CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C20849 Patient-Reported Outcome Measurement Information System (PROMIS) - Emotional control difficulty poor sleep past week scale

The scale which represents how often the participant had a hard time controlling his emotions because of poor sleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment Sickle Cell Disease Sickle Cell Disease
C59081 Initiation conditioning regimen date

Date indicating the initiation of conditioning regimen

Proposed 1.00 2019-01-14 10:23:24.0 Transplant Form (TXP) Sickle Cell Disease Sickle Cell Disease
C59111 Hemolysis grade

Grade of hemolysis exhibited by the patient.

Proposed 1.00 2019-01-16 11:56:34.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C58681 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Feel hopeful health past 7 day scale

Scale for the degree of hopefulness the subject/participant felt over the past 7 days about his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C58948 Etiology skin abnormality infection indicate code

Code indicating whether the etiology of the skin abnormality was determined to be an infection.

Proposed 1.00 2019-01-04 13:57:59.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
C59938 Feel fatigue past 7 day extent scale

Scale of the extent over the past 7 days to which the subject/participant felt fatigued

Proposed 1.00 2019-06-26 11:27:08.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59074 Bilirubin toxicity grade

Grade of bilirubin toxicity exhibited by the patient.

Proposed 1.00 2019-01-11 13:51:29.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C56463 PROMIS - Pain Behavior when pain frown scale

Scale related to the individual feeling as if when he/she was in pain he/she frowned in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C55724 PROMIS - Self Efficacy managing emotions manage anxiety telling others scale

Scale related to an individual being able to manage his/her anxiety about telling others he/she have health problems, as part of the PROMIS Self-Efficacy Managing Emotions

Proposed 1.00 2017-05-25 13:38:58.0 PROMIS Item Bank v1.0 - Self-Efficacy for Managing Emotions Sickle Cell Disease Sickle Cell Disease
C58858 Bilirubin total measurement

Measurement in milligrams per deciliter of total bilirubin

Proposed 1.00 2018-12-14 12:31:12.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59773 Open tight jar difficulty scale

Scale of the difficulty the subject/participant has in opening a tightly lidded jar

Proposed 1.00 2019-06-21 10:09:09.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C58717 History pain crisis sickle related complication over two per year prior enrollment indicate code

Code indicating whether the subject/participant has a history of three or more vaso-occlusive pain crises per year prior to enrollment despite supportive care; or painful episodes related to priapism, osteonecrosis, or any sickle-related complication.

Proposed 1.00 2018-12-06 10:06:28.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C54842 PROMIS - Dyspnea severity talk while walk scale

Scale related to the individual being able to talk while walking, as part of the PROMIS Dyspnea Severity

Proposed 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
C59036 Eye symptom score

Score indicating the severity of eye symptom as it relates to chronic GVHD.

Proposed 1.00 2019-01-09 14:28:06.0 Chronic GVHD Provider Survey (PCG) Sickle Cell Disease Sickle Cell Disease
C20719 Patient-Reported Outcome Measurement Information System (PROMIS) - Grouchiness assessment past week scale

The scale which represents how often the participant was grouchy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-20 14:40:56.0 PROMIS Item Bank v1.1 - Anger Sickle Cell Disease Sickle Cell Disease
C58614 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Want be alone because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant wanted to be alone because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C58812 Hospitalization indicate code

Code indicating whether the subject/participant has been hospitalized

Proposed 1.00 2018-12-12 12:53:51.0 Follow Up Status Form - 1507 Sickle Cell Disease Sickle Cell Disease
C59773 Open tight jar difficulty scale

Scale of the difficulty the subject/participant has in opening a tightly lidded jar

Proposed 1.00 2019-06-21 10:09:09.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C19772 Medical history pulmonary function test assessment indicator

Indicator of pulmonary function tests completed

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C58955 Etiology upper GI abnormality total parenteral nutrition indicate code

Code indicating whether the etiology of the upper GI (gastrointestinal tract) abnormality was determined to be TPN (total parenteral nutrition).

Proposed 1.00 2019-01-04 14:24:15.0 Acute GVHD Form Sickle Cell Disease Sickle Cell Disease
C59898 Able do usual activity past 7 day extent scale

Scale over the past 7 days of the extent to which the subject/participant was able to do his or her usual activities

Proposed 1.00 2019-06-25 10:52:58.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C56462 PROMIS - Pain Behavior when pain quiet withdrawn scale

Scale related to the individual feeling as if when he/she was in pain he/she became quiet and withdrawn in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C59652 Ability do things friends satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her ability to do things for friends

Proposed 1.00 2019-06-19 10:19:18.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58914 In vivo anti T-lymphocyte monoclonal antibody therapy chronic GVHD indicate code

Code indicating whether in vivo anti T-lymphocyte monoclonal antibody therapy was used to treat chronic GVHD (graft-versus-host disease)

Proposed 1.00 2018-12-17 12:03:21.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59733 Change bulb table lamp difficulty scale

Scale of the difficulty the subject/participant has in changing the lightbulb in a table lamp

Proposed 1.00 2019-06-20 11:05:30.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 4213