CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 201 - 225 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59290 Receive help obtain special therapy child last 6 month indicate code

Code indicating whether help obtaining special therapy for the child was received in the last 6 months

Proposed 1.00 2019-03-29 09:26:29.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59287 Receive help obtain specialized medical equipment last 6 month indicate code

Code indicating whether help obtaining specialized medical equipment or devices was received in the last 6 months

Proposed 1.00 2019-03-29 09:26:29.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59077 Hepatomegaly indicate code

Code indicating whether hepatomegaly is exhibited by the patient.

Proposed 1.00 2019-01-11 14:22:12.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59077 Hepatomegaly indicate code

Code indicating whether hepatomegaly is exhibited by the patient.

Supplemental 1.00 2019-01-11 14:22:12.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59274 Child health care provider ask best choice care last 6 month indicate code

Code indicating whether in the last 6 months the child's health care provider(s) asked what the best choice of options was for the child

Proposed 1.00 2019-03-28 15:21:15.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59273 Child health care provider discuss option pro con last 6 month indicate code

Code indicating whether in the last 6 months the child's health care provider(s) discussed the pros and cons of multiple options for the child's care.

Proposed 1.00 2019-03-28 15:21:15.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59272 Child health care provider offer option last 6 month indicate code

Code indicating whether in the last 6 months the child's health care provider(s) offered multiple options for the child's care.

Proposed 1.00 2019-03-28 15:21:15.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C58776 Other clinical trial drug device investigational off-label past 3 month indicate code

Code indicating whether in the past 3 months the subject/participant participated in another clinical trial of an investigational or off-label use of a drug or device.

Proposed 1.00 2018-12-11 09:49:49.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C58915 Nonmicrobiologically defined infection code

Code indicating whether infection is nonmicrobiologically defined.

Proposed 1.00 2018-12-17 15:35:14.0 Infection Form (IFN) Sickle Cell Disease Sickle Cell Disease
C58915 Nonmicrobiologically defined infection code

Code indicating whether infection is nonmicrobiologically defined.

Supplemental 1.00 2018-12-17 15:35:14.0 Infection Form - Adapted from BMTCTN 15070 Sickle Cell Disease Sickle Cell Disease
C59088 Future research blood sample consent withdrawal code

Code indicating whether or not patient withdrew consent to provide optional blood samples for future research or ancillary studies

Proposed 1.00 2019-01-14 14:21:41.0 Withdrawal of Consent Form (WOC) Sickle Cell Disease Sickle Cell Disease
C59078 Pain right upper quadrant indicate code

Code indicating whether pain in the right upper quadrant indicative of abnormal liver function is exhibited by the patient.

Proposed 1.00 2019-01-11 14:24:51.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59078 Pain right upper quadrant indicate code

Code indicating whether pain in the right upper quadrant indicative of abnormal liver function is exhibited by the patient.

Supplemental 1.00 2019-01-11 14:24:51.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59090 Consent withdrawn provide study data code

Code indicating whether patient withdrew consent to provide data for the study

Proposed 1.00 2019-01-14 14:50:45.0 Withdrawal of Consent Form (WOC) Sickle Cell Disease Sickle Cell Disease
C59091 Urine sample research consent withdrawal code

Code indicating whether patient withdrew consent to provide optional urine samples for research or ancillary studies

Proposed 1.00 2019-01-14 14:55:10.0 Withdrawal of Consent Form (WOC) Sickle Cell Disease Sickle Cell Disease
C59087 Investigational study drug consent withdrawal code

Code indicating whether patient's consent to investigational study drug was withdrawn

Proposed 1.00 2019-01-14 14:17:21.0 Withdrawal of Consent Form (WOC) Sickle Cell Disease Sickle Cell Disease
C59326 Prescription medication obtain refill last 6 month indicate code

Code indicating whether prescription medications were obtained or refilled for the subject/participant in the last 6 months.

Proposed 1.00 2019-04-01 11:19:28.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59288 Obtain attempt special therapy child last 6 month indicate code

Code indicating whether special therapy was obtained or attempted to be obtained for the child in the last 6 months.

Proposed 1.00 2019-03-29 09:15:44.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59285 Obtain attempt specialized medical equipment child last 6 month indicate code

Code indicating whether specialized medical equipment or devices were obtained or attempted to be obtained for the child in the last 6 months.

Proposed 1.00 2019-03-29 09:15:44.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59602 Hemophilia indicator code

Code indicating whether subject/participant has hemophilia.

Proposed 1.00 2019-04-15 13:19:19.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C59299 Gender code

Code indicating whether subject/participant is male, female, unsure, or refused to answer.

Proposed 1.00 2019-03-29 12:26:21.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59299 Gender code

Code indicating whether subject/participant is male, female, unsure, or refused to answer.

Proposed 1.00 2019-03-29 12:26:21.0 PhenX Toolkit: Gender Data Collection Worksheet Sickle Cell Disease Sickle Cell Disease
C59603 Cancer chemotherapy four week code

Code indicating whether subject/participant received cancer chemotherapy in the past four weeks or anticipates such therapy in the next four weeks.

Proposed 1.00 2019-04-15 14:26:51.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C59296 Child have personal physician indicate code

Code indicating whether the child has a personal physician

Proposed 1.00 2019-03-29 10:08:55.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C59311 Child medical behavioral other health condition persist 3 month indicate code

Code indicating whether the child has any medical, behavioral, or other health conditions that have persisted for 3 months or longer

Proposed 1.00 2019-04-01 09:49:52.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
Displaying 201 - 225 of 5231