CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 201 - 225 of 4213
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59688 Carry heavy object difficulty scale

Scale of the difficulty the subject/participant has in carrying an object over 10 pounds/5 kilograms

Proposed 1.00 2019-06-19 12:58:03.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59062 Somnolence grade

Grade of somnolence exhibited by the patient

Proposed 1.00 2019-01-11 10:56:04.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59813 Carry 50 pound 25 kilogram bag sand 25 yard 25 meter difficulty scale

Scale of the difficulty the subject/participant has in carrying a bag of sand weighing 50 pounds / 25 kilograms a distance of 25 yards / 25 meters

Proposed 1.00 2019-06-21 11:52:00.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56580 PROMIS - Meaning and Purpose positive about future scale

Scale related to an individual being positive about his/her future, as part of the PROMIS Meaning and Purpose

Proposed 1.00 2017-06-15 13:57:59.0 PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a Sickle Cell Disease Sickle Cell Disease
C58755 Liver biopsy date

Date on which liver biopsy was performed.

Proposed 1.00 2018-12-10 12:51:00.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C13902 Imaging acute stroke study type

Indicates imaging acute stroke study type

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Carotid Ultrasound Sickle Cell Disease Sickle Cell Disease
C14683 Pediatric Migraine Disability Assessment (MIDAS) - headache decrease other activity function day count

Count the days you participate in these activities, but functioned at less than half your ability, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form.

Proposed 3.00 2013-07-16 14:01:43.01 Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS) Sickle Cell Disease Sickle Cell Disease
C59631 Weight measurement number

Number indicating which weight measurement is being taken, out of 3 measurements.

Proposed 1.00 2019-04-22 12:06:47.0 PhenX Toolkit: Weight - Measured Weight Sickle Cell Disease Sickle Cell Disease
C59813 Carry 50 pound 25 kilogram bag sand 25 yard 25 meter difficulty scale

Scale of the difficulty the subject/participant has in carrying a bag of sand weighing 50 pounds / 25 kilograms a distance of 25 yards / 25 meters

Proposed 1.00 2019-06-21 11:52:00.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56497 PROMIS - Pain Interference pain interfere household chores scale

Scale related to how much pain interfered with an individual's household chores in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C58656 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Kidney damage medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has kidney damage, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease Medical History Checklist Sickle Cell Disease Sickle Cell Disease
C59499 Pediatric National Institutes of Health Stroke Scale (PedNIHSS) - Motor arm score

Motor ability of the arm (both left and right) assessed using the Pediatric NIH Stroke Scale (PedNIHSS)

Proposed 3.00 2013-06-21 00:00:00.0 PhenX Toolkit: Stroke Impact/Outcome - Pediatric Sickle Cell Disease Sickle Cell Disease
C59648 Ability do work important self satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her ability to do work that is important to him or herself, including work at home

Proposed 1.00 2019-06-19 10:05:27.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C18932 Cranial nerves global assessment other text

The free-text field related to 'Cranial nerves global assessment result' specifying other text. The condition of Cranial Nerves

Proposed 1.00 2012-10-05 00:00:00.0 Neurological Exam Sickle Cell Disease Sickle Cell Disease
C20819 Patient-Reported Outcome Measurement Information System (PROMIS) - Physical tense bedtime assessment past week scale

The scale which represents how often the participant felt physically tense at bedtime in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C02496 Imaging scanner manufacturer name

Name of manufacturer of imaging scanner

Proposed 3.00 2013-07-25 08:54:08.2 Magnetic Resonance Angiography (MRA) Sickle Cell Disease Sickle Cell Disease
C59564 Estimated blood unit count range

Range estimating the count of units (pints) of blood the subject/participant has ever received.

Proposed 1.00 2019-04-11 16:56:17.0 PhenX Toolkit: History of Transfusion Sickle Cell Disease Sickle Cell Disease
C54688 PROMIS - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

Proposed 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C59365 Emergency room sickle cell care doctors seem caring last 12 month frequency status

Status of the frequency that doctors seemed caring when the subject/participant received emergency room care for his or her sickle cell disease in the last 12 months

Proposed 1.00 2019-04-01 15:49:51.0 PhenX Toolkit: Quality of Care - Adults Sickle Cell Disease Sickle Cell Disease
C59468 Difficult walk without lose balance past 2 week scale

Scale of the difficulty the subject/participant had over the past 2 weeks to walk without losing his or her balance

Proposed 1.00 2019-04-04 15:25:21.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C59091 Urine sample research consent withdrawal code

Code indicating whether patient withdrew consent to provide optional urine samples for research or ancillary studies

Proposed 1.00 2019-01-14 14:55:10.0 Withdrawal of Consent Form (WOC) Sickle Cell Disease Sickle Cell Disease
C59236 Do chore difficulty grade

Grade of difficulty the subject/participant has doing chores.

Proposed 1.00 2019-03-28 09:53:12.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C20806 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep lightness assessment past week scale

The scale which represents how often the participant's sleep was light in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C55724 PROMIS - Self Efficacy managing emotions manage anxiety telling others scale

Scale related to an individual being able to manage his/her anxiety about telling others he/she have health problems, as part of the PROMIS Self-Efficacy Managing Emotions

Proposed 1.00 2017-05-25 13:38:58.0 PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions Sickle Cell Disease Sickle Cell Disease
C58959 Upper GI biopsy GVHD result code

Code for the result of the upper GI (gastrointestinal tract) biopsy performed for GVHD (graft-versus-host disease).

Proposed 1.00 2019-01-04 14:12:38.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
Displaying 201 - 225 of 4213