CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 176 - 200 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C12900 Echocardiogram left ventricle end systolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of systole.

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60202 Medical history for sickle cell condition blood other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for blood conditions other than Sickle Cell.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C58691 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Intense fear pain episode past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had intense fear of having a pain episode, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C02203 Off study reason

Primary reason participant/ subject is no longer participating in study (i.e., is not being followed and will not receive intervention/treatment).

Core 3.00 2013-07-18 16:35:19.49 Death Form Sickle Cell Disease Sickle Cell Disease
C56485 PROMIS - Pain Interference pain interfere ability concentrate scale

Scale related to how much pain interfered with an individual's ability to concentrate in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C56157 Body surface area value

The value representing the subject's body surface area (BSA)

Core 1.00 2017-06-07 13:59:34.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60210 Medical history for sickle cell condition ongoing indicator

Indicator of whether the subject/participant's condition selected in "Medical history for sickle cell condition type" is ongoing.

Core 1.00 2021-02-24 15:45:51.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C54688 PROMIS - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

Core 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C59945 Participant living last known date

Date on which the subject/participant was most recently known to be living.

Core 1.00 2020-08-19 14:57:14.0 Death Form Sickle Cell Disease Sickle Cell Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core 3.00 2013-07-25 08:54:08.2 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C56493 PROMIS - Pain Interference pain difficult to sleep scale

Scale related to how difficult pain made it to fall asleep in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60086 Vasoocclusive crisis outpatient non emergency department visit past 12 month count

Count of times that the subject/participant received outpatient treatment for vasoocclusive crisis (VOC) in the past 12 months from a facility other than an emergency department (ED).

Core 1.00 2021-01-12 13:51:13.0 Sickle Cell Related Acute Painful Episodes Sickle Cell Disease Sickle Cell Disease
C60298 Echocardiogram left ventricle fractional shortening value

Value, as a percentage, of the change in left ventricular diameter during systole, assessed by echocardiogram.

Core 1.00 2021-03-04 13:25:57.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60679 Nuclease delivery mode other text

The free-text field to capture other speicfy for mode of nuclease delivery

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C60142 Blood sample collect indicator

Indicator of whether a sample of the subject/participant's blood was collected.

Core 1.00 2021-01-15 16:26:53.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C59940 Days fatigue worse morning past 7 day frequency scale

Scale of the frequency in days over the past 7 days that the subject/participant's fatigue was worse in the morning

Core 1.00 2019-06-26 11:31:58.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56501 PROMIS - Pain Interference pain interfere with ability to remember things scale

Scale related to how much pain interfered with an individual's ability to remember things in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60162 Heart rate maximum day of diagnosis rate

Rate of the subject/participant's maximum pulse/heart rate in beats per minute on the day of his or her diagnosis.

Core 1.00 2021-02-23 16:23:22.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C00035 Gender Type

Self-reported gender of the participant/subject. Gender is the socially constructed identity of sex. Gender is equated with phenotypic sex. Gender may differ from the sex of an individual determined genetically.

Core 3.00 2013-08-28 16:08:00.453 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60150 Test not done reason

Reason why the test was not performed.

Core 1.00 2021-01-19 10:26:40.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C60629 Liver biopsy iron result text

Text field for reporting the result of the laboratory iron test for liver biopsy.

Core 1.00 2021-04-29 14:59:31.0 Iron Overload Sickle Cell Disease Sickle Cell Disease
C56509 PROMIS - Pain Interference pain make anxious scale

Scale related to how often pain made an individual feel anxious in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60314 Echocardiogram right atrium volume body surface area index value

Value in milliliters per square meter of the volume of the right atrium (RA), assessed by echocardiogram, divided by the subject/participant's body surface area.

Core 1.00 2021-03-04 13:48:28.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C10740 Echocardiogram left ventricle ejection fraction measurement

Fraction of blood pumped out of the left ventricles with each heart beat measured with echocardiography

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

Core 3.00 2013-07-25 08:54:08.2 Demographics Sickle Cell Disease Sickle Cell Disease
Displaying 176 - 200 of 5231