C59296 |
Child have personal physician indicate code |
Code indicating whether the child has a personal physician
|
Proposed |
1.00 |
2019-03-29 10:08:55.0 |
PhenX Toolkit: Quality of Care - Children |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C02411 |
Laterality type |
Laterality type relative to the anatomic site of the body examined or affected
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
PhenX Toolkit: Stroke Impact/Outcome - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59641 |
Go out entertainment frequency satisfied scale |
Scale of the degree to which the subject/participant is satisfied with the frequency that he or she goes out for entertainment
|
Proposed |
1.00 |
2019-06-18 14:47:05.0 |
PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C09579 |
Brief Pain Inventory (BPI) - average pain rating scale |
Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form.
|
Proposed |
3.00 |
2013-07-22 09:34:41.527 |
PROMIS Item Bank v1.2 - Global Health |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56384 |
Conners Continuous Performance Test 3rd Edition (CPT3) Inattentiveness hit reaction time standard deviation value |
The standard deviation of the subject's response speed consistency, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).
|
Proposed |
1.00 |
2017-06-09 15:33:41.0 |
Conners Continuous Performance Test 3rd Edition (Conners CPT 3) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58827 |
Acute GVHD diagnosis date |
Date of diagnosis of acute GVHD (Graft Versus Host Disease)
|
Proposed |
1.00 |
2018-12-12 15:18:08.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59188 |
Blood draw comment text |
The free-text field for recording comments about the blood draw.
|
Proposed |
1.00 |
2019-03-27 10:48:16.0 |
PhenX Toolkit: Serum Creatinine |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58621 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Activity difficult because health past 30 day frequency scale |
Scale for the frequency in the past 30 days that the subject/participant found it difficult to do things because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 12:27:41.0 |
PhenX Toolkit: Quality of Life in Sickle Cell Disease |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59592 |
Club drug use type name |
Name or type of club drug(s) used by the subject/participant
|
Proposed |
1.00 |
2019-04-12 14:06:32.0 |
PhenX Toolkit: Substances - Lifetime Use |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58762 |
Human leukocyte antigen typing donor confirmatory date |
Date on which confirmatory typing of the donor's human leukocyte antigen (HLA) status was performed.
|
Proposed |
1.00 |
2018-12-10 13:03:39.0 |
Haplo Sickle Cell Enrollment Form: Segment A |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59139 |
Protocol deviation violation reason specify text |
Text indicating the specifc other reason a protocol deviation or violation occurred
|
Proposed |
1.00 |
2019-01-28 17:43:17.0 |
Protocol Deviation/Violation Review Form (PDR) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C12494 |
Imaging pons abnormal indicator |
Indicator of whether the pons appears normal or abnormal in the image studies
|
Proposed |
3.00 |
2013-07-24 11:38:01.2 |
Brain Magnetic Resonance Imaging (MRI) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20781 |
Quality of Life - Worry assessment past week scale |
The scale which represents how often the participant felt worried in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.
|
Proposed |
1.00 |
2015-05-20 17:42:14.0 |
PROMIS Item Bank v1.0 - Emotional Distress - Anxiety |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59252 |
Sleep quality past 7 day grade |
Grade of the subject/participant's sleep quality over the past 7 days
|
Proposed |
1.00 |
2019-03-28 10:56:01.0 |
PhenX Toolkit: Quality of Life - Adult |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59460 |
Difficult control bladder past 2 week scale |
Scale of the difficulty the subject/participant had over the past 2 weeks controlling his or her bladder
|
Proposed |
1.00 |
2019-04-04 15:25:21.0 |
PhenX Toolkit: Functionality After Stroke |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C20846 |
Patient-Reported Outcome Measurement Information System (PROMIS) - Concentration difficulty poor sleep past week scale |
The scale which represents how often the participant had a hard time concentrating because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).
|
Proposed |
1.00 |
2015-05-21 09:54:31.0 |
PROMIS Item Bank v1.0 - Sleep Related Impairment |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14685 |
Pediatric Migraine Disability Assessment (MIDAS) - headache frequency |
Headache frequency, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form.
|
Proposed |
3.00 |
2013-07-16 14:01:43.01 |
Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59043 |
Chronic kidney disease toxicity grade |
Grade of chronic kidney disease toxicity exhibited by the patient.
|
Proposed |
1.00 |
2019-01-10 12:45:24.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59167 |
Seven day pain interference social activities participation status |
Status indicating how much pain interfered with the ability for subject to participate in social activities in the past seven days
|
Proposed |
1.00 |
2019-01-31 14:33:00.0 |
PROMIS Item Bank v1.0 (PRO) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C18942 |
Cerebellar or coordination assessment abnormality present other text |
The free-text field related to 'Cerebellar or coordination assessment abnormality present status' specifying other text. Whether the cerebellar/coordination assessment found abnormalities
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59115 |
Hydroxyurea receive indicate code |
Code indicating whether the patient received hydroxyurea.
|
Proposed |
1.00 |
2019-01-16 12:48:41.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59121 |
Constipation grade |
Grade of constipation exhibited by the patient
|
Proposed |
1.00 |
2019-01-17 07:16:45.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59924 |
Need limit social activity due fatigue past 7 day extent scale |
Scale of the extent over the past 7 days that the subject/participant needed to limit his or her social activities due to his or her fatigue
|
Proposed |
1.00 |
2019-06-26 10:29:03.0 |
PROMIS Item Bank v1.0 - Fatigue Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59098 |
Liver abnormality GVHD doppler ultrasound result code |
Code denoting whether doppler ultrasound results confirmed a graft-versus-host disease (GVHD) etiology for abnormal liver function
|
Proposed |
1.00 |
2019-01-15 13:39:46.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14452 |
Tremor assessment status |
The status indicating whether tremors could be detected during the exam
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|