CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 151 - 175 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59874 Fatigue interfere ability engage recreational activity past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant's fatigue interfered with his or her ability to engage in recreational activity

Core 1.00 2019-06-24 14:14:23.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C02495 Imaging scanner strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Core 3.00 2013-08-28 16:08:00.453 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C00035 Gender Type

Self-reported gender of the participant/subject. Gender is the socially constructed identity of sex. Gender is equated with phenotypic sex. Gender may differ from the sex of an individual determined genetically.

Core 3.00 2013-08-28 16:08:00.453 Demographics Sickle Cell Disease Sickle Cell Disease
C60093 Reticulocyte count

Count of reticulocytes

Core 1.00 2021-01-14 13:06:05.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60590 Fertility preservation bank material category

Category of material that has been banked as part of the subject/participant's fertility preservation.

Core 1.00 2021-04-28 15:09:14.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60608 Priapism erection percent value

Value of the percentage of the subject/participant's penis that is erect.

Core 1.00 2021-04-29 13:30:01.0 Priapism Core Sickle Cell Disease Sickle Cell Disease
C60636 Bone marrow cell sort indicator

Indicator of whether bone marrow cells were sorted.

Core 1.00 2021-04-29 16:26:43.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59922 Have trouble start thing due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant had trouble starting things due to his or her fatigue

Core 1.00 2019-06-26 10:17:21.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60120 Splenic sequestration episode date

Date of the subject/participant's splenic sequestration episode.

Core 1.00 2021-01-15 09:57:38.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C59882 Have trouble start thing due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant has had trouble starting things due to his or her fatigue

Core 1.00 2019-06-25 09:46:59.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60215 Imaging MRI cardiac indicator

Indicator of whether cardiac MRI (Magnetic Resonance Imaging) was performed on the subject/participant.

Core 1.00 2021-02-26 13:56:55.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60101 Anemia cause reason

Reason for or cause of the subject/participant's anemia.

Core 1.00 2021-01-14 14:38:44.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C58800 Death date

Date on which the subject/participant died

Core 1.00 2018-12-12 12:24:18.0 Death Form Sickle Cell Disease Sickle Cell Disease
C60598 Fertility preservation semen analysis result text

Text field for documenting the results of semen analysis performed as part of fertility preservation.

Core 1.00 2021-04-28 16:21:45.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60644 Gene editing blood CD15 plus lineage off target indel count

Count of gene-editing off-target indels in the blood CD15+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59930 More forgetful due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant was more forgetful due to his or her fatigue

Core 1.00 2019-06-26 10:46:25.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60485 Integrating viral vector copy number blood CD15 plus lineage value

Value of the integrating viral vector copy number (VCN) in blood for the CD15+ lineage

Core 1.00 2021-04-22 13:25:18.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60128 Surgical splenectomy date

Date on which the subject/participant's spleen was surgically removed.

Core 1.00 2021-01-15 10:49:01.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C59890 Too tired go short walk past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to go for a short walk

Core 1.00 2019-06-25 10:11:07.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60109 Anemia associated condition type other text

The free-text field related to "Anemia associated condition type" for specifying associated conditions not listed.

Core 1.00 2021-01-14 15:05:29.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C54690 PROMIS - Global Health mental health rate scale

Scale related to an individual's rating of his/her mental health, as part of the PROMIS Global Health

Core 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C59948 Death cause source

Source from which the cause of the subject/participant's death was obtained.

Core 1.00 2020-08-19 15:06:04.0 Death Form Sickle Cell Disease Sickle Cell Disease
C59851 Sluggish past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt sluggish

Core 1.00 2019-06-24 10:12:16.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C01554 Oxygen saturation measurement

Value, as a percent, of baseline O2 saturation (SPO2) in nocturnal oximetry, as part of Nocturnal Oximetry.

Core 3.00 2013-07-22 16:57:17.79 Vital Signs and Blood Gases Sickle Cell Disease Sickle Cell Disease
C59939 Feel weak all over past 7 day extent scale

Scale of the extent over the past 7 days to which the subject/participant felt weak all over

Core 1.00 2019-06-26 11:29:58.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
Displaying 151 - 175 of 5231