CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59145 Protocol deviation violation require additional training CAPA specify text

Text specifying the type of re-training or Corrective Action Preventive Action (CAPA) needed for the protocol deviation or violation

Proposed 1.00 2019-01-29 12:48:39.0 Protocol Deviation/Violation Review Form (PDR) Sickle Cell Disease Sickle Cell Disease
C59173 Seven day worst pain intensity status

Status indicating how intense pain was at its worse during the past seven days

Proposed 1.00 2019-01-31 16:21:32.0 PROMIS Item Bank v. 1.0 - Pain Intensity Scale Sickle Cell Disease Sickle Cell Disease
C59817 Dance energetic 1 hour difficulty scale

Scale of the difficulty the subject/participant has in dancing energetically for 1 hour

Proposed 1.00 2019-06-21 12:03:48.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59258 Work difficulty grade

Grade of difficulty doing usual work including work at home

Proposed 1.00 2019-03-28 11:09:43.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C58676 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Depression about health problem past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was depressed about his or her health problems, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C59467 Difficult continue stand without lose balance past 2 week scale

Scale of the difficulty the subject/participant had over the past 2 weeks to continue standing without losing his or her balance

Proposed 1.00 2019-04-04 15:25:21.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C58619 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Slow down because health past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant felt slowed down because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C59059 Cardiac arrhythmia grade

Grade of cardiac arrhythmia exhibited by the patient.

Proposed 1.00 2019-01-11 10:41:25.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59652 Ability do things friends satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her ability to do things for friends

Proposed 1.00 2019-06-19 10:19:18.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59173 Seven day worst pain intensity status

Status indicating how intense pain was at its worse during the past seven days

Proposed 1.00 2019-01-31 16:21:32.0 PROMIS Item Bank v1.0 (PRO) Sickle Cell Disease Sickle Cell Disease
C59376 Emergency room longest wait sickle cell pain treatment last 12 month duration range

Range of the duration of the longest wait in the past 12 months that the subject/participant experienced at the emergency room waiting for treatment for sickle cell pain

Proposed 1.00 2019-04-02 11:00:08.0 PhenX Toolkit: Quality of Care - Adults Sickle Cell Disease Sickle Cell Disease
C59121 Constipation grade

Grade of constipation exhibited by the patient

Proposed 1.00 2019-01-17 07:16:45.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C58581 Human leukocyte antigen typing gene locus code

Code identifying the gene locus for the human leukocyte antigen (HLA) being typed.

Proposed 1.00 2018-10-23 11:25:56.0 HLA Form - 1507 Sickle Cell Disease Sickle Cell Disease
C57963 Laboratory procedure total white blood cell value

Total white blood cell count value.

Proposed 1.00 2018-01-22 11:03:02.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C59247 Feel hopeless past 7 day frequency grade

Grade of frequency over the past 7 days that the subject/participant felt hopeless

Proposed 1.00 2019-03-28 10:10:17.0 PhenX Toolkit: Quality of Life - Adult Sickle Cell Disease Sickle Cell Disease
C54812 PROMIS - Dyspnea severity put on sock stocking scale

Scale related to the individual being able to put on socks or stockings, as part of the PROMIS Dyspnea Severity

Proposed 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
C56576 PROMIS - Meaning and Purpose life filled meaning scale

Scale related to an individual feeling as if his/her life is filled with meaning, as part of the PROMIS Meaning and Purpose

Proposed 1.00 2017-06-15 13:33:08.0 PROMIS Pediatric Item Bank v1.0 - Meaning and Purpose-Short Form 4a Sickle Cell Disease Sickle Cell Disease
C59104 Urticaria grade

Grade of the patient's urticaria

Proposed 1.00 2019-01-15 14:41:05.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59067 Dyspnea grade

Grade of dyspnea exhibited by the patient.

Proposed 1.00 2019-01-11 11:28:38.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59935 Fatigue make less effective at home past 7 day scale

Scale over the past 7 days of whether the subject/participant's fatigue made him or her less effective at home

Proposed 1.00 2019-06-26 10:59:11.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58804 Red blood cell transfusion most recent date

Date of the subject/participant's most recent RBC (red blood cell) transfusion

Proposed 1.00 2018-12-12 12:34:37.0 Physical Exam Form - 1507 Sickle Cell Disease Sickle Cell Disease
C56502 PROMIS - Pain Interference irritable because pain scale

Scale related to how irritable an individual felt because of pain in the past 7 days, as part of the PROMIS Pain Interference

Proposed 1.00 2017-06-14 09:47:29.0 PROMIS Item Bank v1.1 - Pain Interference Sickle Cell Disease Sickle Cell Disease
C59865 Fatigue interfere social activity past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant's fatigue interfered with his or her social activities

Proposed 1.00 2019-06-24 13:38:50.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C55666 PROMIS - Dyspnea Functional limitations walk 50 step on flat ground scale

Scale related to an individual being able to walk 50 steps/paces on flat ground at a normal speed without stopping, as part of the PROMIS Dyspnea Functional Limitations

Proposed 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
C58930 Specific other infection type

The specific type of infection if not otherwise listed.

Proposed 1.00 2018-12-19 13:34:53.0 Infection Form (IFN) Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 4213