CDE Catalog

View and download available CureSCi CDEs using filters below. For best results, clear form between searches.

Displaying 26 - 50 of 5231
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CDE ID CDE Name Definition Classification Version Number Version Date CRF Name ©, ® or TM Disease Name Sub Disease Name
C56334 NIH Toolbox Cognitive - Pattern comparison processing speed age 7 up computed score

The computed score for the NIHTB Pattern Comparison Processing Speed Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C60335 N-acetyl-beta-D-glucosaminidase measurement

Measurement in units per gram of creatinine (U/g of creatinine) of N-acetyl-beta-D-glucosaminidase in the subject/participant's urine.

Exploratory 1.00 2021-03-10 13:33:29.0 Renal Function Assessments Sickle Cell Disease Sickle Cell Disease
C54605 Informant participant relationship duration unit of measure

Field related to 'Informant participant relationship duration' specifying the unit of measure of the duration for which the informant has known the participant

Supplemental 1.00 2017-03-22 09:46:35.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C56323 NIH Toolbox Cognitive - List scoring working memory age 7 up fully adjusted scale score

The fully adjusted scale score for the NIHTB List Scoring Working Memory Age 7+ field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 10:52:47.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C59721 Tie shoelace difficulty scale

Scale of the difficulty the subject/participant has in tying his or her shoelaces

Supplemental 1.00 2019-06-20 10:25:27.0 PROMIS Item Bank v2.0 - Physical Function Sickle Cell Disease Sickle Cell Disease
C21924 Wechsler Adult Intelligence Scale III (WAIS III) - Digit span backward subtest total raw score

Total raw score, as part of Wechsler Adult Intelligence Scale III (WAIS III) Digit Span Backward subtest

Supplemental 1.00 2016-06-06 14:07:18.0 Wechsler Adult Intelligence Scale - Fourth Edition (WAIS-IV) Sickle Cell Disease Sickle Cell Disease
C60128 Surgical splenectomy date

Date on which the subject/participant's spleen was surgically removed.

Core 1.00 2021-01-15 10:49:01.0 Acute Spleen Sickle Cell Disease Sickle Cell Disease
C60576 Transfusion lifetime total estimate count

Count of the estimated total number of transfusions received by the subject/participant in his or her lifetime.

Core 1.00 2021-04-28 14:21:56.0 Transfusion History Sickle Cell Disease Sickle Cell Disease
C19811 Medical history abdominal liver problem indicator

Indicator of history of liver problem

Supplemental 1.00 2015-02-05 00:00:00.0 Miscellaneous Sickle Cell-related CDEs Sickle Cell Disease Sickle Cell Disease
C58738 Creatinine clearance most recent measurement

Measurement of creatinine clearance from the most recent sample taken from the subject/participant

Proposed 1.00 2018-12-06 12:09:07.0 Haplo Sickle Cell Enrollment Form: Segment A Sickle Cell Disease Sickle Cell Disease
C59985 Lymphocyte analysis perform prior disease treatment indicator

Indicator of whether any lymphocyte analyses were performed prior to any disease treatment.

Supplemental 1.00 2020-09-01 17:38:02.0 Immune Function Form Sickle Cell Disease Sickle Cell Disease
C58929 Infection severity code

Code indicating the severity of the infection.

Supplemental 1.00 2018-12-19 13:25:56.0 Infection Form - Adapted from BMTCTN 15070 Sickle Cell Disease Sickle Cell Disease
C56281 NIH Toolbox Cognitive - Cognition crystallized composite national age adjusted percentage value

The national percentile (age adjusted) that the subject is in, with respect to the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:39:34.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C56278 NIH Toolbox Cognitive - Cognition crystallized composite computed score

The computed score for the Cognition Crystallized Composite field of the NIH Toolbox Cognitive Battery.

Supplemental - Highly Recommended 1.00 2017-06-09 09:35:23.0 NIH Toolbox Cognitive Battery Sickle Cell Disease Sickle Cell Disease
C57965 Laboratory procedure percent lymphocytes value

Value of percent lymphocytes.

Proposed 1.00 2018-01-22 11:03:02.0 PhenX Protocol: Complete Blood Count (CBC) Sickle Cell Disease Sickle Cell Disease
C55690 PROMIS - Dyspnea Functional limitations get in or out car scale

Scale related to an individual being able to get in or out of a car, as part of the PROMIS Dyspnea Functional Limitations

Supplemental 1.00 2017-05-24 10:00:38.0 PROMIS Item Bank v1.0 - Dyspnea Functional Limitations Sickle Cell Disease Sickle Cell Disease
C59104 Urticaria grade

Grade of the patient's urticaria

Proposed 1.00 2019-01-15 14:41:05.0 Toxicity Form Sickle Cell Disease Sickle Cell Disease
C60109 Anemia associated condition type other text

The free-text field related to "Anemia associated condition type" for specifying associated conditions not listed.

Core 1.00 2021-01-14 15:05:29.0 Acute Anemia Sickle Cell Disease Sickle Cell Disease
C60589 Hydroxyurea stop duration

Duration of time in months for which the subject/participant's hydroxyurea treatment has been stopped.

Core 1.00 2021-04-28 15:06:07.0 Endocrine, Infertility and Bone Health Sickle Cell Disease Sickle Cell Disease
C60607 Priapism erection duration text

Text field for capturing the value and units of the duration of erection reported by the subject/participant.

Core 1.00 2021-04-29 13:27:59.0 Priapism Core Sickle Cell Disease Sickle Cell Disease
C59417 Height without shoes status

Status indicating whether subject/participant did not know height or refused measurement.

Proposed 1.00 2019-04-03 16:22:47.0 PhenX Toolkit: Height - Self-Reported Height Sickle Cell Disease Sickle Cell Disease
C20364 Pittsburgh Sleep Quality Index (PSQI) - Bad dream past month scale

The scale to which the subject had bad dreams during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI).

Supplemental 1.00 2015-03-11 11:17:32.0 Pittsburgh Sleep Quality Index (PSQI) Sickle Cell Disease Sickle Cell Disease
C58818 New onset acute chest syndrome code

Code indicating whether the patient experienced a new onset of acute chest syndrome requiring hospitalization during the assessment period.

Proposed 1.00 2018-12-12 14:33:09.0 SCD Events of Special Interest Form (ESI) Sickle Cell Disease Sickle Cell Disease
C59948 Death cause source

Source from which the cause of the subject/participant's death was obtained.

Core 1.00 2020-08-19 15:06:04.0 Death Form Sickle Cell Disease Sickle Cell Disease
C60544 Gene editing off target site dominant location

Location(s) of the dominant off-target gene editing site(s).

Supplemental 1.00 2021-04-23 13:04:33.0 Genotoxicity Sickle Cell Disease Sickle Cell Disease
Displaying 26 - 50 of 5231