C58883 |
Vaginitis non-infective status code |
Code denoting the status of non-infective vaginitis exhibited by the participant/subject.
|
Proposed |
1.00 |
2018-12-17 10:59:31.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59281 |
Hispanic latino spanish origin code |
Code indicating whether a person is of Hispanic, Latino or Spanish origin.
|
Proposed |
1.00 |
2019-03-28 17:26:08.0 |
PhenX Toolkit: Ethnicity Data Collection Worksheet |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59531 |
Paternal grandmother birthplace location |
Location (inside or outside of the US) of the subject/participant's paternal grandmother
|
Proposed |
1.00 |
2019-04-10 13:19:47.0 |
PhenX Toolkit: Birthplace of Grandparents |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13912 |
Imaging plaque composition result |
Indicates plaque composition
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Vessel Carotid Ultrasound |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13899 |
Imaging probe type text |
The text describing the type of imaging probe
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Vessel Carotid Ultrasound |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58672 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia half night past 7 day frequency scale |
Scale for the frequency in the past 7 days that the subject/participant had insomnia for half of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59210 |
Do activities enjoy past 7 day difficulty code |
Code denoting the difficulty that the subject/participant has had in the past 7 days physically doing the activities he or she most enjoys
|
Proposed |
1.00 |
2019-03-27 13:13:25.0 |
PhenX Toolkit: Quality of Life - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59395 |
Child stroke problem verbal expression describe text |
Text description of the respondent's child's problem with verbal expression as a result of his or her stroke
|
Proposed |
1.00 |
2019-04-03 10:42:49.0 |
PhenX Toolkit: Recovery and Recurrence Questionnaire - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58912 |
Zenapax therapy chronic GVHD indicate code |
Code indicating whether Zenapax (Daclizumab) therapy was used to treat chronic GVHD (graft-versus-host disease)
|
Proposed |
1.00 |
2018-12-17 12:03:21.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56572 |
PROMIS - Life Satisfaction life great scale |
Scale related to an individual feeling as if his/her life was great in the past 4 weeks, as part of the PROMIS Life Satisfaction
|
Proposed |
1.00 |
2017-06-15 13:16:18.0 |
PROMIS Pediatric Item Bank v1.0 - Life Satisfaction- Short Form 8a |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59056 |
Hemorrhage grade |
Grade of hemorrhage
|
Proposed |
1.00 |
2019-01-11 10:20:17.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C54794 |
PROMIS - Dyspnea severity prepare meal scale |
Scale related to the individual being able to prepare meals, as part of the PROMIS Dyspnea Severity
|
Proposed |
1.00 |
2017-04-12 10:47:21.0 |
PROMIS Item Bank v1.0 - Dyspnea Severity |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59159 |
Seven day run down feeling status |
Status indicating whether subject or participant has felt run-down during the past seven (7) days.
|
Proposed |
1.00 |
2019-01-30 16:31:01.0 |
PROMIS Item Bank v1.0 (PRO) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58843 |
MMF use GVHD prophylaxis indicate code |
Code indicating whether MMF was used for GVHD (Graft Versus Host Disease) prophylaxis.
|
Proposed |
1.00 |
2018-12-14 11:06:16.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59317 |
Specialist seen most often rating scale |
Scale for rating the specialist the subject/participant saw most often in the last 6 months.
|
Proposed |
1.00 |
2019-03-28 15:33:42.0 |
PhenX Toolkit: Quality of Care - Children |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C18516 |
Sensory system abnormality stocking glove present text |
The free-text field to describe the stocking sensory abnormality, a generalised and gradual loss of peripheral nerve function results in a receding glove and stocking pattern.
|
Proposed |
3.00 |
2013-07-30 14:29:49.047 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59085 |
Study procedure consent withdrawal code |
Code indicating whether the patient withdrew consent to all study procedures
|
Proposed |
1.00 |
2019-01-14 11:38:34.0 |
Withdrawal of Consent Form (WOC) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59124 |
Oligospermia grade |
Grade of oligospermia (reduced sperm)
|
Proposed |
1.00 |
2019-01-17 07:23:04.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59197 |
Urine sample collection comment text |
Text field for recording comments about urine sample collection.
|
Proposed |
1.00 |
2019-03-27 11:42:12.0 |
PhenX Toolkit: Urinary Creatinine |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59856 |
Have energy enjoy fun thing past 7 day frequency scale |
Scale of the frequency over the past 7 days that the subject/participant had the energy to enjoy the things he or she does for fun
|
Proposed |
1.00 |
2019-06-24 13:06:28.0 |
PROMIS Item Bank v1.0 - Fatigue Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59101 |
Transfusion related reaction grade |
Grade of the patient's reaction related to blood transfusion
|
Proposed |
1.00 |
2019-01-15 14:23:40.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13153 |
Stroke Specific Quality of Life Scale (SS-QOL) - climbing mobility question scale |
The scale for trouble climbing stairs based on Stroke Specific Quality of Life Scale (SS-QOL).
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Stroke Specific Quality of Life Scale (SS-QOL) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56560 |
PROMIS - Cognitive Function hidden problem with memory scale |
Scale related to how often an individual has hidden his/her problems with memory, concentration, or making mental mistakes so that others would not notice in the past 7 days, as part of the PROMIS Cognitive Function
|
Proposed |
1.00 |
2017-06-15 10:01:13.0 |
PROMIS Item Bank v2.0 - Cognitive Function |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59139 |
Protocol deviation violation reason specify text |
Text indicating the specifc other reason a protocol deviation or violation occurred
|
Proposed |
1.00 |
2019-01-28 17:43:17.0 |
Protocol Deviation/Violation Review Form (PDR) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59786 |
Row boat 30 minute no rest difficulty scale |
Scale of the difficulty the subject/participant has in rowing a boat for 30 minutes without rest
|
Proposed |
1.00 |
2019-06-21 10:42:40.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|