CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 201 - 225 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C56311 NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up computed score

The computed score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:38:49.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C20738 Patient-Reported Outcome Measurement Information System (PROMIS) - Guiltiness assessment past week scale

The scale which represents how often the participant felt guilty in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C58635 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Limb move very easy past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was very easily able to move his or her arms or legs, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C20818 Patient-Reported Outcome Measurement Information System (PROMIS) - Awake early time lack sleep assessment past week scale

The scale which represents how often the participant woke up too early and could not fall back asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C56342 NIH Toolbox Cognitive - Picture sequence memory age 3 up computed score

The computed score for the NIHTB Picture Sequence Memory Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:05:50.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56292 NIH Toolbox Cognitive - Cognition early childhood composite age adjusted scale score

The age adjusted scale score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery

Supplemental - Highly Recommended 1.00 2017-06-09 09:54:24.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C58645 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Loneliness because health past 7 day scale

Scale over the past 7 days for the degree of loneliness that the subject/participant felt because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C58643 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joint stiffness daytime scale

Scale for the subject/participant's joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C20828 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep stress disturbance assessment past week scale

The scale which represents how often the Stress disturbed the participant's sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C56350 NIH Toolbox Cognitive - Oral reading recognition english age 7 up age adjusted scale score

The age adjusted scale score for the NIHTB Oral Reading Recognition ENG Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56300 NIH Toolbox Cognitive - Cognition total composite fully adjusted scale score

The total composite fully adjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:56:45.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C58677 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Sad about health problem past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was sad about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C56284 NIH Toolbox Cognitive - Cognition fluid composite computed score

The computed score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery

Supplemental - Highly Recommended 1.00 2017-06-09 09:45:14.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C20692 Quality of Life - Helplessness assessment past week scale

The scale which represents how often the participant felt helpless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.

Supplemental - Highly Recommended 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C56282 NIH Toolbox Cognitive Cognition crystallized composite fully adjusted scale score

The fully adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:41:39.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56311 NIH Toolbox Cognitive - Flanker inhibitory control and attention age 3 up computed score

The computed score for the NIHTB Flanker Inhibitory Control and Attn Age 3+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:38:49.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C58685 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel sad because health past 7 day scale

Scale for the degree to which the subject/participant felt sad over the past 7 days because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C56292 NIH Toolbox Cognitive - Cognition early childhood composite age adjusted scale score

The age adjusted scale score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery

Supplemental - Highly Recommended 1.00 2017-06-09 09:54:24.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C20740 Patient-Reported Outcome Measurement Information System (PROMIS) - Fear assessment past week scale

The scale which represents how often the participant felt fearful in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-20 16:25:53.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C20700 Patient-Reported Outcome Measurement Information System (PROMIS) - Closeness other people trouble assessment past week scale

The scale which represents how often the participant had trouble feeling close to people in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression Sickle Cell Disease Sickle Cell Disease
C56290 NIH Toolbox Cognitive - Cognition early childhood composite computed score

The computed score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:51:41.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56321 NIH Toolbox Cognitive - List scoring working memory age 7 up age adjusted scale score

The age adjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56300 NIH Toolbox Cognitive - Cognition total composite fully adjusted scale score

The total composite fully adjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:56:45.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56297 NIH Toolbox Cognitive - Cognition total composition unadjusted scale score

The total composite unadjusted scale score for the Cognition field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:00:48.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C60620 Drug use history status

Status of the subject/participant's history of drug use.

Supplemental - Highly Recommended 1.00 2021-04-29 14:13:25.0 Behavioral History Short Form Sickle Cell Disease Sickle Cell Disease
Displaying 201 - 225 of 5231