CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59919 Wiped out past 7 day average scale

Scale of how wiped out the subject/participant felt on average over the past 7 days

Proposed 1.00 2019-06-26 10:09:37.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59230 Others seek friendship past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant's friendship was sought by others

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C58800 Death date

Date on which the subject/participant died

Proposed 1.00 2018-12-12 12:24:18.0 PhenX Toolkit: Recovery and Recurrence Questionnaire - Pediatric Sickle Cell Disease Sickle Cell Disease
C58988 Absolute neutrophil count most recent measurement

Measurement of the most recent ANC (absolute neutrophil count) per microliter.

Proposed 1.00 2019-01-07 12:20:14.0 Hematopoiesis Form Sickle Cell Disease Sickle Cell Disease
C58874 Esophagus GVHD status code

Code denoting the status of the subject/participant's esophagus when suffering from GVHD (Graft Versus Host Disease).

Proposed 1.00 2018-12-14 14:31:57.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59849 Feel tired despite not do anything past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt tired even when he or she had not done anything

Proposed 1.00 2019-06-24 10:05:30.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56506 PROMIS - Pain Interference pain keep from socialize other scale

Scale related to how often pain kept an individual from socializing with others in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59308 Child personal physician spend enough time with child last 6 month frequency scale

Scale for the frequency over the past 6 months that the child's personal physician spent enough time with the child

Proposed 1.00 2019-03-29 10:22:22.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C19833 Psychiatric depression indicator

Indicator of history of depression

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C56384 Conners Continuous Performance Test 3rd Edition (CPT3) Inattentiveness hit reaction time standard deviation value

The standard deviation of the subject's response speed consistency, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Proposed 1.00 2017-06-09 15:33:41.0 Conners Continuous Performance Test 3rd Edition (Conners CPT 3) Sickle Cell Disease Sickle Cell Disease
C58900 Cyclosporine therapy chronic GVHD indicate code

Code indicating whether Cyclosporine therapy was used to treat chronic GVHD (graft-versus-host disease)

Proposed 1.00 2018-12-17 12:03:21.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C58773 New onset seizure count

Count indicating the amount of times the patient experienced a new onset of seizure during the assessment period.

Proposed 1.00 2018-12-10 16:30:08.0 SCD Events of Special Interest Form (ESI) Sickle Cell Disease Sickle Cell Disease
C59684 Stand 1 hour difficulty scale

Scale of the difficulty the subject/participant has in standing for one hour

Proposed 1.00 2019-06-19 12:45:18.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59879 Feel less alert due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant felt less alert due to his or her fatigue

Proposed 1.00 2019-06-25 09:37:49.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58730 Cardiac fraction test type code

Code for the type of cardiac fraction test performed.

Proposed 1.00 2018-12-06 11:37:18.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C58829 Upper GI abnormality severity at acute GVHD maximum overall grade code

Code for the highest severity of upper GI (gastrointestinal tract) abnormalities at the time of the maximum overall grade of GVHD (Graft Versus Host Disease)

Proposed 1.00 2018-12-12 15:24:41.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59684 Stand 1 hour difficulty scale

Scale of the difficulty the subject/participant has in standing for one hour

Proposed 1.00 2019-06-19 12:45:18.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59809 Carry large baby house car difficulty scale

Scale of the difficulty the subject/participant has in carrying a large baby (15 pounds / 7 kilograms) from the house to a car

Proposed 1.00 2019-06-21 11:42:07.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C19793 Medical history cardiovascular heart arrhythmia diagnosis date

Date of first detection of heart arrhythmia

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C14685 Pediatric Migraine Disability Assessment (MIDAS) - headache frequency

Headache frequency, as part of migraine disability assessment (MIDAS) questionnaire-pediatric form.

Proposed 3.00 2013-07-16 14:01:43.01 Pediatric Migraine Disability Assessment Questionnaire (PedMIDAS) Sickle Cell Disease Sickle Cell Disease
C58788 Mean fluorescence intensity donor specific antibody exceed limit indicate code

Code indicating whether the MFI (mean fluorescence intensity) for donor specific antibodies exceeds allowable limit.

Proposed 1.00 2018-12-11 12:10:33.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59809 Carry large baby house car difficulty scale

Scale of the difficulty the subject/participant has in carrying a large baby (15 pounds / 7 kilograms) from the house to a car

Proposed 1.00 2019-06-21 11:42:07.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C58697 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Sleep satisfy desire past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant got as much sleep as he or she desired, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C20774 Patient-Reported Outcome Measurement Information System (PROMIS) - Alter normal routine anxiety assessment past week scale

The scale which represents how often the participant was anxious if his normal routine was disturbed in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C59644 Time spend leisure activity others satisfied scale

Scale of the degree to which the subject/participant is satisfied with the amount of time he or she spends doing leisure activities with others.

Proposed 1.00 2019-06-19 09:20:47.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 4213