CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 176 - 200 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58653 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58694 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain level torso past 7 day scale

Scale over the past 7 days of the subject/participant's pain level in his or her torso, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58688 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain free total past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was totally pain free, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58695 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain prevent activity past 7 day day count code

Code for the count of days over the past 7 days that the subject/participant was prevented by pain from engaging in activities, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58689 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode sudden severe past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had a sudden severe pain episode, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58652 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad stop activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had to stop what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form True Sickle Cell Disease Sickle Cell Disease
C58653 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad difficult finish activity past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she had difficulty finishing what he or she was doing, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form True Sickle Cell Disease Sickle Cell Disease
C58649 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad no activity entire day past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to engage in any activity for the entire day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form True Sickle Cell Disease Sickle Cell Disease
C58650 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain bad unable arise bed past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had pain so bad that he or she was unable to arise from bed, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form True Sickle Cell Disease Sickle Cell Disease
C58651 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain severe past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant had severe pain, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Core 1.00 2018-10-25 10:42:58.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Impact - Short Form True Sickle Cell Disease Sickle Cell Disease
C58655 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Lung damage medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has lung damage, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist True Sickle Cell Disease Sickle Cell Disease
C58656 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Kidney damage medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has kidney damage, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist True Sickle Cell Disease Sickle Cell Disease
C58657 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Retinopathy medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has retinopathy, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist True Sickle Cell Disease Sickle Cell Disease
C58658 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Hip shoulder damage due sickle cell medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has hip or shoulder damage due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist True Sickle Cell Disease Sickle Cell Disease
C58659 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Stroke medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has had a stroke, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist True Sickle Cell Disease Sickle Cell Disease
C58660 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Spleen remove damage due sickle cell indicate code

Code indicating whether the subject/participant's spleen has been removed or severely damaged due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist True Sickle Cell Disease Sickle Cell Disease
C58661 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Blood transfusion regular due sickle cell indicate code

Code indicating whether the subject/participant's receives regular blood transfusions due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist True Sickle Cell Disease Sickle Cell Disease
C58654 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Leg ulceration ever indicate code

Code indicating whether the subject/participant has ever had ulcerations on his or her leg or foot, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist True Sickle Cell Disease Sickle Cell Disease
C58662 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain medication daily due sickle cell indicate code

Code indicating whether the subject/participant's takes pain medication daily due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist True Sickle Cell Disease Sickle Cell Disease
C58668 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia most of night past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant had insomnia for most of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58699 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep want stay awake past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant fell asleep when he or she wanted to stay awake, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58669 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep easy past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant easily fell asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58700 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep difficulty past 7 day scale

Scale for the difficulty over the past 7 days that the subject/participant had falling asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58670 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep difficult past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant had difficulty falling asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C58701 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Return sleep unable after night awaken past 7 day scale

Scale for the frequency over the past 7 days that the subject/participant was unable to return to sleep after waking in the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
Displaying 176 - 200 of 5231

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