CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 126 - 150 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60151 Lab test result compare reference range status

Status of lab test result in comparison to reference range.

Core 1.00 2021-01-21 14:06:22.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C60630 Liver biopsy serum transferrin saturation percent value

Value of the percentage of serum transferrin saturation detemined by laboratory anaylsis of liver biopsy sample.

Core 1.00 2021-04-29 15:01:38.0 Iron Overload Sickle Cell Disease Sickle Cell Disease
C56483 PROMIS - Pain Interference pain interfere ability participate leisure scale

Scale related to how much pain interfered with an individual's ability to participate in leisure activities in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60315 Echocardiogram inferior vena cava diameter measurement

Measurement in millimeters of the diameter of the inferior vena cava (IVC), assessed by echocardiogram.

Core 1.00 2021-03-04 15:05:34.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60195 Medical history for sickle cell condition muscle bone joint other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for muscle/bone/joint conditions.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C59235 Pain intensity average past 7 day scale

Scale of the subject/participant's average pain intensity over the past 7 days

Core 1.00 2019-03-27 15:01:10.0 PROMIS Numeric Rating Scale v. 1.0 - Pain Intensity - 1a Sickle Cell Disease Sickle Cell Disease
C56491 PROMIS - Pain Interference pain interfere with relationship others scale

Scale related to how much pain interfered with an individual's relationships with other people in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C58650 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad unable arise bed past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to arise from bed, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C59847 Feel run down past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt run down

Core 1.00 2019-06-24 09:59:42.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60604 Fertility preservation oocyte ovarian tissue embryo continue preserve current cost text

Text for reporting the U.S. dollar value and payment frequency of the current cost of the continued preservation of oocytes, ovarian tissue, and/or embryos as part of the subject/participant's fertility preservation.

Core 1.00 2021-04-29 13:15:58.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C12902 Echocardiogram left ventricle end systolic volume index value

Calculated from end systolic volume over body surface area - left ventricle

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60203 Medical history for sickle cell condition infection other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for infection.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C56499 PROMIS - Pain Interference pain interfere with enjoyment social activity scale

Scale related to how much pain interfered with an individual's enjoyment of social activities in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C04800 Death cause text

Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate.

Core 3.00 2013-07-25 08:54:08.2 Death Form Sickle Cell Disease Sickle Cell Disease
C60211 Influenza vaccine most recent date

Date of the subject/participant's most recent influenza vaccination (if any).

Core 1.00 2021-02-24 15:50:52.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C56507 PROMIS - Pain Interference pain severe think nothing else scale

Scale related to how often an individual's pain was so severe he/she could think of nothing else in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60524 Gene editing blood CD3 plus lineage on target indel count

Count of gene-editing on-target indels in the blood CD3+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Core 3.00 2013-07-25 08:54:08.2 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C59924 Need limit social activity due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant needed to limit his or her social activities due to his or her fatigue

Core 1.00 2019-06-26 10:29:03.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60239 Cardiac MRI left atrium volume measurement

Measurement in milliliters of the volume of the subject/participant's left atrium, assessed by cardiac MRI.

Core 1.00 2021-03-02 14:41:21.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59013 Urine albumin creatinine ratio value

Value, in milligrams per gram, of the patient's urine albumin to creatinine ratio.

Core 1.00 2019-01-07 16:31:34.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C59884 Too tired socialize family past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to socialize with his or her family

Core 1.00 2019-06-25 09:54:13.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60582 Growth hormone receive response deficiency ever indicator

Indicator of whether the subject/participant ever received growth hormone in response to a deficiency thereof.

Core 1.00 2021-04-28 14:41:44.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60532 Gene editing on target indel bone marrow mononuclear cell count

Count of on-target indels in gene editing of bone marrow mononuclear cells (BMMC).

Core 1.00 2021-04-23 11:40:19.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
Displaying 126 - 150 of 5231