CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 126 - 150 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60118 Splenic sequestration episode count

Count of splenic sequestration episodes experienced by the subject/participant.

Core 1.00 2021-01-15 09:51:54.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60099 Hydroxyurea dose postpone indicator

Indicator of whether the administration of the hydroxyurea (HU) dose was postponed.

Core 1.00 2021-01-14 14:32:57.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60656 PROMIS Pediatric Global Health 7plus 2 - fun with friend frequency scale

Scale of the frequency with which the subject/participant has fun with friends, as part of the PROMIS Pediatric Global Health 7+2 questionnaire.

Core 1.00 2021-04-30 13:00:50.0 PROMIS Pediatric Global Health 7+2 Sickle Cell Disease Sickle Cell Disease
C04800 Death cause text

Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate.

Core 3.00 2013-07-25 08:54:08.2 Death Form Sickle Cell Disease Sickle Cell Disease
C60596 Fertility preservation embryo indicator

Indicator of whether embryos have been preserved for fertility preservation.

Core 1.00 2021-04-28 16:12:45.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C01507 Blood pressure diastolic measurement

Measurement of pressure of the participant's/subject's blood against the artery walls during diastole (the relaxation phase) in millimeters of mercury (mmHg)

Core 3.00 2013-07-25 08:54:08.2 Vital Signs and Blood Gases Sickle Cell Disease Sickle Cell Disease
C60642 Gene editing blood CD3 plus lineage off target indel count

Count of gene-editing off-target indels in the blood CD3+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60483 Integrating viral vector copy number blood CD3 plus lineage value

Value of the integrating viral vector copy number (VCN) in blood for the CD3+ lineage

Core 1.00 2021-04-22 13:25:18.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C56514 PROMIS - Pain Interference pain prevent stand 30 minute more scale

Scale related to how often pain prevented an individual from standing for more than 30 minutes in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C58649 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad no activity entire day past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58653 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C59909 Exhaust on average past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt exhausted on average

Core 1.00 2019-06-25 11:30:08.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C12900 Echocardiogram left ventricle end systolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole.

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C59869 Difficult plan activity ahead time due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant found it difficult to plan activities ahead of time due to his or her fatigue

Core 1.00 2019-06-24 13:52:57.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60202 Medical history for sickle cell condition blood other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for blood conditions other than Sickle Cell.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C58691 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Intense fear pain episode past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had intense fear of having a pain episode, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C02203 Off study reason

Primary reason participant/ subject is no longer participating in study (i.e., is not being followed and will not receive intervention/treatment).

Core 3.00 2013-07-18 16:35:19.49 Death Form Sickle Cell Disease Sickle Cell Disease
C56482 PROMIS - Pain Interference pain interfere enjoyment life scale

Scale related to how much pain interfered with an individual's enjoyment of life in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59917 Fatigue on day least fatigued past 7 day scale

Scale of how fatigued the subject/participant was on the day he or she was least fatigued in the past 7 days

Core 1.00 2019-06-26 10:04:50.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56157 Body surface area value

The value representing the subject's body surface area (BSA)

Core 1.00 2017-06-07 13:59:34.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C59877 Limit social activity due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant had to limit his or her social activities due to fatigue

Core 1.00 2019-06-24 14:26:55.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60210 Medical history for sickle cell condition ongoing indicator

Indicator of whether the subject/participant's condition selected in "Medical history for sickle cell condition type" is ongoing.

Core 1.00 2021-02-24 15:45:51.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C59945 Participant living last known date

Date on which the subject/participant was most recently known to be living.

Core 1.00 2020-08-19 14:57:14.0 Death Form Sickle Cell Disease Sickle Cell Disease
C56490 PROMIS - Pain Interference pain interfere with family life scale

Scale related to how much pain interfered with an individual's family life in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59925 Difficult organize thought do thing home due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant found it difficult to organize his or her thoughts while doing things at home due to his or her fatigue

Core 1.00 2019-06-26 10:31:44.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
Displaying 126 - 150 of 5231