CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 5231
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59588 Painkiller use type name

Name or type of painkiller used by the subject/participant

Proposed 1.00 2019-04-12 14:06:32.0 PhenX Toolkit: Substances - Lifetime Use Sickle Cell Disease Sickle Cell Disease
C60092 Hemoglobin low value

Value of the lowest measurement of the subject/participant's hemoglobin.

Core 1.00 2021-01-14 13:00:29.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C59305 Child personal physician show respect last 6 month frequency scale

Scale for the frequency over the past 6 months that the child's personal physician showed respect for what the child's caregiver had to say

Proposed 1.00 2019-03-29 10:22:22.0 PhenX Toolkit: Quality of Care - Children Sickle Cell Disease Sickle Cell Disease
C60576 Transfusion lifetime total estimate count

Count of the estimated total number of transfusions received by the subject/participant in his or her lifetime.

Core 1.00 2021-04-28 14:21:56.0 Transfusion History Sickle Cell Disease Sickle Cell Disease
C54693 PROMIS - Global Health carry out physical activity scale

Scale related to an individual's rating of his/her ability to carry out everyday physical activities such as walking, climbing stairs, carrying groceries, or moving a chair, as part of the PROMIS Global Health

Core 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C59676 Ability perform daily routine satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her ability to perform his or her daily routines

Proposed 1.00 2019-06-19 11:51:55.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities - Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56283 NIH Toolbox Cognitive - Cognition fluid composite raw score

The raw score for the Cognition Fluid Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:42:54.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59158 Difficulty starting things seven days status

Status indicating whether the participant has had trouble starting things in the past seven (7) days due to being tired

Proposed 1.00 2019-01-30 11:47:06.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C58929 Infection severity code

Code indicating the severity of the infection.

Supplemental 1.00 2018-12-19 13:25:56.0 Infection Form - Adapted from BMTCTN 15070 Sickle Cell Disease Sickle Cell Disease
C59390 Child problem strength coordination result stroke describe text

Text field for describing other problems with strength or coordination exhibited by the respondent's child as a result of his or her stroke

Proposed 1.00 2019-04-02 15:50:09.0 PhenX Toolkit: Neurology, QOL Health Services Recovery and Recurrence Questionnaire - Pediatric Sickle Cell Disease Sickle Cell Disease
C56439 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 percentile rank value

The percentile rank the subject placed in with respect to Full Scale IQ for two subtests (Vocabulary and Matrix Reasoning), as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

Proposed 1.00 2017-06-12 13:04:39.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C58744 Bilirubin direct measurement sample date

Date on which sample was taken for direct measurement of bilirubin.

Proposed 1.00 2018-12-07 13:22:08.0 Physical Exam Form - BMT CTN 1507 Sickle Cell Disease Sickle Cell Disease
C60589 Hydroxyurea stop duration

Duration of time in months for which the subject/participant's hydroxyurea treatment has been stopped.

Core 1.00 2021-04-28 15:06:07.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C59257 Family activity difficulty grade

Grade of difficulty doing family activities

Proposed 1.00 2019-03-28 11:09:43.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C60607 Priapism erection duration text

Text field for capturing the value and units of the duration of erection reported by the subject/participant.

Core 1.00 2021-04-29 13:27:59.0 Priapism Core Sickle Cell Disease Sickle Cell Disease
C20852 Patient-Reported Outcome Measurement Information System (PROMIS) - Trouble stay awake during day past week scale

The scale which represents how often the participant had trouble staying awake during the day in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment Sickle Cell Disease Sickle Cell Disease
C56411 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Vocabulary T score

The T score converted from the raw score that the subject received on the Vocabulary subtest of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) .

Supplemental 1.00 2017-06-12 11:23:35.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C58723 Red blood cell transfusion therapy information not available specify text

Text specifying why information about packed red blood cell (RBC) transfusion therapy was not available.

Proposed 1.00 2018-12-06 10:36:51.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C19797 Medical history endocrine early puberty indicator

Indicator of history of early puberty

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59125 Match score calculated recipient to donor HLA locus A text

Text field for recording the recipient-to-donor calculated match score for HLA (Human Leukocyte Antigen) locus A.

Proposed 1.00 2019-01-22 11:42:41.0 HLA Form - 1507 Sickle Cell Disease Sickle Cell Disease
C60544 Gene editing off target site dominant location

Location(s) of the dominant off-target gene editing site(s).

Supplemental 1.00 2021-04-23 13:04:33.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C60635 Tissue monitoring type

Type of tissue sampled for monitoring

Core 1.00 2021-04-29 16:24:47.0 Gene Product Follow-Up Sickle Cell Disease Sickle Cell Disease
C58938 Specify other agent type

Type of agent specified if agent is not listed.

Proposed 1.00 2019-01-03 15:11:51.0 Infection Form (IFN) Sickle Cell Disease Sickle Cell Disease
C20768 Quality of Life - Anxiety assistance assessment past week scale

The scale which represents how often the participant felt like help was needed for his anxiety in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS) and Neuro-QOL Anxiety.

Supplemental - Highly Recommended 1.00 2015-05-20 17:42:14.0 PROMIS Item Bank v1.0 - Emotional Distress - Anxiety Sickle Cell Disease Sickle Cell Disease
C54614 Brief Test of Executive Function Second Edition (BRIEF 2) - Task monitor total raw scale score

Total score of the raw scale for the task-monitor function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2)

Supplemental 1.00 2017-03-22 09:57:02.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 5231