CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 1 - 25 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C55773 Imaging MRI scanner used count

The number of different MRI scanners that were used on the subject.

Supplemental 1.00 2017-05-31 12:11:13.0 Magnetic Resonance Angiography (MRA) Sickle Cell Disease Sickle Cell Disease
C59839 Do 2 hour physical labor health limit scale

Scale of the degree to which the subject/participant's health limits his or her ability to perform 2 hours of physical labor

Supplemental 1.00 2019-06-21 13:49:48.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C54812 PROMIS - Dyspnea severity put on sock stocking scale

Scale related to the individual being able to put on socks or stockings, as part of the PROMIS Dyspnea Severity

Supplemental 1.00 2017-04-12 10:47:21.0 PROMIS Item Bank v1.0 - Dyspnea Severity Sickle Cell Disease Sickle Cell Disease
C58764 Treatment initiated code

Indicate whether Sildenafil, Bosentan, Oxygen with RBC Transfusions, or another method was used to initiate treatment.

Proposed 1.00 2018-12-10 13:11:24.0 SCD Events of Special Interest Form (ESI) Sickle Cell Disease Sickle Cell Disease
C60483 Integrating viral vector copy number blood CD3 plus lineage value

Value of the integrating viral vector copy number (VCN) in blood for the CD3+ lineage

Supplemental 1.00 2021-04-22 13:25:18.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C58735 Serum creatinine most recent measurement

Measurement of the most recent serum creatinine evaluation.

Proposed 1.00 2018-12-06 11:59:14.0 PhenX Toolkit: Serum Creatinine Sickle Cell Disease Sickle Cell Disease
C54702 Epworth Sleepiness Scale (ESS) - Doze off likelihood sit talk code

The code denoting the subect/participant's self-reported likelihood of dozing off while sitting and talking, as part of the Epworth Sleepiness Scale (ESS)

Supplemental 1.00 2017-04-10 11:48:33.0 Epworth Sleepiness Scale (ESS) - Adult Version Sickle Cell Disease Sickle Cell Disease
C56393 Conners Continuous Performance Test 3rd Edition (CPT3) - Sustained attention omission block count

The number of missed targets by block, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Supplemental 1.00 2017-06-09 15:42:50.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C60697 Apheresis device manufacturer model text

The free-text field related to apheresis device manufacturer and model.

Exploratory 1.00 2021-05-10 12:12:04.0 Apheresis Sickle Cell Disease Sickle Cell Disease
C58658 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Hip shoulder damage due sickle cell medical professional ever tell indicate code

Code indicating whether the subject/participant has ever been told by a medical professional that he or she has hip or shoulder damage due to sickle cell disease, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 12:37:10.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sickle Cell Disease - Medical History Checklist Sickle Cell Disease Sickle Cell Disease
C56480 PROMIS - Pain Behavior when pain avoid physical contact scale

Scale related to the individual feeling as if when in pain he/she avoided physical contact with others in the past 7 days, as part of the PROMIS Pain Behavior

Proposed 1.00 2017-06-12 12:59:11.0 PROMIS Item Bank v1.1 - Pain Behavior Sickle Cell Disease Sickle Cell Disease
C59088 Future research blood sample consent withdrawal code

Code indicating whether or not patient withdrew consent to provide optional blood samples for future research or ancillary studies

Proposed 1.00 2019-01-14 14:21:41.0 Withdrawal of Consent Form (WOC) Sickle Cell Disease Sickle Cell Disease
C59043 Chronic kidney disease toxicity grade

Grade of chronic kidney disease toxicity exhibited by the patient.

Supplemental 1.00 2019-01-10 12:45:24.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59799 Run come complete stop difficulty scale

Scale of the difficulty the subject/participant has in coming to a complete stop while running

Supplemental 1.00 2019-06-21 11:16:45.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C58779 Female childbearing potential indicate code

Code indicating whether the subject/participant is a female of childbearing potential.

Proposed 1.00 2018-12-11 10:39:18.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59968 Platelet count value

Value of the count of platelets in the subject/participant's complete blood cell (CBC) sample.

Supplemental 1.00 2020-09-01 13:36:15.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C54604 Informant participant relationship duration

Duration for which the informant has known the subject/participant

Supplemental 1.00 2017-03-22 09:46:35.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C60188 Platelet count 150K per microliter 50 percent decrease from baseline indicator

Indicator of whether the subject/participant experienced thrombocytopenia (or decrease in platelet count) defined as a platelet count 150,000 per microliter or a 50 percent decrease from baseline.

Supplemental 1.00 2021-02-24 12:26:22.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C60395 Laboratory procedure red blood cell count

The red blood cell count.

Exploratory 1.00 2021-04-04 23:41:57.0 Adhesion and Viscosity Sickle Cell Disease Sickle Cell Disease
C58613 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Health prevent all activity past 30 day frequency scale

Scale for the frequency in the past 30 days that the subject/participant was prevented from all activity because of his or her health, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental 1.00 2018-10-24 12:27:41.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Social Functioning - Item Bank Sickle Cell Disease Sickle Cell Disease
C56335 NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up unadjusted scale score

The unadjusted scale score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C18689 Imaging anatomic site other text

The free-text field related to 'Imaging anatomic site' specifying other text. Type of body part or anatomy scanned in the imaging study

Supplemental 1.00 2014-05-27 13:34:46.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C60080 Warts prominent indicator

Indicator of whether the warts the subject/participant presents with are a prominent clinical feature.

Supplemental 1.00 2020-09-03 15:35:46.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C60292 Echocardiogram septum ventricular thickness measurement

Measurement in millimeters of the thickness of the subject/participant's ventricular septum, assessed by echocardiogram.

Core 1.00 2021-03-03 12:43:25.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C56294 NIH Toolbox Cognitive - Cognition early childhood composite fully adjusted scale score

The fully adjusted scale score for the Cognition Early Childhood field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:56:45.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
Displaying 1 - 25 of 5231