CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C18690 Imaging analysis software other text

The free-text field related to 'Imaging analysis software name' specifying other text. Name of the software used for data processing or analysis of the imaging study.

 Supplemental ? Highly Recommended 1.00 2014-05-27 13:34:46.0 Functional Magnetic Resonance Imaging (fMRI) False Sickle Cell Disease Sickle Cell Disease
C60480 Integrating viral vector copy number assessment type

Type of assessment(s) of vector copy number (VCN) performed for the integrating viral vector products.

 Supplemental 1.00 2021-04-22 13:12:48.0 Genotoxicity False Sickle Cell Disease Sickle Cell Disease
C58760 New pulmonary hypertension date

Indicate the date of the new episode of pulmonary hypertension.

 Proposed 1.00 2018-12-10 12:59:44.0 SCD Events of Special Interest Form (ESI) False Sickle Cell Disease Sickle Cell Disease
C54699 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit inactive public place code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting inactive in a public place (for example during a meeting or movie), as part of the Epworth Sleepiness Scale (ESS)

 Supplemental 1.00 2017-04-10 11:48:33.0 Epworth Sleepiness Scale (ESS) - Adult Version True Sickle Cell Disease Sickle Cell Disease
C59005 Reticulocyte most recent count value

Value of the patient's most recent reticulocyte count, in percent

 Proposed 1.00 2019-01-07 14:49:12.0 PhenX Toolkit: Reticulocyte Count False Sickle Cell Disease Sickle Cell Disease
C60694 Apheresis mobilization other agent prior collection time value

The value related to time prior to collection for administration of other agent for mobilization in apheresis.

 Exploratory 1.00 2021-05-10 12:12:04.0 Apheresis False Sickle Cell Disease Sickle Cell Disease
C59040 Mucositis toxicity grade

Grade of mucositis toxicity exhibited by the patient.

 Supplemental 1.00 2019-01-10 12:30:05.0 Toxicity Form False Sickle Cell Disease Sickle Cell Disease
C59085 Study procedure consent withdrawal code

Code indicating whether the patient withdrew consent to all study procedures

 Proposed 1.00 2019-01-14 11:38:34.0 Withdrawal of Consent Form (WOC) False Sickle Cell Disease Sickle Cell Disease
C60329 Echocardiogram right ventricle global function qualitative status

Status indicating the qualitative global function assessment of the subject/participant's right ventricle from echocardiogram.

 Supplemental 1.00 2021-03-02 13:11:19.0 Echocardiogram False Sickle Cell Disease Sickle Cell Disease
C57965 Laboratory procedure percent lymphocytes value

Value of percent lymphocytes.

 Supplemental 1.00 2018-01-22 11:03:02.0 Genotoxicity False Sickle Cell Disease Sickle Cell Disease
C56345 NIH Toolbox Cognitive - Picture sequence memory age 3 up national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the NIHTB Picture Sequence memory Age 3+ field of the NIH Toolbox Cognitive Battery.

 Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery False Sickle Cell Disease Sickle Cell Disease
C58776 Other clinical trial drug device investigational off-label past 3 month indicate code

Code indicating whether in the past 3 months the subject/participant participated in another clinical trial of an investigational or off-label use of a drug or device.

 Proposed 1.00 2018-12-11 09:49:49.0 Haplo Sickle Cell Enrollment Form: Segment A False Sickle Cell Disease Sickle Cell Disease
C60185 Ventilatory support mechanical invasive type

Type of invasive mechanical ventilatory support provided to the subject/participant.

 Supplemental 1.00 2021-02-24 12:11:03.0 Acute Chest Syndrome False Sickle Cell Disease Sickle Cell Disease
C60093 Reticulocyte count

Count of reticulocytes

 Exploratory 1.00 2021-01-14 13:06:05.0 Adhesion and Viscosity False Sickle Cell Disease Sickle Cell Disease
C56302 NIH Toolbox Cognitive - Picture vocabulary age 3 up computed score

The computed score for the NIHTB Picture Vocabulary Age 3+ field of the NIH Toolbox Cognitive Battery.

 Supplemental - Highly Recommended 1.00 2017-06-09 10:06:59.0 NIH Toolbox Cognitive Battery False Sickle Cell Disease Sickle Cell Disease
C60077 Neutropenia prominent indicator

Indicator of whether the neutropenia the subject/participant presents with is a prominent clinical feature.

 Supplemental 1.00 2020-09-03 15:35:46.0 Immune Function Form False Sickle Cell Disease Sickle Cell Disease
C56000 General note text

The free-field related to general notes.

 Exploratory 1.00 2016-12-15 16:03:39.0 Echocardiogram False Sickle Cell Disease Sickle Cell Disease
C60624 Immunoglobulin M measurement

Measurement, in milligrams per deciliter (mg/dL), of serum Immunoglobulin M (IgM)

 Core 1.00 2021-04-29 14:32:19.0 Immune Reconstitution Core False Sickle Cell Disease Sickle Cell Disease
C21910 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest item score

Item score calculated as a number of correct trials, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

 Supplemental 1.00 2016-06-06 13:40:26.0 Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) True Sickle Cell Disease Sickle Cell Disease
C55777 Imaging inter peri ictal headache since end duration

The duration of time since the end of the subject's last inter-ictal or peri-ictal headahe.

 Supplemental 1.00 2017-05-31 12:23:34.0 PhenX CDEs False Sickle Cell Disease Sickle Cell Disease
C56295 NIH Toolbox Cognitive - Cognition total composition raw score

The total composite raw score for the Cognition field of the NIH Toolbox Cognitive Battery.

 Supplemental - Highly Recommended 1.00 2017-06-09 09:58:36.0 NIH Toolbox Cognitive Battery False Sickle Cell Disease Sickle Cell Disease
C59660 Ability do fun thing outside home satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her ability to do things for fun outside his or her home

 Proposed 1.00 2019-06-19 10:43:31.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities - Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C60209 Medical history for sickle cell condition diagnosis year date

Year part of the date of diagnosis of the subject/participant's condition selected in "Medical history for sickle cell condition type".

 Core 1.00 2021-02-24 15:43:24.0 Medical History Core False Sickle Cell Disease Sickle Cell Disease
C56570 PROMIS - Life Satisfaction life outstanding scale

Scale related to an individual feeling as if his/her life was outstanding in the past 4 weeks, as part of the PROMIS Life Satisfaction

 Proposed 1.00 2017-06-15 13:16:18.0 PROMIS Pediatric Item Bank v1.0 - Life Satisfaction- Short Form 8a False Sickle Cell Disease Sickle Cell Disease
C20732 Quality of Life - Hopelessness assessment past week scale

The scale which represents how often the participant felt hopeless in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Depression.

 Supplemental - Highly Recommended 1.00 2015-05-20 14:29:32.0 PROMIS Item Bank v1.0 - Emotional Distress - Depression False Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 5231

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