CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C19776 Medical history sleep pulmonary assessment date

Date of sleep study completed

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C59043 Chronic kidney disease toxicity grade

Grade of chronic kidney disease toxicity exhibited by the patient.

Proposed 1.00 2019-01-10 12:45:24.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59671 Ability meet needs family satisfied scale

Scale of the degree to which the subject/participant is satisfied with his or her ability to meet the needs of his or her family

Proposed 1.00 2019-06-19 11:40:28.0 PROMIS Item Bank v2.0 - Satisfaction with Social Roles and Activities Calibrated Items Sickle Cell Disease Sickle Cell Disease
C58733 Oxygen saturation measurement date

Date on which the measurement of the subject/participant's oxygen saturation level was obtained.

Proposed 1.00 2018-12-06 11:52:29.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59752 Change lightbulb overhead difficulty scale

Scale of the difficulty the subject/participant has in changing a lightbulb above his or her head

Proposed 1.00 2019-06-20 11:50:39.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C58837 Prophylaxis GVHD given during assessment period code

Code for whether prophylaxis for GVHD (Graft Versus Host Disease) was given to the subject/participant during the assessment period.

Proposed 1.00 2018-12-12 15:44:33.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C59577 Cigarette smoking lifetime ever indicate code

Code indicating whether the subject/participant has, in his or her lifetime, ever tried cigarette smoking.

Proposed 1.00 2019-04-12 11:10:40.0 PhenX Toolkit: Cigarette Smoking Status - Adolescent Sickle Cell Disease Sickle Cell Disease
C58630 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Joints stiff when awaken past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant's joints were very stiff when he or she awakened, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C59752 Change lightbulb overhead difficulty scale

Scale of the difficulty the subject/participant has in changing a lightbulb above his or her head

Proposed 1.00 2019-06-20 11:50:39.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C58791 Donor meet institution protocol criteria indicate code

Code indicating whether the donor meets institutional and protocol criteria for donation

Proposed 1.00 2018-12-11 13:02:29.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59877 Limit social activity due fatigue past 7 day frequency scale

Scale of the frequency over the past 7 days that the subject/participant had to limit his or her social activities due to fatigue

Proposed 1.00 2019-06-24 14:26:55.0 PROMIS Item Bank v1.0 - Fatigue Calibrated Items Sickle Cell Disease Sickle Cell Disease
C59446 Feel life worth living past week frequency scale

Scale of the frequency over the past week that the subject/participant felt life is worth living

Proposed 1.00 2019-04-04 12:48:29.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C56551 PROMIS - Cognitive Function people told me trouble remember information scale

Scale related to how often an individual has had other people tell him/her that he/she seemed to have trouble remembering information in the past 7 days, as part of the PROMIS Cognitive Function

Proposed 1.00 2017-06-15 10:01:13.0 PROMIS Item Bank v2.0 - Cognitive Function Sickle Cell Disease Sickle Cell Disease
C59636 Pain feel deep past 7 day scale

Scale of the degree to which the subject/participant's pain presented with a deep quality over the past 7 days.

Proposed 1.00 2019-06-18 14:08:12.0 PROMIS Scale v2.0 - Nociceptive Pain Quality 5a Sickle Cell Disease Sickle Cell Disease
C58700 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Fall asleep difficulty past 7 day scale

Scale for the difficulty over the past 7 days that the subject/participant had falling asleep, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-26 15:42:48.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C59712 Carry laundry basket up stairs difficulty scale

Scale of the difficulty the subject/participant has in carrying a laundry basket up a flight of stairs

Proposed 1.00 2019-06-20 10:06:21.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C59356 Primary health care provider explain clearly last 12 month frequency status

Status of the frequency that the subject/participant's primary health care provider explained things clearly in the last 12 months

Proposed 1.00 2019-04-01 15:17:52.0 PhenX Toolkit: Quality of Care - Adults Sickle Cell Disease Sickle Cell Disease
C56445 PROMIS - Pain Behavior when pain move extreme slow scale

Scale related to an individual feeling as if when he/she was in pain he/she moved extremely slowly in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C59544 Medicare insurance coverage code

Code indicating whether the subject/participant is covered by insurance provided through Medicare

Proposed 1.00 2019-04-11 10:16:19.0 PhenX Toolkit: Health Insurance Coverage Sickle Cell Disease Sickle Cell Disease
C58663 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis past 12 month day count code

Code for the count of days in the past 12 months on which the subject/participant had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C55696 PROMIS - Dyspnea Functional limitations sing hum scale

Scale related to an individual being able to sing or hum, as part of the PROMIS Dyspnea Functional Limitations

Proposed 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
C59228 Able rely friends past 7 day frequency code

Code for the frequency over the past 7 days that the subject/participant was able to rely on his or her friends

Proposed 1.00 2019-03-27 13:55:37.0 PhenX Toolkit: Quality of Life - Pediatric Sickle Cell Disease Sickle Cell Disease
C59409 Child stroke subsequent clot clinical symptom new duration range

Range of duration of new symptoms presented by the respondent's child at the time of his or her most recent stroke or other clot.

Proposed 1.00 2019-04-03 12:55:50.0 PhenX Toolkit: Recovery and Recurrence Questionnaire - Pediatric Sickle Cell Disease Sickle Cell Disease
C56543 PROMIS - Cognitive Function trouble remember new information scale

Scale related to how often an individual has had trouble remembering new information, like phone numbers or simple instructions in they past 7 days, as part of the PROMIS Cognitive Function

Proposed 1.00 2017-06-15 10:01:13.0 PROMIS Item Bank v2.0 - Cognitive Function Sickle Cell Disease Sickle Cell Disease
C54688 PROMIS - Global Health quality of life scale

Scale related to an individual's rating of his/her quality of life, as part of the PROMIS Global Health

Proposed 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 4213