CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 201 - 225 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59867 Fatigue make feel think slow past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant's fatigue made him or her feel slowed down in his or her thinking

Proposed 1.00 2019-06-24 13:47:09.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C21666 Diagnosis principal discharge stroke related ICD-10-CM code

If the Principal ICD-10-CM diagnosis code is a stroke-related code, then enter it here. If it is not, then select the Secondary ICD-10 diagnosis code that is stroke-related, as determined by ICD-10-CM code recorded in the medical record.

Proposed 1.00 2016-04-19 00:00:00.0 Hospital Discharge Sickle Cell Disease Sickle Cell Disease
C59072 Alanine aminotransferase toxicity grade

Grade of alanine aminotransferase (ALT) toxicity exhibited by the patient.

Proposed 1.00 2019-01-11 13:51:29.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C20847 Patient-Reported Outcome Measurement Information System (PROMIS) - Daytime activity difficulty poor sleep past week scale

The scale which represents how often the participant's daytime activities were disturbed by poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment Sickle Cell Disease Sickle Cell Disease
C56470 PROMIS - Pain Behavior when pain scream scale

Scale related to the individual feeling as if when in pain he/she screamed in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C58824 Assessment period end date

Date of the end of the assessment period

Proposed 1.00 2018-12-12 15:06:29.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59356 Primary health care provider explain clearly last 12 month frequency status

Status of the frequency that the subject/participant's primary health care provider explained things clearly in the last 12 months

Proposed 1.00 2019-04-01 15:17:52.0 PhenX Toolkit: Quality of Care - Adults Sickle Cell Disease Sickle Cell Disease
C14432 Mental status exam abnormality indicator

Whether the mental assessment showed abnormal results

Proposed 1.00 2012-10-05 00:00:00.0 Neurological Exam Sickle Cell Disease Sickle Cell Disease
C58663 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code

Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C59797 Climb stair 10 story building no stop difficulty scale

Scale of the difficulty the subject/participant has in climbing the stairs of a 10 story building without stopping

Proposed 1.00 2019-06-21 11:11:50.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C01010 Physical exam date and time

Date (and time if applicable and known) physical exam was performed

Proposed 3.00 2013-08-28 16:08:00.453 Physical Exam Sickle Cell Disease Sickle Cell Disease
C58976 Liver biopsy GVHD result code

Code for the result of the liver biopsy performed for graft-versus-host disease (GVHD)

Proposed 1.00 2019-01-04 14:12:38.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59228 Able rely friends past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant was able to rely on his or her friends

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C58758 Liver free cirrhosis bridging fibrosis active hepatitis indicate code

Code indicating whether the subject/participant's liver is free from cirrhosis, bridging fibrosis, and active hepatitis.

Proposed 1.00 2018-12-10 12:52:32.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C18507 Muscle weakness neuropathic weakness present text

The free-text field to describe the neuropathic weakness present resultling in muscle weakness.

Proposed 3.00 2013-07-30 14:29:49.047 Neurological Exam Sickle Cell Disease Sickle Cell Disease
C59117 Neutropenia grade

Grade of neutropenia (decreased neutrophil count) exhibited by the patient.

Proposed 1.00 2019-01-16 13:45:25.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59173 Seven day worst pain intensity status

Status indicating how intense pain was at its worse during the past seven days

Proposed 1.00 2019-01-31 16:21:32.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C18719 Imaging slice orientation other text

The free-text field related to 'Imaging slice orientation type' specifying other text. The slice orientation used in imaging acquisition

Proposed 1.00 2014-05-27 13:34:46.0 Magnetic Resonance Angiography (MRA) Sickle Cell Disease Sickle Cell Disease
C59331 Prescription medication health condition endure 12 month indicate code

Code indicating whether the subject/participant needs or uses prescription medications other than vitamins because of a health condition that has endured or is expected to endure for at least 12 months

Proposed 1.00 2019-04-01 11:46:19.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C12504 Imaging gray matter hyperintensity T2 fluid attenuated inversion recovery site

The type of anatomical site of the grey matter hyperintensity on T2/FLAIR (fluid attenuated inversion recovery) images

Proposed 3.00 2013-07-24 11:38:01.2 Brain Magnetic Resonance Imaging (MRI) Sickle Cell Disease Sickle Cell Disease
C59094 Liver biopsy infection result code

Code for the result of the liver biopsy performed for infection.

Proposed 1.00 2019-01-04 14:12:38.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C18027 Comment text

Provide any additional information that pertains to the question.

Proposed 3.00 2013-07-16 14:01:43.01 Transplant Form (TXP) Sickle Cell Disease Sickle Cell Disease
C59843 Get in out bathtub health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to get in and out of the bathtub

Proposed 1.00 2019-06-21 13:59:30.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C14035 VMR response result

Indicates vasomotor response (VMR) response result

Proposed 3.00 2013-06-21 00:00:00.0 Vessel Imaging Transcranial Doppler (TCD) Sickle Cell Disease Sickle Cell Disease
C59209 Climb stairs unassist past 7 day difficulty code

Code denoting the difficulty that the subject/participant has had in the past 7 days climbing stairs unassisted

Proposed 1.00 2019-03-27 13:13:25.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
Displaying 201 - 225 of 4213