CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 26 - 50 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C58821 Vaso-occlusive crisis new require hospital outpatient parenteral opioid code

Code indicating whether the patient experienced a new onset of painful vaso-occlusive crisis requiring hospitalization OR parental opioid drugs in the outpatient setting during the assessment period.

Proposed 1.00 2018-12-12 14:41:28.0 SCD Events of Special Interest Form (ESI) Sickle Cell Disease Sickle Cell Disease
C60500 Evidence polyclonal gene-modified hematopoiesis specimen type

Type of specimen in which evidence was found of polyclonal gene-modified hematopoiesis.

Supplemental 1.00 2021-04-22 14:23:03.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C59189 Sample comment text

The free-text field for recording comments about the sample.

Proposed 1.00 2019-03-27 10:51:29.0 PhenX Toolkit: Serum or Plasma Ferritin Sickle Cell Disease Sickle Cell Disease
C54091 Delis-Kaplan Executive Function System (DKEFS) Trail Making Test (TMT) - Difference scaled score

Scaled score difference, as part of Delis-Kaplan Executive Function System Trail Making Test (DKEFS-TMT)

Supplemental 1.00 2017-02-13 00:00:00.0 Trail Making Test (TMT), Delis-Kaplan Executive Function System (D-KEFS) Sickle Cell Disease Sickle Cell Disease
C20836 Patient-Reported Outcome Measurement Information System (PROMIS) - Fear no sleep after awake assessment past week scale

The scale which represents how often the participant was afraid he/she would not get back to sleep after waking up in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Supplemental - Highly Recommended 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C54606 Brief Test of Executive Function Second Edition (BRIEF 2) - Inhibit total raw scale score

Total score of the raw scale for the inhibit function, as part of the Brief Test of Executive Function Second Edition (BRIEF 2)

Proposed 1.00 2017-03-22 09:57:02.0 Behavior Rating Inventory of Executive Function (BRIEF) - Second Edition (BRIEF-2) Sickle Cell Disease Sickle Cell Disease
C58675 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Worry die soon past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was worried that he or she would die soon, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Supplemental - Highly Recommended 1.00 2018-10-26 11:58:42.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Emotional Impact - Item Bank Sickle Cell Disease Sickle Cell Disease
C59043 Chronic kidney disease toxicity grade

Grade of chronic kidney disease toxicity exhibited by the patient.

Proposed 1.00 2019-01-10 12:45:24.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59070 Idiopathic pneumonia syndrome date

Date of idiopathic pneumonia syndrome

Supplemental 1.00 2019-01-11 13:20:38.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59737 Squeeze new tube toothpaste difficulty scale

Scale of the difficulty the subject/participant has in squeezing a new tube of toothpaste

Supplemental 1.00 2019-06-20 11:15:02.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C56384 Conners Continuous Performance Test 3rd Edition (CPT3) - Inattentiveness hit reaction time standard deviation value

The standard deviation of the subject's response speed consistency, as part of the Conners Continuous Performance Test 3rd Edition (CPT3).

Proposed 1.00 2017-06-09 15:33:41.0 Conners Continuous Performance Test 3rd Edition (Conners CPT 3) Sickle Cell Disease Sickle Cell Disease
C55774 Imaging headache relation time type

The type of timing of the imaging in relation to headache.

Supplemental 1.00 2017-05-31 12:14:56.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C58800 Death date

Date on which the subject/participant died

Proposed 1.00 2018-12-12 12:24:18.0 Follow Up Status Form - BMT CTN 1507 Sickle Cell Disease Sickle Cell Disease
C60460 Cytogenetic abnormality indicator

Indicator of whether abnormalities were identified in cytogenetics testing.

Supplemental 1.00 2021-04-22 09:49:40.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
C60418 Whole blood viscosity value

The value as related to blood viscosity or measure of the resistance of blood to flow.

Exploratory 1.00 2021-04-08 00:57:48.0 Adhesion and Viscosity Sickle Cell Disease Sickle Cell Disease
C58664 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Pain episode crisis last occur time elapse code

Code for the time elapsed since the subject/participant last had a pain episode or crisis, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Core 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Pain Episode Frequency and Severity Measure Sickle Cell Disease Sickle Cell Disease
C59697 Run over uneven ground difficulty scale

Scale of the difficulty the subject/participant has in running over uneven ground

Supplemental 1.00 2019-06-19 13:47:51.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C21494 Wechsler Adult Intelligence Scale IV (WAIS IV) - Digit span backward subtest trial number

Trial number, as part of Wechsler Adult Intelligence Scale IV (WAIS IV) Digit Span Backward subtest

Supplemental 1.00 2015-07-22 11:32:44.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C60309 Echocardiogram right ventricle diameter basal measurement

Measurement in millimeters of the basal diameter of the right ventricle (RV), assessed by echocardiogram.

Core 1.00 2021-03-04 14:45:54.0 Echocardiogram Sickle Cell Disease Sickle Cell Disease
C56433 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Perceptual Reasoning confidence interval upper bound value

The upper bound of the subject's Perceptual Reasoning confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

Supplemental 1.00 2017-06-12 12:55:22.0 PhenX CDEs Sickle Cell Disease Sickle Cell Disease
C18708 Imaging pulse sequence other text

The free-text field related to 'Imaging pulse sequence type' specifying other text. Type of imaging pulse sequence used

Supplemental 1.00 2014-05-27 13:34:46.0 Silent Cerebral Infarct Sickle Cell Disease Sickle Cell Disease
C56280 NIH Toolbox Cognitive - Cognition crystallized composite age adjusted scale score

The age adjusted scale score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:38:05.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C60165 Oxygen saturation current measurement

Measurement of the subject/participant's current oxygen (O2) saturation.

Core 1.00 2021-02-23 16:47:23.0 Acute Chest Syndrome Sickle Cell Disease Sickle Cell Disease
C60392 Sample collect date

Date on which a sample was collected.

Exploratory 1.00 2021-01-15 16:40:21.0 Adhesion Molecules Assay Exploratory Sickle Cell Disease Sickle Cell Disease
C56318 NIH Toolbox Cognitive - List scoring working memory age 7 up raw score

The raw score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
Displaying 26 - 50 of 5231