CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 151 - 175 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59936 Have trouble finish thing due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant had trouble finishing things due to his or her fatigue

Core 1.00 2019-06-26 11:01:38.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60493 Bone marrow mononuclear cell positive for integrating viral vector percent value

Value of the percentage of bone marrow mononuclear cells (BMMC) positive for the integrating viral vector.

Core 1.00 2021-04-22 13:33:03.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60135 Erythropoietin measurement

Measurement of the subject/participant's erythropoietin (EPO) level.

Core 1.00 2021-01-15 13:25:23.0 Chronic Anemia Sickle Cell Disease Sickle Cell Disease
C60231 Cardiac MRI left ventricle end-diastolic volume measurement

Measurement of the subject/participant's left ventricle end-diastolic volume (LVEDV) in milliliters, assessed by cardiac MRI

Core 1.00 2021-03-02 13:43:54.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C01012 Physical exam body system result type

Assessment result of each body system examined

Core 3.00 2013-07-25 08:54:08.2 Physical Exam Sickle Cell Disease Sickle Cell Disease
C60524 Gene editing blood CD3 plus lineage on target indel count

Count of gene-editing on-target indels in the blood CD3+ lineage.

Core 1.00 2021-04-23 11:20:12.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C01701 Lab specimen collection date and time

Date (and time if applicable and known) when the specimen was collected

Core 3.00 2013-07-25 08:54:08.2 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C60239 Cardiac MRI left atrium volume measurement

Measurement in milliliters of the volume of the subject/participant's left atrium, assessed by cardiac MRI.

Core 1.00 2021-03-02 14:41:21.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C59013 Urine albumin creatinine ratio value

Value, in milligrams per gram, of the patient's urine albumin to creatinine ratio.

Core 1.00 2019-01-07 16:31:34.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C60582 Growth hormone receive response deficiency ever indicator

Indicator of whether the subject/participant ever received growth hormone in response to a deficiency thereof.

Core 1.00 2021-04-28 14:41:44.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60532 Gene editing on target indel bone marrow mononuclear cell count

Count of on-target indels in gene editing of bone marrow mononuclear cells (BMMC).

Core 1.00 2021-04-23 11:40:19.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60438 Laboratory procedure hemoglobin F result percentage value

The percentage value related to F variant hemoglobin.

Core 1.00 2021-04-11 01:51:27.0 Genetic Diagnostic Testing Sickle Cell Disease Sickle Cell Disease
C60247 Cardiac MRI left ventricle stroke volume body surface area index value

Value in milliliters per square meter of the stroke volume of the subject/participant's left ventricle (LVSV) (assessed by cardiac MRI), indexed for body surface area (BSA).

Core 1.00 2021-03-02 13:53:40.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60112 Electronic simulated cigarette use frequency past 30 day category

Category of frequency of use of electronic cigarettes or similar devices by the subject/participant in the past 30 days.

Core 1.00 2021-01-14 16:34:12.0 Behavioral History Sickle Cell Disease Sickle Cell Disease
C02495 Imaging scanner strength value

Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Core 3.00 2013-08-28 16:08:00.453 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60093 Reticulocyte count

Count of reticulocytes

Core 1.00 2021-01-14 13:06:05.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories.

Core 3.00 2013-07-25 08:54:08.2 Demographics Sickle Cell Disease Sickle Cell Disease
C60590 Fertility preservation bank material category

Category of material that has been banked as part of the subject/participant's fertility preservation.

Core 1.00 2021-04-28 15:09:14.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60608 Priapism erection percent value

Value of the percentage of the subject/participant's penis that is erect.

Core 1.00 2021-04-29 13:30:01.0 Priapism Core Sickle Cell Disease Sickle Cell Disease
C60636 Bone marrow cell sort indicator

Indicator of whether bone marrow cells were sorted.

Core 1.00 2021-04-29 16:26:43.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C58664 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis last occur time elapse code

Code for the time elapsed since the subject/participant last had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C60120 Splenic sequestration episode date

Date of the subject/participant's splenic sequestration episode.

Core 1.00 2021-01-15 09:57:38.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60215 Imaging MRI cardiac indicator

Indicator of whether cardiac MRI (Magnetic Resonance Imaging) was performed on the subject/participant.

Core 1.00 2021-02-26 13:56:55.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60101 Anemia cause reason

Reason for or cause of the subject/participant's anemia.

Core 1.00 2021-01-14 14:38:44.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60598 Fertility preservation semen analysis result text

Text field for documenting the results of semen analysis performed as part of fertility preservation.

Core 1.00 2021-04-28 16:21:45.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
Displaying 151 - 175 of 5231