CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 4766
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The search results below can be downloaded by clicking the checkboxes on the far right side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C21500 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span sequencing subtest number series text

Series of numbers, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Sequencing subtest

 Supplemental 1.00 2015-07-22 11:32:44.0 PhenX CDEs False Sickle Cell Disease Sickle Cell Disease
C56290 NIH Toolbox Cognitive - Cognition early childhood composite computed score

The computed score for the Cognition Early Childhood Composite field of the NIH Toolbox Cognitive Battery.

 Supplemental - Highly Recommended 1.00 2017-06-09 09:51:41.0 NIH Toolbox Cognitive Battery False Sickle Cell Disease Sickle Cell Disease
C56575 PROMIS - Meaning and Purpose can reach goal scale

Scale related to an individual feeling he/she can reach his/her goals in life, as part of the PROMIS Meaning and Purpose

 Proposed 1.00 2017-06-15 13:33:08.0 PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose- Short Form 8a False Sickle Cell Disease Sickle Cell Disease
C59357 Primary health care provider listen carefully last 12 month frequency status

Status of the frequency that the subject/participant's primary health care provider listened carefully in the last 12 months

 Proposed 1.00 2019-04-01 15:17:52.0 PhenX Toolkit: Quality of Care - Adults False Sickle Cell Disease Sickle Cell Disease
C59799 Run come complete stop difficulty scale

Scale of the difficulty the subject/participant has in coming to a complete stop while running

 Supplemental 1.00 2019-06-21 11:16:45.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C56443 PROMIS - Pain Behavior when pain lie down scale

Scale related to an individual feeling as if when he/she was in pain he/she would lie down in the past 7 days, as part of the PROMIS Pain Behavior

 Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior False Sickle Cell Disease Sickle Cell Disease
C59066 Hypertension grade

Grade of hypertension exhibited by the patient.

 Supplemental 1.00 2019-01-11 11:14:30.0 Toxicity Form False Sickle Cell Disease Sickle Cell Disease
C18714 Imaging radio frequency coil channel other text

The free-text field related to 'Imaging radio frequency coil channel count' specifying other text. Number of the coil channels in the radio frequency (RF) coil used for the imaging scan

 Core 1.00 2014-05-27 13:34:46.0 Brain Magnetic Resonance Imaging (MRI) False Sickle Cell Disease Sickle Cell Disease
C59759 Lift 1 pound half kilogram shoulder level straight elbow difficulty scale

Scale of the difficulty the subject/participant has in lifting one pound / 0.5 kilogram to shoulder level while keeping his or her elbow straight

 Supplemental 1.00 2019-06-20 12:09:37.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C59325 Health plan rating scale

Scale for rating the subject/participant's health plan

 Proposed 1.00 2019-03-28 15:33:42.0 PhenX Toolkit: Quality of Care - Children False Sickle Cell Disease Sickle Cell Disease
C21117 Subject name

Name of subject/participant.

 Supplemental 1.00 2015-06-12 15:16:39.0 Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) False Sickle Cell Disease Sickle Cell Disease
C59933 Fatigue interfere social activity past 7 day extent scale

Scale of the extent over the past 7 days that the subject/participant's fatigue interfered with his or her social activities

 Core 1.00 2019-06-26 10:54:08.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C58634 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable move because joint stiff daytime past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

 Supplemental - Highly Recommended 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Item Bank True Sickle Cell Disease Sickle Cell Disease
C55693 PROMIS - Dyspnea Functional limitations moderate intensity leisure scale

Scale related to an individual being able to do a moderate-intensity leisure activity (bicycling on level terrain, etc.), as part of the PROMIS Dyspnea Functional Limitations

 Supplemental 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations False Sickle Cell Disease Sickle Cell Disease
C59177 Cancer chemotherapy past or next four weeks indicate code

Code indicating whether the subject/participant has had cancer chemotherapy in the past four weeks or anticipates having it in the next four weeks.

 Proposed 1.00 2019-03-26 12:35:43.0 PhenX Toolkit: Aspartate Aminotransferase level False Sickle Cell Disease Sickle Cell Disease
C58926 Infection site code

Code indicating the site of infection.

 Supplemental 1.00 2018-12-17 16:10:26.0 Infection Form - Adapted from BMTCTN 15070 False Sickle Cell Disease Sickle Cell Disease
C60308 Echocardiogram left atrium volume body surface area index value

Value in milliliters per square meter of the volume of the left atrium (LA), assessed by echocardiogram, divided by the subject/participant's body surface area.

 Core 1.00 2021-03-04 13:48:28.0 Echocardiogram False Sickle Cell Disease Sickle Cell Disease
C59017 FEV1/FVC ratio percent predict value

Ratio of FEV1 (forced expiratory volume 1 second) divided by FVC (forced vital capacity) expressed as a percentage of the predicted FEV1/FVC ratio

 Proposed 1.00 2019-01-08 11:50:57.0 Physical Exam Form - BMT CTN 1507 False Sickle Cell Disease Sickle Cell Disease
C59719 Brush teeth difficulty scale

Scale of the difficulty the subject/participant has in brushing his or her teeth

 Supplemental 1.00 2019-06-20 10:21:45.0 PROMIS Item Bank v2.0 - Physical Function True Sickle Cell Disease Sickle Cell Disease
C59275 Child health care rating last 6 month scale

Scale for rating the child's health care over the last 6 months.

 Proposed 1.00 2019-03-28 15:33:42.0 PhenX Toolkit: Quality of Care - Children False Sickle Cell Disease Sickle Cell Disease
C59893 Feel listless past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant felt listless

 Core 1.00 2019-06-25 10:38:21.0 PROMIS Item Bank v1.0 - Fatigue - Calibrated Items True Sickle Cell Disease Sickle Cell Disease
C60164 Oxygen saturation 2 percent decrease room air from baseline indicator

Indicator of whether the subject/participants oxygen saturation (SpO2) in room air decreased by 2% percent or more from baseline oximetry measurement.

 Core 1.00 2021-02-23 16:32:02.0 Acute Chest Syndrome False Sickle Cell Disease Sickle Cell Disease
C18666 Body system other text

The free-text field related to 'Body system category' specifying other text. Category or grouping used in the comprehensive assessment of a participant/subject, which includes a subjective history taking component as well as an objective based structured

 Supplemental 1.00 2014-05-27 13:34:46.0 Selected Debaun CDEs False Sickle Cell Disease Sickle Cell Disease
C58743 Direct bilirubin institutional upper limit normal age value

Value of the institutional upper limit of normal (ULN) for the subject/participant's age for bilirubin measured directly.

 Proposed 1.00 2018-12-07 00:00:00.0 Haplo Sickle Cell Enrollment Form: Segment A False Sickle Cell Disease Sickle Cell Disease
C60395 Laboratory procedure red blood cell count

The red blood cell count.

 Exploratory 1.00 2021-04-04 23:41:57.0 Adhesion and Viscosity False Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 4766

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