CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 201 - 225 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59202 Urinary creatinine unit of measure

Unit of measure for the concentration of urinary creatinine

Core 1.00 2019-03-27 11:55:24.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C00035 Gender Type

Self-reported gender of the participant/subject. Gender is the socially constructed identity of sex. Gender is equated with phenotypic sex. Gender may differ from the sex of an individual determined genetically.

Core 3.00 2013-08-28 16:08:00.453 Cardiac MRI Sickle Cell Disease Sickle Cell Disease
C60584 Fertility preservation indicator

Indicator of whether the subject/participant took steps to preserve his or her fertility.

Core 1.00 2021-04-28 14:49:47.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60534 Gene editing on target indel bone marrow colony forming cell count

Count of on-target indels in gene editing of bone marrow colony forming cells (CFC).

Core 1.00 2021-04-23 11:40:19.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C60440 Laboratory procedure hemoglobin A2 result percentage value

The percentage value related to A2 variant hemoglobin.

Core 1.00 2021-04-11 01:51:27.0 Genetic Diagnostic Testing Sickle Cell Disease Sickle Cell Disease
C59908 Bother by fatigue on average past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt bothered by his or her fatigue on average

Core 1.00 2019-06-25 11:27:36.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59868 Too tired watch television past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to watch television

Core 1.00 2019-06-24 13:50:22.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60166 Oxygen partial pressure below 60 millimeter mercury indicator

Indicator of whether the subject/participant's partial pressure of oxygen (PaO2) is below 60 millimeters of mercury (mmHg).

Core 1.00 2021-02-23 16:50:41.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C01541 Weight measurement

Measurement of participant's/subject's weight

Core 3.00 2013-07-25 08:54:08.2 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60154 Hemoglobin test other name

The free-text field related to "Lab test name" specifying other hemoglobin test name.

Core 1.00 2021-01-22 11:03:12.0 Laboratory Tests Sickle Cell Disease Sickle Cell Disease
C56489 PROMIS - Pain Interference pain interfere with thing usually fun scale

Scale related to how much pain interfered with things an individual usually did for fun in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59916 Sluggish past 7 day average scale

Scale of how sluggish the subject/participant was on average over the past 7 days

Core 1.00 2019-06-26 10:02:44.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59935 Fatigue make less effective at home past 7 day scale

Scale over the past 7 days of whether the subject/participant's fatigue made him or her less effective at home

Core 1.00 2019-06-26 10:59:11.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60659 PROMIS Pediatric Global Health 7 Plus 2 - trouble sleep with pain past 7 day frequency scale

Scale of the frequency over the past 7 days with which the subject/participant had trouble sleeping when he or she was experiencing pain, as part of the PROMIS Pediatric Global Health 7+2 questionnaire.

Core 1.00 2021-04-30 13:10:14.0 PROMIS Pediatric Global Health 7+2 Sickle Cell Disease Sickle Cell Disease
C59876 Difficult make decision due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant found it difficult to make decisions due to his or her fatigue

Core 1.00 2019-06-24 14:23:31.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60318 Echocardiogram mitral diastolic inflow velocity peak E rate

Rate in centimeters per second (cm/s) of the peak E velocity of mitral inflow during diastole.

Core 1.00 2021-03-05 13:07:11.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C60198 Medical history for sickle cell condition liver other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for liver conditions.

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C56497 PROMIS - Pain Interference pain interfere household chores scale

Scale related to how much pain interfered with an individual's household chores in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59924 Need limit social activity due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant needed to limit his or her social activities due to his or her fatigue

Core 1.00 2019-06-26 10:29:03.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59884 Too tired socialize family past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to socialize with his or her family

Core 1.00 2019-06-25 09:54:13.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60206 Medical history for sickle cell condition other disease ailment other text

The free-text field related to "Medical history for sickle cell condition type" specifying other text for other diseases or ailments..

Core 1.00 2021-02-24 14:25:43.0 Medical History Core Sickle Cell Disease Sickle Cell Disease
C56505 PROMIS - Pain Interference pain distress scale

Scale related to how often pain distressed individual in the past 7 days, as part of the PROMIS Pain Interference

Core 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59932 Force self do thing due fatigue past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant had to force him or herself to get up and do things due to his or her fatigue

Core 1.00 2019-06-26 10:51:30.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59892 Too tired socialize friend past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant was too tired to socialize with friends

Core 1.00 2019-06-25 10:15:38.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C60082 Vasoocclusive crisis urgent care emergency room past 12 month indicator

Indicator of whether the subject/participant has used an After Hours/Urgent Care Clinic/day hospital/infusion clinic or Emergency Room due to vaso-occlusive crisis (VOC) in the past 12 months.

Core 1.00 2021-01-12 13:41:52.0 Sickle Cell Related Acute Painful Episodes Sickle Cell Disease Sickle Cell Disease
Displaying 201 - 225 of 5231