C13903 |
Imaging interpretation site indicator |
Indicates imaging interpretation site
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Vessel Carotid Ultrasound |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C54828 |
PROMIS - Dyspnea severity low intensity leisure activity scale |
Scale related to the individual being able to do low-intensity leisure activity (gardening, etc.), as part of the PROMIS Dyspnea Severity
|
Proposed |
1.00 |
2017-04-12 10:47:21.0 |
PROMIS Item Bank v1.0 - Dyspnea Severity |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59775 |
Sit rise toilet difficulty scale |
Scale of the difficulty the subject/participant has in sitting on and rising from the toilet
|
Proposed |
1.00 |
2019-06-21 10:15:13.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C19774 |
Medical history snoring presence indicator |
Indicator of snoring
|
Proposed |
1.00 |
2015-02-05 00:00:00.0 |
Intake Medical History |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58642 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Limb move easiness scale |
Scale for the subject/participant's ease of moving his or her limbs, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20779 |
Quality of Life - Fidgety assessment past week scale |
The scale which represents how often the participant felt fidgety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.
|
Proposed |
1.00 |
2015-05-20 17:42:14.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59775 |
Sit rise toilet difficulty scale |
Scale of the difficulty the subject/participant has in sitting on and rising from the toilet
|
Proposed |
1.00 |
2019-06-21 10:15:13.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C18856 |
Imaging ventricle abnormality other text |
The free-text field related to 'Imaging ventricle abnormality type' specifying other text. The type of abnormality in the ventricles on the image
|
Proposed |
3.00 |
2013-07-24 11:38:01.2 |
Brain Magnetic Resonance Imaging (MRI) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59900 |
Too tired eat past 7 day extent scale |
Scale over the past 7 days of the extent to which the subject/participant felt too tired to eat
|
Proposed |
1.00 |
2019-06-25 10:57:32.0 |
PROMIS Item Bank v1.0 - Fatigue Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20695 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Not happy other people assessment past week scale |
The scale which represents how often the participant felt that he/she was not as good as other people in the past 7 days.
|
Proposed |
1.00 |
2015-05-20 14:29:32.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Depression |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58882 |
Alkaline phosphatase sample date |
Date on which sample was collected for alkaline phosphatase test.
|
Proposed |
1.00 |
2018-12-17 10:53:01.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56541 |
PROMIS - Cognitive Function trouble remember where put thing key scale |
Scale related to how often an individual has had trouble remembering where he/she put things, like my keys or his/her wallet in the past 7 days, as part of the PROMIS Cognitive Function
|
Proposed |
1.00 |
2017-06-15 10:01:13.0 |
PROMIS Item Bank v2.0 - Cognitive Function |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59654 |
Amount things do family happiness scale |
Scale for the degree to which the subject/participant feels happy with the amount of things he or she does for his or her family
|
Proposed |
1.00 |
2019-06-19 10:26:28.0 |
PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C18933 |
Nystagmus other text |
The free-text field related to 'Nystagmus type' specifying other text. Type of involuntary movement of the eyeballs; its presence or absence is used to diagnose a variety of neurological and visual disorders
|
Proposed |
1.00 |
2012-10-05 00:00:00.0 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13175 |
Stroke Specific Quality of Life Scale (SS-QOL) - concentration thinking question scale |
The scale for being hard to concentrate based on Stroke Specific Quality of Life Scale (SS-QOL).
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Stroke Specific Quality of Life Scale (SS-QOL) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59735 |
Put on take off socks difficulty scale |
Scale of the difficulty the subject/participant has in putting on and taking off his or her socks
|
Proposed |
1.00 |
2019-06-20 11:10:28.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C01032 |
Loss of consciousness verification type |
The type of verification of the participant/subject's loss of consciousness
|
Proposed |
3.00 |
2013-07-20 10:21:25.65 |
Neurological Assessment: LOC, PTA, and AOC |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58723 |
Red blood cell transfusion therapy information not available specify text |
Text specifying why information about packed red blood cell (RBC) transfusion therapy was not available.
|
Proposed |
1.00 |
2018-12-06 10:36:51.0 |
Haplo Sickle Cell Enrollment Form: Segment A |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59561 |
Child educational accommodation learn difference code |
Code denoting the educational accommodations made, if any, for the pediatric subject/participant for learning differences
|
Proposed |
1.00 |
2019-04-11 14:01:16.0 |
PhenX Toolkit: Pediatric School Performance |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59018 |
Forced vital capacity measurement date |
Date on which the FVC (forced vital capacity) measurement was taken
|
Proposed |
1.00 |
2018-12-14 13:47:37.0 |
Physical Exam Form - 1507 |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20764 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Nervousness fear assessment past week scale |
The scale which represents how often the participant was scared when he/she felt nervous in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Proposed |
1.00 |
2015-05-20 17:42:14.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59735 |
Put on take off socks difficulty scale |
Scale of the difficulty the subject/participant has in putting on and taking off his or her socks
|
Proposed |
1.00 |
2019-06-20 11:10:28.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C12485 |
Imaging other cortical abnormality indicator |
Indicator of whether other cortical abnormalities of the brain are present
|
Proposed |
3.00 |
2013-07-24 11:38:01.2 |
Brain Magnetic Resonance Imaging (MRI) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58684 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel good about health past 7 day scale |
Scale for the degree to which the subject/participant felt good over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-26 11:58:42.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58842 |
Cyclosporine use GVHD prophylaxis indicate code |
Code indicating whether Cyclosporine was used for GVHD (Graft Versus Host Disease) prophylaxis.
|
Proposed |
1.00 |
2018-12-14 11:06:16.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|