C19776 |
Medical history sleep pulmonary assessment date |
Date of sleep study completed
|
Proposed |
1.00 |
2015-02-05 00:00:00.0 |
Intake Medical History |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59043 |
Chronic kidney disease toxicity grade |
Grade of chronic kidney disease toxicity exhibited by the patient.
|
Proposed |
1.00 |
2019-01-10 12:45:24.0 |
Toxicity Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59671 |
Ability meet needs family satisfied scale |
Scale of the degree to which the subject/participant is satisfied with his or her ability to meet the needs of his or her family
|
Proposed |
1.00 |
2019-06-19 11:40:28.0 |
PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58733 |
Oxygen saturation measurement date |
Date on which the measurement of the subject/participant's oxygen saturation level was obtained.
|
Proposed |
1.00 |
2018-12-06 11:52:29.0 |
Haplo Sickle Cell Enrollment Form: Segment A |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59752 |
Change lightbulb overhead difficulty scale |
Scale of the difficulty the subject/participant has in changing a lightbulb above his or her head
|
Proposed |
1.00 |
2019-06-20 11:50:39.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58837 |
Prophylaxis GVHD given during assessment period code |
Code for whether prophylaxis for GVHD (Graft Versus Host Disease) was given to the subject/participant during the assessment period.
|
Proposed |
1.00 |
2018-12-12 15:44:33.0 |
Follow Up/Chronic GVHD Form |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59577 |
Cigarette smoking lifetime ever indicate code |
Code indicating whether the subject/participant has, in his or her lifetime, ever tried cigarette smoking.
|
Proposed |
1.00 |
2019-04-12 11:10:40.0 |
PhenX Toolkit: Cigarette Smoking Status - Adolescent |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58630 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joints stiff when awaken past 7 day frequency scale |
Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff when he or she awakened, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-24 15:27:18.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59752 |
Change lightbulb overhead difficulty scale |
Scale of the difficulty the subject/participant has in changing a lightbulb above his or her head
|
Proposed |
1.00 |
2019-06-20 11:50:39.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58791 |
Donor meet institution protocol criteria indicate code |
Code indicating whether the donor meets institutional and protocol criteria for donation
|
Proposed |
1.00 |
2018-12-11 13:02:29.0 |
Haplo Sickle Cell Enrollment Form: Segment A |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59877 |
Limit social activity due fatigue past 7 day frequency scale |
Scale of the frequency over the past 7 days that the subject/participant had to limit his or her social activities due to fatigue
|
Proposed |
1.00 |
2019-06-24 14:26:55.0 |
PROMIS Item Bank v1.0 - Fatigue Calibrated Items |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59446 |
Feel life worth living past week frequency scale |
Scale of the frequency over the past week that the subject/participant felt life is worth living
|
Proposed |
1.00 |
2019-04-04 12:48:29.0 |
PhenX Toolkit: Functionality After Stroke |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56551 |
PROMIS - Cognitive Function people told me trouble remember information scale |
Scale related to how often an individual has had other people tell him/her that he/she seemed to have trouble remembering information in the past 7 days, as part of the PROMIS Cognitive Function
|
Proposed |
1.00 |
2017-06-15 10:01:13.0 |
PROMIS Item Bank v2.0 - Cognitive Function |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59636 |
Pain feel deep past 7 day scale |
Scale of the degree to which the subject/participant's pain presented with a deep quality over the past 7 days.
|
Proposed |
1.00 |
2019-06-18 14:08:12.0 |
PROMIS Scale v2.0 - Nociceptive Pain Quality 5a |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58700 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep difficulty past 7 day scale |
Scale for the difficulty over the past 7 days that the subject/participant had falling asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-26 15:42:48.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact Item Bank |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59712 |
Carry laundry basket up stairs difficulty scale |
Scale of the difficulty the subject/participant has in carrying a laundry basket up a flight of stairs
|
Proposed |
1.00 |
2019-06-20 10:06:21.0 |
PROMIS Item Bank v2.0 - Physical Function |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59356 |
Primary health care provider explain clearly last 12 month frequency status |
Status of the frequency that the subject/participant's primary health care provider explained things clearly in the last 12 months
|
Proposed |
1.00 |
2019-04-01 15:17:52.0 |
PhenX Toolkit: Quality of Care - Adults |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56445 |
PROMIS - Pain Behavior when pain move extreme slow scale |
Scale related to an individual feeling as if when he/she was in pain he/she moved extremely slowly in the past 7 days, as part of the PROMIS Pain Behavior
|
Proposed |
1.00 |
2017-06-12 12:59:11.0 |
PROMIS Item Bank v1.1 - Pain Behavior |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59544 |
Medicare insurance coverage code |
Code indicating whether the subject/participant is covered by insurance provided through Medicare
|
Proposed |
1.00 |
2019-04-11 10:16:19.0 |
PhenX Toolkit: Health Insurance Coverage |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C58663 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code |
Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).
|
Proposed |
1.00 |
2018-10-25 16:53:20.0 |
Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure |
True |
Sickle Cell Disease |
Sickle Cell Disease |
|
C55696 |
PROMIS - Dyspnea Functional limitations sing hum scale |
Scale related to an individual being able to sing or hum, as part of the PROMIS Dyspnea Functional Limitations
|
Proposed |
1.00 |
2017-05-24 10:00:38.0 |
PROMIS Item Bank v1.0 - Dyspnea Functional Limitations |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59228 |
Able rely friends past 7 day frequency code |
Code for the frequency over the past 7 days that the subject/participant was able to rely on his or her friends
|
Proposed |
1.00 |
2019-03-27 13:55:37.0 |
PhenX Toolkit: Quality of Life - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C59409 |
Child stroke subsequent clot clinical symptom new duration range |
Range of duration of new symptoms presented by the respondent's child at the time of his or her most recent stroke or other clot.
|
Proposed |
1.00 |
2019-04-03 12:55:50.0 |
PhenX Toolkit: Recovery and Recurrence Questionnaire - Pediatric |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C56543 |
PROMIS - Cognitive Function trouble remember new information scale |
Scale related to how often an individual has had trouble remembering new information, like phone numbers or simple instructions in they past 7 days, as part of the PROMIS Cognitive Function
|
Proposed |
1.00 |
2017-06-15 10:01:13.0 |
PROMIS Item Bank v2.0 - Cognitive Function |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|
C54688 |
PROMIS - Global Health quality of life scale |
Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health
|
Proposed |
1.00 |
2017-04-07 15:34:25.0 |
PROMIS Item Bank v1.2 - Global Health |
False |
Sickle Cell Disease |
Sickle Cell Disease |
|