CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 151 - 175 of 4213
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59296 Child have personal physician indicate code

Code indicating whether the child has a personal physician

Proposed 1.00 2019-03-29 10:08:55.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Proposed 3.00 2013-08-28 16:08:00.453 PhenX Toolkit: Stroke Impact/Outcome - Pediatric Sickle Cell Disease Sickle Cell Disease
C59641 Go out entertainment frequency satisfied scale

Scale of the degree to which the subject/participant is satisfied with the frequency that he or she goes out for entertainment

Proposed 1.00 2019-06-18 14:47:05.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C09579 Brief Pain Inventory (BPI) - average pain rating scale

Scale indicating the rating of the average pain experienced by the subject, as part of the Brief Pain Inventory (BPI) form.

Proposed 3.00 2013-07-22 09:34:41.527 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C56384 Conners Continuous Performance Test 3rd Edition (CPT3) Inattentiveness hit reaction time standard deviation value

The standard deviation of the subject's response speed consistency, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Proposed 1.00 2017-06-09 15:33:41.0 Conners Continuous Performance Test 3rd Edition (Conners CPT 3) Sickle Cell Disease Sickle Cell Disease
C58827 Acute GVHD diagnosis date

Date of diagnosis of acute GVHD (Graft Versus Host Disease)

Proposed 1.00 2018-12-12 15:18:08.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59188 Blood draw comment text

The free-text field for recording comments about the blood draw.

Proposed 1.00 2019-03-27 10:48:16.0 PhenX Toolkit: Serum Creatinine Sickle Cell Disease Sickle Cell Disease
C58621 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Activity difficult because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant found it difficult to do things because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 PhenX Toolkit: Quality of Life in Sickle Cell Disease Sickle Cell Disease Sickle Cell Disease
C59592 Club drug use type name

Name or type of club drug(s) used by the subject/participant

Proposed 1.00 2019-04-12 14:06:32.0 PhenX Toolkit: Substances - Lifetime Use Sickle Cell Disease Sickle Cell Disease
C58762 Human leukocyte antigen typing donor confirmatory date

Date on which confirmatory typing of the donor's human leukocyte antigen (HLA) status was performed.

Proposed 1.00 2018-12-10 13:03:39.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59139 Protocol deviation violation reason specify text

Text indicating the specifc other reason a protocol deviation or violation occurred

Proposed 1.00 2019-01-28 17:43:17.0 Protocol Deviation/Violation Review Form (PDR) Sickle Cell Disease Sickle Cell Disease
C12494 Imaging pons abnormal indicator

Indicator of whether the pons appears normal or abnormal in the image studies

Proposed 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C20781 Quality of Life - Worry assessment past week scale

The scale which represents how often the participant felt worried in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C59252 Sleep quality past 7 day grade

Grade of the subject/participant's sleep quality over the past 7 days

Proposed 1.00 2019-03-28 10:56:01.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C59460 Difficult control bladder past 2 week scale

Scale of the difficulty the subject/participant had over the past 2 weeks controlling his or her bladder

Proposed 1.00 2019-04-04 15:25:21.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C20846 Patient-Reported Outcome Measurement Information System (PROMIS) - Concentration difficulty poor sleep past week scale

The scale which represents how often the participant had a hard time concentrating because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment Sickle Cell Disease Sickle Cell Disease
C14685 Pediatric Migraine Disability Assessment (MIDAS) - headache frequency

Headache frequency, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form.

Proposed 3.00 2013-07-16 14:01:43.01 Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS) Sickle Cell Disease Sickle Cell Disease
C59043 Chronic kidney disease toxicity grade

Grade of chronic kidney disease toxicity exhibited by the patient.

Proposed 1.00 2019-01-10 12:45:24.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59167 Seven day pain interference social activities participation status

Status indicating how much pain interfered with the ability for subject to participate in social activities in the past seven days

Proposed 1.00 2019-01-31 14:33:00.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C18942 Cerebellar or coordination assessment abnormality present other text

The free-text field related to 'Cerebellar or coordination assessment abnormality present status' specifying other text. Whether the cerebellar/coordination assessment found abnormalities

Proposed 3.00 2013-08-28 16:08:00.453 Neurological Exam Sickle Cell Disease Sickle Cell Disease
C59115 Hydroxyurea receive indicate code

Code indicating whether the patient received hydroxyurea.

Proposed 1.00 2019-01-16 12:48:41.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59121 Constipation grade

Grade of constipation exhibited by the patient

Proposed 1.00 2019-01-17 07:16:45.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59924 Need limit social activity due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant needed to limit his or her social activities due to his or her fatigue

Proposed 1.00 2019-06-26 10:29:03.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59098 Liver abnormality GVHD doppler ultrasound result code

Code denoting whether doppler ultrasound results confirmed a graft-versus-host disease (GVHD) etiology for abnormal liver function

Proposed 1.00 2019-01-15 13:39:46.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C14452 Tremor assessment status

The status indicating whether tremors could be detected during the exam

Proposed 3.00 2013-08-28 16:08:00.453 Neurological Exam Sickle Cell Disease Sickle Cell Disease
Displaying 151 - 175 of 4213