CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 26 - 50 of 4213
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C59447 Smile laugh least once day past week frequency scale

Scale of the frequency over the past week that the subject/participant smiled and laughed at least once a day

Proposed 1.00 2019-04-04 12:48:29.0 PhenX Toolkit: Functionality After Stroke Sickle Cell Disease Sickle Cell Disease
C59637 Pain feel steady past 7 day scale

Scale of the degree to which the subject/participant's pain presented with a steady quality over the past 7 days.

Proposed 1.00 2019-06-18 14:09:34.0 PROMIS Scale v2.0 - Nociceptive Pain Quality 5a Sickle Cell Disease Sickle Cell Disease
C59121 Constipation grade

Grade of constipation exhibited by the patient

Proposed 1.00 2019-01-17 07:16:45.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C59713 Write pen pencil difficulty scale

Scale of the difficulty the subject/participant has in writing with a pen or pencil

Proposed 1.00 2019-06-20 10:08:49.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C58724 Echocardiograph tricuspid valve regurgitant jet velocity equal greater 2.7 meter second indicate code

Code indicating whether the subject/participant has an echocardiographic finding of tricuspid valve regurgitant jet velocity (TRJV) greater than or equal to 2.7 meters per second.

Proposed 1.00 2018-12-06 10:39:20.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C54691 PROMIS - Global Health social satisfaction rate scale

Scale related to an individual's rating of his/her satisfaction with his/her social activities, as part of the PROMIS Global Health

Proposed 1.00 2017-04-07 15:34:25.0 PROMIS Item Bank v1.2 - Global Health Sickle Cell Disease Sickle Cell Disease
C59545 Income disability based government assistance insurance coverage code

Code indicating whether the subject/participant is covered by insurance provided through an income or disability based government assistance program such as Medicaid

Proposed 1.00 2019-04-11 10:16:19.0 PhenX Toolkit: Health Insurance Coverage Sickle Cell Disease Sickle Cell Disease
C59052 DLCOc not done code

Code indicating whether diffusing capacity of the lung adjusted for hemoglobin (DLCOc) was completed from within one month of the assessment

Proposed 1.00 2019-01-10 13:56:34.0 Chronic GVHD Provider Survey (PCG) Sickle Cell Disease Sickle Cell Disease
C59104 Urticaria grade

Grade of the patient's urticaria

Proposed 1.00 2019-01-15 14:41:05.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C19778 Medical history wheezing pulmonary nebulizer use frequency

Frequency of nebulizer use in relation to wheezing

Proposed 1.00 2015-02-05 00:00:00.0 Intake Medical History Sickle Cell Disease Sickle Cell Disease
C20816 Patient-Reported Outcome Measurement Information System (PROMIS) - Sleep difficulty assessment past week scale

The scale which represents how often the participant had difficulty falling asleep in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 08:50:35.0 PROMIS Item Bank v1.0 - Sleep Disturbance Sickle Cell Disease Sickle Cell Disease
C59008 Serum ferritin measurement date

Date of the patient's serum ferritin level measurement

Proposed 1.00 2019-01-07 14:53:22.0 Physical Exam Form - 1507 Sickle Cell Disease Sickle Cell Disease
C55681 PROMIS - Dyspnea Functional limitations walk 5 stairs without stop scale

Scale related to an individual being able to walk up 5 stairs without stopping, as part of the PROMIS Dyspnea Functional Limitations

Proposed 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
C58778 Autoimmune disease prevent tolerate transplant indicate code

Code indicating whether the subject/participant has an autoimmune disease that would prevent him or her from tolerating a transplant.

Proposed 1.00 2018-12-11 10:33:42.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59410 Child stroke episode count

Count of episodes of stroke or internal clotting experienced by the respondent's child since his or her initial stroke

Proposed 1.00 2019-04-03 15:33:42.0 PhenX Toolkit: Recovery and Recurrence Questionnaire - Pediatric Sickle Cell Disease Sickle Cell Disease
C59067 Dyspnea grade

Grade of dyspnea exhibited by the patient.

Proposed 1.00 2019-01-11 11:28:38.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C58939 Additional agents administered type

Type of specific additional agent administered for an infection.

Proposed 1.00 2019-01-03 15:21:49.0 Infection Form (IFN) Sickle Cell Disease Sickle Cell Disease
C58668 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Insomnia most of night past 7 day frequency scale

Scale for the frequency in the past 7 days that the subject/participant had insomnia for most of the night, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-25 16:53:20.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Sleep Impact Item Bank Sickle Cell Disease Sickle Cell Disease
C20850 Patient-Reported Outcome Measurement Information System (PROMIS) - Energy sufficient past week scale

The scale which represents how often the participant had enough energy in the past 7 days, as part of the Patient-Reported Outcome Measurement Information System (PROMIS).

Proposed 1.00 2015-05-21 09:54:31.0 PROMIS Item Bank v1.0 - Sleep Related Impairment Sickle Cell Disease Sickle Cell Disease
C59033 Growth factor administer after neutrophil count decline indicate code

Code indicating whether growth factor was administered following decline in neutrophil counts.

Proposed 1.00 2019-01-09 12:46:37.0 Secondary Graft Failure Sickle Cell Disease Sickle Cell Disease
C58870 Forced expiratory volume low measurement

Lowest measurement of FEV1 (Forced Expiratory Volume)

Proposed 1.00 2018-12-14 13:44:41.0 Follow Up/Chronic GVHD Form Sickle Cell Disease Sickle Cell Disease
C58634 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) - Unable move because joint stiff daytime past 7 day frequency scale

Scale for the frequency over the past 7 days that the subject/participant was unable to move because of joint stiffness during the day, as part of the Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me).

Proposed 1.00 2018-10-24 15:27:18.0 Adult Sickle Cell Quality of Life Measurement Information System (ASCQ-Me) v2.0 Stiffness Impact - Short Form Sickle Cell Disease Sickle Cell Disease
C56441 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) - Full Scale IQ 2 confidence interval upper bound value

The upper bound of the subject's Full Scale IQ-2 confidence interval, as part of the Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II).

Proposed 1.00 2017-06-12 13:06:29.0 Wechsler Abbreviated Scale of Intelligence - Second Edition (WASI-II) Sickle Cell Disease Sickle Cell Disease
C58987 Absolute neutrophil count measurement date

Date on which ANC (absolute neutrophil count) was measured.

Proposed 1.00 2019-01-07 12:15:34.0 Hematopoiesis Form Sickle Cell Disease Sickle Cell Disease
C55674 PROMIS - Dyspnea Functional limitations walk half mile without stop scale

Scale related to an individual being able to walk for half a mile (almost 1 km) without stopping, as part of the PROMIS Dyspnea Functional Limitations

Proposed 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
Displaying 26 - 50 of 4213