C13192 |
Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke status |
Were you ever told by a physician that you had a stroke?
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
Questionnaire for Verifying Stroke-Free Status (QVSFS) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13192 |
Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke status |
Were you ever told by a physician that you had a stroke?
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
Questionnaire for Verifying Stroke-Free Status (QVSFS) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13193 |
Questionnaire for Verifying Stroke Free Status (QVSFS) - TIA status |
Were you ever told by a physician that you had a TIA, ministroke, or transient ischemic attack?
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Questionnaire for Verifying Stroke-Free Status (QVSFS) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13193 |
Questionnaire for Verifying Stroke Free Status (QVSFS) - TIA status |
Were you ever told by a physician that you had a TIA, ministroke, or transient ischemic attack?
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
Questionnaire for Verifying Stroke-Free Status (QVSFS) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13193 |
Questionnaire for Verifying Stroke Free Status (QVSFS) - TIA status |
Were you ever told by a physician that you had a TIA, ministroke, or transient ischemic attack?
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
Questionnaire for Verifying Stroke-Free Status (QVSFS) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C10723 |
Echocardiogram completed indicator |
Whether an echocardiogram was performed on the participant/subject
|
Core |
3.00 |
2013-07-11 15:03:49.2 |
Echocardiogram |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13200 |
Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke result |
Whether patient is stroke free (all QVSFS items negative) or not stroke free (at least 1 QVSFS item positive)
|
Proposed |
3.00 |
2013-06-21 00:00:00.0 |
Questionnaire for Verifying Stroke-Free Status (QVSFS) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13200 |
Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke result |
Whether patient is stroke free (all QVSFS items negative) or not stroke free (at least 1 QVSFS item positive)
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
Questionnaire for Verifying Stroke-Free Status (QVSFS) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C13200 |
Questionnaire for Verifying Stroke Free Status (QVSFS) - stroke result |
Whether patient is stroke free (all QVSFS items negative) or not stroke free (at least 1 QVSFS item positive)
|
Supplemental |
3.00 |
2013-06-21 00:00:00.0 |
Questionnaire for Verifying Stroke-Free Status (QVSFS) |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14455 |
Cerebellar or coordination assessment abnormality present status |
Whether the cerebellar/coordination assessment found abnormalities
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C11109 |
Pulmonary function forced vital capacity (FVC) flow volume crossed x-axis indicator |
Whether the Forced Vital Capacity (FVC) flow volume crossed the x-axis
|
Supplemental |
3.00 |
2013-07-22 16:57:17.79 |
Pulmonary Function Test |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14432 |
Mental status exam abnormality indicator |
Whether the mental assessment showed abnormal results
|
Proposed |
1.00 |
2012-10-05 00:00:00.0 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14441 |
Muscle bulk assessment abnormality indicator |
Whether the muscle bulk assessment found any abnormalities
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14447 |
Muscle strength abnormality assessment indicator |
Whether the muscle strength assessment found any abnormalities
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14444 |
Muscle tone assessment abnormality indicator |
Whether the muscle tone assessment found any abnormalities
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
Neurological Exam |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14444 |
Muscle tone assessment abnormality indicator |
Whether the muscle tone assessment found any abnormalities
|
Supplemental |
3.00 |
2013-08-28 16:08:00.453 |
Miscellaneous Sickle Cell-related CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14444 |
Muscle tone assessment abnormality indicator |
Whether the muscle tone assessment found any abnormalities
|
Supplemental |
3.00 |
2013-08-28 16:08:00.453 |
Selected Debaun CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14125 |
Seizure unclassifiable classification type |
Whether the participant/subject has experienced an unclassifiable seizure that is neither focal or generalized.
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
Classification of Seizures |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C60423 |
Transfusion sickle cell disease treatment recent receive indicator |
Whether the participant/subject received recent transfusion for treatment of sickle cell disease.
|
Supplemental |
1.00 |
2017-01-23 15:46:25.0 |
Apheresis |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14964 |
Sedation used indicator |
Whether the participant/subject was administered any sedation
|
Supplemental |
3.00 |
2013-07-14 19:48:50.273 |
Miscellaneous Sickle Cell-related CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14964 |
Sedation used indicator |
Whether the participant/subject was administered any sedation
|
Supplemental |
3.00 |
2013-07-14 19:48:50.273 |
PhenX CDEs |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14964 |
Sedation used indicator |
Whether the participant/subject was administered any sedation
|
Supplemental |
3.00 |
2013-07-14 19:48:50.273 |
Silent Cerebral Infarct |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14964 |
Sedation used indicator |
Whether the participant/subject was administered any sedation
|
Supplemental ? Highly Recommended |
3.00 |
2013-07-14 19:48:50.273 |
Brain Magnetic Resonance Imaging (MRI) |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C14116 |
Learning disability or attention deficit diagnosis indicator |
Whether the participant/subject was ever given formal diagnosis of any learning disability or diagnosed with ADD/ADHD (Attention Deficit Disorder/Attention Deficit Hyperactivity Disorder)
|
Proposed |
3.00 |
2013-08-28 16:08:00.453 |
Intake Medical History |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C12672 |
Surgical or therapeutic procedure ventilated indicator |
Whether the participant/subject was ventilated during the surgical or therapeutic procedure
|
Supplemental |
3.00 |
2013-07-24 11:36:20.083 |
Surgical History |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|