CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 201 - 225 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C60614 Pain sign present type

Type(s) of signs of pain present with the subject/participant.

Core 1.00 2021-04-29 13:48:14.0 Chronic Pain Sickle Cell Disease Sickle Cell Disease
C56493 PROMIS - Pain Interference pain difficult to sleep scale

Scale related to how difficult pain made it to fall asleep in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60209 Medical history for sickle cell condition diagnosis year date

Year part of the date of diagnosis of the subject/participant's condition selected in "Medical history for sickle cell condition type".

Core 1.00 2021-02-24 15:43:24.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C60320 Echocardiogram septal diastolic velocity e prime rate

Rate in centimeters per second (cm/s) of the septal e-prime (e') velocity during diastole.

Core 1.00 2021-03-05 13:07:11.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C12896 Echocardiogram left ventricle end diastolic volume measurement

Imaged left ventricular blood pool capacity within the endocardial surface in a gated scan during the time of diastole.

Core 3.00 2013-07-24 11:38:01.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60085 Vasoocclusive crisis inpatient admission past 12 month duration text

Text field for recording the duration of each inpatient admission subject/participant had for vasoocclusive crisis (VOC) in the past 12 months.

Core 1.00 2021-01-12 13:51:13.0 Sickle Cell Related Acute Painful Episodes Sickle Cell Disease Sickle Cell Disease
C56501 PROMIS - Pain Interference pain interfere with ability to remember things scale

Scale related to how much pain interfered with an individual's ability to remember things in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C58665 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis most recent severity grade

Grade of pain severity during the subject/participant's most recent pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C19247 Subject ID

Subject identification ID

Core 1.00 2014-06-05 13:10:49.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C56509 PROMIS - Pain Interference pain make anxious scale

Scale related to how often pain made an individual feel anxious in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C60161 Temperature maximum day of diagnosis unit of measure

Unit of measurement of the subject/participant's maximum temperature on the day of his or her diagnosis.

Core 1.00 2021-02-23 16:19:44.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C60149 Blood gas sample collect indicator

Indicator of whether a blood gas sample was collected.

Core 1.00 2021-01-19 09:43:19.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C58649 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad no activity entire day past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C60677 Genetic therapy editing other text

The other specify related to type of gene editing.

Core 1.00 2021-05-10 12:12:04.0 Drug Product Sickle Cell Disease Sickle Cell Disease
C04800 Death cause text

Text describing the primary reason or cause of the participant/subject's death. If possible, this should be the explanation of the cessation of life according to the Death Certificate.

Core 3.00 2013-07-25 08:54:08.2 Death Form Sickle Cell Disease Sickle Cell Disease
C60529 Gene editing conversion bone marrow mononuclear cell percent value

Value of the percentage of gene editing conversions in bone marrow mononuclear cells (BMMC).

Core 1.00 2021-04-23 11:35:20.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C59883 Difficult carry conversation due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant found it difficult to carry on a conversation due to his or her fatigue

Core 1.00 2019-06-25 09:49:54.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60435 Laboratory procedure hemoglobin analysis other method specify text

The other specify related to hemoglobin method analysis type.

Core 1.00 2021-04-11 01:51:27.0 Genetic Diagnostic Testing Sickle Cell Disease Sickle Cell Disease
C60244 Cardiac MRI right ventricle end-diastolic volume body surface area index value

Value of the subject/participant's right ventricle end-diastolic volume (RVEDV), assessed by cardiac MRI, indexed to body surface area (BSA) in milliliters per square meter.

Core 1.00 2021-03-02 13:43:54.0 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60333 Glomerular filtration rate estimated value

Value of the estimate glomerular filtration rate in milliliters per minute per 1.73 square meters (mL/min/1.73 m^2), based on serum creatinine levels.

Core 1.00 2021-03-10 10:57:29.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C01522 Height measurement

Measurement of participant's/subject's height.

Core 3.00 2013-08-28 16:08:00.453 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60126 Imaging spleen size measurement

Measurement of the subject/participant's spleen size as determined by imaging.

Core 1.00 2021-01-15 10:45:20.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60574 Transfusion ever indicator

Indicator of whether the subject/participant has ever received a transfusion.

Core 1.00 2021-04-28 14:15:48.0 Transfusion History Sickle Cell Disease Sickle Cell Disease
C60107 Transfusion simple quantity text

Text field for reporting the quantity of blood provided to the subject/participant during a simple (non-exchange) transfusion.

Core 1.00 2021-01-14 15:01:08.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60587 Fertility preservation payment insurance copay value

Value in U.S. dollars of the insurance copay paid by the subject/participant for his or her fertility preservation.

Core 1.00 2021-04-28 15:01:15.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
Displaying 201 - 225 of 5231