participant was on average over the past 7 days

 Core 1.00 2019-06-26 09:58:09.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C59874 Fatigue interfere ability engage recreational activity past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant's fatigue interfered with his or her ability to engage in recreational activity

 Core 1.00 2019-06-24 14:14:23.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C60122 Platelet count low value occurrence indicator

Indicator of whether the subject/participant's lowest platelet count value occurred during the splenic sequestration event being documented.

 Core 1.00 2021-01-15 10:06:53.0 Acute Spleen False Sickle Cell Disease Sickle Cell Disease
C60217 Imaging scanner type text

Text identifying the type of imaging scanner used (include both manufacturer and model name).

 Core 1.00 2021-03-02 13:02:05.0 Cardiac MRI False Sickle Cell Disease Sickle Cell Disease
C60103 Infection viral titer text

Text describing the viral titers performed for the infection present in the subject/participant.

 Core 1.00 2021-01-14 14:49:25.0 Acute Anemia False Sickle Cell Disease Sickle Cell Disease
C60318 Echocardiogram mitral diastolic inflow velocity peak E rate

Rate in centimeters per second (cm/s) of the peak E velocity of mitral inflow during diastole.

 Core 1.00 2021-03-05 13:07:11.0 Echocardiogram False Sickle Cell Disease Sickle Cell Disease
C60198 Medical history for sickle cell condition liver other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for liver conditions.

 Core 1.00 2021-02-24 14:25:43.0 Medical History Core False Sickle Cell Disease Sickle Cell Disease
C56506 PROMIS - Pain Interference pain keep from socialize other scale

Scale related to how often pain kept an individual from socializing with others in the past 7 days, as part of the PROMIS Pain Interference

 Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference False Sickle Cell Disease Sickle Cell Disease
C58653 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C60206 Medical history for sickle cell condition other disease ailment other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for other diseases or ailments..

 Core 1.00 2021-02-24 14:25:43.0 Medical History Core False Sickle Cell Disease Sickle Cell Disease
C56514 PROMIS - Pain Interference pain prevent stand 30 minute more scale

Scale related to how often pain prevented an individual from standing for more than 30 minutes in the past 7 days, as part of the PROMIS Pain Interference

 Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference False Sickle Cell Disease Sickle Cell Disease
C59852 Run out energy past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant ran out of energy

 Core 1.00 2019-06-24 10:14:36.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C60082 Vasoocclusive crisis urgent care emergency room past 12 month indicator

Indicator of whether the subject/participant has used an After Hours/Urgent Care Clinic/day hospital/infusion clinic or Emergency Room due to vaso-occlusive crisis (VOC) in the past 12 months.

 Core 1.00 2021-01-12 13:41:52.0 Sickle Cell Related Acute Painful Episodes False Sickle Cell Disease Sickle Cell Disease
C60294 Echocardiogram left ventricular end diastolic dimension measurement

Measurement in millimeters of the end-diastolic dimension of the left ventricle, assessed by echocardiogram.

 Core 1.00 2021-03-03 12:48:50.0 Echocardiogram False Sickle Cell Disease Sickle Cell Disease
C60214 Medical history psychological mental health condition ongoing indicator

Indicator of whether the subject/participant's condition selected in "Medical history psychological mental health condition type" is ongoing.

 Core 1.00 2021-02-24 15:59:45.0 Medical History Core False Sickle Cell Disease Sickle Cell Disease
C60675 Vector copy number to cell value

The value related to vector copy number/cells

 Core 1.00 2021-05-10 12:12:04.0 Drug Product False Sickle Cell Disease Sickle Cell Disease
C56482 PROMIS - Pain Interference pain interfere enjoyment life scale

Scale related to how much pain interfered with an individual's enjoyment of life in the past 7 days, as part of the PROMIS Pain Interference

 Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference False Sickle Cell Disease Sickle Cell Disease
C59949 Death related or complication sickle cell disease gene therapy indicator

Indicator of whether the subject/participant's death was related to or a complication of gene therapy for sickle cell disease (SCD).

 Core 1.00 2020-08-19 15:15:51.0 Death Form False Sickle Cell Disease Sickle Cell Disease
C54689 PROMIS - Global Health physical health rate scale

Scale related to an individual's rating of his/her physical health, as part of the PROMIS Global Health

 Core 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health False Sickle Cell Disease Sickle Cell Disease
C60302 Echocardiogram left ventricle outflow tract velocity time integral measurement

Measurement in centimeters of the velocity time integral (VTI) of the outflow tract of the left ventricle (LVOT), assessed by echocardiogram.

 Core 1.00 2021-03-04 13:48:28.0 Echocardiogram False Sickle Cell Disease Sickle Cell Disease
C60683 Gene ediing target Indels conversion percentage value

The percentage value related to conversion.

 Core 1.00 2021-05-10 12:12:04.0 Drug Product False Sickle Cell Disease Sickle Cell Disease
Displaying 101 - 125 of 5231

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